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Brain arteriovenous malformation (AVM)
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DBS stage one Request for PMOS unknown
Monday I underwent the first stage of DBS at Oregon Health Sciences University in Portland. The procedure is done under full anesthesia utilizing a previous MRI and a small cat scan during surgery to accurately target the treatment site that for me was the Globus pallidus internus. During the prep
Monday I underwent the first stage of DBS at Oregon Health Sciences University in Portland. The procedure is done under full anesthesia utilizing a previous MRI and a small cat scan during surgery to accurately target the treatment site that for me was the Globus pallidus internus. During the prep
etterus
in
Cure Parkinson's
10 years ago
DBS
DBS - Tell me about your experience. My Doc has suggested I look into it.
DBS - Tell me about your experience. My Doc has suggested I look into it.
Jerebet
in
Cure Parkinson's
10 years ago
Pre DBS musings... making the blind eye see
Next week this time, I'll be in surgery for DBS at OHSU in Portland OR under the care of Dr Kim Burchiel, one of the worlds leading authorities on PD. I find myself anticipating the best outcomes knowing that it is not a cure but rather a symptom management with less drugs. I, too, dislike loading
Next week this time, I'll be in surgery for DBS at OHSU in Portland OR under the care of Dr Kim Burchiel, one of the worlds leading authorities on PD. I find myself anticipating the best outcomes knowing that it is not a cure but rather a symptom management with less drugs. I, too, dislike loading
etterus
in
Cure Parkinson's
10 years ago
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Dbs surgery -- if you have had dbs surgery please tell me about your experience after the electrode implant.
I have had the stage 1 surgery and it is a month before the second stage controller implant. In the meantime , my Parkinson's symptoms have gotten so much worse. After the second stage, it will be 3 more weeks before the programming. I can barely function now. I am afraid that after the 2nd surgery
I have had the stage 1 surgery and it is a month before the second stage controller implant. In the meantime , my Parkinson's symptoms have gotten so much worse. After the second stage, it will be 3 more weeks before the programming. I can barely function now. I am afraid that after the 2nd surgery
Hidden
in
Cure Parkinson's
10 years ago
Hi Everyone - update
Hi, after months of feeling poorly and seeing one private endo. I went to see a different one and they have found I consistently have an elevated FT4 level with a normal TSH. They have suggested this could be secondary hyperthyroidism and I require some more detailed bloods. Has anyone else got this
Hi, after months of feeling poorly and seeing one private endo. I went to see a different one and they have found I consistently have an elevated FT4 level with a normal TSH. They have suggested this could be secondary hyperthyroidism and I require some more detailed bloods. Has anyone else got this
Swan29
in
Thyroid UK
10 years ago
Anyone know of Meningitis/Encephalitis help in the US?
Hi all- Diagnosed with viral meningoencephalitis two months ago. The daily battle, charging ahead as best I can though recovering! I have found most meningitis or encephalitis help or associations or specialists are all in the UK or Australia (YAY my original home!!) or India. Does anyone know of
Hi all- Diagnosed with viral meningoencephalitis two months ago. The daily battle, charging ahead as best I can though recovering! I have found most meningitis or encephalitis help or associations or specialists are all in the UK or Australia (YAY my original home!!) or India. Does anyone know of
ShaeButter
in
Meningitis Now
10 years ago
Boston Scientific's "Vercise DBS System"
Anyone here in Europe or Australia that has with the "Vercise DBS System"? It apparently stimulates with shorter pulses and a 25 year battery.
Anyone here in Europe or Australia that has with the "Vercise DBS System"? It apparently stimulates with shorter pulses and a 25 year battery.
toomuch
in
Cure Parkinson's
10 years ago
numbness in legs and feet/plus bells palsy/shingles
diag. 8months WG has anyone numbness in legs and feet ,recovery time for same, had flue inj. 4weeks ago and for last 2weeks had either bells palsy or shingles in lh ear.
diag. 8months WG has anyone numbness in legs and feet ,recovery time for same, had flue inj. 4weeks ago and for last 2weeks had either bells palsy or shingles in lh ear.
tom21
in
Vasculitis UK
10 years ago
Sleep?
Something weird happened last night. I had 8 + hours of sleep. My neurologist and programmer for my DBS said increased sleeping times can be improved by the surgery at my programming session last week, but i never expected this. Hope the improved sleep length continues. I have had unfortunate side
Something weird happened last night. I had 8 + hours of sleep. My neurologist and programmer for my DBS said increased sleeping times can be improved by the surgery at my programming session last week, but i never expected this. Hope the improved sleep length continues. I have had unfortunate side
mktbob55
in
Cure Parkinson's
10 years ago
Emma
30 yrs later after having TB Meningitis i have discovered that i have been suffering with mild aquired brain injury as a result of TBM which affects me immensly,i have been trying to find the right help and support but dont seem to be getting anywhere,is there anybody that can point me in the right
30 yrs later after having TB Meningitis i have discovered that i have been suffering with mild aquired brain injury as a result of TBM which affects me immensly,i have been trying to find the right help and support but dont seem to be getting anywhere,is there anybody that can point me in the right
emma1baldwin
in
Headway
10 years ago
relaxing during DBS
What did you do to relax and lower your anxiety during the long DBS procedure?
