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Brain arteriovenous malformation (AVM)
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Langerhans cell histiocytosis
Hello everyone Iv'e been diagnosed with L C H. I wonder if anyone here has this
Hello everyone Iv'e been diagnosed with L C H. I wonder if anyone here has this
winterrose-23
in
Lung Conditions Community Forum
9 years ago
Out of the blue a brain tumour too
I had problems with balance and double vision the end of last year.. I recovered enough to go for a MRI , I just found out o have a brain tumour .. A large pineal cyst 😦. I can admit to being very worried about what is to happen next.. I find it hard not to worry when I have little information ..
I had problems with balance and double vision the end of last year.. I recovered enough to go for a MRI , I just found out o have a brain tumour .. A large pineal cyst 😦. I can admit to being very worried about what is to happen next.. I find it hard not to worry when I have little information ..
travelhear
in
Headway
9 years ago
Boston Scientific Vercise DBS System
In the US, the Boston Scientific DBS system is still undergoing approval studies before it can freely compete with Medtronics' DBS system. I am contemplating, participating in the study so that I can gain access to the new technologies that are only available through the new Boston Scientific Vercise
In the US, the Boston Scientific DBS system is still undergoing approval studies before it can freely compete with Medtronics' DBS system. I am contemplating, participating in the study so that I can gain access to the new technologies that are only available through the new Boston Scientific Vercise
CCole
in
Cure Parkinson's
9 years ago
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Brio Neurostimulation System is second such device approved for tremor disorders
DBS alternative Brio Neurostimulation System FRIDAY, June 12, 2015 (HealthDay News) -- The U.S. Food and Drug Administration on Friday approved a device that can be implanted into the brain to help people battling Parkinson's disease. The Brio Neurostimulation System is "an implantable deep brain
DBS alternative Brio Neurostimulation System FRIDAY, June 12, 2015 (HealthDay News) -- The U.S. Food and Drug Administration on Friday approved a device that can be implanted into the brain to help people battling Parkinson's disease. The Brio Neurostimulation System is "an implantable deep brain
Hidden
in
Cure Parkinson's
9 years ago
What next?/ shingles
I have felt strange the last few days and thought it was the lowering of the prednisone. Last night the pain , in unusual areas became intense and I thought I was having a heart attack. With the aid of the Internet, I am pretty sure I have Shingles. This occurred to me at 4:30 am so I have not contacted
I have felt strange the last few days and thought it was the lowering of the prednisone. Last night the pain , in unusual areas became intense and I thought I was having a heart attack. With the aid of the Internet, I am pretty sure I have Shingles. This occurred to me at 4:30 am so I have not contacted
30048
in
PMRGCAuk
9 years ago
Do I have a brain tumor please help
Do I have a brain tumor please help so scared please help I have had 2 eyes test one said thers no floaters n eyes r realy healthy and one said ther was but my eyes are fine but recently I have been seeing a blue blodge it scares me can this b through stress ease help
Do I have a brain tumor please help so scared please help I have had 2 eyes test one said thers no floaters n eyes r realy healthy and one said ther was but my eyes are fine but recently I have been seeing a blue blodge it scares me can this b through stress ease help
John12
in
Anxiety Support
9 years ago
DBS
How many of you who have had DBS would recommend it, and how many would say it didn't help? My neuro tells me I should have it done while I still can, but I really am nervous about it.
How many of you who have had DBS would recommend it, and how many would say it didn't help? My neuro tells me I should have it done while I still can, but I really am nervous about it.
Jocee
in
Cure Parkinson's
9 years ago
I rode a horse today!!!!
I wasn't sure I would ever ride again, as I have been preoccupied with the fear of falling off and hitting my head. My TBI was caused by a pony pushing me over when I was stood on the ground not a riding accident but the fear of a further BI has so far held me back from living. I have become so depressed
I wasn't sure I would ever ride again, as I have been preoccupied with the fear of falling off and hitting my head. My TBI was caused by a pony pushing me over when I was stood on the ground not a riding accident but the fear of a further BI has so far held me back from living. I have become so depressed
Jennaberri
in
Headway
9 years ago
DBS
For those who have had dbs and had no tremor, how did the surgery help? In what ways? Did it affect swallowing, speech, walking, medication?
For those who have had dbs and had no tremor, how did the surgery help? In what ways? Did it affect swallowing, speech, walking, medication?
michaela13
in
Cure Parkinson's
9 years ago
Viral meningitis and Lumbar Punch?
