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So Frustrated.....
My daughter had appointment with consultant today and after previously telling us that she does not have an over active bladder (last year he said her problem was a short urethra + loose sphincter muscle) today he said she does have a over active bladder and to put her on solifenacin (she has previously
My daughter had appointment with consultant today and after previously telling us that she does not have an over active bladder (last year he said her problem was a short urethra + loose sphincter muscle) today he said she does have a over active bladder and to put her on solifenacin (she has previously
Piper2017
in
ERIC
4 years ago
So Frustrated.....
had appointment with consultant today and after previously telling us that my daughter does not have an over active bladder (last year he said her problem was a short urethra + loose sphincter muscle) today he said she does have a over active bladder and to put her on solifenacin (she has previously
had appointment with consultant today and after previously telling us that my daughter does not have an over active bladder (last year he said her problem was a short urethra + loose sphincter muscle) today he said she does have a over active bladder and to put her on solifenacin (she has previously
Piper2017
in
Bladder Health UK
4 years ago
Finally All Mets Zapped!
Whew, just completed 28 RT session. Finally got my mets zapped. Been wanting to do that as it seems to be a treatment consistent with men here having long remissions. 3 sessions each of SABR to 3rd rib, 6th rib and iliac bone mets. 28 sessions IMRT to para-aortic lymph node string. That’s all that
Whew, just completed 28 RT session. Finally got my mets zapped. Been wanting to do that as it seems to be a treatment consistent with men here having long remissions. 3 sessions each of SABR to 3rd rib, 6th rib and iliac bone mets. 28 sessions IMRT to para-aortic lymph node string. That’s all that
6357axbz
in
Advanced Prostate Cancer
4 years ago
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This is my edited post
I have been on Fentanyl for 15 years and now my doctor (who has never seen me in their lives) is trying to reduce my amount. My doctor doesn't know anything about the drug, or why I am on the drug. If he reduces the amount I will be in crippling pain and I will be bed ridden. I am a pensioner and I live
I have been on Fentanyl for 15 years and now my doctor (who has never seen me in their lives) is trying to reduce my amount. My doctor doesn't know anything about the drug, or why I am on the drug. If he reduces the amount I will be in crippling pain and I will be bed ridden. I am a pensioner and I live
MarcDear
in
Pain Concern
4 years ago
Government is following Trump regarding Fentanyl
I have been on Fentanyl for 15 years and now my doctor (who has ever seen me in their lives) is trying to reduce my amount. My doctor doesn't know anything about the drug, or why I am on the drug. If he reduces the amount I will be in crippling pain and I will be bed ridden. I am a pensionerand I live
I have been on Fentanyl for 15 years and now my doctor (who has ever seen me in their lives) is trying to reduce my amount. My doctor doesn't know anything about the drug, or why I am on the drug. If he reduces the amount I will be in crippling pain and I will be bed ridden. I am a pensionerand I live
MarcDear
in
Pain Concern
4 years ago
Loss of Taste??
