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The possible beneficial effect for the treatment of peripheral neuropathy of two neuroactive steroids, progesterone and pregnenolone
I was researching pregnenolone on the internet and came across this article. It may be of interest to anyone struggling with neuropathy. Pregnenolone is formed from cholesterol and is the precursor substance for numerous important endogenous hormones. Among others, progesterone, cortisol, and aldosterone
I was researching pregnenolone on the internet and came across this article. It may be of interest to anyone struggling with neuropathy. Pregnenolone is formed from cholesterol and is the precursor substance for numerous important endogenous hormones. Among others, progesterone, cortisol, and aldosterone
Lunario
in
Pernicious Anaemia Society
2 years ago
Why do we use IFN-α vs IFN-β? Might IFN-β be preferred?
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
EPguy
in
MPN Voice
2 years ago
Bisphosphonates and joint problems - are these related?
For the second time this year I am about to have surgery to remove bone from a joint. In May this year I had a cheilectomy to remove bone from my big toe joint. I am now going to have surgery to remove bone from my collarbone (where there are bony spurs) and a decompression of my acromioclavicular joint
For the second time this year I am about to have surgery to remove bone from a joint. In May this year I had a cheilectomy to remove bone from my big toe joint. I am now going to have surgery to remove bone from my collarbone (where there are bony spurs) and a decompression of my acromioclavicular joint
scd2211
in
Bone Health and Osteoporosis UK
2 years ago
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A Different View on Bone Protection
Replied to a question about bone protective medications on another forum today, and thought it might be of interest to some here at FPC. So pasting it here. Full disclosure: I have been taking denosumab (Prolia or Xgeva) for over 5 years and currently have normal bone density. I also take Calcium supplement
Replied to a question about bone protective medications on another forum today, and thought it might be of interest to some here at FPC. So pasting it here. Full disclosure: I have been taking denosumab (Prolia or Xgeva) for over 5 years and currently have normal bone density. I also take Calcium supplement
MateoBeach
in
Fight Prostate Cancer
2 years ago
osteoporosis and products to help
hi everyone. Been on alendronic acid for about 4 months but have had a small problem of irritation in my throat, causing coughing. Coughing is painful, having 4 spinal fractures in April. I’ve now been asked to change to zolondronic acid, yearly infusion. This is NOT the same as denusomab.
hi everyone. Been on alendronic acid for about 4 months but have had a small problem of irritation in my throat, causing coughing. Coughing is painful, having 4 spinal fractures in April. I’ve now been asked to change to zolondronic acid, yearly infusion. This is NOT the same as denusomab.
Errp82
in
Bone Health and Osteoporosis UK
2 years ago
Brilliant review with pharmacist
Hi Everyone I’m just back from a review of my medication for PMR and high blood pressure with the surgery pharmacist. He was great and to me had a better understanding of this condition than any of the gp’s I’ve spoken to on the phone. He did admit that they don’t always understand the interactions
Hi Everyone I’m just back from a review of my medication for PMR and high blood pressure with the surgery pharmacist. He was great and to me had a better understanding of this condition than any of the gp’s I’ve spoken to on the phone. He did admit that they don’t always understand the interactions
MrsPractical
in
PMRGCAuk
2 years ago
Obeticholic acid
Hi everyone I was diagnosed around 5 years ago. Unfortunately I am not fully responding to first line treatment Urso. The Dr's are suggesting that I should start on Obeticholic Acid. I'm a little apprehensive due to the side effects listed. Is there anyone here who could advise please? Tia 😊
Hi everyone I was diagnosed around 5 years ago. Unfortunately I am not fully responding to first line treatment Urso. The Dr's are suggesting that I should start on Obeticholic Acid. I'm a little apprehensive due to the side effects listed. Is there anyone here who could advise please? Tia 😊
Marj6364
in
PBC Foundation
2 years ago
Elevated parathyroid hormone?
Is there any research, data, or personal experience with having parathyroid levels, but not blood calcium levels, become elevated while taking alendronate? I had been on alendronate very successfully (no side effects and a stabilized DEXA) for about 6 months when my TSH to monitor my decade long hypothyroidism
Is there any research, data, or personal experience with having parathyroid levels, but not blood calcium levels, become elevated while taking alendronate? I had been on alendronate very successfully (no side effects and a stabilized DEXA) for about 6 months when my TSH to monitor my decade long hypothyroidism
Loveballet
in
Osteoporosis Support
2 years ago
denosumab injections
Hi Everyone, I’m hoping to get some advice so I can make an informed decision about treatment with denosumab. I am 61 and I had a small hormone-related breast cancer removed at the start of 2020. Subsequently I went on Letrozole which I couldn’t tolerate. They changed me to Anastrozole which I’m ok
Hi Everyone, I’m hoping to get some advice so I can make an informed decision about treatment with denosumab. I am 61 and I had a small hormone-related breast cancer removed at the start of 2020. Subsequently I went on Letrozole which I couldn’t tolerate. They changed me to Anastrozole which I’m ok
Calamintha
in
Bone Health and Osteoporosis UK
2 years ago
Expiration date
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
EiCa
in
Pernicious Anaemia Society
2 years ago
Anyone clued up on bone health please?
