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Clodronate. And how to deal with emerging Radiation Induced lumbo-sacral plexopathy?
First the personal and then the science: I completed PLN RT to left hemipelvis about a year ago (58Gy in 28 fractions with boost to two PSMA avid nodes. Thee months or so after the RT I developed left sacro-iliac joint and adjacent muscular pain. Bothersome but did not impair my functioning. I had L-S
First the personal and then the science: I completed PLN RT to left hemipelvis about a year ago (58Gy in 28 fractions with boost to two PSMA avid nodes. Thee months or so after the RT I developed left sacro-iliac joint and adjacent muscular pain. Bothersome but did not impair my functioning. I had L-S
MateoBeach
in
Advanced Prostate Cancer
4 years ago
Pill causing more pain?
Hi all. I was wondering if anyone else has experienced this? I started Cilique at the end of September and things were grand, apart from the mood swings and general low mood. Around 4 weeks ago I started spotting (I’m running the packs together as advised by my consultant) and since then the bleeding
Hi all. I was wondering if anyone else has experienced this? I started Cilique at the end of September and things were grand, apart from the mood swings and general low mood. Around 4 weeks ago I started spotting (I’m running the packs together as advised by my consultant) and since then the bleeding
nats0802
in
Endometriosis UK
4 years ago
Rheumatologist and feeling positive
I hope you are all ok and feeling more positive now there is light at the end of the tunnel, and looking to be a better year following this one!!! I saw the Rheumatologist today and he confirmed a diagnosis of PMR. Advised to reduce prednisalone by 1mg every month, starting tomorrow (currently on
I hope you are all ok and feeling more positive now there is light at the end of the tunnel, and looking to be a better year following this one!!! I saw the Rheumatologist today and he confirmed a diagnosis of PMR. Advised to reduce prednisalone by 1mg every month, starting tomorrow (currently on
Hidden
in
PMRGCAuk
4 years ago
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Tart Cherry Juice & 1MD Liver Supplement
chartist silvestrov welcome back All of you very knowledgeable people out there In researching the Maqui Berry Extract Art talked about, as well as a friend’s advice on TCJ a few years ago, I found Tart Cherry Juice (TCJ) is supposed to be good for a variety of things including strengthening the
chartist silvestrov welcome back All of you very knowledgeable people out there In researching the Maqui Berry Extract Art talked about, as well as a friend’s advice on TCJ a few years ago, I found Tart Cherry Juice (TCJ) is supposed to be good for a variety of things including strengthening the
laglag
in
Cure Parkinson's
4 years ago
Job with MSA Patients
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
RhiMallorca
in
Multiple System Atrophy Trust
4 years ago
Dystonia
Hi all Hope you are well. Some weeks ago I wrote to mention that my right foot was turning inwards and if anybody else was having or had the same problem. I had my appointment by phone on Friday with the Ataxia team in London, the doctor was very interested in what was happing to my lower limps and
Hi all Hope you are well. Some weeks ago I wrote to mention that my right foot was turning inwards and if anybody else was having or had the same problem. I had my appointment by phone on Friday with the Ataxia team in London, the doctor was very interested in what was happing to my lower limps and
Hidden
in
Ataxia UK
4 years ago
Whole Plant Food - My Diet Plan
With reference to my post on
whole plant food ( see attached link)
https://healthunlocked.com/diabetesindia/posts/144929410/whole-plant-food,
a chart indicating Green light, Yellow light & Red light food was shown, which is the broad guidelines for the whole plant food diet plan. The picture
With reference to my post on
whole plant food ( see attached link)
https://healthunlocked.com/diabetesindia/posts/144929410/whole-plant-food,
a chart indicating Green light, Yellow light & Red light food was shown, which is the broad guidelines for the whole plant food diet plan. The picture
namaha
Administrator
in
Diabetes India
4 years ago
When to stop taking Omeprazole?