What did you do to relax and lower your anxiety during the long DBS procedure?
Hidden
in
Cure Parkinson's
10 years ago
ENT issues - anyone else suffering?
I have been living with Hashimoto's (officially) since March although I believe I have had it for several years. Around the same time I was referred to ENT for an enlarged tonsil on the left side, nasal congestion on right side and a stuffy ear on the right side with a whooshing noise. THe ENT did a
I have been living with Hashimoto's (officially) since March although I believe I have had it for several years. Around the same time I was referred to ENT for an enlarged tonsil on the left side, nasal congestion on right side and a stuffy ear on the right side with a whooshing noise. THe ENT did a
jlo211
in
Thyroid UK
10 years ago
DBS and immobility
For those of you who have had DBS surgery-- When I wake up in the morning, I can't move. It is a great effort to reach for the pill bottle. Everything is stiff including my hands. Will DBS help this?
For those of you who have had DBS surgery-- When I wake up in the morning, I can't move. It is a great effort to reach for the pill bottle. Everything is stiff including my hands. Will DBS help this?
Hidden
in
Cure Parkinson's
10 years ago
Mouth shingles
Hi everyone my daughter has been diagnosed with mouth shingles, we are not sure if it will effect me in anyway. I'm on mtx 15mg. Not sure whether to fone doctor to find out don't want to panic over nothing lol luv Michelle xxx
Hi everyone my daughter has been diagnosed with mouth shingles, we are not sure if it will effect me in anyway. I'm on mtx 15mg. Not sure whether to fone doctor to find out don't want to panic over nothing lol luv Michelle xxx
chemar
in
NRAS
10 years ago
Position of relief from foot dystonia
I am experiencing more off time with increasing foot cramping, bad enough to put me on my hands and knees. Serendipity strikes! I was so tired I crawled up to a couch and rested my upper body on it. Still on my knees I pressed the top of my foot into the carpet which shut down the cramp. This was
I am experiencing more off time with increasing foot cramping, bad enough to put me on my hands and knees. Serendipity strikes! I was so tired I crawled up to a couch and rested my upper body on it. Still on my knees I pressed the top of my foot into the carpet which shut down the cramp. This was
etterus
in
Cure Parkinson's
10 years ago
Had DBS in July, No tremors but have taken a nose dive in other areas, anyone else have this experience?
What a gift with no tremors but now I'm experiencing what feels like some late stage symptoms. Typing this is very slow and difficult, my walk is shuffling with forward movement, almost falling lots. Slow and uncoordinated. Brain slow and difficult to coordinate, getting overwhelmed easilyl Handwriting
What a gift with no tremors but now I'm experiencing what feels like some late stage symptoms. Typing this is very slow and difficult, my walk is shuffling with forward movement, almost falling lots. Slow and uncoordinated. Brain slow and difficult to coordinate, getting overwhelmed easilyl Handwriting
jebbers
in
Cure Parkinson's
10 years ago
Viral Meningitis: Your Ideas
Hi Everyone We are just starting to put together our plans for the coming year. One area we are keen to focus on is viral meningitis. As many of you know, only too well, viral meningitis is often misunderstood by others. This is where we would really appreciate your ideas to help us plan our next steps
Hi Everyone We are just starting to put together our plans for the coming year. One area we are keen to focus on is viral meningitis. As many of you know, only too well, viral meningitis is often misunderstood by others. This is where we would really appreciate your ideas to help us plan our next steps
MNClaireD
Meningitis Now
in
Meningitis Now
10 years ago
Viral Menigitis
4 weeks ago my husband was diagnosed with viral meningitis. He is a very active guy and has always taken such good care of himself, he is an avid runner and just started competing in triathlons. We have a 19 month old beautiful baby girl and he is afraid of how much time he is going to miss out on
4 weeks ago my husband was diagnosed with viral meningitis. He is a very active guy and has always taken such good care of himself, he is an avid runner and just started competing in triathlons. We have a 19 month old beautiful baby girl and he is afraid of how much time he is going to miss out on
dhattenbach
in
Meningitis Now
10 years ago
long term help from dbs?
I would like to hear from people who have been using dbs for a long time---years. DOes it still help? How long do you see benefits from it?
I would like to hear from people who have been using dbs for a long time---years. DOes it still help? How long do you see benefits from it?
Hidden
in
Cure Parkinson's
10 years ago
Does DBS help ability to walk?
I am scheduled for DBS soon and I am still apprehensive because my main problem is that I am losing the ability to walk. I have very little tremor. Has anyone one any experience with DBS helping or not helping their ability to move or walk? Also, in the mornings I cannot move when I wake up and my whole
I am scheduled for DBS soon and I am still apprehensive because my main problem is that I am losing the ability to walk. I have very little tremor. Has anyone one any experience with DBS helping or not helping their ability to move or walk? Also, in the mornings I cannot move when I wake up and my whole
Hidden
in
Cure Parkinson's
10 years ago
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