Before I was diagnosed in December but had been suffering with jaw/shoulder pain since Oct, my taste buds stopped working. Smell is still okay. Some days I think it is improving, then next day things taste sour/sweet/bitter. Just curious if others have experienced this. Think GCA was lurking but not
Before I was diagnosed in December but had been suffering with jaw/shoulder pain since Oct, my taste buds stopped working. Smell is still okay. Some days I think it is improving, then next day things taste sour/sweet/bitter. Just curious if others have experienced this. Think GCA was lurking but not
jarn
in
PMRGCAuk
4 years ago
My options in dealing with a metastasis
I had an Axumin scan a few months ago that revealed one metastasis starting in the prostate bed, prostate gland and extending thru the wall of the bladder. MO said I had two options: Cryosurgery or Proton radiation. Met with RO and he said that it is too dangerous to radiate since I had prior radiation
I had an Axumin scan a few months ago that revealed one metastasis starting in the prostate bed, prostate gland and extending thru the wall of the bladder. MO said I had two options: Cryosurgery or Proton radiation. Met with RO and he said that it is too dangerous to radiate since I had prior radiation
mcp1941
in
Advanced Prostate Cancer
4 years ago
So much pain and unwell
Hello. I have stage 4 endometriosis. Since I stopped triptorelin injections in Spring I now have one week of every month where I feel very run down, fluey and feverish and my already excruciating daily pain increases. I get a bleed plus rectal bleeding too. The pain is absolutely horrendous. I’ve had
Hello. I have stage 4 endometriosis. Since I stopped triptorelin injections in Spring I now have one week of every month where I feel very run down, fluey and feverish and my already excruciating daily pain increases. I get a bleed plus rectal bleeding too. The pain is absolutely horrendous. I’ve had
Lily1986
in
Endometriosis UK
4 years ago
Scan results in
Oncologist rang about my scan results and I felt really upset as was expecting better. After the first three rounds of carbo /caelyx the three lymph nodes near my aorta had shrank over 50 percent. My final scan after 6 had only shrunk a few millimetres more. I feel rather disappointed and was expecting
Oncologist rang about my scan results and I felt really upset as was expecting better. After the first three rounds of carbo /caelyx the three lymph nodes near my aorta had shrank over 50 percent. My final scan after 6 had only shrunk a few millimetres more. I feel rather disappointed and was expecting
win_56
in
My Ovacome
4 years ago
deferred pain
I suffer with deferred pain . Its a random process whereby I can strain my back without knowing it and then have pain develop down the sides of my groin and painful agonising sharp pains at the base of my pelvis. It is something I have suffered with on and off for nearly 30 years. I believe the trigger
I suffer with deferred pain . Its a random process whereby I can strain my back without knowing it and then have pain develop down the sides of my groin and painful agonising sharp pains at the base of my pelvis. It is something I have suffered with on and off for nearly 30 years. I believe the trigger
mia3G
in
Pelvic Pain Support Network
4 years ago
Your advice on which radiotherapy treatment to choose next
I have mismanaged previous posts and take this opportunity to thank you for your previous responses. They were most helpful, kind and appreciated. I hope this one gets out to all of you. Surgery is not an available option. I have consulted with two radiation oncologists at the major cancer centres in
I have mismanaged previous posts and take this opportunity to thank you for your previous responses. They were most helpful, kind and appreciated. I hope this one gets out to all of you. Surgery is not an available option. I have consulted with two radiation oncologists at the major cancer centres in
Squirrel71
in
Advanced Prostate Cancer
4 years ago
Fixes for OAB??
I’ve been having a terrible time with OAB. My urologist has suggested some treatments and I’d like to know what experiences people here may have had? Two of the least invasive are Botox and Interstim. I’d like to know if anyone has had these done and their experiences with them? The doctor has said
I’ve been having a terrible time with OAB. My urologist has suggested some treatments and I’d like to know what experiences people here may have had? Two of the least invasive are Botox and Interstim. I’d like to know if anyone has had these done and their experiences with them? The doctor has said
jolocny
Volunteer
in
AMN EASIER
4 years ago
Gastrointestinal problems
Not sure this is a thyroid problem. But have had bad IBS and steatorrhoea. After being robbed off for two years a locum lady doctor was helpful and I had a stool test. After three weeks it is still not back and when I rang surgery they said sometimes it can take 6 weeks. Just wondering why it is taking
