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Happy to be here!
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Life expectancy with MF
Hello, all. I was diagnosed with post ET MF in 2019, after having been diagnosed with ET jak 2 in 2008. In 2019, I had my second BMB where it was confirmed I had progressed to MF, intermediate 1. I had a third BMB last September to determine whether I was a candidate for a bone marrow transplant. At
Hello, all. I was diagnosed with post ET MF in 2019, after having been diagnosed with ET jak 2 in 2008. In 2019, I had my second BMB where it was confirmed I had progressed to MF, intermediate 1. I had a third BMB last September to determine whether I was a candidate for a bone marrow transplant. At
Cja1956
in
MPN Voice
2 years ago
Help make a drug to treat post-transplant CMV available to patients in Canada
If you have experienced Cytomegalovirus (CMV) following your Allogeneic Stem-Cell Transplant, you can help Canadian patients gain access to this treatment by completing our survey! You do not need to live in Canada to complete this survey. CLL Canada is working with a coalition of blood cancer patient
If you have experienced Cytomegalovirus (CMV) following your Allogeneic Stem-Cell Transplant, you can help Canadian patients gain access to this treatment by completing our survey! You do not need to live in Canada to complete this survey. CLL Canada is working with a coalition of blood cancer patient
CLL_Canada_Group
in
CLL Support
2 years ago
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Jaw spasm & neck muscle problems?
Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post stem cell transplant. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving
Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post stem cell transplant. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving
AnnW22
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Sudden Lymph Node Enlargement
I am a 58 year old female and was diagnosed a year ago. I have great bloodwork and have been without symptoms until a month ago & now have an enlarged lymph node that will require surgical removal for biopsy. The PET scan results are “worrisome for advanced lymphoma” and its hard not to mentally go
I am a 58 year old female and was diagnosed a year ago. I have great bloodwork and have been without symptoms until a month ago & now have an enlarged lymph node that will require surgical removal for biopsy. The PET scan results are “worrisome for advanced lymphoma” and its hard not to mentally go
StrengthHopeLove
in
CLL Support
2 years ago
Retained pacing wires
I understand most people having CABG or valve surgery these days have pacing wires connected in case of heart block or Afib after the Op. I have found out that in my case the wires were cut at skin level and retained. However I have read that retaining them in the body can cause problems later on there
I understand most people having CABG or valve surgery these days have pacing wires connected in case of heart block or Afib after the Op. I have found out that in my case the wires were cut at skin level and retained. However I have read that retaining them in the body can cause problems later on there
G0dfather
in
British Heart Foundation
3 years ago
Not what I would have thought
So Christmas is behind us. the food we probably should not even think about,let alone eat. Seeing family and friends (and having to show them the'scar') the obligatory mince pies (sorry mr R) and too much vino. And the gifts, a new circular saw from my wife,a 18volt battery for my Makita kit from my
So Christmas is behind us. the food we probably should not even think about,let alone eat. Seeing family and friends (and having to show them the'scar') the obligatory mince pies (sorry mr R) and too much vino. And the gifts, a new circular saw from my wife,a 18volt battery for my Makita kit from my
Rogo23
in
British Heart Foundation
3 years ago
Cabg issues
Hi My dad went in to hospital for cabg last monday. He was so happy about getting it done so quickly. It was all good until he had an episode the following night, we believe a heart attack. He has damage now to his heart. He is still on a ventilator and they are trying to keep him stable. I am so scared
Hi My dad went in to hospital for cabg last monday. He was so happy about getting it done so quickly. It was all good until he had an episode the following night, we believe a heart attack. He has damage now to his heart. He is still on a ventilator and they are trying to keep him stable. I am so scared
Hoxley77
in
British Heart Foundation
3 years ago
Update on op
Hi everyone, Well you are not going to believe this, but, my op got cancelled, 3.30pm today, ran out of time, the op is going to be a lot bigger than they thought, surgeon told me I will need
bone
graft
taken from my lower leg to build up
bone
on hip, plus muscle transfer.
Hi everyone, Well you are not going to believe this, but, my op got cancelled, 3.30pm today, ran out of time, the op is going to be a lot bigger than they thought, surgeon told me I will need
bone
graft
taken from my lower leg to build up
bone
on hip, plus muscle transfer.
2013mayo
in
PMRGCAuk
3 years ago
Can anyone recommend a counsellor following CABG.
I seem to be struggling and it’s been 10 weeks, but I am increasingly anxious. Thank you in advance
I seem to be struggling and it’s been 10 weeks, but I am increasingly anxious. Thank you in advance
Heyjude31
in
British Heart Foundation
3 years ago
Train travel
I’m 6 months post 3x CABG and have just done a long train journey to visit my daughters. I’ve recovered so well from the surgery that I thought ‘I can do this’. At Crewe, due to delay with 1st train, I had 4 minutes to catch my next train, no time to wait for the lift, so I legged it up and over the
I’m 6 months post 3x CABG and have just done a long train journey to visit my daughters. I’ve recovered so well from the surgery that I thought ‘I can do this’. At Crewe, due to delay with 1st train, I had 4 minutes to catch my next train, no time to wait for the lift, so I legged it up and over the
Sewing19
in
British Heart Foundation
3 years ago
CABG Off Pump Lungs
I am due a double CABG next month (Happy New Year?!). It is Off Pump so my heart won't stop (hopefully). But.... what happens to my lungs, do they keep going?
