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Kenu foot surgery
I think everyone should know that our friend Kenu had quite major foot surgery last week. Let’s keep him in our thoughts and prayers. Many of us know how painful it is to have that surgery. Love to all, Kelly
I think everyone should know that our friend Kenu had quite major foot surgery last week. Let’s keep him in our thoughts and prayers. Many of us know how painful it is to have that surgery. Love to all, Kelly
Amore55
in
My MSAA Community
2 years ago
Nighttime Urination
Does anyione have a good suggestion for a supplement to help me sleep through the night without having to urinate at 5:00 A.M.? I have been using a supplement from Botanic Ckhoice called Pro Advanced Urinary Formula. This was working well but lately has been less effective. I catheterize just before
Does anyione have a good suggestion for a supplement to help me sleep through the night without having to urinate at 5:00 A.M.? I have been using a supplement from Botanic Ckhoice called Pro Advanced Urinary Formula. This was working well but lately has been less effective. I catheterize just before
whwiechm
in
My MSAA Community
2 years ago
Chemo for Lupus
Hi all, After an escalation in neurological Lupus symptoms and despite already having biological therapy and steroid infusions, I’m now going to be having chemotherapy. I’m a bit nervous to say the least. I’ve been told it’ll be over 6 weeks. Anyone else had this? What , if any, were the side effects
Hi all, After an escalation in neurological Lupus symptoms and despite already having biological therapy and steroid infusions, I’m now going to be having chemotherapy. I’m a bit nervous to say the least. I’ve been told it’ll be over 6 weeks. Anyone else had this? What , if any, were the side effects
mainlyconfused
in
LUPUS UK
2 years ago
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PSA rate of decline in ADT with ductal type cancer?
Before commenting/answering, please consider my biopsy showed DUCTAL type cancer. I am Stage 4B with GL4+4=8 throughout the prostate, including the vesicles, neuroblood bundle, bladder neck, bladder, with Mets in pelvis, sacrum, pelvic lymph nodes, and several places in spine. [i]Does this PSA series
Before commenting/answering, please consider my biopsy showed DUCTAL type cancer. I am Stage 4B with GL4+4=8 throughout the prostate, including the vesicles, neuroblood bundle, bladder neck, bladder, with Mets in pelvis, sacrum, pelvic lymph nodes, and several places in spine. [i]Does this PSA series
Gl448
in
Advanced Prostate Cancer
2 years ago
Normal uptake areas in PSMA Gallium scan
My husband got the results, online, of a PSMA scan he had last week. We talk to his doctor tomorrow. The person who read it said the prostate was surgically removed, when it was actually radiated, so we don’t have total faith in this report. In the opening of the findings it says: “Physiologic radiotracer
My husband got the results, online, of a PSMA scan he had last week. We talk to his doctor tomorrow. The person who read it said the prostate was surgically removed, when it was actually radiated, so we don’t have total faith in this report. In the opening of the findings it says: “Physiologic radiotracer
Wyldhare22
in
Advanced Prostate Cancer
2 years ago
Post Provenge, what should I do now
I was diagnosed of PC in 2020, I had surgery to remove it in September 2020 but psa did not go down to zero. By February 2021 psa was 3.4 so I began lupron shots and I am still receiving it every 6 months. I also completed 36 rounds of radiation 2021. My psa began going up from .05 in February 2022 to
I was diagnosed of PC in 2020, I had surgery to remove it in September 2020 but psa did not go down to zero. By February 2021 psa was 3.4 so I began lupron shots and I am still receiving it every 6 months. I also completed 36 rounds of radiation 2021. My psa began going up from .05 in February 2022 to
Kanka99
in
Advanced Prostate Cancer
2 years ago
Inflatable Penile Implants
I think this topic is appropriate for this group so I will introduce it today since I can't find a prior discussion on the site. Sexuality is very important to me, an 18 year prostate cancer survivor at age 68. It is also important to my partner. My research indicates high satisfaction for each partner
I think this topic is appropriate for this group so I will introduce it today since I can't find a prior discussion on the site. Sexuality is very important to me, an 18 year prostate cancer survivor at age 68. It is also important to my partner. My research indicates high satisfaction for each partner
awb1
in
Advanced Prostate Cancer
2 years ago
Post op catheter and bowel movement
I had laparoscopy 5 days ago for excision of endometriosis from the pouch of Douglas and right uterosacral ligament. Unfortunately I was in a lot of pain post op and struggled to get out of the bed alone and ended up with 2L urine retention and went home (after a failed attempt without a catheter) 3