I have just stopped taking Prednisolone- yippee. As long as this remains the case, I am only taking 15mg MTX once a week, Alendronic Acid once a week and Warfarin / a Statin at night. I have had no issues whatsoever with acid reflux so I’m wondering whether I could leave off the Omeprazole. I emailed
I have just stopped taking Prednisolone- yippee. As long as this remains the case, I am only taking 15mg MTX once a week, Alendronic Acid once a week and Warfarin / a Statin at night. I have had no issues whatsoever with acid reflux so I’m wondering whether I could leave off the Omeprazole. I emailed
MrsChips
in
PMRGCAuk
4 years ago
Flaxseed -pro or con or does it depend on your status
Not necessarily a very reliable site since they have conflicts of interest. However, the discussion of estrogens and flaxseed is of interest. https://www.goldenflax4u.com/category-s/43.htm This doctor believes that flaxseed consumption helps prevent tumors from spreading: https://sperlingprostatecenter.com
Not necessarily a very reliable site since they have conflicts of interest. However, the discussion of estrogens and flaxseed is of interest. https://www.goldenflax4u.com/category-s/43.htm This doctor believes that flaxseed consumption helps prevent tumors from spreading: https://sperlingprostatecenter.com
Hidden
in
Advanced Prostate Cancer
4 years ago
Fed up feeling like this - should I push for another lap?
Hello everyone, I'm new here so let me tell you a little about my story... I'm 25 and have been diagnosed with endo following a laparoscopy about this time last year. I got my periods really late in life (age17/18), but every single one has been painful and heavy (and my cycle averages about 20 days
Hello everyone, I'm new here so let me tell you a little about my story... I'm 25 and have been diagnosed with endo following a laparoscopy about this time last year. I got my periods really late in life (age17/18), but every single one has been painful and heavy (and my cycle averages about 20 days
Red262
in
Endometriosis UK
4 years ago
Prolia
Hi friends. I have been prescribed Prolia by a bone specialist and thought I would seek your opinions on the matter. Here's what's happening: I have had PMR for 2 years and am still on 16mg of prednisone. Right now I am using the DSNS method with a bit of an extension to reduce 1mg every 6 weeks or so
Hi friends. I have been prescribed Prolia by a bone specialist and thought I would seek your opinions on the matter. Here's what's happening: I have had PMR for 2 years and am still on 16mg of prednisone. Right now I am using the DSNS method with a bit of an extension to reduce 1mg every 6 weeks or so
BoaterAnnie
in
PMRGCAuk
4 years ago
Recommended High Antioxidants
Here are the antioxidants that may have some effect on oxidant stress in AMN, and they are all safe. Biotin 300 mg /day; and Vitamin D3 dose 50,000 IU weekly. A small study of antioxidants in AMN showed improvement of some biomarkers with this cocktail: N- Acetyl Cysteine (NAC) (2400 mg); Alpha
Here are the antioxidants that may have some effect on oxidant stress in AMN, and they are all safe. Biotin 300 mg /day; and Vitamin D3 dose 50,000 IU weekly. A small study of antioxidants in AMN showed improvement of some biomarkers with this cocktail: N- Acetyl Cysteine (NAC) (2400 mg); Alpha
SongStream
in
AMN EASIER
4 years ago
Fibromyalgia and PMR?
