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PGAD relief tips
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Lolliesandcakes
in
Pelvic Pain Support Network
3 months ago
Changed my cardiologist ;)
sadly, I have decided to change my cardiologist. The guy who did my ablation in 2015 retired from surgery and opened his own cardiology clinic. I thought about changing to his clinic, and switch from my old clinic a year ago. After a bad experience their (being mocked by the receptionist for forgetting
sadly, I have decided to change my cardiologist. The guy who did my ablation in 2015 retired from surgery and opened his own cardiology clinic. I thought about changing to his clinic, and switch from my old clinic a year ago. After a bad experience their (being mocked by the receptionist for forgetting
Japaholic
in
Atrial Fibrillation Support
4 months ago
Anxiety again
Well it’s been a hard two weeks. My GAD has flared again. I’ve been climbing the walls again. I think the past year and a half has caught up with me. I’ve been pushing my limits for a long time. With my operation and recovery, going back to work too early, my sister ‘s stroke and running back and
Well it’s been a hard two weeks. My GAD has flared again. I’ve been climbing the walls again. I think the past year and a half has caught up with me. I’ve been pushing my limits for a long time. With my operation and recovery, going back to work too early, my sister ‘s stroke and running back and
Gillyflower18
in
Anxiety and Depression Support
4 months ago
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PLMD and withdrawal
Three weeks ago I stopped (after tapering slowly) gabapentin. I have also been reducing morphine sulphate from 8mg by .01mL every 5 days for the last three weeks. PLMD off the charts. I take 2mg lunesta every 3 nights -- and not more -- in the hopes of not getting addicted. Those nights are better
Three weeks ago I stopped (after tapering slowly) gabapentin. I have also been reducing morphine sulphate from 8mg by .01mL every 5 days for the last three weeks. PLMD off the charts. I take 2mg lunesta every 3 nights -- and not more -- in the hopes of not getting addicted. Those nights are better
wantokporo
in
Restless Legs Syndrome
5 months ago
Baclofen tablets- experiences of.
I’ve recently had a really bad bout of neck spasm,following a General anaesthetic for a bladder distension for interstitial cystitis. I think the anaesthetist was a bit rough with my head extension! ( I’ve had 3 neck fusions,the last was in 2009. Am fused from C3-T3 posteriorly and from C3-C7 anteriorly
I’ve recently had a really bad bout of neck spasm,following a General anaesthetic for a bladder distension for interstitial cystitis. I think the anaesthetist was a bit rough with my head extension! ( I’ve had 3 neck fusions,the last was in 2009. Am fused from C3-T3 posteriorly and from C3-C7 anteriorly
Beakybird58
in
Fibromyalgia Action UK
5 months ago
Pelvic floor therapy after menopause
Hi, I am in the US, so a few things are different, but I am looking for help. I have MS, and I have muscle tightness or spasticity in other places as well as pelvic pain and tightness of my hip flexors. When I the hip pain worsens, so does the pelvic pain. I found a specialist who wants me to use vaginal
Hi, I am in the US, so a few things are different, but I am looking for help. I have MS, and I have muscle tightness or spasticity in other places as well as pelvic pain and tightness of my hip flexors. When I the hip pain worsens, so does the pelvic pain. I found a specialist who wants me to use vaginal
CatsandCars
in
Pelvic Pain Support Network
6 months ago
Royal Free visit
My Gastrointestinal symptoms can also be present in people without the disease so they didn’t think that warranted a positive diagnosis either.even though a
Barium
swallow
test
showed mild dysmotility, acid reflux and stasis of contrast so basically a little slow .
My Gastrointestinal symptoms can also be present in people without the disease so they didn’t think that warranted a positive diagnosis either.even though a
Barium
swallow
test
showed mild dysmotility, acid reflux and stasis of contrast so basically a little slow .
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
pain eating after hiatus hernia repair.
hey everyone, I had surgery to repair a hiatus hernia I had in 2019. I’m grateful I have had no acid reflux since but I get this really bad pain in my left shoulder (kind of up inline with my armpit). I went back to hospital for endoscopy and barium swallow because I regurgitate my food and they found
hey everyone, I had surgery to repair a hiatus hernia I had in 2019. I’m grateful I have had no acid reflux since but I get this really bad pain in my left shoulder (kind of up inline with my armpit). I went back to hospital for endoscopy and barium swallow because I regurgitate my food and they found
ShelleyPa
in
Pain Concern
9 months ago
Wake up please and you will understand.
