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MPN Voice Patients’ Forum – Inverness
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Mazcd
MPNVoice
in
MPN Voice
8 years ago
NHS England refusing second Stem Cell Transplants
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem Cell Transplant for relapsed patients with Blood Disorders even when the Consulants think it viable and the best option This came after some
bronx77
in
CLL Support
8 years ago
No surgery for me
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
Well after only a few days I have the results of my pet and Mri scans. Emergency apointme with oncologist Good news no cancer in upper body, bad news Mri shows mass on bladder plus mass on upper vagina and infiltration to blood vessels so no surgery possible oh bugger was counting on that so its back
knoxie
in
My Ovacome
8 years ago
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My Myeloma
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
I'm new here but have been sending in reports via stuff.co.nz from there go to stuff nation and find me reviewing Elton John albums alongside my cancer treatment. An unrelated distraction. I am up to week 16. Hoping for a stem cell transplant in September, cheers to everyone. Bruce
offthecush
in
Myeloma America Support
8 years ago
End of an Era (July 7, 2016)
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell transplant story that started 8 years ago and ended with a rejected graft and a quick relapse. I am officially now and probably have been for years
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Need a bit of cheering up
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
hi ladies feeling a bit of a wobble coming on. A potted history to date. 2011 diagnosed oc surgery then 6 rounds carbo taxol. Staged 1c grade 2 mucinous ardenocarcinoma. 2014 recurred pelvic wall same site surgery not all got out. No chemo refused radio therapy due to bowel complications during surgery
knoxie42
in
My Ovacome
8 years ago
Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
AussieNeil
Partner
in
CLL Support
8 years ago
I’m new here ...just diagnosed with AMN
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
Hello! I am 38 years old woman from Latvia and it looks like I am the only one with AMN here. I was so glad I found this site!!! Here is my story. (sory for my english :)) Three months ago our son, our sweet 7 years old boy was diagnosed with ALD... and it was too late for stem cell transplantation.
zane_a
in
AMN EASIER
8 years ago
Chemo done..scans tonight
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
momof12
in
CLL Support
8 years ago
SCT go ahead
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Jane65
in
MPN Voice
8 years ago
Myeloma relapse.
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
MargaretG
in
Myeloma America Support
8 years ago
Allogeneic Transplantation for Chronic Lymphocytic Leukemia in the Age of Novel Treatment Strategies
Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne McClanahan, MD, PhD, and John Gribben, MD, DSc should be of interest: http://www.cancernetwork.com/oncology-journal/allogeneic-transplantation-chronic-lymphocytic-leukemia-age-novel-treatment-strategies
Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne McClanahan, MD, PhD, and John Gribben, MD, DSc should be of interest: http://www.cancernetwork.com/oncology-journal/allogeneic-transplantation-chronic-lymphocytic-leukemia-age-novel-treatment-strategies
AussieNeil
Partner
in
CLL Support
8 years ago
MPN Voice Nottingham Support Group - Wednesday 15th June - speaker is the bone marrow transplant nurse specialist
We are very pleased to announce that the speaker for the meeting on Wednesday 15th June will be Lynne Watson, the bone marrow transplant specialist nurse. The meeting starts at 6 pm and ends at approximately 7.30 pm. Everyone who is affected by a MPN is welcome to come along, there is no fee to attend
We are very pleased to announce that the speaker for the meeting on Wednesday 15th June will be Lynne Watson, the bone marrow transplant specialist nurse. The meeting starts at 6 pm and ends at approximately 7.30 pm. Everyone who is affected by a MPN is welcome to come along, there is no fee to attend
Mazcd
MPNVoice
in
MPN Voice
8 years ago
How Often Should I Have Checkups Post-Stem Cell Transplant?
Patient Power community member, Johnny asks, “I had a stem cell transplant (SCT) five years ago. How often should I be having checkups?” Dr. Jatin Shah of MD Anderson Cancer Center shares his recommendation and sums everything up with stressing the need to watch your disease closely. https://www.patientpower.info
Patient Power community member, Johnny asks, “I had a stem cell transplant (SCT) five years ago. How often should I be having checkups?” Dr. Jatin Shah of MD Anderson Cancer Center shares his recommendation and sums everything up with stressing the need to watch your disease closely. https://www.patientpower.info
mcints
in
Myeloma America Support
8 years ago
Circulating Tumor Cells Linked to Worse Prognosis (BREASTCANCER.ORG)...
Circulating tumor cells (CTCs) are cells that break off from a cancer tumor and move into the blood stream. Doctors sometimes test for CTCs to see if breast cancer cells are active in areas of the body besides the breast. Several previous studies have linked the number of CTCs to the prognosis of metastatic
Circulating tumor cells (CTCs) are cells that break off from a cancer tumor and move into the blood stream. Doctors sometimes test for CTCs to see if breast cancer cells are active in areas of the body besides the breast. Several previous studies have linked the number of CTCs to the prognosis of metastatic
Dil2310
in
Breast Cancer India
8 years ago
Newbie
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Wychwoodbabe
in
MPN Voice
8 years ago
Allogeneic Stem Cell Transplant: Who Is It Most Appropriate For?
In this Ask the Expert segment, Frances asks, “When is the right time for an allogeneic [stem cell] transplant?” Dr. Jatin Shah of MD Anderson Cancer Center responds by discussing the controversy surrounding this difficult choice and factors that should be considered, and he stresses the need for multiple
In this Ask the Expert segment, Frances asks, “When is the right time for an allogeneic [stem cell] transplant?” Dr. Jatin Shah of MD Anderson Cancer Center responds by discussing the controversy surrounding this difficult choice and factors that should be considered, and he stresses the need for multiple
mcints
in
Myeloma America Support
8 years ago
Considering a Bone Marrow Transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
mcints
in
CLL America Support
8 years ago
Neck Arthritis
I thought at first it might be a
bone
spur
because there's a thickened mass with a tiny lump at the top of spine. I've always had this slight mass, but it never hurt like this. My family and I were always ramrod straight with great posture and nobody had arthritis.
I thought at first it might be a
bone
spur
because there's a thickened mass with a tiny lump at the top of spine. I've always had this slight mass, but it never hurt like this. My family and I were always ramrod straight with great posture and nobody had arthritis.
Hidden
in
Arthritis Action
8 years ago
Good Blood counts = cured?
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
crapaud
in
MPN Voice
8 years ago
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