Hi there, I am 55 and was diagnosed with PMR in January 2019, put on 20mg pred as 15 didn’t do the trick. Added Alendronic acid due to a poor Dexa scan result and also take Adcal D3, K2 and magnesium for my bones. I reduced the pred slowly and steadily but struggled to get lower that 12.5mg without pain
Hi there, I am 55 and was diagnosed with PMR in January 2019, put on 20mg pred as 15 didn’t do the trick. Added Alendronic acid due to a poor Dexa scan result and also take Adcal D3, K2 and magnesium for my bones. I reduced the pred slowly and steadily but struggled to get lower that 12.5mg without pain
Birdyloo
in
PMRGCAuk
4 years ago
Second DEXA Scan Results
In 2018 I had a DEXA scan which showed osteopaenia. NOF was -2, total hip -1.3 and spine -1.9. A few weeks after that scan which, fortunately was done on my left side, I broke my right NOF running a marathon (no fall, classed as a high impact event) and joined this forum. I did leave hospital with
In 2018 I had a DEXA scan which showed osteopaenia. NOF was -2, total hip -1.3 and spine -1.9. A few weeks after that scan which, fortunately was done on my left side, I broke my right NOF running a marathon (no fall, classed as a high impact event) and joined this forum. I did leave hospital with
AnnieW55
in
Bone Health and Osteoporosis UK
4 years ago
Skin issues
Good morning all! As an FYI I wanted to share with all of you a product line that seems to be working very well for my skin. It’s from a site called www.DermaHarmony.com I have been looking for skin products for quite some time as my skin can take on some kind of an oily plaque-ish feeling/look from
Good morning all! As an FYI I wanted to share with all of you a product line that seems to be working very well for my skin. It’s from a site called www.DermaHarmony.com I have been looking for skin products for quite some time as my skin can take on some kind of an oily plaque-ish feeling/look from
MissRita
in
Cure Parkinson's
4 years ago
Zoledronic Acid
Hi all, if any of you have had Zoledronic Acid infusions are you able to tell me what level of improvement you saw in your "before" and "after" DEXA scan's and how many treatments you had. Many thanks.
Hi all, if any of you have had Zoledronic Acid infusions are you able to tell me what level of improvement you saw in your "before" and "after" DEXA scan's and how many treatments you had. Many thanks.
HRH8591
in
Bone Health and Osteoporosis UK
4 years ago
Pain in ribs at night
I'm new to this hub and this is my first post. I have recently been waking during the night with pain under ribs at right side, and often extending around the back. I have to sit straight up for an hour or more until it subsides, as lying down makes it worse. I am guessing maybe Biliary Colic. I
I'm new to this hub and this is my first post. I have recently been waking during the night with pain under ribs at right side, and often extending around the back. I have to sit straight up for an hour or more until it subsides, as lying down makes it worse. I am guessing maybe Biliary Colic. I
clover-4
in
Bone Health and Osteoporosis UK
4 years ago
Plant based ALA [alpha-lipoic acid] can weaken COVID-19 infection and maybe even prevent it.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7427590/#!po=9.45946 ALA can increase human defenses against SARS-CoV-2 by increasing intracellular pH. ALA is a potent antioxidant and reduces oxidative stress and inhibits activation of nuclear factor-kappa B (NF-kB) and can play a vital role in the treatment
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7427590/#!po=9.45946 ALA can increase human defenses against SARS-CoV-2 by increasing intracellular pH. ALA is a potent antioxidant and reduces oxidative stress and inhibits activation of nuclear factor-kappa B (NF-kB) and can play a vital role in the treatment
SilentEchoes
in
Cure Parkinson's
4 years ago
Non stop bleeding!
I started the mini pill almost 2 months ago, have been bleeding since. Just heavy bleeding for almost 8 weeks now. GP prescribed mefenamic acid, even that hasn’t helped. I’m struggling mentally and emotionally and nothing is working!
I started the mini pill almost 2 months ago, have been bleeding since. Just heavy bleeding for almost 8 weeks now. GP prescribed mefenamic acid, even that hasn’t helped. I’m struggling mentally and emotionally and nothing is working!
Taz32
in
PCOS UK (Verity)
4 years ago
The Hallmarks of Cancer: Preserving Health and Longevity while fighting Prostate Cancer
[i]Note: I have been thinking about these ideas over some weeks and how they might apply to complement my therapeutic approach to my prostate cancer (HSPC T3cN1M0). Nothing here should be taken as suggesting an epigenetic and phytochemical approach as an alternative for optimally selected and medically
[i]Note: I have been thinking about these ideas over some weeks and how they might apply to complement my therapeutic approach to my prostate cancer (HSPC T3cN1M0). Nothing here should be taken as suggesting an epigenetic and phytochemical approach as an alternative for optimally selected and medically
MateoBeach
in
Advanced Prostate Cancer
4 years ago
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