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Following my last post re shingles vaccine and that I had not had a face to face consultation since pre covid I have had a telephone consultation and I thought I would update you. The telephone consultation was with another unknown nurse within the haematology dept. My blood results were stable
Following my last post re shingles vaccine and that I had not had a face to face consultation since pre covid I have had a telephone consultation and I thought I would update you. The telephone consultation was with another unknown nurse within the haematology dept. My blood results were stable
nanmc
in
MPN Voice
1 month ago
Flare after Shingrix shingles vaccine?
Hi Everyone, I received my second (recombinant) shingles vaccine yesterday. The first one caused a mild fever and malaise. This time my finger joints are stiff and pretty painful. Has anyone else had something similar and, if so, how long did it last? Thanks so much
Hi Everyone, I received my second (recombinant) shingles vaccine yesterday. The first one caused a mild fever and malaise. This time my finger joints are stiff and pretty painful. Has anyone else had something similar and, if so, how long did it last? Thanks so much
HGCCNM
in
NRAS
1 month ago
What s happening in our NHS ?- All the shortages.
Two examples - I take Amiodarone for AF and other fast heart beats, I have had to have my prescription sent to another village, and they are running short. Glandosane synthetic saliva spray - Dry mouth is dross to put it mildly. no pharmacy near where I live has any. Not just the the BCG treatment
Two examples - I take Amiodarone for AF and other fast heart beats, I have had to have my prescription sent to another village, and they are running short. Glandosane synthetic saliva spray - Dry mouth is dross to put it mildly. no pharmacy near where I live has any. Not just the the BCG treatment
Ern007
in
Lung Conditions Community Forum
6 months ago
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reaction to Spikevax XBB 1.5Moderna
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Larks0ng
in
LUPUS UK
2 months ago
Shingles vaccine
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
Just got a phone call from GP booking me in for my shingles vaccine as I fit the criteria.Has anyone had any experience of the jab. Do I need to ask Rheumatology about changing my tcz infusion times . Thanks , I not after medical advice just whether you personally had to adjust your drip timings. I
allanah
in
NRAS
3 months ago
do I need the spring Covid shot?
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
I have had 7 covid shots since the start of Covid. On October 10 of 2023 I received the Moderna bivalent booster, as well as the flu shot and RSV shot. I came down with Covid, for the second time, on March 20 of 2024. First time was April of 2022, I am doing fine now. My wife tells me she received
Claybuster
in
CLL Support
3 months ago
BC Which Hospital Update _ and eyesl
I got a call saying I could go into local hospital for my flexy cystoscopy There is a 25 mile difference. My last rigid cystoscopy showed that 5 out of 6 biopsies was low grade, hence the flexy cystoscopy.. I have not long ago finished my 3 x BCG infusions - Have they worked, my flexy cystoscopy
I got a call saying I could go into local hospital for my flexy cystoscopy There is a 25 mile difference. My last rigid cystoscopy showed that 5 out of 6 biopsies was low grade, hence the flexy cystoscopy.. I have not long ago finished my 3 x BCG infusions - Have they worked, my flexy cystoscopy
Ern007
in
Lung Conditions Community Forum
6 months ago
Shingles vaccine and atrial fibrillation
Hi, My GP is recommending shingles vaccine. I am just concerned if it will cause atrial fibrillation. Any one had shingles vaccines with no adverse effects like atrial fibrillationThanks Padma
Hi, My GP is recommending shingles vaccine. I am just concerned if it will cause atrial fibrillation. Any one had shingles vaccines with no adverse effects like atrial fibrillationThanks Padma
Poluneeru
in
Atrial Fibrillation Support
3 months ago
Influenza A while on W & W,-- the price for not wanting a vaccine
I decided to put my pride and lack of articulate writing skills aside to share a my learning experience . It was in Jan of 23 when I was told over the phone of my CLL Dx. I walked around in a panicky daze. First I went to Mr Google. (BIG MISTAKE !) I started clearing out the house and giving things
I decided to put my pride and lack of articulate writing skills aside to share a my learning experience . It was in Jan of 23 when I was told over the phone of my CLL Dx. I walked around in a panicky daze. First I went to Mr Google. (BIG MISTAKE !) I started clearing out the house and giving things
Sillysand
in
CLL Support
4 months ago
A Bladder Cancer Update.
