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DBS stopped working
I’m looking to see if anyone has experienced similar DBS results, I had my DBS(GPI) surgery on 7/31 and immediately had positive results before the switch on. It felt like I was cured but I knew that this was the honeymoon phase. After a week or so my symptoms returned until I had my first programming
I’m looking to see if anyone has experienced similar DBS results, I had my DBS(GPI) surgery on 7/31 and immediately had positive results before the switch on. It felt like I was cured but I knew that this was the honeymoon phase. After a week or so my symptoms returned until I had my first programming
robclem
in
Cure Parkinson's
7 months ago
DBS on the leg trial
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
MARC1
in
Cure Parkinson's
7 months ago
2023: Your Successes and Failures
My mum is 83, has PD and dementia.
Successes
1. Constipation and digestive issues very much helped with the addition of Motilitone, a prokinetic. Once a day or every other day now. No strain. Zero stress around the issue now. Previously, there was a great deal. Abdominal pains have gone. (
My mum is 83, has PD and dementia.
Successes
1. Constipation and digestive issues very much helped with the addition of Motilitone, a prokinetic. Once a day or every other day now. No strain. Zero stress around the issue now. Previously, there was a great deal. Abdominal pains have gone. (
garygjs
in
Cure Parkinson's
7 months ago
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TENS MACHINE
My mother suffers with heart failure , at the moment she’s suffering bad with sciatica. I took her to the drs today and they’ve told her to try a Tens machine . My question is it safe for her to use with her condition ? Many thanks
My mother suffers with heart failure , at the moment she’s suffering bad with sciatica. I took her to the drs today and they’ve told her to try a Tens machine . My question is it safe for her to use with her condition ? Many thanks
Wezza81
in
British Heart Foundation
6 months ago
DBS update
So gang. 3 months following DBS. I had it done because my dystonia was getting so bad and the reliability of the meds was open to question. I might thrive on a particular dose of Madopar and then the next day would be stuck whilst on a walk after having taken the same. It was very hard to plan anything
So gang. 3 months following DBS. I had it done because my dystonia was getting so bad and the reliability of the meds was open to question. I might thrive on a particular dose of Madopar and then the next day would be stuck whilst on a walk after having taken the same. It was very hard to plan anything
jeeves19
in
Cure Parkinson's
8 months ago
advice after surgery/ any advice on natural remedies or how to slow the regrowth of endo?
I had my surgery on Wednesday to investigate my bladder pain. Turns out my bladder is clear but I had a chocolate cyst inside my ovary, and my ovary was stuck to my pelvic wall. I had a different surgeon from before, who indicated that my surgery wasn’t performed properly last time. So I am unsure if
I had my surgery on Wednesday to investigate my bladder pain. Turns out my bladder is clear but I had a chocolate cyst inside my ovary, and my ovary was stuck to my pelvic wall. I had a different surgeon from before, who indicated that my surgery wasn’t performed properly last time. So I am unsure if
merlin-mimi
in
Endometriosis UK
6 months ago
Do TENS machines help with endo pain?
Hi, I’ve been diagnosed with stage 4 Endrometriosis and have terrible symptoms before and during my periods. I’m trying different products to manage my pain, I wondered if anyone has used TENS machines? If yes, do they actually help with pain? Many thanks in advance!
Hi, I’ve been diagnosed with stage 4 Endrometriosis and have terrible symptoms before and during my periods. I’m trying different products to manage my pain, I wondered if anyone has used TENS machines? If yes, do they actually help with pain? Many thanks in advance!
Bubble-z
in
Endometriosis UK
6 months ago
I don't know what to do!!
Here is my situation. I have Atrial Tachycardia/SVT. I had a 14 day Holter that showed a 20% average burden of Supra ventricular Ectopy. I had an 11% burden of SVT. I had, on average, 20-30,000 ectopic beats every day, and 6-700 runs of SVT per day. Most of my episodes occur at night. From 10pm
Here is my situation. I have Atrial Tachycardia/SVT. I had a 14 day Holter that showed a 20% average burden of Supra ventricular Ectopy. I had an 11% burden of SVT. I had, on average, 20-30,000 ectopic beats every day, and 6-700 runs of SVT per day. Most of my episodes occur at night. From 10pm
MeganMN
in
AF Association
6 months ago
DBS should I or should I not??
I'm sure everyone goes through this question over & over again!! Ten times, or more like 100 times in our heads when trying to make a decision and be happy with the choice made. I went for my assessment for dbs this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking
I'm sure everyone goes through this question over & over again!! Ten times, or more like 100 times in our heads when trying to make a decision and be happy with the choice made. I went for my assessment for dbs this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking
MARC1
in
Cure Parkinson's
8 months ago
Switched
I found myoovi helps. It's not better than heat.. but I switched as on a particularly painful endo flare up my I gave myself blisters from my heat pad.. and I found out that prolonged use of heat pads can discolour your skin 'google grandmother's tartan'. Nothing like that comes with a tens machine
I found myoovi helps. It's not better than heat.. but I switched as on a particularly painful endo flare up my I gave myself blisters from my heat pad.. and I found out that prolonged use of heat pads can discolour your skin 'google grandmother's tartan'. Nothing like that comes with a tens machine
For_the_love_of_otis
in
Endometriosis UK
6 months ago
No more earwax
It sounds weird, but I noticed in last year no more earwax. Does anyone else with PD have the same issue or know why this would happen? Dx 8 years ago, DBS 1/2023, only take c/l
It sounds weird, but I noticed in last year no more earwax. Does anyone else with PD have the same issue or know why this would happen? Dx 8 years ago, DBS 1/2023, only take c/l
Lbi1608
in
Cure Parkinson's
8 months ago
i know this is going to sound weird but…….
