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My rheumy tele-consultation due to Covid.
HAPPY NEW YEAR. Hope you all enjoy much better health in 2024. An update. A couple of weeks back I had a tele-consultation with my rheumy as I had Covid. This was my 1st encounter with Covid after 3 years and 8 months! On the tele-consult app I was able to upload a brief resumé of my last
HAPPY NEW YEAR. Hope you all enjoy much better health in 2024. An update. A couple of weeks back I had a tele-consultation with my rheumy as I had Covid. This was my 1st encounter with Covid after 3 years and 8 months! On the tele-consult app I was able to upload a brief resumé of my last
IdasMum
in
PMRGCAuk
7 months ago
FISH TESTING - ‘Admin Edit’ - please read sad update on this post before replying.
I apologize if I am incorrect with the name of the testing results below. My husbands first CLL Dr 5 years ago had him on watch and wait. When he received the following results Tumor/ Prognostic Markers: CD38+ ZAP70+ Trisomy 12. IgVH unmutated, I researched the results which were very concerning to
I apologize if I am incorrect with the name of the testing results below. My husbands first CLL Dr 5 years ago had him on watch and wait. When he received the following results Tumor/ Prognostic Markers: CD38+ ZAP70+ Trisomy 12. IgVH unmutated, I researched the results which were very concerning to
Debcap61
in
CLL Support
7 months ago
PAF well controlled till I got covid
hi, I’m new to this forum and hope you can give me some hope. I’ve had PAF for 13 years, well controlled on propranolol 80mg slow release - other beta blockers seem to affect my chest/throat and give me dreadful indigestion and can’t tolerate the newer ones. However in November whilst on holiday in
hi, I’m new to this forum and hope you can give me some hope. I’ve had PAF for 13 years, well controlled on propranolol 80mg slow release - other beta blockers seem to affect my chest/throat and give me dreadful indigestion and can’t tolerate the newer ones. However in November whilst on holiday in
Clifflove
in
Atrial Fibrillation Support
7 months ago
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On Venetoclax, lymph node appeared
Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had Covid totally asymptomatic but negative. Has anyone have this happen and it turned out to be nothing. Hoping this is just a fluke but it seems
Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had Covid totally asymptomatic but negative. Has anyone have this happen and it turned out to be nothing. Hoping this is just a fluke but it seems
Alex830
in
CLL Support
7 months ago
upping steroids short term to boost recovery?
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
writing on behalf of my mum who is getting over a respiratory tract infection (or not getting over it to be precise). She has long PMR (getting on 40 yr) and is constantly trying to reduce pred. I recall reading in this forum a recommendation to temporarily increase dose when ill / having surgery etc
Gottarelax
in
PMRGCAuk
8 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
5 months ago
Covid 19 vaccine UK
Hi there, I’d welcome any information you have on eligibility for Covid 19 vaccination in the U.K. I’ve looked at the .gov.uk website and in one place it includes epilepsy under neurological conditions, in another place it doesn’t. I did have an in invitation from my GP for flu, but not for Covid.
Hi there, I’d welcome any information you have on eligibility for Covid 19 vaccination in the U.K. I’ve looked at the .gov.uk website and in one place it includes epilepsy under neurological conditions, in another place it doesn’t. I did have an in invitation from my GP for flu, but not for Covid.
GillyA
in
Epilepsy Action
7 months ago
possible asthma after chest infection not treated
In feb I had a chest infection and sinusitis I had antibiotics for the sinusitis but not the chest infection anyway since then I’ve had this cough where I’m nearly sick I’ve pulled muscles the lot. It’s a non productive cough and sounds like I’m barking. I visited the doctor and they’ve prescribed a
In feb I had a chest infection and sinusitis I had antibiotics for the sinusitis but not the chest infection anyway since then I’ve had this cough where I’m nearly sick I’ve pulled muscles the lot. It’s a non productive cough and sounds like I’m barking. I visited the doctor and they’ve prescribed a
Samapril26
in
Asthma Community Forum
1 month ago
Update after3years
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
Drewc
in
ICUsteps
7 months ago
Seeking information about encephalomalacia
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Jasper65
in
Headway
5 months ago
Help with test results
Hi all. I've been having tests as my doctor believes I may have occupational asthma (I work with flour and other flour based ingredients). My blood results have come back as normal but my chest x-ray state the following which I don't understand... "Heart size and mediastinal contours are within normal
Hi all. I've been having tests as my doctor believes I may have occupational asthma (I work with flour and other flour based ingredients). My blood results have come back as normal but my chest x-ray state the following which I don't understand... "Heart size and mediastinal contours are within normal
EMJAY1401
in
Asthma Community Forum
8 months ago
Keep getting chest infections
hello I had open heart surgery in June to repair my mitral valve. The surgery was a great success, I’ve recovered well and I am back to working full time. However, whereas before surgery I very rarely got Ill , I now seem to pick up every big going 🤦🏻♀️ And end up quite poorly. I am on statins and
hello I had open heart surgery in June to repair my mitral valve. The surgery was a great success, I’ve recovered well and I am back to working full time. However, whereas before surgery I very rarely got Ill , I now seem to pick up every big going 🤦🏻♀️ And end up quite poorly. I am on statins and
Plum44
in
British Heart Foundation
7 months ago
Bam ibs
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
Netbet22
in
IBS Network
8 months ago
Covid day four....U.K
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Basil01
in
CLL Support
7 months ago
Overactive thyroid and possibly Graves due to symptoms -not medically diagnosed.
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Danathediva1
in
Thyroid UK
7 months ago
Anyone here with cervical arthritis?
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
Fleur29
in
Osteoarthritis Action
7 months ago
Stopped Prednisone Completely
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Mansplainer101
in
PMRGCAuk
7 months ago
I could have PMR…
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
I posted back in September for some invaluable advice from you lovely people. I suspected I might have PMR but after being in hospital and treated for ‘infection’ which is what the doctors said I had I thought no more about it. I had high inflammation markers which were thought to be due to infection
MsWhistledown
in
PMRGCAuk
7 months ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
7 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
7 months ago
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