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Bacillus Calmette-Guérin (BCG) vaccine
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My Cancer and other health issues update.
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
Ern007
in
Lung Conditions Community Forum
8 months ago
Has anyone heard of Parsonage Turner Syndrome? Out of interest.
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Greensleeves
in
PMRGCAuk
7 months ago
Sharing my experience of having the flu with Parkinson's...
Hi everyone. I just wanted to share my experience of combining a severe flu with my Parkinson's symptoms. I've had Parkinson's for six years and I'm generally doing relatively well. But recently, I caught a severe flu while traveling in Italy with my wife and it made my symptoms much worse, with massive
Hi everyone. I just wanted to share my experience of combining a severe flu with my Parkinson's symptoms. I've had Parkinson's for six years and I'm generally doing relatively well. But recently, I caught a severe flu while traveling in Italy with my wife and it made my symptoms much worse, with massive
Michel0220
in
Cure Parkinson's
7 months ago
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Trapped nerve/ shoulder pain
last July I was diagnosed with low b12, I started on a series of 6 injections before starting on a three monthly top up regime. In that time I also received my annual flu vaccination and most recent covid jab. in December 2023 I started having numbness in three fingers, index, middle and ring and
last July I was diagnosed with low b12, I started on a series of 6 injections before starting on a three monthly top up regime. In that time I also received my annual flu vaccination and most recent covid jab. in December 2023 I started having numbness in three fingers, index, middle and ring and
J200george
in
Pernicious Anaemia Society
7 months ago
Issues with travel insurance
Apologies for the long post. In 2014 I was diagnosed with a hole in the heart, this was repaired December 2014, after a couple of months started with heart rate and rhythm issues, AF, flutter and AVNRT, these were finally sorted with a. Ablation in 2016, very few episodes for the last 7 years, took Bisoprolol
Apologies for the long post. In 2014 I was diagnosed with a hole in the heart, this was repaired December 2014, after a couple of months started with heart rate and rhythm issues, AF, flutter and AVNRT, these were finally sorted with a. Ablation in 2016, very few episodes for the last 7 years, took Bisoprolol
mear1957
in
AF Association
7 months ago
Is enteric Prednisone available in France? Does anyone know? Flare!!
Hi my drama with foot and ankle pain has developed into. PMR story. My rheumatologist sent me to a foot ankle doc he trusts who was very thorough and listened to both of us. First doc:?MRI showed only mild Achilles Tendinitis but that was Diagnosis. Rheumie said not where most pain is. Couldn’t do
Hi my drama with foot and ankle pain has developed into. PMR story. My rheumatologist sent me to a foot ankle doc he trusts who was very thorough and listened to both of us. First doc:?MRI showed only mild Achilles Tendinitis but that was Diagnosis. Rheumie said not where most pain is. Couldn’t do
bluegirl7
in
PMRGCAuk
7 months ago
BCG for babies
Hi all , my Granddaughter is having a
BCG
I think it’s a live
vaccine
? I was just wondering if I have to keep my distance for a couple of weeks ? I
Hi all , my Granddaughter is having a
BCG
I think it’s a live
vaccine
? I was just wondering if I have to keep my distance for a couple of weeks ? I
Pekingese
in
CLL Support
1 year ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
7 months ago
Shingles jab
Hi everyone, just had second shingles vaccine and suddenly thought should I stop taking methotrexate this week also on sulfasalazine as is recommended after covid jab, I didn't stop taking meds after the first shingles jab,it just didn't even enter my head, think I'm losing it 😅 wishing you all as much
Hi everyone, just had second shingles vaccine and suddenly thought should I stop taking methotrexate this week also on sulfasalazine as is recommended after covid jab, I didn't stop taking meds after the first shingles jab,it just didn't even enter my head, think I'm losing it 😅 wishing you all as much
Jeremycfc
in
NRAS
7 months ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
9 months ago
Covid and flu vaccines
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
Manzana1
in
NRAS
7 months ago
Flu shot
I got the flu vaccine on Saturday. Since then, I've had a burning pain in my upper right leg. I think it's a side effect of the flu shot. Muscle pain is listed as a side effect. What do you think? Thanks!
