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World first ?
I've just read about a 15yr old cystic fibrosis double lung transplant recipient who has been saved from a antibiotic resistant infection with something called phages, as far as I can gather these " phages" are friendly viruses that attack infections , under the microscope this particular phase looks
I've just read about a 15yr old cystic fibrosis double lung transplant recipient who has been saved from a antibiotic resistant infection with something called phages, as far as I can gather these " phages" are friendly viruses that attack infections , under the microscope this particular phase looks
soulboy118
in
Lung Conditions Community Forum
5 years ago
Sleep anxiety
Over the last 3 months I have had chest pains, trouble sleeping, muscle weakness and other strange feelings in my body. I went to the doctors and hospital where they’ve told me I’m okay and I’m not going to have a heart attack or a stroke, I’ve previously had a kidney transplant which causes me to have
Over the last 3 months I have had chest pains, trouble sleeping, muscle weakness and other strange feelings in my body. I went to the doctors and hospital where they’ve told me I’m okay and I’m not going to have a heart attack or a stroke, I’ve previously had a kidney transplant which causes me to have
Cookej05
in
Anxiety Support
5 years ago
Kidney failure following liver transplant.
Hi guys, just wondering if any of you have suffered chronic kidney failure following your liver transplant. Just been referred by my GP to nephrology, getting really worried. Just coming up to 2 yr liverversary.
Hi guys, just wondering if any of you have suffered chronic kidney failure following your liver transplant. Just been referred by my GP to nephrology, getting really worried. Just coming up to 2 yr liverversary.
raqs67
in
British Liver Trust
5 years ago
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It’s been a while.
I haven’t posted in a while I haven’t really had anything to say, I’m 2 years on since my diagnoses 24% lung function and still on oxygen when I sleep. Haven’t had any hospital trips & only 1 round off antibiotics so my consultant is very happy with me as I’m still off the cigarettes and Still very
I haven’t posted in a while I haven’t really had anything to say, I’m 2 years on since my diagnoses 24% lung function and still on oxygen when I sleep. Haven’t had any hospital trips & only 1 round off antibiotics so my consultant is very happy with me as I’m still off the cigarettes and Still very
insanemoose
in
Lung Conditions Community Forum
5 years ago
Bronchiecstasis & pneumonia
Diagnosed with brochiecstasis in 2004. Have 65% lung capacity. Been recuperating from pneumonia since late March. I’m on oxygen therapy. After 2 follow up visits (& mri & chest c-rays), was told if lungs don’t return to the health prior to the pneumonia, may have to consider a lung transplant. That sound
Diagnosed with brochiecstasis in 2004. Have 65% lung capacity. Been recuperating from pneumonia since late March. I’m on oxygen therapy. After 2 follow up visits (& mri & chest c-rays), was told if lungs don’t return to the health prior to the pneumonia, may have to consider a lung transplant. That sound
MtLdy35
in
Lung Conditions Community Forum
5 years ago
Wonder
We are from the US and the liver transplant team goes by a MELD stand for Molding Endstage Liver disease. I’m not sure how your works but for ours there number from 6-40 6 being best 40 totally worst. My husband is at a 13 but has many end stage liver symptoms. How do you guys find out how the end
We are from the US and the liver transplant team goes by a MELD stand for Molding Endstage Liver disease. I’m not sure how your works but for ours there number from 6-40 6 being best 40 totally worst. My husband is at a 13 but has many end stage liver symptoms. How do you guys find out how the end
Wowz
in
British Liver Trust
5 years ago
Cretanine after kidney transplant.
My creatinine is 1.23 after 6 month normal range 1.17 hai..is it OK in fifth month creatinine was 1.14..anything to worry..
My creatinine is 1.23 after 6 month normal range 1.17 hai..is it OK in fifth month creatinine was 1.14..anything to worry..
Ish123
in
Kidney Transplant
5 years ago
Ursodiol
Hello I am new to this group.I had a Liver Transplant in 2001 18 years ago.cause from Primary Biliary cirrhosis lately my Alkaline Phosphatase and GGT level been running little high.Have done a MRI and had a EGD done all was ok.So they put me on (Ursodiol) 300 Mg three times a day.see if that will bring
Hello I am new to this group.I had a Liver Transplant in 2001 18 years ago.cause from Primary Biliary cirrhosis lately my Alkaline Phosphatase and GGT level been running little high.Have done a MRI and had a EGD done all was ok.So they put me on (Ursodiol) 300 Mg three times a day.see if that will bring
margie161
in
PBCers Organization
5 years ago
Hi guys
Hi I just wanted to introduce myself, I'm a mum of 3 and my 2 boys now age 16 and 15 have both had double transplants . The younger one had liver and kidney aged 25 months and the older one had 2 liver transplants 9 months later aged 4.5 years. This is due to primary hyperoxaluria type one and oxalosis
Hi I just wanted to introduce myself, I'm a mum of 3 and my 2 boys now age 16 and 15 have both had double transplants . The younger one had liver and kidney aged 25 months and the older one had 2 liver transplants 9 months later aged 4.5 years. This is due to primary hyperoxaluria type one and oxalosis
Sparklyjo
in
Kidney Transplant
5 years ago
Kedny treatment scleroderma clothes on harts lungs pulmonary water in board breathless all suffering complex all dr. knows NO treatment!!!
