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Beckwith-Wiedemann Syndrome
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Sertraline
I have been taking sertraline for several years. Since my restless legs got worse and I have been reading about it, I am cutting back. Does anyone else think that the antidepressant made the restless legs worse? And has anyone come off the antidepressants and coped? I’m coming off from slowly so far
I have been taking sertraline for several years. Since my restless legs got worse and I have been reading about it, I am cutting back. Does anyone else think that the antidepressant made the restless legs worse? And has anyone come off the antidepressants and coped? I’m coming off from slowly so far
RestlessMe
in
Restless Legs Syndrome
2 years ago
Ropinirole
Hello. I am a new member of this community. I have had RLS since I was a child, but it has just been at the level of an occasional nuisance. However, at the age of 85, it has suddenly become a problem, mainly because I have started having violent leg movements in my sleep, which for some reason my
Hello. I am a new member of this community. I have had RLS since I was a child, but it has just been at the level of an occasional nuisance. However, at the age of 85, it has suddenly become a problem, mainly because I have started having violent leg movements in my sleep, which for some reason my
Shakespeare1564
in
Restless Legs Syndrome
2 years ago
Desogestrel back and leg pain
Hi Everyone, I've started taking desogestrel as treatment for endometriomas and fibroids. I've only been taking it for a couple of weeks but I'm getting terrible back and leg pain every morning. It wears off a bit during the day but comes back in the evening. Also I'm having to get up every night
Hi Everyone, I've started taking desogestrel as treatment for endometriomas and fibroids. I've only been taking it for a couple of weeks but I'm getting terrible back and leg pain every morning. It wears off a bit during the day but comes back in the evening. Also I'm having to get up every night
Sheep2
in
Endometriosis UK
2 years ago
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Tissue Salts
So, given that I was in Covent Garden on Monday, and quite literally walking past the end of their road, it felt plain rude not to call into Helios Homeopathy. Following a chat with the homeopath I decided to get a remedy called Combination 12 Tissue Salts. I need to take that for a minimum of three
So, given that I was in Covent Garden on Monday, and quite literally walking past the end of their road, it felt plain rude not to call into Helios Homeopathy. Following a chat with the homeopath I decided to get a remedy called Combination 12 Tissue Salts. I need to take that for a minimum of three
rogergee
in
Pernicious Anaemia Society
2 years ago
New diagnosis
I have posted on this site before in regards to my daughter and her restless legs syndrome. She was on a very high dose of morphine as a last resort which of course caused augmentation and misery. She ended up in a Health Care Center and did manage to lower her dose to a manageable level with the goal
I have posted on this site before in regards to my daughter and her restless legs syndrome. She was on a very high dose of morphine as a last resort which of course caused augmentation and misery. She ended up in a Health Care Center and did manage to lower her dose to a manageable level with the goal
Skifam
in
Restless Legs Syndrome
2 years ago
Nothing works
I'm taking 300mgs pregabalin. I've tried even more but it doesn't work. Even with tramadol 50mgs it does nothing.I can be walking around until 3.30 to 5.30. I've taken tonight my 300 pregabalin and 2 OTC ibobrufen and codeine. I've just taken 15 mgs codeine and a teaspoon of Kratom. I'm still rubbing
I'm taking 300mgs pregabalin. I've tried even more but it doesn't work. Even with tramadol 50mgs it does nothing.I can be walking around until 3.30 to 5.30. I've taken tonight my 300 pregabalin and 2 OTC ibobrufen and codeine. I've just taken 15 mgs codeine and a teaspoon of Kratom. I'm still rubbing
Memmy
in
Restless Legs Syndrome
2 years ago
Ropinirole to gabapentin
I am in the process of moving from ropinirole to gabapentin. I'm now at 900mg of gabapentin and heading for 1200, and down to 3mg from 4mg of ropinirole. No obvious side effects so far. Any advice on staggering gabapentin across the day? I would have thought the aim is to eliminate RLS both during the
I am in the process of moving from ropinirole to gabapentin. I'm now at 900mg of gabapentin and heading for 1200, and down to 3mg from 4mg of ropinirole. No obvious side effects so far. Any advice on staggering gabapentin across the day? I would have thought the aim is to eliminate RLS both during the
danamias
in
Restless Legs Syndrome
2 years ago
Good Planning Can Work.
Yesterday (Saturday) I had one of the loveliest and most memorable days that I've had for some time......I went into London to meet my DIL-to-be, to see her in the wedding dress she'd shortlisted as, 'the one'! The date had been agreed and on the calendar for a few months but I was becoming increasingly
Yesterday (Saturday) I had one of the loveliest and most memorable days that I've had for some time......I went into London to meet my DIL-to-be, to see her in the wedding dress she'd shortlisted as, 'the one'! The date had been agreed and on the calendar for a few months but I was becoming increasingly
Kendrew
in
PMRGCAuk
2 years ago
Trying to be hopeful?