I had laparoscopy 5 days ago for excision of endometriosis from the pouch of Douglas and right uterosacral ligament. Unfortunately I was in a lot of pain post op and struggled to get out of the bed alone and ended up with 2L urine retention and went home (after a failed attempt without a catheter) 3
Saffie123
in
Endometriosis UK
2 years ago
Oxybutynin bed wetting
Hi, my 5year old son started oxytrol patches for an overactive bladder 5 weeks ago. Things aren't perfect but have definitely improved. But the biggest change has been in the last 7 days 5 of them he has woken up with an almost dry nappy. I've been weighing them as its so hard to tell today there was
Hi, my 5year old son started oxytrol patches for an overactive bladder 5 weeks ago. Things aren't perfect but have definitely improved. But the biggest change has been in the last 7 days 5 of them he has woken up with an almost dry nappy. I've been weighing them as its so hard to tell today there was
Aaateam
in
ERIC
2 years ago
Panic over endo surgery
Hi there,I've been waiting for laparoscopic surgery and a cystectomy for some time to treat what has been classified as severe endo. I got a call to say they are booking me in and now I am really panicked. I have never had any kind of surgery before and, because of where the endo is, I'll also need
Hi there,I've been waiting for laparoscopic surgery and a cystectomy for some time to treat what has been classified as severe endo. I got a call to say they are booking me in and now I am really panicked. I have never had any kind of surgery before and, because of where the endo is, I'll also need
Seeingred
in
Endometriosis UK
2 years ago
How do I know?
My PC metastasized to bones. It's been over a year since any scans. T is below 1.8 and PSA = 0.05, but how can I be sure if cancer is in remission?
My PC metastasized to bones. It's been over a year since any scans. T is below 1.8 and PSA = 0.05, but how can I be sure if cancer is in remission?
RockinSidney
in
Advanced Prostate Cancer
2 years ago
Duration of ADT
I need to make a decision about the duration of ADT. I had a prostatectomy in 2017. The pathology was great - everything suggested the disease was confined to the prostate. My PSA never went to zero. It has increased very slowly since then. I refused to have radiation until we has something to shoot
I need to make a decision about the duration of ADT. I had a prostatectomy in 2017. The pathology was great - everything suggested the disease was confined to the prostate. My PSA never went to zero. It has increased very slowly since then. I refused to have radiation until we has something to shoot
jjacha
in
Advanced Prostate Cancer
2 years ago
Protein ‘spat out’ by cancer cells promotes tumour growth
Hi Look at this adress: https://www.youtube.com/watch?v=Ye4t9IJpRdo About the prostate cancer cells. Have a nice day
Hi Look at this adress: https://www.youtube.com/watch?v=Ye4t9IJpRdo About the prostate cancer cells. Have a nice day
NOCanceros
in
Advanced Prostate Cancer
2 years ago
Socioeconomic influence on treatment with liothyronine and desiccated thyroid extract in Denmark
An interesting paper in that it looks at thyroid treatment from a very different point of view. Although based in Denmark, I wouldn't be at all surprised to see the same general direction if repeated in many other countries. [i]
Socioeconomic influence on treatment with liothyronine and desiccated
An interesting paper in that it looks at thyroid treatment from a very different point of view. Although based in Denmark, I wouldn't be at all surprised to see the same general direction if repeated in many other countries. [i]
Socioeconomic influence on treatment with liothyronine and desiccated
helvella
Thyroid UK
in
Thyroid UK
2 years ago
IBS - awaiting diagnosis
In my 50s and have probably had IBS type symptoms for years but not at a significant level, so never seen a GP. Having had a couple of more severe bouts recently, lasting a few weeks each, including some smears of blood on stools on two occasions earlier in the summer , I went to the GP. Been through
In my 50s and have probably had IBS type symptoms for years but not at a significant level, so never seen a GP. Having had a couple of more severe bouts recently, lasting a few weeks each, including some smears of blood on stools on two occasions earlier in the summer , I went to the GP. Been through
MPPP
in
IBS Network
2 years ago
Sequencing of Androgen-Deprivation Therapy of Short Duration With Radiotherapy for Nonmetastatic Prostate Cancer (SANDSTORM) - ASCO Journal
[i]
Sequencing of Androgen-Deprivation Therapy of Short Duration With Radiotherapy for Nonmetastatic Prostate Cancer (SANDSTORM): A Pooled Analysis of 12 Randomized Trials, ASCO/ Journal of Clinical Oncology, Newest Content, Oct 2022.