Hi I’m suffering long long time since 17 years in scleroderma Reynards which damage my kidney after lungs pulmonary harts cloth water on board breathless since long time keep Complint to gp and scleroderma dr. And kidney treatment dr. In scleroderma Nhs not put on kidney transplant list because of scleroderma
Hi I’m suffering long long time since 17 years in scleroderma Reynards which damage my kidney after lungs pulmonary harts cloth water on board breathless since long time keep Complint to gp and scleroderma dr. And kidney treatment dr. In scleroderma Nhs not put on kidney transplant list because of scleroderma
Nurmohammed
in
Kidney Transplant
5 years ago
Find live drug-addict donor for preemptive kidney transplant?
News has it that recipients are treated for hepatitis C with 95% curative antiviral. This new approach, FDA-approved(?), expands the pool of both cadaver and living kidney donors, hopefully shorten wait time. Yes?
News has it that recipients are treated for hepatitis C with 95% curative antiviral. This new approach, FDA-approved(?), expands the pool of both cadaver and living kidney donors, hopefully shorten wait time. Yes?
Hidden
in
Kidney Transplant
5 years ago
Nerve Pain
Did anyone have nerve pain after their transplant. I am 6 weeks post kidney transplant and I am having a lot of nerve pain below my surgery site. The area gets num and produces a shocking pain. This pain gets worse when I put my pants on and the belt pushes against my stomach. The doctor said they
Did anyone have nerve pain after their transplant. I am 6 weeks post kidney transplant and I am having a lot of nerve pain below my surgery site. The area gets num and produces a shocking pain. This pain gets worse when I put my pants on and the belt pushes against my stomach. The doctor said they
Tahmed251
in
Kidney Transplant
5 years ago
Feeling worried
Hi, I am fairly new to this group, husband has been put forward for assessment for liver transplant at the Royal Free beginning of June. A week ago he was admitted into hospital for infection and has been on broad based intravenous antibiotics to treat. In trying to locate the source of infection he
Hi, I am fairly new to this group, husband has been put forward for assessment for liver transplant at the Royal Free beginning of June. A week ago he was admitted into hospital for infection and has been on broad based intravenous antibiotics to treat. In trying to locate the source of infection he
Hidden
in
British Liver Trust
5 years ago
Cancer worries post and pre transplant
A quick recap on my situation. I had liver transplants back in 1995 and have been on immunosuppressants ever since (mychophenolate). I’ve been back on the transplant list now for 15 months due to having cirrhosis. About 2 weeks ago I went for mammogram and yesterday I received a letter saying I needed
A quick recap on my situation. I had liver transplants back in 1995 and have been on immunosuppressants ever since (mychophenolate). I’ve been back on the transplant list now for 15 months due to having cirrhosis. About 2 weeks ago I went for mammogram and yesterday I received a letter saying I needed
Smyally
in
British Liver Trust
5 years ago
Little walk or little activity makes me breathless stomach floating with Diarrhea.
This is going more wars since last 3 weeks did concert gp same time when this suddenly started go first send for chest X-ray no precipitation concert gp after 4 days emergency doctor check my condition and prescript antibiotics it’s not help contact gp again ask for blood stole urine echo taste which
This is going more wars since last 3 weeks did concert gp same time when this suddenly started go first send for chest X-ray no precipitation concert gp after 4 days emergency doctor check my condition and prescript antibiotics it’s not help contact gp again ask for blood stole urine echo taste which
Nurmohammed
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
A preemptive kidney transplant?
Hey everyone I have IGAN. Approximately 3 months ago I started the process of getting on the kidney transplant list. At the time I was referred for transplant by my nephrologist because my GFR was 16 and we both thought dialysis was looming. I started the process and went through all the testing required
Hey everyone I have IGAN. Approximately 3 months ago I started the process of getting on the kidney transplant list. At the time I was referred for transplant by my nephrologist because my GFR was 16 and we both thought dialysis was looming. I started the process and went through all the testing required
Socky
in
Kidney Transplant
5 years ago
I'm new, hello
Hi, I'm Oldred, 'cos I am an old Man Utd fan. I had a liver transplant in December 2018 and slowly recovering. Everything is going well, though I am suffering quite a lot of discomfort. I am told this is normal but I had hoped to have been better than this nearly 6 months down the line. What experiences
Hi, I'm Oldred, 'cos I am an old Man Utd fan. I had a liver transplant in December 2018 and slowly recovering. Everything is going well, though I am suffering quite a lot of discomfort. I am told this is normal but I had hoped to have been better than this nearly 6 months down the line. What experiences
Oldred
in
British Liver Trust
5 years ago
Prisoner needing liver transplant wasn't taken for hospital appointment, then deteriorated and died
I mentioned just the other day that my last position of employment before taking retirement was that at Cardiff Prison. Most prisons around the country are visited by local hospital's Liver specialist nurses. Who deal with liver related medical conditions, and are often involved with liver-related alcohol
I mentioned just the other day that my last position of employment before taking retirement was that at Cardiff Prison. Most prisons around the country are visited by local hospital's Liver specialist nurses. Who deal with liver related medical conditions, and are often involved with liver-related alcohol
Hidden
in
British Liver Trust
5 years ago
Ascites drain
Hi, I am new here and have joined to get advice and support for my husband who has liver cirrhosis. He had his first drain of ascites a week ago, he is taking 200mg direutic, he was hoping to regain his appetite as needs to build up strength for liver transplant assessment in 3 weeks...is it normal
Hi, I am new here and have joined to get advice and support for my husband who has liver cirrhosis. He had his first drain of ascites a week ago, he is taking 200mg direutic, he was hoping to regain his appetite as needs to build up strength for liver transplant assessment in 3 weeks...is it normal
Hidden
in
British Liver Trust
5 years ago
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