Hi all you beauties! I’m needing some love right now. I’m currently 5wks3days. I’ve been having some minor brown discharge that has slowly increased in amount over the past week. Today I went to the bathroom and expecting brown I saw bright red blood. I’ve heard so many people say spotting is normal
Hi all you beauties! I’m needing some love right now. I’m currently 5wks3days. I’ve been having some minor brown discharge that has slowly increased in amount over the past week. Today I went to the bathroom and expecting brown I saw bright red blood. I’ve heard so many people say spotting is normal
Hopingforbaby_
in
Fertility Network UK
2 years ago
Sjögren’s syndrome
I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
I am suffering with bad Sjogren’s syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
favour6
in
LUPUS UK
2 years ago
Weaning off ropinirol
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
jaime77
in
Restless Legs Syndrome
2 years ago
Hip Replacement OP
I've been blessed and offered a cancellation for the hip op. Very last moment, but grabbed it as I've been reduced to a cripple. Had it last Saturday and I'm back home now learning how to walk again and get my knickers on without bending! Just to say the anaesthetist was great. Gave me methadoxatone
I've been blessed and offered a cancellation for the hip op. Very last moment, but grabbed it as I've been reduced to a cripple. Had it last Saturday and I'm back home now learning how to walk again and get my knickers on without bending! Just to say the anaesthetist was great. Gave me methadoxatone
oscarandchloe
in
PMRGCAuk
2 years ago
Am I entitled to IVF on the NHS
Hi all, after years of tests with my gynaecologist he has finally referred me to an IVF clinic and we had our first appointment today. The Doctor there has said she needs to do some research but she thinks because the Gynaecologist prescribed me Clomiphene that I may now not be entitled to IVF on the
Hi all, after years of tests with my gynaecologist he has finally referred me to an IVF clinic and we had our first appointment today. The Doctor there has said she needs to do some research but she thinks because the Gynaecologist prescribed me Clomiphene that I may now not be entitled to IVF on the
LillyZL
in
Fertility Network UK
2 years ago
THC O- a 1 person mini experiment
I got my THC O in the mail last Monday and have taken it all week. Here are my personal conclusions. Keep in mind this is just my experience. It may differ for others. DOES IT WORK: Yes. It seems to have the same efficacy, mg to mg, as normal THC. WOULD I RECOMMEND IT: No. Not if you have other options
I got my THC O in the mail last Monday and have taken it all week. Here are my personal conclusions. Keep in mind this is just my experience. It may differ for others. DOES IT WORK: Yes. It seems to have the same efficacy, mg to mg, as normal THC. WOULD I RECOMMEND IT: No. Not if you have other options
Guitarpickin
in
Restless Legs Syndrome
2 years ago
Sleep Tracker Recommendations?
Hi all, I'm 53 and have had severe refractory RLS and PLMD for over 30 years now. As you can imagine, or probably know yourself, lack of sleep has been a nightmare for a long time. I'm looking for recommendations for sleep trackers as my doctors want to know when and how long I sleep. Because of the
Hi all, I'm 53 and have had severe refractory RLS and PLMD for over 30 years now. As you can imagine, or probably know yourself, lack of sleep has been a nightmare for a long time. I'm looking for recommendations for sleep trackers as my doctors want to know when and how long I sleep. Because of the
Rezcat11
in
Restless Legs Syndrome
2 years ago
Tramadol + Gabapentin
I have been on 100mg Tramadol and 1200mg Gabapentin for about 8 years now (after all the DA’s and augmentation). This last year getting up once or twice a night has turned into 3+ times and some very bad evenings and I believe I have reached tolerance in Tramadol. I won’t increase above 100mg as I fear
I have been on 100mg Tramadol and 1200mg Gabapentin for about 8 years now (after all the DA’s and augmentation). This last year getting up once or twice a night has turned into 3+ times and some very bad evenings and I believe I have reached tolerance in Tramadol. I won’t increase above 100mg as I fear
John_naylor
in
Restless Legs Syndrome
2 years ago
RLS and Mono (Epstein-Barr virus), any correlation?
Hi all, I'm testing an hypothesis about RLS and mono today. Short story, I had mono symptoms for months about two years go. I tested reactive for EBV VCA IgG EIA (mono) twice over a few months period. It eventually got better, but I still get those same symptoms randomly for a few days or a week at
Hi all, I'm testing an hypothesis about RLS and mono today. Short story, I had mono symptoms for months about two years go. I tested reactive for EBV VCA IgG EIA (mono) twice over a few months period. It eventually got better, but I still get those same symptoms randomly for a few days or a week at
GuillaumeL
in
Restless Legs Syndrome
2 years ago
Teva and dry mouth
I’ve written here before about the dry mouth I’ve had since just before Christmas. And about all the many tests and scans I’ve had in that time, all of which drew a blank. Then in March / April I picked up some more Levothyroxine packets from the pharmacist. On that occasion I was served by a particular
I’ve written here before about the dry mouth I’ve had since just before Christmas. And about all the many tests and scans I’ve had in that time, all of which drew a blank. Then in March / April I picked up some more Levothyroxine packets from the pharmacist. On that occasion I was served by a particular
HowNowWhatNow
in
Thyroid UK
2 years ago
Anyone get chorea with aps?
Just wondering if anyone gets chorea with their aps? I haven't been diagnosed yet waiting for my 2nd test. I have been having these weird facial tics and arm/hand movements, usually followed by a seizure. Its just battling whsts happening to me. Then when I test positive for b2 glycoprotein and thought
Just wondering if anyone gets chorea with their aps? I haven't been diagnosed yet waiting for my 2nd test. I have been having these weird facial tics and arm/hand movements, usually followed by a seizure. Its just battling whsts happening to me. Then when I test positive for b2 glycoprotein and thought
Charts
in
Hughes Syndrome APS Forum
2 years ago
Almost 18 years walking alone with no diagnosis to my vocal tic disorder.
Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who
Good Afternoon to you all. I am knew here. This morning I was given hope for my Vocal tic disorder. It was given a name FND. I had given up hope that there would be something that could be done to help my disability in this life, beside the many options of medication. Then finding you guys, people who
DarkBlackberry
in
Functional Neurological Disorder - FND Hope
2 years ago
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