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New Diagnosis of PBC and Prescribed URSO
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Toddyboo
in
PBC Foundation
3 months ago
lupus and exercise
Hey, I have recently been diagnosed with lupus after suffering with joint shin pains for 9 months. I used to do sport, especially the gym but haven’t done any exercise since the pain. I wonder if there’s any tips on if I can get back to exercising or managing the pain, I haven’t had a chance to speak
Hey, I have recently been diagnosed with lupus after suffering with joint shin pains for 9 months. I used to do sport, especially the gym but haven’t done any exercise since the pain. I wonder if there’s any tips on if I can get back to exercising or managing the pain, I haven’t had a chance to speak
Yellowsun111
in
LUPUS UK
1 year ago
PSA not dropping with cabazitaxel
See my profile for history. Have had 8 good years after Docitaxal, Lupron and 4 years of Zytiga. But mets's started up again in May, 2023. PSA went up to 36. Took 5 rounds of Docitaxal but not working. PSA 46 in December. MO prognosis is 1-1.5 yrs. Switched to cabazitaxel but after 3 rounds PSA is now
See my profile for history. Have had 8 good years after Docitaxal, Lupron and 4 years of Zytiga. But mets's started up again in May, 2023. PSA went up to 36. Took 5 rounds of Docitaxal but not working. PSA 46 in December. MO prognosis is 1-1.5 yrs. Switched to cabazitaxel but after 3 rounds PSA is now
westjl2
in
Advanced Prostate Cancer
3 months ago
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urea blood test low
hi has anyone ever experienced this my Liver tests were normal this time round alt being 28 however my urea said 2.0 and it said that the normal is between 2.5 and 7.0 thanks in advance x
hi has anyone ever experienced this my Liver tests were normal this time round alt being 28 however my urea said 2.0 and it said that the normal is between 2.5 and 7.0 thanks in advance x
Faye-red
in
British Liver Trust
3 months ago
Diagnosed almost 3 years ago
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
Retireddoc
in
Advanced Prostate Cancer
3 months ago
Fib-4 score 0.66
Hello Everyone, please advise if fib-4 score is same as fibro scan score. Mine is 0.66 or 1 32. I am worried sick about it. It says the score is intermediate. I think I have terry nails, itching and dull pain. Is this mean that I have advanced cirrhosis? My blood test are normal.
Hello Everyone, please advise if fib-4 score is same as fibro scan score. Mine is 0.66 or 1 32. I am worried sick about it. It says the score is intermediate. I think I have terry nails, itching and dull pain. Is this mean that I have advanced cirrhosis? My blood test are normal.
SShally
in
British Liver Trust
3 months ago
alt level 96
hi, m I’ve had two high alt levels and my ast levels were normal. I have been diagnosed with severe fatty liver. I’m still so worried it could be Cirrhosis or would of this been picked up. Also does anybody have any advice on foods? like how much wholemeal bread I can have a week? I’ve been living
hi, m I’ve had two high alt levels and my ast levels were normal. I have been diagnosed with severe fatty liver. I’m still so worried it could be Cirrhosis or would of this been picked up. Also does anybody have any advice on foods? like how much wholemeal bread I can have a week? I’ve been living
Chicob29
in
British Liver Trust
3 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Hughes Syndrome APS Forum
2 months ago
Lupus Eyes
Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the medication causing red eyes and little hard bits around the eye lids. Thankyou in advance
Its been sometime since I have contacted Health unlocked about My BP/Asthma and also about my wife having Lupus. Can anyone please tell me about the medication causing red eyes and little hard bits around the eye lids. Thankyou in advance
just-typing
in
LUPUS UK
1 year ago
How long does SBRT to two lymph nodes continue to lower PSA?
