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I have joined here today. I have Power of Atorney for my 41 year old son. He suffered a severe Brain bleed caused by a benign tumour He is now left with severe short term memory, plus other related Aquired Brain Injury problems. At 41 he is a very frustrated young man desperate to lead a happier life
I have joined here today. I have Power of Atorney for my 41 year old son. He suffered a severe Brain bleed caused by a benign tumour He is now left with severe short term memory, plus other related Aquired Brain Injury problems. At 41 he is a very frustrated young man desperate to lead a happier life
Saltness
in
Headway
4 years ago
MS Research Update 2020 Edition
MSAA’s 2020 edition of the MS Research Update is now available! This important publication provides a comprehensive overview of the study results on many of the approved and experimental disease-modifying therapies (DMTs) for multiple sclerosis (MS). In addition to medications, the update also highlights
MSAA’s 2020 edition of the MS Research Update is now available! This important publication provides a comprehensive overview of the study results on many of the approved and experimental disease-modifying therapies (DMTs) for multiple sclerosis (MS). In addition to medications, the update also highlights
johnMSAA
Partner
in
My MSAA Community
4 years ago
Just trying to figure it out.
So I got a bunch of symptoms following a head injury 2 yrs ago. Mainly autonomic problems, it a long story some Neurologist said could be early PD. The last one at Mayo said he 99% sure not PD or PD + disorder. I was ecstatic, but also thought, don't people have symptoms for years before diagnosis
So I got a bunch of symptoms following a head injury 2 yrs ago. Mainly autonomic problems, it a long story some Neurologist said could be early PD. The last one at Mayo said he 99% sure not PD or PD + disorder. I was ecstatic, but also thought, don't people have symptoms for years before diagnosis
Girth1
in
Cure Parkinson's
4 years ago
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Any studies on longterm effects of live shingles vaccine and PMR
I was wondering if anyone knows of any studies that have been done about those of us that contracted PMR after taking the live shingles vaccine. I wonder if PMR will last as long in our system as the shingles vaccine antibodies are active in our system? The pharmacist says the antibodies last 5+years
I was wondering if anyone knows of any studies that have been done about those of us that contracted PMR after taking the live shingles vaccine. I wonder if PMR will last as long in our system as the shingles vaccine antibodies are active in our system? The pharmacist says the antibodies last 5+years
Linny3
in
PMRGCAuk
4 years ago
Medication and DBS
Hi all. My husband diagnosed with PD two years ago (almost). He refused to take any medication. It seems PD had some progress. I have a feeling he is now thinking about treatment or medication. He asked me how long usually takes to be on medication before going for DBS. (He is 44years old) Do you
Hi all. My husband diagnosed with PD two years ago (almost). He refused to take any medication. It seems PD had some progress. I have a feeling he is now thinking about treatment or medication. He asked me how long usually takes to be on medication before going for DBS. (He is 44years old) Do you
Parsa
in
Cure Parkinson's
4 years ago
Niacin for high cholesterol
Hello everyone. I am a 65 year old female. I’ve always had high cholesterol despite having a good diet and exercising regularly. I tried statins but I had lots of unpleasant side effects so I stopped taking them. My Gp advised me to try Niacin 500 mg a day. I have been taking them for 5 weeks now but
Hello everyone. I am a 65 year old female. I’ve always had high cholesterol despite having a good diet and exercising regularly. I tried statins but I had lots of unpleasant side effects so I stopped taking them. My Gp advised me to try Niacin 500 mg a day. I have been taking them for 5 weeks now but
Idalmis
in
Cholesterol Support
4 years ago
Focused Ultrasound Therapy, FDA-approved for Essential Tremors
Focused ultrasound is a completely non-invasive method of thalamotomy - a procedure in which a predefined small volume of brain tissue containing nerve cells causing the tremor is destroyed - that could be an effective option for certain patients. It is performed while the patient is awake and involves
Focused ultrasound is a completely non-invasive method of thalamotomy - a procedure in which a predefined small volume of brain tissue containing nerve cells causing the tremor is destroyed - that could be an effective option for certain patients. It is performed while the patient is awake and involves
Pa-zzi69
in
Cure Parkinson's
4 years ago
Hypo post RAI still have symptoms - help with blood results
Hi - pretty new here and been reading posts so got medichecks ultra vit test. Appreciate anyone that can help interpret my results. I am on levothyroxine 125mcg I took the blood test fasting, first thing in morning and didn't take my thyroxine for 24 hours before. I also stopped my multivitamin 7 days
Hi - pretty new here and been reading posts so got medichecks ultra vit test. Appreciate anyone that can help interpret my results. I am on levothyroxine 125mcg I took the blood test fasting, first thing in morning and didn't take my thyroxine for 24 hours before. I also stopped my multivitamin 7 days
HypoPirateGirl
in
Thyroid UK
4 years ago
Shingles vaccine
Shingles vaccine. Hi am am ETJak2+, I am unable to have the live shingles vaccine with nhs, but I have read that there is an inert vaccine available. Has anyone had this on the nhs and if so how did you achieve it. Thank you in advance.
Shingles vaccine. Hi am am ETJak2+, I am unable to have the live shingles vaccine with nhs, but I have read that there is an inert vaccine available. Has anyone had this on the nhs and if so how did you achieve it. Thank you in advance.
Hydrox
in
MPN Voice
4 years ago
Biotin supplements ?
Just wondering if anyone takes Biotin or any other supplements to support healthy hair growth whilst taking Pred ?