I am due a double CABG next month (Happy New Year?!). It is Off Pump so my heart won't stop (hopefully). But.... what happens to my lungs, do they keep going?
ChoochSiesta
in
British Heart Foundation
3 years ago
Reopening blocked artery
5 years after a quad CABG one of my vein grafts is failing and has not reacted well to stenting. The plan is now to reopen one of my blocked arteries in a procedure called Chronic Total Occlusion Percutaneous Coronary Intervention (cto pci). I just wondered whether anyone has had experience of this procedure
5 years after a quad CABG one of my vein grafts is failing and has not reacted well to stenting. The plan is now to reopen one of my blocked arteries in a procedure called Chronic Total Occlusion Percutaneous Coronary Intervention (cto pci). I just wondered whether anyone has had experience of this procedure
Pops19
in
British Heart Foundation
3 years ago
Thanks Santa
On the second day of Christmas the hospital gave to me a cardio CT booking and amlodipine...😞 Sadly, nearly 2 years post double CABG angina pains have started to return (bloody cold doesnt help 😡!). So back to hospital, a cardio CT booked and a new pill to add to the multitude I already have with my
On the second day of Christmas the hospital gave to me a cardio CT booking and amlodipine...😞 Sadly, nearly 2 years post double CABG angina pains have started to return (bloody cold doesnt help 😡!). So back to hospital, a cardio CT booked and a new pill to add to the multitude I already have with my
Hidden
in
British Heart Foundation
3 years ago
Travel insurance
Hey everyone, does anyone have experience of travel insurance post CABG? Is it easy/cheap to get? I had a 4-way.. I also had a nephrectomy but I'm less concerned about that as an ongoing health concern Cheers!
Hey everyone, does anyone have experience of travel insurance post CABG? Is it easy/cheap to get? I had a 4-way.. I also had a nephrectomy but I'm less concerned about that as an ongoing health concern Cheers!
Billy_Bedstead
in
British Heart Foundation
3 years ago
Strange feeling in my chest, could it be Angina.
Sorry for the long post, but here goes. It is now almost 6 months since my heart attack and subsequent CABG x 6. Before my heart attack I felt healthy and presented no symptoms. I am recovering well after been diagnosed with acute CHD and am feeling so much stronger apart from niggles around the sternum
Sorry for the long post, but here goes. It is now almost 6 months since my heart attack and subsequent CABG x 6. Before my heart attack I felt healthy and presented no symptoms. I am recovering well after been diagnosed with acute CHD and am feeling so much stronger apart from niggles around the sternum
Razor1967
in
British Heart Foundation
3 years ago
Chest pains 6 months after HA and triple CABG
I’m 6 months post CABG and HA. I’ve not had any twinges or chest pains for a few months until today. Both left and right side of chest. My recovery has been surprisingly unremarkable and I’m fit and well. I’ve taken some paracetamol which has eased the pains but it’s frightened me a bit. I’m not a panicker
I’m 6 months post CABG and HA. I’ve not had any twinges or chest pains for a few months until today. Both left and right side of chest. My recovery has been surprisingly unremarkable and I’m fit and well. I’ve taken some paracetamol which has eased the pains but it’s frightened me a bit. I’m not a panicker
Sewing19
in
British Heart Foundation
3 years ago
Exemestane
Has anyone quit taking Exemstane because they are bad for the
bone
and i just had a
bone
graft
so i am just taking Afinitor. Helena
Has anyone quit taking Exemstane because they are bad for the
bone
and i just had a
bone
graft
so i am just taking Afinitor. Helena
Iwouldlike2knowmore
in
SHARE Metastatic Breast Cancer
3 years ago
Summary Paper from Drs, Claire N. Harrison and Donal P. McLornan
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
EPguy
in
MPN Voice
3 years ago
Insurance Renewal Costs
Hello everyone. I had a x4 CABG in June this year and am recovering very well (touch wood). I'm a seasonal ski instructor and regularly work in the Alps (Austria, Italy and Switzerland). I have professional insurance cover whilst teaching but that only covers part of the day. The rest of the day
Hello everyone. I had a x4 CABG in June this year and am recovering very well (touch wood). I'm a seasonal ski instructor and regularly work in the Alps (Austria, Italy and Switzerland). I have professional insurance cover whilst teaching but that only covers part of the day. The rest of the day
Deserrol
in
British Heart Foundation
3 years ago
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