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
Ern007
in
Lung Conditions Community Forum
7 months ago
Flu shot debate, I've noticed a decline
My mom is 94 and a sibling took her for a flu shot without my knowledge. I then visited my mom about 10 days later and noticed her blood pressure was up to 198, even while lying down. I took her to immediate care where they brought it down but it continues to stay higher than usual and the cardiologist
My mom is 94 and a sibling took her for a flu shot without my knowledge. I then visited my mom about 10 days later and noticed her blood pressure was up to 198, even while lying down. I took her to immediate care where they brought it down but it continues to stay higher than usual and the cardiologist
GooseEggs
in
Atrial Fibrillation Support
4 months ago
Covid vaccines cut risk of virus-related heart failure and blood clots, study finds
Covid vaccines cut risk of virus-related heart failure and blood clots, study finds https://www.theguardian.com/science/2024/mar/12/covid-vaccines-cut-risk-virus-related-heart-failure-blood-clots-study Researchers say jabs substantially reduce for up to a year the chances of serious cardiovascular complications
Covid vaccines cut risk of virus-related heart failure and blood clots, study finds https://www.theguardian.com/science/2024/mar/12/covid-vaccines-cut-risk-virus-related-heart-failure-blood-clots-study Researchers say jabs substantially reduce for up to a year the chances of serious cardiovascular complications
lankisterguy
Volunteer
in
CLL Support
4 months ago
BCG for babies
Hi all , my Granddaughter is having a
BCG
I think it’s a live
vaccine
? I was just wondering if I have to keep my distance for a couple of weeks ? I
Hi all , my Granddaughter is having a
BCG
I think it’s a live
vaccine
? I was just wondering if I have to keep my distance for a couple of weeks ? I
Pekingese
in
CLL Support
1 year ago
pneumonia vaccination
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
I have been told to get my pneumonia jab , i’m not worried about sore arm, but i’m just a bit concerned i might feel poorly after. I didn’t feel poorly after my flu jab or covid booster. Any reassurance would be appreciated. Thank you.
Collie4
in
Lung Conditions Community Forum
5 months ago
BC Update with GP.
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
First I rang Macmillan and they thought it very odd my cancer had gone from high to low. So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help. I saw my GP today and like myself had a letter with no details at the top, this matters because
Ern007
in
Lung Conditions Community Forum
7 months ago
Waiting time after initial diagnosis
HiHow long on average is the wait after GP referral to Cardiology department? Was diagnosed in Sept 2023 whilst attending a flu jab appointment. Have not heard anything since, have tried chasing the hospital but unable to speak to anyone. TIA
HiHow long on average is the wait after GP referral to Cardiology department? Was diagnosed in Sept 2023 whilst attending a flu jab appointment. Have not heard anything since, have tried chasing the hospital but unable to speak to anyone. TIA
Maxted
in
British Heart Foundation
5 months ago
Skin Rash
Can receiving Covid-19 and Flu vaccines at the same time be a cause of skin rash for CLL patient? (I remember reading something in that effect last fall). I would appreciate your input. thanks
Can receiving Covid-19 and Flu vaccines at the same time be a cause of skin rash for CLL patient? (I remember reading something in that effect last fall). I would appreciate your input. thanks
Champlain
in
CLL Support
5 months ago
My Cancer and other health issues update.
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
Ern007
in
Lung Conditions Community Forum
7 months ago
Shingles vaccine… bad reaction
Last Thursday I had the Shingles vaccine, 1st dose. I immediately had a sore arm, painful really and that continued into the weekend. I also felt generally unwell, completely out of kilter and dizzy/ nauseous at times, runny nose and a bit of a cough. Then a red hot swollen rash appeared on Sunday
Last Thursday I had the Shingles vaccine, 1st dose. I immediately had a sore arm, painful really and that continued into the weekend. I also felt generally unwell, completely out of kilter and dizzy/ nauseous at times, runny nose and a bit of a cough. Then a red hot swollen rash appeared on Sunday
Brushwork
in
NRAS
6 months ago
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine?
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine? Answered by Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/KjUKG5O28WA?si=GdB1rjXWdmr5zZ0b
Should I wait to start my Low Dose Naltrexone (LDN) for the first time if I’ve had a Covid or annual Flu vaccine? Answered by Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/KjUKG5O28WA?si=GdB1rjXWdmr5zZ0b
Shewulf
Administrator
in
LDN Research Trust
6 months ago
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