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think I’ve found my trigger.
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
Patters56
in
Restless Legs Syndrome
10 months ago
Insurance Rant
Sorry folks, I just need to sound off about the way insurance companies treat us in their medical screening. Generally I feel quite good, yes I have had challenges and times when I have been very poorly but today, this month I am pretty much cancer free and I feel like a survivor. But the insurance
Sorry folks, I just need to sound off about the way insurance companies treat us in their medical screening. Generally I feel quite good, yes I have had challenges and times when I have been very poorly but today, this month I am pretty much cancer free and I feel like a survivor. But the insurance
Lyndy
in
My Ovacome
1 year ago
Varian Trubeam Rapidarc to do VMAT
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
pj1121
in
Advanced Prostate Cancer
10 months ago
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My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
9 months ago
Heat or Light Therapy
Does anyone use Infrared heat or Red Light Therapy (RLT) and has it changed anything for you? I have not tried either one. I do use the sauna after each swim workout: ice cold shower, 15 min sauna, ice cold shower, sauna, shower. This really shocks my system and I feel that it is helpful to really
Does anyone use Infrared heat or Red Light Therapy (RLT) and has it changed anything for you? I have not tried either one. I do use the sauna after each swim workout: ice cold shower, 15 min sauna, ice cold shower, sauna, shower. This really shocks my system and I feel that it is helpful to really
Gym-rat
in
Advanced Prostate Cancer
1 year ago
Inherited aggressive pc
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
pd63
in
Prostate Cancer Network
10 months ago
second opinion?
I was diagnosed with endometriosis over two years ago when I was being tested for a problem with my bladder. Doctor found a mass and sent me for scans internal and external. I also had a hysteroscopy (more than one eventually) where they had problems with my cervix. I have a massive chocolate cyst in
I was diagnosed with endometriosis over two years ago when I was being tested for a problem with my bladder. Doctor found a mass and sent me for scans internal and external. I also had a hysteroscopy (more than one eventually) where they had problems with my cervix. I have a massive chocolate cyst in
Noonehelps
in
Endometriosis UK
10 months ago
What the heck is wrong with me?
I haven't posted in awhile. I was turned down a second time for disability. My depression is to a point I don't want to talk anybody. The letter said "I maybe sad and forgetful" SAD! SAD! FORGETFUL! FORGETFUL! Everyday I deal with an illness that attacks my will live. I've had 21 rounds of old school
I haven't posted in awhile. I was turned down a second time for disability. My depression is to a point I don't want to talk anybody. The letter said "I maybe sad and forgetful" SAD! SAD! FORGETFUL! FORGETFUL! Everyday I deal with an illness that attacks my will live. I've had 21 rounds of old school
Raggedy-Ann
in
Anxiety and Depression Support
1 year ago
Trodelvy and dizziness
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer And Gay Men
9 months ago
Private endo recommendation in Wales, please
Hi. I haven't posted for a while as I've moved from England to Wales. I used to see Dr SZ at Gatwick Spire, and am hoping someone could recommend an endo closer to Wales. I can't find anyone on the ThyroidUk list.On the Thyroid UK list, Dr GC ( who has Hashimoto's herself ), does video conferencing
Hi. I haven't posted for a while as I've moved from England to Wales. I used to see Dr SZ at Gatwick Spire, and am hoping someone could recommend an endo closer to Wales. I can't find anyone on the ThyroidUk list.On the Thyroid UK list, Dr GC ( who has Hashimoto's herself ), does video conferencing
strawberryflower
in
Thyroid UK
10 months ago
RISING PSA 2 YEARS POST EBRT/ADT
Two years post EBRT plus 6 months ADT. Meeting with Oncologist in a few weeks and am wondering what he is going to make of the following PSA progression. Sept 2022 - 0.29 March 2023- 0.56 June 2023 - 0.97 Sept 2023 - 1.77 Testosterone went from near zero post ADT back to 483 in Sept 2022 and
Two years post EBRT plus 6 months ADT. Meeting with Oncologist in a few weeks and am wondering what he is going to make of the following PSA progression. Sept 2022 - 0.29 March 2023- 0.56 June 2023 - 0.97 Sept 2023 - 1.77 Testosterone went from near zero post ADT back to 483 in Sept 2022 and
Waldo13
in
Prostate Cancer Network
10 months ago
Thyroid menopause supplement no hrt
Hi. I've been feeling quite good for a while now but I've had to stop taking HRT.I'm now feeling not fabulous again. I'm looking at all the natural alternatives. Anyone got any suggestions which won't interfere with thyroxine or aggravate the thyroid? Thank you
Hi. I've been feeling quite good for a while now but I've had to stop taking HRT.I'm now feeling not fabulous again. I'm looking at all the natural alternatives. Anyone got any suggestions which won't interfere with thyroxine or aggravate the thyroid? Thank you
Foggyk
in
Thyroid UK
10 months ago
Do you try to keep your diagnosis private?
My wife has been a wonderful companion through my diagnosis and recent hospitalization from sepsis due to my 2nd biopsy. She almost lost me but I have returned to vigor and preparing for this journey through radiation and ADT next month. However, because I still work and am at a point where my business
My wife has been a wonderful companion through my diagnosis and recent hospitalization from sepsis due to my 2nd biopsy. She almost lost me but I have returned to vigor and preparing for this journey through radiation and ADT next month. However, because I still work and am at a point where my business
Eadgbe
in
Prostate Cancer Network
10 months ago
Testosterone
Hi everyone, I'm a long time ThyroidUK participant. Right now the thyroid replacement is good, vitamins, minerals, are all great. I'm very particular to ensure this. I use HRT (Triestrogen/progesterone) topical cream and have used since age 45 and I'm now 65. Here's the problem: in March
Hi everyone, I'm a long time ThyroidUK participant. Right now the thyroid replacement is good, vitamins, minerals, are all great. I'm very particular to ensure this. I use HRT (Triestrogen/progesterone) topical cream and have used since age 45 and I'm now 65. Here's the problem: in March
gabkad
in
Menopause and Perimenopause Support
10 months ago
speech and language therapy
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
Maychristine
in
Headway
1 year ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer Under 60
9 months ago
Magnesium
Hello all, hope you are all ticking away nicely, I've been taking a teaspoon of magnesium citrate each morning for around a fortnight now on recommendation from Dr Sanjay Gupta please follow advice from your cardiac team mine said it was ok to try, i take it each morning after breakfast to try to calm
Hello all, hope you are all ticking away nicely, I've been taking a teaspoon of magnesium citrate each morning for around a fortnight now on recommendation from Dr Sanjay Gupta please follow advice from your cardiac team mine said it was ok to try, i take it each morning after breakfast to try to calm
Rachelanx50
in
AF Association
1 year ago
Questions about protocol changes regarding ADT from 2nd opinion.
I was diagnosed with PC about 2 months ago. I received a 2nd opinion from John's Hopkins today and all cores had a different (slightly lower) Gleason scores than my local testing gave. However I do have the evidence of adenocarcinoma in the prostate and am starting on this road through RT (with an OAR
I was diagnosed with PC about 2 months ago. I received a 2nd opinion from John's Hopkins today and all cores had a different (slightly lower) Gleason scores than my local testing gave. However I do have the evidence of adenocarcinoma in the prostate and am starting on this road through RT (with an OAR
Eadgbe
in
Prostate Cancer Network
10 months ago
Progression
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
NDJIM
in
Advanced Prostate Cancer
10 months ago
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