Just wondering if anyone takes Biotin or any other supplements to support healthy hair growth whilst taking Pred ?
CarolF1312
in
PMRGCAuk
4 years ago
Viral meningitis last month
Last month, July 2020, I was diagnosed with viral meningitis after being misdiagnosed with covid (by two different md). So it went on for about 11 days before being diagnosed at the tail end of it. Now, a month later I am still having grogginess and eye spots, major fatigue. Several other lingering symptoms
Last month, July 2020, I was diagnosed with viral meningitis after being misdiagnosed with covid (by two different md). So it went on for about 11 days before being diagnosed at the tail end of it. Now, a month later I am still having grogginess and eye spots, major fatigue. Several other lingering symptoms
MrsMagu
in
Meningitis Now
4 years ago
Information on blood tests
Hello everyone! I recently came across this one important information regarding the blood tests for thyroid and wanted to share it with you. "Supplements containing biotin, common in hair and nail preparations, can interfere with the measurement of thyroid hormone. Biotin does not affect thyroid hormone
Hello everyone! I recently came across this one important information regarding the blood tests for thyroid and wanted to share it with you. "Supplements containing biotin, common in hair and nail preparations, can interfere with the measurement of thyroid hormone. Biotin does not affect thyroid hormone
Leosona
in
Thyroid UK
4 years ago
Chemo side effects
Hello, I'm currently on cycle no. 7 (chemo and immunatherapy) for terminal stage 4 lung cancer with 5 more cycles to go and am finding the side effects following treatment are getting worse and it takes me longer to recover. I seem to spend more time feeling rough than anything and somedays I feel like
Hello, I'm currently on cycle no. 7 (chemo and immunatherapy) for terminal stage 4 lung cancer with 5 more cycles to go and am finding the side effects following treatment are getting worse and it takes me longer to recover. I seem to spend more time feeling rough than anything and somedays I feel like
Bailey19260
in
The Roy Castle Lung Cancer Foundation
4 years ago
Seeking some help for my Surgery
I unfortunately suffered a traumatic brain injury in February this year. I had to have a craniotomy to basically save my life with my brain swelling. I was wondering if anybody could help regarding my upcoming surgery and how my life will be afterwards? I have a Cranioplasty 3rd August and was just
I unfortunately suffered a traumatic brain injury in February this year. I had to have a craniotomy to basically save my life with my brain swelling. I was wondering if anybody could help regarding my upcoming surgery and how my life will be afterwards? I have a Cranioplasty 3rd August and was just
PCranston95
in
Headway
4 years ago
Active B12 of 31.5, folate of 1.72 - missing periods?
Hi Everyone, I’d really appreciate help with my friend’s daughter’s blood results please. Her main symptoms are being more tired than usual, some breathlessness, and missing periods, or just having a tiny bit of spotting. These symptoms have been going on for about 3 years, she’s 29. Her GP did
Hi Everyone, I’d really appreciate help with my friend’s daughter’s blood results please. Her main symptoms are being more tired than usual, some breathlessness, and missing periods, or just having a tiny bit of spotting. These symptoms have been going on for about 3 years, she’s 29. Her GP did
Lesleyg13
in
Pernicious Anaemia Society
4 years ago
Hi! This is my first post. DBS assessment - Has anyone had the same result as my brain MRI test below? If so, what are your symptoms?
Brain MRI test result: Microvascular ischemic disease brain also called White matter disease
Brain MRI test result: Microvascular ischemic disease brain also called White matter disease
Kingdomcome
in
Cure Parkinson's
4 years ago
Langerhans cell histiocytosis
I was diagnosed last year and would like to hear from anyone else diagnosed with lch
I was diagnosed last year and would like to hear from anyone else diagnosed with lch
Mrsclh
in
Lung Conditions Community Forum
4 years ago
Am I taking too much vitamins?
I have no Idea what the weird numbers mean after it apart from ug. I included these incase it makes sense to someone else. I'm low in Vitamin D and iron , I always have been since a kid. I've only just noticed what each of the packet says , more concerned with taking both the multivitamin and the
I have no Idea what the weird numbers mean after it apart from ug. I included these incase it makes sense to someone else. I'm low in Vitamin D and iron , I always have been since a kid. I've only just noticed what each of the packet says , more concerned with taking both the multivitamin and the
Hidden
in
Fibromyalgia Action UK
4 years ago
Step by Step
I’d like to think the past few day’s have been good. I’ve been going out doing things. I still get weird feelings that freak me out and make me feel like I have a brain tumor or aneurysm.. I just breathe and remind myself that I’ve felt it before. Thoughts are scary- the “what if’s.” I just pray that
I’d like to think the past few day’s have been good. I’ve been going out doing things. I still get weird feelings that freak me out and make me feel like I have a brain tumor or aneurysm.. I just breathe and remind myself that I’ve felt it before. Thoughts are scary- the “what if’s.” I just pray that
anon99
in
Anxiety Support
4 years ago
Graves’ disease medication help????
Ive been recently diagnosed with Graves’ disease would anyone be able to advise me please, I’ve been told to stop taking Carbimazole 20mg immediately, my hair is falling out and my personality drastically changed and I put on 1 and a half stone, i was told to restart a week after being off it at 5mg
Ive been recently diagnosed with Graves’ disease would anyone be able to advise me please, I’ve been told to stop taking Carbimazole 20mg immediately, my hair is falling out and my personality drastically changed and I put on 1 and a half stone, i was told to restart a week after being off it at 5mg
Violetlilyboutique
in
Thyroid UK
4 years ago
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