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Had my REMS scan today
Excellent session and good news - REMS shows that I don’t have osteoporosis even though DXA says I did! I am osteopenic which is what I suspected and why I wanted the scan. Advice was to manage with diet and exercise which I am all in favour of and no intention of ever going on the drugs. Dr was very
Excellent session and good news - REMS shows that I don’t have osteoporosis even though DXA says I did! I am osteopenic which is what I suspected and why I wanted the scan. Advice was to manage with diet and exercise which I am all in favour of and no intention of ever going on the drugs. Dr was very
CDreamer
in
Bone Health and Osteoporosis UK
11 months ago
QOL Arm wrestling
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
Scout4answers
in
Advanced Prostate Cancer
11 months ago
"Your thyroid's fine"...what do you think?
Hi. I've been told by a GP that my thyroid is fine. I don't think it is. I'd be grateful for your opinions. Like many others here, I'm fed up with Dr.s saying it's my age, the menopause, or there's nothing wrong. Medichecks results: May 23 Thyroglobulin Antibodies: 423.000 kIU/L (Range: <115
Hi. I've been told by a GP that my thyroid is fine. I don't think it is. I'd be grateful for your opinions. Like many others here, I'm fed up with Dr.s saying it's my age, the menopause, or there's nothing wrong. Medichecks results: May 23 Thyroglobulin Antibodies: 423.000 kIU/L (Range: <115
Sleepysparrow
in
Thyroid UK
11 months ago
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CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
ADT how long
I just started hormone therapy about a month ago on orgovyx pills. They're telling me today I need to stay on this for 2 years. Why so long?
I just started hormone therapy about a month ago on orgovyx pills. They're telling me today I need to stay on this for 2 years. Why so long?
SilverSeppi
in
Advanced Prostate Cancer
11 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
11 months ago
sweating with hypothyroidism
hi I posted last month because although on lethvothyrovxine I was getting really dreadful heat sweats (hair, clothes soaked). I now have my complete hormone tests back . It has been found that I am very deficient in testosterone. Consultant is to prescribe a micro dose for me. I am 66 years old and
hi I posted last month because although on lethvothyrovxine I was getting really dreadful heat sweats (hair, clothes soaked). I now have my complete hormone tests back . It has been found that I am very deficient in testosterone. Consultant is to prescribe a micro dose for me. I am 66 years old and
Upanddownlady15
in
Thyroid UK
11 months ago
Please help needed
Hi, following thyroidectomy in 2017 I was doing okay on thiroyd then true thyroid and then t3 only but iv come to a stump and rapidly running out of medicine with the last company just taking my money but not sending the t3 please if someone could please kindly direct message me information on where
Hi, following thyroidectomy in 2017 I was doing okay on thiroyd then true thyroid and then t3 only but iv come to a stump and rapidly running out of medicine with the last company just taking my money but not sending the t3 please if someone could please kindly direct message me information on where
Tbob
in
Thyroid UK
1 year ago
Advice on halting bone loss following Dexa and hrt or other supplements.
Thyroid cancer at 23, high dose T4 requiring propranolol for 17 years, then battles over dosage post menopause as rules changed. T3, when measured, always seemed to be at a good level. I didn't take HRT as it was at the height of the cancer scare. I regret it now. Sjogrens and very low vitamin D diagnosed
Thyroid cancer at 23, high dose T4 requiring propranolol for 17 years, then battles over dosage post menopause as rules changed. T3, when measured, always seemed to be at a good level. I didn't take HRT as it was at the height of the cancer scare. I regret it now. Sjogrens and very low vitamin D diagnosed
Maztee
in
Thyroid UK
11 months ago
Update to: "Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?"
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Brokedown_Palace
in
Advanced Prostate Cancer
11 months ago
declining psa #6
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Nfler
in
Advanced Prostate Cancer
11 months ago
Treatment Comparison Tool
Hi All, I stumbled across this prostate treatment comparison tool which seems to be a pretty reasonable method based on a lot of data that could help those of us struggling to know what treatment to have. https://www.prostatecancerfree.org/compare-prostate-cancer-treatments-high-risk/ I listed the
Hi All, I stumbled across this prostate treatment comparison tool which seems to be a pretty reasonable method based on a lot of data that could help those of us struggling to know what treatment to have. https://www.prostatecancerfree.org/compare-prostate-cancer-treatments-high-risk/ I listed the
Mike58
in
Prostate Cancer Network
11 months ago
Degarelix and increased diabetes risk?
My husband had his first Degarelix injection last week. I have been reading that men who get ADT have an increased risk of diabetes. Just wondering because he had a blood test today, and his glucose was high. Diabetes runs in his family as his father, brother and sisters all had/have diabetes. Both father
My husband had his first Degarelix injection last week. I have been reading that men who get ADT have an increased risk of diabetes. Just wondering because he had a blood test today, and his glucose was high. Diabetes runs in his family as his father, brother and sisters all had/have diabetes. Both father
Oatmeal2
in
Prostate Cancer Network
11 months ago
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
11 months ago
low back problems
I've been on Eligard and abiraterone+prednisone for slightly more than a year, out of a planned 2 years. I had 44 sessions of proton beam therapy ending 4/7/23. My PSA has been undetectable since early in my ADT regimen, and remained so as recently as 2 weeks ago. I began to have low back pain, sometimes
I've been on Eligard and abiraterone+prednisone for slightly more than a year, out of a planned 2 years. I had 44 sessions of proton beam therapy ending 4/7/23. My PSA has been undetectable since early in my ADT regimen, and remained so as recently as 2 weeks ago. I began to have low back pain, sometimes
Atdabeach
in
Advanced Prostate Cancer
1 year ago
Hot flushes after ovarian cancer surgery
Hi ladies, struggling with hot flushes keeping me awake most of the night following surgery for ovarian cancer few months back. Anyone found a good supplement that can be used by those of us for whom HRT is contraindicated ( alot I read about have natural ingredients which mimic oestrogen so are advised
Hi ladies, struggling with hot flushes keeping me awake most of the night following surgery for ovarian cancer few months back. Anyone found a good supplement that can be used by those of us for whom HRT is contraindicated ( alot I read about have natural ingredients which mimic oestrogen so are advised
Jholly4
in
Menopause and Perimenopause Support
11 months ago
hrt/menopause and lupus
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
Babycakes1971
in
LUPUS UK
11 months ago
Oar Gel and gold placements for beginners on this journey
I am a beginner on this PC journey but feel fortunate that I caught my cancer before it had spread beyond the prostate. I caught sepsis from my directed transrectal biopsy and spent a lovely few days in ICU flirting with the nurses and trying not to mess up the bed and floor too much. I have 9 weeks
I am a beginner on this PC journey but feel fortunate that I caught my cancer before it had spread beyond the prostate. I caught sepsis from my directed transrectal biopsy and spent a lovely few days in ICU flirting with the nurses and trying not to mess up the bed and floor too much. I have 9 weeks
Eadgbe
in
Prostate Cancer Network
11 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
11 months ago
Thyroid and the Menstrual Cycle?
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
JUUJOO
in
Thyroid UK
11 months ago
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