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Newly Diagnosed PSC
Hi all I have IBD - diagnosed in 2020 and have mainly been in control of it since. I've now been diagnosed with PSC - had a liver biopsy, MRI, ultrasound and numerous blood tests to diagnose this. I'm going for a colonoscopy after Christmas to check my IBD is okay but I just wanted to reach out to anyone
Hi all I have IBD - diagnosed in 2020 and have mainly been in control of it since. I've now been diagnosed with PSC - had a liver biopsy, MRI, ultrasound and numerous blood tests to diagnose this. I'm going for a colonoscopy after Christmas to check my IBD is okay but I just wanted to reach out to anyone
LiverLover123
in
British Liver Trust
8 months ago
Vitamin C and B12
Despite weekly injections of b12 my blood results show that I am only mid range and I am still symptomatic. I take codeine for arthritic pain and with this I take about 4000 mg of vitamin C to alleviate constipation. Is the vit C helping rid my body of B12 and if so can I just increase my injections
Despite weekly injections of b12 my blood results show that I am only mid range and I am still symptomatic. I take codeine for arthritic pain and with this I take about 4000 mg of vitamin C to alleviate constipation. Is the vit C helping rid my body of B12 and if so can I just increase my injections
Hectorsmum2
in
Pernicious Anaemia Society
8 months ago
Has somebody "steped back" to a former drug?
I asked some days ago for a drug that takes effect on liver. Trovelvy seems to be a good possibility - THANKS for this information :) On Friday my good friend(*) will have a talk with her Oncologist and she has the follwoing idea/question: (*) MBC since Okt 21: HER2 +, mets in bones, lymph nodes
I asked some days ago for a drug that takes effect on liver. Trovelvy seems to be a good possibility - THANKS for this information :) On Friday my good friend(*) will have a talk with her Oncologist and she has the follwoing idea/question: (*) MBC since Okt 21: HER2 +, mets in bones, lymph nodes
deHans
in
SHARE Metastatic Breast Cancer
9 months ago
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Thank you
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
I am overwhelmed with gratitude to all those that have responded to my post yesterday . I responded individually to the first people ( I’m not sure how to private message , I’m a bit crap with technology and my texting thumb is numb 🤦🏻♀️) But thank you all . I have had both psychology sessions
PWT1
in
My Ovacome
3 months ago
I'm Back....
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Hi Everyone, I was on this site several months ago and since then have been in a psychiatric hospital, been seeing a psychiatrist, had EMDR and ketamine treatments, had weekly therapy sessions and am about to try a new therapist, and have tried five different anti-depressants. I'm still struggling
Woolybluecurl
in
Anxiety and Depression Support
3 months ago
Worried Mother of 14 year old Son.
Hello all, Hoping coming here will help as there is not much online particular to my situation. My son who is 14, started puberty at age 12 and is very active and healthy has wet the bed the past two nights. Needless to say he and I are both
very confused and worried
about this considering he
Hello all, Hoping coming here will help as there is not much online particular to my situation. My son who is 14, started puberty at age 12 and is very active and healthy has wet the bed the past two nights. Needless to say he and I are both
very confused and worried
about this considering he
WorriedMotherof1
in
ERIC
8 months ago
Back MRI Showed Pelvic Mass
Hello all! I am new here, so this is my first post. I had a back MRI in September 2023 in preparation for possible back surgery. The results of the MRI showed a pelvic mass in the area of left ovary. I took this information to my Gyn, who referred me to a GynOnc because of my age (65), the results
Hello all! I am new here, so this is my first post. I had a back MRI in September 2023 in preparation for possible back surgery. The results of the MRI showed a pelvic mass in the area of left ovary. I took this information to my Gyn, who referred me to a GynOnc because of my age (65), the results
retiredteacher1
in
My Ovacome
8 months ago
Psa doubled in less than a month
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
I had 10 infusions of Doxytaxel. I started reading about the consequences of CDK12 and was concerned that since I have this mutation doxy was not a treatment of choice. After giving time for the PSA to settle I had a test which showed that it doubled in close to 3 months. In preparation for a CT and
spencoid2
in
Advanced Prostate Cancer
9 months ago
JFK - Kennedy and B12
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
helvella
in
Pernicious Anaemia Society
8 months ago
Gemcitibane/intravenous zoledronic acid
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
