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Steroid injection worn off?
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
hazelcats
in
NRAS
1 month ago
Steroid Injection
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Hi All, I'm feeling very confused after my last Rheumatology appointment. I first saw the Rheumatologist in February and was diagnosed Sjorgen's and possible PMR. I was put on 15mg prednisolone and had managed to taper to 13mg. I saw a different rheumatologist at my appt this week who threw me a complete
Soinoi
in
PMRGCAuk
1 month ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
2 months ago
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MSK Community Care
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Chockyuk
in
NRAS
1 month ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
2 months ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
2 months ago
rubella immunity blood tests
Hi I’m about to start another round of IVF after 7 cancelled transfers and 3 failed but using a new clinic. My blood tests have come back that I don’t have a rubella immunity but I have checked my results from my IVF cycle in 2020 which blessed me with my son and my pregnancy results and I did have an
Hi I’m about to start another round of IVF after 7 cancelled transfers and 3 failed but using a new clinic. My blood tests have come back that I don’t have a rubella immunity but I have checked my results from my IVF cycle in 2020 which blessed me with my son and my pregnancy results and I did have an
Chowlady14
in
Fertility Network UK
5 months ago
Maybe not PMR update 5 years on
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in UK who questioned if I had ever had PMR due to my original diagnosis blood test showing a CRP result of 6 and an ESR of 1, whilst acknowledging
Pawscat11
in
PMRGCAuk
1 month ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
2 months ago
Follow up to initial appt
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
hazelcats
in
NRAS
1 month ago
Pain Relief
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Tirosint
Hi, I posted earlier about Tirosint in Gel capsules possibly giving me a rash. I stopped taking them 4 weeks ago and the rash continues. Not as bad but still all down my legs and arms. My question. Can it take so long to leave the body? Or am I blaming the wrong thing for my rash? Blood tests were
Hi, I posted earlier about Tirosint in Gel capsules possibly giving me a rash. I stopped taking them 4 weeks ago and the rash continues. Not as bad but still all down my legs and arms. My question. Can it take so long to leave the body? Or am I blaming the wrong thing for my rash? Blood tests were
jand123
in
Thyroid UK
5 months ago
Is it back? 🙈
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Croft9232
in
PMRGCAuk
2 months ago
Weight issues Graves remission
I was eventually diagnosed with Graves disease post covid after been repeatedly told by GP that I had long covid.I had to go private through spire healthcare, thinking I had a heart problem, but was referred to endocrinology after blood test results. After 1 year on carbamozole my thyroid results are
I was eventually diagnosed with Graves disease post covid after been repeatedly told by GP that I had long covid.I had to go private through spire healthcare, thinking I had a heart problem, but was referred to endocrinology after blood test results. After 1 year on carbamozole my thyroid results are
PsmS
in
Thyroid UK
2 days ago
Covid
I have just tested positive for Covid and I take Methotrxate and Erelzi for RA. Do I have to inform anyone. Thanks
I have just tested positive for Covid and I take Methotrxate and Erelzi for RA. Do I have to inform anyone. Thanks
Sue10
in
NRAS
3 days ago
Herman7275
Hi, back again, I talked to my diet dr. last week, hadn't spoken with her for some time, had been last year that I had been to their office, then beginning of the year, I came down with Covid, then had the flu twice. Then May 8th I had a complete reverse shoulder replacement which I am in the middle
Hi, back again, I talked to my diet dr. last week, hadn't spoken with her for some time, had been last year that I had been to their office, then beginning of the year, I came down with Covid, then had the flu twice. Then May 8th I had a complete reverse shoulder replacement which I am in the middle
Herman7275
in
Weight Loss Support
3 days ago
Methotrexate and Covid
I am wondering the same thing. I have covid. Tested positive 2 days ago. Should I take Methotrexate and Humira this week? I have continued with steroids 4 mg daily and statins 10 mg daily
I am wondering the same thing. I have covid. Tested positive 2 days ago. Should I take Methotrexate and Humira this week? I have continued with steroids 4 mg daily and statins 10 mg daily
Larmie
in
NRAS
4 days ago
COVID and Besremi
Dear all,I have just got a COVID infection from a trip in US (symptoms showed last Friday). I started getting better (no more fever), so I hope that in few days will clear out. I am scheduled for my next Besremi dose this Friday. Does anyone has experience on how far apart should be Besremi administered
Dear all,I have just got a COVID infection from a trip in US (symptoms showed last Friday). I started getting better (no more fever), so I hope that in few days will clear out. I am scheduled for my next Besremi dose this Friday. Does anyone has experience on how far apart should be Besremi administered
Dane12
in
MPN Voice
4 days ago
Back Again
Hello everyone, sorry in advance for the mammoth post. I was last on this forum about 7-8 years ago in 2015/2016 after my previous symptom free asthma flared up badly and left me very sick (back on inhalers, steroids, and multiple hospital admissions). We managed to get my asthma back under control
Hello everyone, sorry in advance for the mammoth post. I was last on this forum about 7-8 years ago in 2015/2016 after my previous symptom free asthma flared up badly and left me very sick (back on inhalers, steroids, and multiple hospital admissions). We managed to get my asthma back under control
Beth_19
in
Asthma Community Forum
4 days ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
5 months ago
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