I recently had a bone scan and was very concerned to learn that there had been severe degenerative changes to both my spine and hips which weren't expected as my scan 3 years ago wasn't bad. They did take me off Alendronic Acid 18 months ago at which time I also went gluten and dairy free (found out
I recently had a bone scan and was very concerned to learn that there had been severe degenerative changes to both my spine and hips which weren't expected as my scan 3 years ago wasn't bad. They did take me off Alendronic Acid 18 months ago at which time I also went gluten and dairy free (found out
Delgor
in
Thyroid UK
2 years ago
Diagnosis Issue
Hi All, I have been having issues with my periods since they began but the last 3 years have gotten much worse. Every period I have seems to be worse than the last. After a lot of back and forth with the GP and having tried the pill, mini pill and coil over the last 6 years, I persuaded them to refer
Hi All, I have been having issues with my periods since they began but the last 3 years have gotten much worse. Every period I have seems to be worse than the last. After a lot of back and forth with the GP and having tried the pill, mini pill and coil over the last 6 years, I persuaded them to refer
RioBeau
in
Endometriosis UK
2 years ago
Dosage of Ursodiol
Looking at my M2 Antibody levels from the last 2 blood panels, it looks like I have PBC. My other levels, GGT and Alk Phos are within normal range. My doctor has prescribed Ursodiol for me to treat the PBC and the dosage seems high. I am to take a 500mg tablet in the morning and a 250mg tablet at
Looking at my M2 Antibody levels from the last 2 blood panels, it looks like I have PBC. My other levels, GGT and Alk Phos are within normal range. My doctor has prescribed Ursodiol for me to treat the PBC and the dosage seems high. I am to take a 500mg tablet in the morning and a 250mg tablet at
Greenfern
in
PBCers Organization
2 years ago
Osteoporosis/alendronic acid
I have had a reasonably uneventful PMR journey so far 🤞. Diagnosed April 2020 slow pred reduction from 15mg now reducing 5.5mg/5m. I also take lansoprazole15mg/ vitamin D 800iu as prescribed by my GP since first diagnosis ( she said my diet was high enough in calcium) and following advice on this invaluable
I have had a reasonably uneventful PMR journey so far 🤞. Diagnosed April 2020 slow pred reduction from 15mg now reducing 5.5mg/5m. I also take lansoprazole15mg/ vitamin D 800iu as prescribed by my GP since first diagnosis ( she said my diet was high enough in calcium) and following advice on this invaluable
Clarbeston
in
PMRGCAuk
2 years ago
My rheumy wants me off of prednisone as soon as possible
First of all, thanks to everyone who replied me, and gave me valuable advice on my previous post. This is an update. Previously, I mentioned that I wasn't happy with my first rheumy appointment as she thinks I don’t need steroids because my inflammation markers are in a normal range and this is not a
First of all, thanks to everyone who replied me, and gave me valuable advice on my previous post. This is an update. Previously, I mentioned that I wasn't happy with my first rheumy appointment as she thinks I don’t need steroids because my inflammation markers are in a normal range and this is not a
Morningdew62
in
PMRGCAuk
2 years ago
REMs scan result
Hi everyone, just wanted to share my good news with you all. I broke my back after a high impact fall from my kitchen worktop onto the floor in 2020. I had to fight for a Dexa scan after being advised to start bone meds. I had the scan last March results as follows. Dual Femur total -1.5 and lumbar spine
Hi everyone, just wanted to share my good news with you all. I broke my back after a high impact fall from my kitchen worktop onto the floor in 2020. I had to fight for a Dexa scan after being advised to start bone meds. I had the scan last March results as follows. Dual Femur total -1.5 and lumbar spine
Unluckylors
in
Bone Health and Osteoporosis UK
2 years ago
alendronic acid and tooth extraction
morning all I managed to crack a tooth on a tea cake last week 😳 and after an emergency visit to the dentist I’m being referred to a hospital for an extraction because of the Alendronic acid ☹️ I have been on pred ( 5mgs daily at present ) as well as Alendronic for 2 years I am also taking Lefludamide
morning all I managed to crack a tooth on a tea cake last week 😳 and after an emergency visit to the dentist I’m being referred to a hospital for an extraction because of the Alendronic acid ☹️ I have been on pred ( 5mgs daily at present ) as well as Alendronic for 2 years I am also taking Lefludamide
Geordieland
in
PMRGCAuk
2 years ago
Insomnia
Sometimes I find myself staying up almost 24 hours. Some days I have to force myself to go too sleep or I have to take a sleep aid: melatonin or a muscle relaxer for my back or a gabapentin. I don't get much rest when I have a lot on my mind sometimes u have to shut your thoughts off especially if your
Sometimes I find myself staying up almost 24 hours. Some days I have to force myself to go too sleep or I have to take a sleep aid: melatonin or a muscle relaxer for my back or a gabapentin. I don't get much rest when I have a lot on my mind sometimes u have to shut your thoughts off especially if your
Hidden
in
Anxiety and Depression Support
2 years ago
Melatonin
https://www.nature.com/articles/s41440-019-0223-9 I am wondering if anyone uses melatonin to slow progress of kidney disease? Although seen primarily as a sleep aid melatonin has many beneficial effects throughout the body. I have been taking 20 mg per night for 4 years for another issue with beneficial
https://www.nature.com/articles/s41440-019-0223-9 I am wondering if anyone uses melatonin to slow progress of kidney disease? Although seen primarily as a sleep aid melatonin has many beneficial effects throughout the body. I have been taking 20 mg per night for 4 years for another issue with beneficial
alexask
in
Kidney Disease
2 years ago
Long term steroids returning IBS
on long term steroids and Montelukast and now Alendronic Acid tablets my IBS D. has come back with a vengeance given Colofac as I have glaucoma in both eyes, I feel this has made my IBS worse with pains and constant diarrhea. Anyone any suggestions Dr not really interested.
on long term steroids and Montelukast and now Alendronic Acid tablets my IBS D. has come back with a vengeance given Colofac as I have glaucoma in both eyes, I feel this has made my IBS worse with pains and constant diarrhea. Anyone any suggestions Dr not really interested.
nana4me
in
IBS Network
2 years ago
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