Not sure this is a thyroid problem. But have had bad IBS and steatorrhoea. After being robbed off for two years a locum lady doctor was helpful and I had a stool test. After three weeks it is still not back and when I rang surgery they said sometimes it can take 6 weeks. Just wondering why it is taking
Gillybabe48
in
Thyroid UK
4 years ago
Auximen scan shows significant new cancerous activity and last post about my brother
Unfortunately, this is the last post about my brother. He passed away on October 6. My brother showed great fortitude against very long odds, and his courage and strength of spirit during this brutal battle was inspirational. I am heartbroken to lose him, but I know the cliché that he is finally at peace
Unfortunately, this is the last post about my brother. He passed away on October 6. My brother showed great fortitude against very long odds, and his courage and strength of spirit during this brutal battle was inspirational. I am heartbroken to lose him, but I know the cliché that he is finally at peace
Philly13
in
Advanced Prostate Cancer
4 years ago
Nephrostomy woes
Can anyone give me some insight into how they fare with their nephrostomy. I don’t think I have gone one single day since I’ve had it (June) without some sort of discomfort. It itches, it feels like what I imagine a cigarette burn to feel like, it can feel like pin pricks. It constantly looks sore and
Can anyone give me some insight into how they fare with their nephrostomy. I don’t think I have gone one single day since I’ve had it (June) without some sort of discomfort. It itches, it feels like what I imagine a cigarette burn to feel like, it can feel like pin pricks. It constantly looks sore and
JustKBO
in
My Ovacome
4 years ago
Catheter confusion, apologies in advance
Hi Everyone, hope you are all coping fine I know there was must be so many posts about catheters but I just had some more specific questions that I am hoping some catheter genius with 30 years experience can answer lol So quick history lesson, dad used to have a sheath/conveen, then in march 2020 he
Hi Everyone, hope you are all coping fine I know there was must be so many posts about catheters but I just had some more specific questions that I am hoping some catheter genius with 30 years experience can answer lol So quick history lesson, dad used to have a sheath/conveen, then in march 2020 he
Mustafa128h
in
PSP Association
4 years ago
Con1264
83 years old Perth Australia oncologist a a hasani Joondalup medical centre oncology. PSA 114 now after nearly a month now 84 PSA have metastases in lymph glands and Bones no symptoms. October 12th cystoscopy with 35 cm stent right ureter since on HRT feeling more energetic walking up to thirty 40 minutes
83 years old Perth Australia oncologist a a hasani Joondalup medical centre oncology. PSA 114 now after nearly a month now 84 PSA have metastases in lymph glands and Bones no symptoms. October 12th cystoscopy with 35 cm stent right ureter since on HRT feeling more energetic walking up to thirty 40 minutes
con1264
in
Advanced Prostate Cancer
4 years ago
PAE and pudendal pain
In March of this year, I had a prostate arterial embollization. The intent was to reduce the size of my prostate and thereby reduce the associated symptoms. I feel that the procedure did reduce the size - most of those symptoms are gone. The procedure gave me about a month of relief. Everything was
In March of this year, I had a prostate arterial embollization. The intent was to reduce the size of my prostate and thereby reduce the associated symptoms. I feel that the procedure did reduce the size - most of those symptoms are gone. The procedure gave me about a month of relief. Everything was
TTDD
in
Pelvic Pain Support Network
4 years ago
THYROID PAIN
Hi. Thanks for looking at the question. I have an enlarged/swollen thyroid. The left side is painful and is slightly larger and more swollen than the right. The endocrinologist is not looking at an ultra sound scan. What are the chances I have a module? Am I looking to deeply into this? Thanks 😊
Hi. Thanks for looking at the question. I have an enlarged/swollen thyroid. The left side is painful and is slightly larger and more swollen than the right. The endocrinologist is not looking at an ultra sound scan. What are the chances I have a module? Am I looking to deeply into this? Thanks 😊
NIKEGIRL
in
Thyroid UK
4 years ago
I've just joined Provenge treatment in Australia or nearby countries
I'm on zytiga and Zoladex for the past month and looking for immunotherapy treatment of prostate cancer EG provenge many thanks for your help
I'm on zytiga and Zoladex for the past month and looking for immunotherapy treatment of prostate cancer EG provenge many thanks for your help
con1264
in
Advanced Prostate Cancer
4 years ago
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