[/i] Maybe some non-specific validation of the ADT to RT timing
[i]
Sequencing of Androgen-Deprivation Therapy of Short Duration With Radiotherapy for Nonmetastatic Prostate Cancer (SANDSTORM): A Pooled Analysis of 12 Randomized Trials, ASCO/ Journal of Clinical Oncology, Newest Content, Oct 2022.
[/i] Maybe some non-specific validation of the ADT to RT timing
cujoe
in
Fight Prostate Cancer
2 years ago
morning lady had a intriror bladder repair
morning ladys i had a intrior bladder repair 6 weeks ago i felt fine up untill 2 weeks a go when i felt like a passing out feeling and short of breath .i ssen th gyno she said everything looked intacted and there was just acouple of sitches needed to desolve . i went home then 4 days after i started
morning ladys i had a intrior bladder repair 6 weeks ago i felt fine up untill 2 weeks a go when i felt like a passing out feeling and short of breath .i ssen th gyno she said everything looked intacted and there was just acouple of sitches needed to desolve . i went home then 4 days after i started
Mrshappyme
in
Pelvic Pain Support Network
2 years ago
Active surveillance or not for localisedprostate cancer
Glesson 3+4, dre normal,psa 4.2, no symptoms, grade T2 Value now time quality of life and could go for the surveillance, treatment would be radiotherapy and possible hormone therapy with side effects not to be laughed at. Anyone else on active surveillance?
Glesson 3+4, dre normal,psa 4.2, no symptoms, grade T2 Value now time quality of life and could go for the surveillance, treatment would be radiotherapy and possible hormone therapy with side effects not to be laughed at. Anyone else on active surveillance?
pd63
in
Atrial Fibrillation Support
2 years ago
Incontinence PROACT Implant
30 months ago had RALP done by Dr V Patel in Orlando and he was a bit aggressive due to my imaging and G-9 and by doing this I had negative margins. Also, good news is my PSA is undetectable (<.01) since surgery and I check it every 2 months. My good fiend who is a urologist recommended I look at
30 months ago had RALP done by Dr V Patel in Orlando and he was a bit aggressive due to my imaging and G-9 and by doing this I had negative margins. Also, good news is my PSA is undetectable (<.01) since surgery and I check it every 2 months. My good fiend who is a urologist recommended I look at
Peppertree602
in
Advanced Prostate Cancer
2 years ago
12 year old boy still having night time accidents
My son is 12 and has always had trouble with wetting himself. He took ages to be consistently dry during the day but never had any trouble with that now. I think he just didn’t want to take time out of his day to go to the toilet! Grew out of daytime wetting by the time he was about 8. He often wets
My son is 12 and has always had trouble with wetting himself. He took ages to be consistently dry during the day but never had any trouble with that now. I think he just didn’t want to take time out of his day to go to the toilet! Grew out of daytime wetting by the time he was about 8. He often wets
Wellhellothere101
in
ERIC
2 years ago
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