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💤 sleep
I've always been a good sleeper but following the stroke triggered by brain aneurysm surgery. I've been regularly finding myself waking at 1-2am thinking it's the morning and time to get up. I'm living in a rehab unit so there are always staff around to reorientate me to the time but it's an annoying
I've always been a good sleeper but following the stroke triggered by brain aneurysm surgery. I've been regularly finding myself waking at 1-2am thinking it's the morning and time to get up. I'm living in a rehab unit so there are always staff around to reorientate me to the time but it's an annoying
GardenElf
in
Brain Aneurysm Support
6 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
6 months ago
PSA Rising
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
TheTopBanana
in
Advanced Prostate Cancer
6 months ago
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After Transplant
I had my transplant 9 weeks ago I can’t believe the difference it has had. I sleep all night, no boiling up in the night, my breathing is better I use breathe so loud I think it was all the fluids inside me I was struggling to breathe I feel like I’m 20 years old again and I’m 50 . My mind is so much
I had my transplant 9 weeks ago I can’t believe the difference it has had. I sleep all night, no boiling up in the night, my breathing is better I use breathe so loud I think it was all the fluids inside me I was struggling to breathe I feel like I’m 20 years old again and I’m 50 . My mind is so much
lonmallin50
in
British Liver Trust
6 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
6 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
6 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
6 months ago
panicking!
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hidden
in
Advanced Prostate Cancer
6 months ago
INR control
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
mully
in
Hughes Syndrome APS Forum
5 months ago
PSA test at a different lab
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
Rfs1975
in
Advanced Prostate Cancer
6 months ago
PSA test at a different lab
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
Rfs1975
in
Advanced Prostate Cancer
6 months ago
Next step..
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
rfgh20
in
Advanced Prostate Cancer
6 months ago
Hello again
I posted a little while ago, that I had been diagnosed with cirrhosis just over a year ago as a progression of NAFLD that I was unaware of. I had been waiting results of DEXA scan which did show thinning of bones and an US which showed no abnormalities. (The cirrhosis had been diagnosed from a Fibroscan
I posted a little while ago, that I had been diagnosed with cirrhosis just over a year ago as a progression of NAFLD that I was unaware of. I had been waiting results of DEXA scan which did show thinning of bones and an US which showed no abnormalities. (The cirrhosis had been diagnosed from a Fibroscan
0range5520
in
British Liver Trust
6 months ago
Tests show fatty liver but I seem to have Terry's Nails?
I am 27F, currently 7 months pregnant. I currently weigh 209 but have lost 45lbs over the past year and a half. I was a big drinker in college and after but have greatly cut back and obviously stopped during this pregnancy and my first one. I went to my doctor a couple years ago with RUQ pain and had
I am 27F, currently 7 months pregnant. I currently weigh 209 but have lost 45lbs over the past year and a half. I was a big drinker in college and after but have greatly cut back and obviously stopped during this pregnancy and my first one. I went to my doctor a couple years ago with RUQ pain and had
Panicprofessional
in
British Liver Trust
6 months ago
cannot lose weight - hashimoto’s
hi everyone! hashimoto’s thyroiditus was diagnosed privately in August 2022 and now nhs is treating me with 75mg levothyroxine (teva brand) and things are improving. Goitre reducing and t3,t4,TSH all in normal range now. On b12 supplement for deficiency, was tested for all major vitamins, coeliac,
hi everyone! hashimoto’s thyroiditus was diagnosed privately in August 2022 and now nhs is treating me with 75mg levothyroxine (teva brand) and things are improving. Goitre reducing and t3,t4,TSH all in normal range now. On b12 supplement for deficiency, was tested for all major vitamins, coeliac,
08ambo1
in
Thyroid UK
1 year ago
PSA Rising and MRI Negative
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
Inquisitive_one
in
Advanced Prostate Cancer
6 months ago
Sudden increase of PSA...
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
Max24
in
Advanced Prostate Cancer
6 months ago
Any financial help for PwP?
Hi evetybody! I know that we are all suffering with this condition and our lives are more or less impacted and limited..But believe me, or not,what is even worse than have PD is to have Parkinson's symptoms in your late 20 - 30 ties when you should be on the top of your productivity, but you put your
Hi evetybody! I know that we are all suffering with this condition and our lives are more or less impacted and limited..But believe me, or not,what is even worse than have PD is to have Parkinson's symptoms in your late 20 - 30 ties when you should be on the top of your productivity, but you put your
realk
in
Cure Parkinson's
6 months ago
Electric shock treatment
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
Lynthebin
in
AF Association
4 months ago
Update Castrate Resistant Metastatic Cancer
My metastatic prostate cancer was diagnosed castrate resistant on November 1 with PSA of 0.8, which was doubling in about two months while on Lupron. On November 10 I started Abiraterone + prednisone. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to
My metastatic prostate cancer was diagnosed castrate resistant on November 1 with PSA of 0.8, which was doubling in about two months while on Lupron. On November 10 I started Abiraterone + prednisone. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to
dac500
in
Advanced Prostate Cancer
6 months ago
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