Hi all- Diagnosed with viral meningoencephalitis two months ago. The daily battle, charging ahead as best I can though recovering! I have found most meningitis or encephalitis help or associations or specialists are all in the UK or Australia (YAY my original home!!) or India. Does anyone know of big US support? I want to help get some handouts together to help those with meningitis or encephalitis know what to do once they get sick. I've stumbled my way along- endlessly researching (since I forget most of what I read still) I want to save others the pain and stress to find help they need while they recover. As far as 1. Disability info and what is needed 2. Doctors/specialists/tests and how to get them, what they do, why they are good 3.Medical leave information with work and how to properly go about handling leave to keep your job/health insurance 4.Food stamps/Medical bill assistance/ Rent assistance to help while unable to work.
Let me know any thoughts as I get this idea brewing- I'm still going through my recovery so this will be a long term project for now CHEERS!