Hi hope everyone is ok,I have a question for any ladies or gents who have had viral meningitis and a lumbar punch. I was admitted to hospital 2weeks ago,spent 10 days there with viral meningitis.How long did it take for the headache to go and also for you to start feeling a bit more like yourself? I
Hi hope everyone is ok,I have a question for any ladies or gents who have had viral meningitis and a lumbar punch. I was admitted to hospital 2weeks ago,spent 10 days there with viral meningitis.How long did it take for the headache to go and also for you to start feeling a bit more like yourself? I
mum-two
in
LUPUS UK
9 years ago
Tetanus vaccine and hughes
Hi I was wondering if there was a confirmed association between hughes syndrome and tetanus vaccine boostrix as I have come happened upon some articles of an association I am worried because I have hughes syndrome and just unknowingly had a triple vaccine with tetanus because my daughter is pregnant
Hi I was wondering if there was a confirmed association between hughes syndrome and tetanus vaccine boostrix as I have come happened upon some articles of an association I am worried because I have hughes syndrome and just unknowingly had a triple vaccine with tetanus because my daughter is pregnant
AINS
in
Hughes Syndrome APS Forum
9 years ago
'MENS' (magneto-electric nanoparticles) - the next gen of DBS?
Excerpt: "With a magnet placed over the head of each subject animal, the particles were pulled through the blood-brain barrier, where they “coupled” the externally created magnetic field with the brain’s intrinsic electric field. This enabled researchers to wirelessly connect their computers and electronics
Excerpt: "With a magnet placed over the head of each subject animal, the particles were pulled through the blood-brain barrier, where they “coupled” the externally created magnetic field with the brain’s intrinsic electric field. This enabled researchers to wirelessly connect their computers and electronics
metacognito
in
Cure Parkinson's
9 years ago
Weight gain after DBS?
I keep hearing about weight gain after DBS surgery. Anyone experience that?
I keep hearing about weight gain after DBS surgery. Anyone experience that?
BaileyT
in
Cure Parkinson's
9 years ago
Not sure why I feel like this
I need some advice I have been suffering from headaches for over a week I have convinced my self I have a brain tumour I feel very anxious all the time I keep thinking I am going to die. I booked a holiday with the family and I have become very anxious of flying. I just want to feel well again
I need some advice I have been suffering from headaches for over a week I have convinced my self I have a brain tumour I feel very anxious all the time I keep thinking I am going to die. I booked a holiday with the family and I have become very anxious of flying. I just want to feel well again
em79
in
Anxiety Support
9 years ago
Shingles when you're immunosuppressed
Of course its easy not to understand what is happening when you have a number of different ailments and sensitivities. So when I developed a swollen eye and red swelling on my forehead I assumed it was my usual sensitivity to sun. It wasnt - it developed into shingles. My RA pain is not too bad at the
Of course its easy not to understand what is happening when you have a number of different ailments and sensitivities. So when I developed a swollen eye and red swelling on my forehead I assumed it was my usual sensitivity to sun. It wasnt - it developed into shingles. My RA pain is not too bad at the
cathie
in
NRAS
9 years ago
Sierra Farris Blog
I've seen several people mentioned how good Sierra is at DBS programming. I agree she's been doing my programming for the past 5 months and we are almost there. Here is her blog on DVS which many may find helpful. http://www.dbsprogramming.com/author/dbsprogramming/
I've seen several people mentioned how good Sierra is at DBS programming. I agree she's been doing my programming for the past 5 months and we are almost there. Here is her blog on DVS which many may find helpful. http://www.dbsprogramming.com/author/dbsprogramming/
mktbob55
in
Cure Parkinson's
9 years ago
Thoughts on DBS
https://youtu.be/7udZ5ux0dYE 88
https://youtu.be/7udZ5ux0dYE 88
openbook
in
Cure Parkinson's
9 years ago
dbs
What is DBS pl?
What is DBS pl?
konrad
in
Cure Parkinson's
9 years ago
DBS update
It's 5 months since I underwent this procedure. I was programmed by my local neuro with some good results. However at my last visit she stated that I was doing great and should wait 8 weeks for follow up. I described my off times as increasing and my gait pretty poor from 6-9pm as dismally slow.
It's 5 months since I underwent this procedure. I was programmed by my local neuro with some good results. However at my last visit she stated that I was doing great and should wait 8 weeks for follow up. I described my off times as increasing and my gait pretty poor from 6-9pm as dismally slow.
etterus
in
Cure Parkinson's
9 years ago
Viral Meningitis Week
Keep an eye on our page next week for how to get involved in our third ever Viral Meningitis Awareness Week! Find out more on our website - www.meningitisnow.org/viralweek2015 #VocalAboutViral
Keep an eye on our page next week for how to get involved in our third ever Viral Meningitis Awareness Week! Find out more on our website - www.meningitisnow.org/viralweek2015 #VocalAboutViral
MNClaireD
Meningitis Now
in
Meningitis Now
9 years ago
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