Last year I was a mess, my ocd hit high levels but alot of that was because I came off valium cold turkey and it gave me a massive physical and psychological major major battle, that breakdown taught me alot my friends and I hope this will serve you well. I suffered and still do at times when stressed
Last year I was a mess, my ocd hit high levels but alot of that was because I came off valium cold turkey and it gave me a massive physical and psychological major major battle, that breakdown taught me alot my friends and I hope this will serve you well. I suffered and still do at times when stressed
Dempsey1919
in
My OCD Community
7 months ago
Stormy weather but we get through.
With a certain reluctance i once again laid on a New Year's Eve party, my heart wasn't in it and wanting to be anywhere but in my home, will anyone turn up in the atrocious weather?. I cooked a ham, turkey and beef stroganoff, assortment of cheeses and various sweet concoctions. 30 were invited but
With a certain reluctance i once again laid on a New Year's Eve party, my heart wasn't in it and wanting to be anywhere but in my home, will anyone turn up in the atrocious weather?. I cooked a ham, turkey and beef stroganoff, assortment of cheeses and various sweet concoctions. 30 were invited but
secrets22
in
Anxiety and Depression Support
7 months ago
weird prickling
hi everyone. Hope you all had a good Christmas. My doctor has been trying me on different medication to help with anxiety. It’s mainly in the mornings Im anxious. I’ve tried sertraline, which kept me awake and made me feel worse. Then they tried Mirtazapine, which seemed to help with sleep and the anxiety
hi everyone. Hope you all had a good Christmas. My doctor has been trying me on different medication to help with anxiety. It’s mainly in the mornings Im anxious. I’ve tried sertraline, which kept me awake and made me feel worse. Then they tried Mirtazapine, which seemed to help with sleep and the anxiety
Lakeshiker
in
Tinnitus UK
7 months ago
My 80 year-old dad with MPCa, broke his leg and now seems to be giving up. Advice on best anti-anxiety meds desperately needed.
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Lemonpower
in
Advanced Prostate Cancer
19 days ago
Problems, problems, problems
I take Sinamet, Losartan, and Quietapine before I go to sleep, and after 2 or 3 hours, I wake up and realize that I have Parkinson's, which I forgot while I was sleeping. I'm now awake and in the dark, and the fears of everything threatening me begin to affect me. So I turn on the light, go into
I take Sinamet, Losartan, and Quietapine before I go to sleep, and after 2 or 3 hours, I wake up and realize that I have Parkinson's, which I forgot while I was sleeping. I'm now awake and in the dark, and the fears of everything threatening me begin to affect me. So I turn on the light, go into
Alock2020
in
Cure Parkinson's
7 months ago
Scared. Mind is racing. Mom needs heart surgery.
I've posted before kind of on this topic but since I've become more agoraphobic and neurotic and shut down and hiding in my house. My mom needs heart surgery. She is my best friend. She is 82. I am 47. I don't have a partner or kids. I have a brother. He helps sometimes but he isn't completely emotionally
I've posted before kind of on this topic but since I've become more agoraphobic and neurotic and shut down and hiding in my house. My mom needs heart surgery. She is my best friend. She is 82. I am 47. I don't have a partner or kids. I have a brother. He helps sometimes but he isn't completely emotionally
Figgins42
in
Anxiety and Depression Support
7 months ago
SPECT scan horror
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
spencoid2
in
Advanced Prostate Cancer
8 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
3 months ago
My husband has passed.
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
rhenrick
in
Advanced Prostate Cancer
3 months ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
Perineal biopsy with local anesthetic
I have a scheduled perineal biopsy next Spring. My urologist uses only local anesthetic. We all experience pain differently. Please let me know your personal experience with pain during and after the procedure. 1. Did your physician prescribe hydrocodone and/or Valium in addition to the sedatives and
I have a scheduled perineal biopsy next Spring. My urologist uses only local anesthetic. We all experience pain differently. Please let me know your personal experience with pain during and after the procedure. 1. Did your physician prescribe hydrocodone and/or Valium in addition to the sedatives and
m3032
in
Active Surveillance - Prostate Cancer
8 months ago
advice
One year ago, my spasticity was so severe I took too many Baclofen tablets at the same time, that I almost died! Now I take 1 Tizanidine at bedtime. I also have a small notebook I keep next to all the muscle-relaxing pills and log in what I take to make sure I never overdose on muscle relaxing drugs
One year ago, my spasticity was so severe I took too many Baclofen tablets at the same time, that I almost died! Now I take 1 Tizanidine at bedtime. I also have a small notebook I keep next to all the muscle-relaxing pills and log in what I take to make sure I never overdose on muscle relaxing drugs
Online2020
in
My MSAA Community
8 months ago
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