Just wondering…does SBRT continue to drop PSA for any length of time? Or is it five sessions and it is what it is then? Curious if I can see further PSA reduction after 5 sessions to one node, then 5 to a second node. No prostate. See the treating RO in a couple of days, but thought I would ask
Just wondering…does SBRT continue to drop PSA for any length of time? Or is it five sessions and it is what it is then? Curious if I can see further PSA reduction after 5 sessions to one node, then 5 to a second node. No prostate. See the treating RO in a couple of days, but thought I would ask
Cancer2x
in
Advanced Prostate Cancer
3 months ago
Prostate cancer made to my brain, skull and muscles in my head
Well, that’s something isn’t it? Have you ever seen that much cancer in someone’s head? Both my radiation oncologist and my and my regular oncologist at City of Hope said that this is something very unusual for prostate cancer to do. So there getting all of it for research to investigate what the
Well, that’s something isn’t it? Have you ever seen that much cancer in someone’s head? Both my radiation oncologist and my and my regular oncologist at City of Hope said that this is something very unusual for prostate cancer to do. So there getting all of it for research to investigate what the
Gl448
in
Advanced Prostate Cancer
3 months ago
New Mets, PSA 0.4
Hi everyone, I’m so worry for my dad, he has been dealing with this disease since 2019, he was put on vacation 2 years ago and for the last 2 years off medication his PSA was around 0.01, life was good and we were happy for him until his last two psa tests which jumped to 0.4 ! He had a scan and one
Hi everyone, I’m so worry for my dad, he has been dealing with this disease since 2019, he was put on vacation 2 years ago and for the last 2 years off medication his PSA was around 0.01, life was good and we were happy for him until his last two psa tests which jumped to 0.4 ! He had a scan and one
godhelpus
in
Advanced Prostate Cancer
3 months ago
Rising PSA
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
JolleySprings
in
Advanced Prostate Cancer
3 months ago
Next step
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
Elbers123
in
Advanced Prostate Cancer
3 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
3 months ago
Kpa results from scan
i had a fibro scan today , first one , was admitted to hospital beginning of january , with a bleed due to bacterial stomach infection when they discovered liver damage , ultrasound showed ? cirrhosis i’ve been out of hospital 5 weeks . and current ly have no symptoms my fibro scan was 17.5
i had a fibro scan today , first one , was admitted to hospital beginning of january , with a bleed due to bacterial stomach infection when they discovered liver damage , ultrasound showed ? cirrhosis i’ve been out of hospital 5 weeks . and current ly have no symptoms my fibro scan was 17.5
greensforliver
in
British Liver Trust
3 months ago
i am here to help arthritis end
i here have arthritis bad case can people give me advice tanku 😆😘😀👍🤪🤪😛😋😛😮😟😟😵🤠🥳😎👁️👅👁️👵👱♂️👨🦲👩🦰🦸🧕👳♂️🦸♂️🧝♂️🧍👨🦯🧍♂️🤹♀️👩❤️👩👨❤️👨👪👩❤️💋👨🚵♂️🗯️💯🐙🐚🐜🦟🐌🎖️🏅🎽🎣🏑🏏🏈🏉🏉🎖️🎈🧧🧧🗾🏠🏦🗼🗽🏬🏟️🧭🌏🚗🚌🎠🚚🚙🦽🚘🚙🎪💈🚗🚅🚃🦼🚚🚘🕣🌠☀️🌘🌘💧🌊💧🌪️
i here have arthritis bad case can people give me advice tanku 😆😘😀👍🤪🤪😛😋😛😮😟😟😵🤠🥳😎👁️👅👁️👵👱♂️👨🦲👩🦰🦸🧕👳♂️🦸♂️🧝♂️🧍👨🦯🧍♂️🤹♀️👩❤️👩👨❤️👨👪👩❤️💋👨🚵♂️🗯️💯🐙🐚🐜🦟🐌🎖️🏅🎽🎣🏑🏏🏈🏉🏉🎖️🎈🧧🧧🗾🏠🏦🗼🗽🏬🏟️🧭🌏🚗🚌🎠🚚🚙🦽🚘🚙🎪💈🚗🚅🚃🦼🚚🚘🕣🌠☀️🌘🌘💧🌊💧🌪️
laladays
in
Arthritis Action
1 year ago
At what psa is PCa suspected?
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
CousinGrandpa
in
Advanced Prostate Cancer
3 months ago
IFAB testing guidelines per Mayo clinic laboratory website
In the validation of this assay, 24 individuals with these
autoimmune
endocrine
diseases
were tested and all were IFBA negative. However, 5 of 15 of patients with rheumatoid arthritis were IFBA positive during the validation of this assay.
In the validation of this assay, 24 individuals with these
autoimmune
endocrine
diseases
were tested and all were IFBA negative. However, 5 of 15 of patients with rheumatoid arthritis were IFBA positive during the validation of this assay.
EllaNore
in
Pernicious Anaemia Society
1 year ago
Radiation PSA, Orgovyx, Bone density Update 2/18/24
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
alperk
in
Advanced Prostate Cancer
3 months ago
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