I got the flu vaccine on Saturday. Since then, I've had a burning pain in my upper right leg. I think it's a side effect of the flu shot. Muscle pain is listed as a side effect. What do you think? Thanks!
liteglimmer
in
Headway
7 months ago
Use of NSAIDs in lieu of steroids
Prompted to post for the first time by Bobbykins ( couple of days prior) suggesting onset of PMR was triggered by flu vaccine. I am fairly convinced that mine was triggered a couple of years ago by a Covid vaccine which uniquely (only this brand has ever had an adverse effect) triggered the range of
Prompted to post for the first time by Bobbykins ( couple of days prior) suggesting onset of PMR was triggered by flu vaccine. I am fairly convinced that mine was triggered a couple of years ago by a Covid vaccine which uniquely (only this brand has ever had an adverse effect) triggered the range of
Daveydog
in
PMRGCAuk
7 months ago
Flu vaccination
Hi. I was wondering if its safe tonhave a flu vaccination after only 4 weeks of having a heart attack and stent fitted?
Hi. I was wondering if its safe tonhave a flu vaccination after only 4 weeks of having a heart attack and stent fitted?
BaronFrankenstein
in
British Heart Foundation
7 months ago
shingrix
Does anyone know how long you have to leave it after rutuximab before having the shingles vaccine. I had infusion in December & my GP has never offered this or the pneumonia jab so was going to chase this up. Tia
Does anyone know how long you have to leave it after rutuximab before having the shingles vaccine. I had infusion in December & my GP has never offered this or the pneumonia jab so was going to chase this up. Tia
juli-pa
in
Vasculitis UK
7 months ago
reducing Prednisolone
I have had PMR for eight years and for the last five, I have been on 3 mg of prednisolone. My GP was concerned that I had been on Pred for so long. My blood sugar is normal as is my DEXA scan, although it does show slight deterioration in my spine. However, it’s within the normal range. First rheumatologist
I have had PMR for eight years and for the last five, I have been on 3 mg of prednisolone. My GP was concerned that I had been on Pred for so long. My blood sugar is normal as is my DEXA scan, although it does show slight deterioration in my spine. However, it’s within the normal range. First rheumatologist
Bobbikins
in
PMRGCAuk
7 months ago
Bladder Cancer Update,
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
Ern007
in
Lung Conditions Community Forum
9 months ago
Malaria tablets
Hi everyone, am I the process of looking at a holiday. I know yellow fever vaccine is a big no no. Am on hydroxycarbamide and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
Hi everyone, am I the process of looking at a holiday. I know yellow fever vaccine is a big no no. Am on hydroxycarbamide and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
SazzaC
in
MPN Voice
4 months ago
hello
I was diagnosed with PMR about four years ago. Generally I am a positive person and I don’t dwell on my symptoms but getting off prednisolone seems to be impossible. I get down to 1mg then it flares again. I’m beginning to see a correlation between the flu vaccination and a flare up. I try to think
I was diagnosed with PMR about four years ago. Generally I am a positive person and I don’t dwell on my symptoms but getting off prednisolone seems to be impossible. I get down to 1mg then it flares again. I’m beginning to see a correlation between the flu vaccination and a flare up. I try to think
Hidden
in
PMRGCAuk
8 months ago
Shingles Vaccine Update
Well I never!! I woke to a text message from our GP's surgery to say that I am eligible for a shingles vaccination with a link to book in with a nurse. My GP's obviously looked up the guidelines & though better of her decision! I'm just hoping that after the fight to get it I don't have any adverse
Well I never!! I woke to a text message from our GP's surgery to say that I am eligible for a shingles vaccination with a link to book in with a nurse. My GP's obviously looked up the guidelines & though better of her decision! I'm just hoping that after the fight to get it I don't have any adverse
Otto11
in
NRAS
8 months ago
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