bamboo89
in
My Ovacome
9 months ago
Touchpoint Solutions for ADHD/Focus
My 8 yo daughter was diagnosed with ADHD last year. After a several month wait due to insurance and availability limitations, she is now in therapy and I think it will be very helpful for her. She continues to struggle in school. I hoping to avoid medication if I can, but I also know it will be some
My 8 yo daughter was diagnosed with ADHD last year. After a several month wait due to insurance and availability limitations, she is now in therapy and I think it will be very helpful for her. She continues to struggle in school. I hoping to avoid medication if I can, but I also know it will be some
Otter1313
in
CHADD's ADHD Parents Together
3 months ago
Just had My Monthly Injection of Firmagon Monthly Labs PSA is Up <0.06 to 0.09
That’s pretty modest. I’m assuming I will wait till next month to see if it goes down. Kind of stressed with this new diverticulitis and blood bowel thing AND Moving. Got results of psa after I saw My Medical Oncologist so haven’t discussed modest jump. Even with bleeding from rectum the gastroenterologist
That’s pretty modest. I’m assuming I will wait till next month to see if it goes down. Kind of stressed with this new diverticulitis and blood bowel thing AND Moving. Got results of psa after I saw My Medical Oncologist so haven’t discussed modest jump. Even with bleeding from rectum the gastroenterologist
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
filgotinib dosage
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
Doodlereggie
in
NRAS
8 months ago
Meridian Viewray is toast. Can Cyberkife machines use MRI the same way?
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Cancer2x
in
Advanced Prostate Cancer
9 months ago
My Cancer Reality Check
I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this chemotherapy stuff, more doctor visits, side effects, up and down 🎢 emotions!! You guys get me. Right? Sometimes it is hard to be strong and positive!
I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this chemotherapy stuff, more doctor visits, side effects, up and down 🎢 emotions!! You guys get me. Right? Sometimes it is hard to be strong and positive!
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
9 months ago
📢 Saturday October 14th Free Live HCC Workshop📢
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
9 months ago
Biopsy Results
I have had the results of my recent endosendoscopy today. I went privately to see a gastroenterologist as the previous one I had done on NHS stated that I did not need a follow-up even though they found Atrophic Gastritis and Hyperplasia. I had something called The Sydney Protocol, this involved taking
I have had the results of my recent endosendoscopy today. I went privately to see a gastroenterologist as the previous one I had done on NHS stated that I did not need a follow-up even though they found Atrophic Gastritis and Hyperplasia. I had something called The Sydney Protocol, this involved taking
Helliborous
in
Pernicious Anaemia Society
8 months ago
Vitamin A - retinol.
Dr. John Campbell posted a video about how low vitamin A (retinol) levels predispose a person to experience pneumonia from the Mycoplasm pneumoniae which is currently at near epidemic levels among children in northern China. No surprise here to be honest considering the severe lockdowns. Children have
Dr. John Campbell posted a video about how low vitamin A (retinol) levels predispose a person to experience pneumonia from the Mycoplasm pneumoniae which is currently at near epidemic levels among children in northern China. No surprise here to be honest considering the severe lockdowns. Children have
gabkad
in
Thyroid UK
8 months ago
blood test-nutrients advice
Hi everyone! First of all, I have to say thank you. This is my first time posting, but I've been lurking around here for a while now and I have already learnt so much from this forum! I was diagnosed with hypothyroidism in Nov 2021 and put on 25mcg levothyroxine. It has been a slow battle to get doctors
Hi everyone! First of all, I have to say thank you. This is my first time posting, but I've been lurking around here for a while now and I have already learnt so much from this forum! I was diagnosed with hypothyroidism in Nov 2021 and put on 25mcg levothyroxine. It has been a slow battle to get doctors
catpotter44
in
Thyroid UK
8 months ago
CT scan
I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has a CT scan which showed more bone Mets and increased size. A node in lungs which was not seen on previous scan 6 months ago. Discouraged to think
I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has a CT scan which showed more bone Mets and increased size. A node in lungs which was not seen on previous scan 6 months ago. Discouraged to think
mkrienke55
in
SHARE Metastatic Breast Cancer
9 months ago
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