Guys. Ever since I had the DBS I’ve had rhinitis, itchy eyes, itchy skin. I assumed that I needed to hoover up etc, get my dogs bedding changed etc. I’ve done all of these but I’m still symptomatic. I thought to myself the other day: this started pretty soon after the DBS. So: could I be allergic to
Guys. Ever since I had the DBS I’ve had rhinitis, itchy eyes, itchy skin. I assumed that I needed to hoover up etc, get my dogs bedding changed etc. I’ve done all of these but I’m still symptomatic. I thought to myself the other day: this started pretty soon after the DBS. So: could I be allergic to
jeeves19
in
Cure Parkinson's
8 months ago
Calf Pain and PAD
Hi, I wasn't sure if this should be posted in a Diabetes forum or on here, after thinking about it I think that this BHF site is the better option. So Peripheral Arterial Disease. I had both Iliac Arteries 'bored' out with balloon angioplasty in May of this year (Left leg fully occulted and Right leg
Hi, I wasn't sure if this should be posted in a Diabetes forum or on here, after thinking about it I think that this BHF site is the better option. So Peripheral Arterial Disease. I had both Iliac Arteries 'bored' out with balloon angioplasty in May of this year (Left leg fully occulted and Right leg
GoldfishPond
in
British Heart Foundation
6 months ago
Menopaused. Would starting HRT mean reducing NDT? Has anyone experience of this please?
Hi Everyone, Still searching to be less housebound and energised. It's another thing to try before I throw in the towel. Any thoughts and experiences would be greatly appreciated ,as my TSH continues to decline out of range and T4 andT3 both low in NHS range. every best wish , G
Hi Everyone, Still searching to be less housebound and energised. It's another thing to try before I throw in the towel. Any thoughts and experiences would be greatly appreciated ,as my TSH continues to decline out of range and T4 andT3 both low in NHS range. every best wish , G
Gillybean1
in
Thyroid UK
6 hours ago
Latest test results
My latest Thyroid results were: TSH 0.05, up from 0.0006; T3 3.2, down from 5.1; T4 8.1, down from 12.1 Not surprising, when you take into account that I was on 3.5 grains of NDT and this was replaced with just 100mcg Levothyroxine and 20mcg Liothyroxine. My dossages have been increased to 150mcg Levo
My latest Thyroid results were: TSH 0.05, up from 0.0006; T3 3.2, down from 5.1; T4 8.1, down from 12.1 Not surprising, when you take into account that I was on 3.5 grains of NDT and this was replaced with just 100mcg Levothyroxine and 20mcg Liothyroxine. My dossages have been increased to 150mcg Levo
PillJunkie
in
Thyroid UK
8 hours ago
T3 liothyronine only
my question is my body hasn’t absorbed any T3 liothyronine since they changed my brands over & that sent my TSH level out 6 years upto Sept 2023 thybon henning 30 mg aday split into 2 doses TSH level 0.01 Jan 2024 viatris 30 mg aday split into 2 doses TSH level 48.90 changed to another brand & doctors
my question is my body hasn’t absorbed any T3 liothyronine since they changed my brands over & that sent my TSH level out 6 years upto Sept 2023 thybon henning 30 mg aday split into 2 doses TSH level 0.01 Jan 2024 viatris 30 mg aday split into 2 doses TSH level 48.90 changed to another brand & doctors
Cezza
in
Thyroid UK
11 hours ago
Kidney problems following RAI treatment
Hi I’m Pippa 51yrs old & was wandering if anybody has had any issues with their kidneys following radioactive iodine treatment? Well I’m in a bit of a pickle & just come out of hospital because of the above! My current TSH 100 & FT4 6.3 the main issue that I’m having is that because I’m so under active
Hi I’m Pippa 51yrs old & was wandering if anybody has had any issues with their kidneys following radioactive iodine treatment? Well I’m in a bit of a pickle & just come out of hospital because of the above! My current TSH 100 & FT4 6.3 the main issue that I’m having is that because I’m so under active
Wilson123
in
Thyroid UK
11 hours ago
Advice re levothyroxine dosage
HelloI would be very greatful for advice regarding my next move re Levothyroxine dosage. On 10 May 2024 began 100mcg levothyroxine after titrating up following blood tests and still experiencing symptoms since Jan 24. Did finger prick test on 20 June (test taken at 7.30 am, fasted and no levo 24 hours
HelloI would be very greatful for advice regarding my next move re Levothyroxine dosage. On 10 May 2024 began 100mcg levothyroxine after titrating up following blood tests and still experiencing symptoms since Jan 24. Did finger prick test on 20 June (test taken at 7.30 am, fasted and no levo 24 hours
pastashapes
in
Thyroid UK
12 hours ago
night shift & Hashimotos
hey everyone I am a nurse suffering with Hashimotos hypothyroidism- I have struggled to keep my TSH stable for past few years now - always fluctuating. I have recently noticed that working nights shifts makes all of my symptoms ten times worst + I feel even more exhausted & I constantly feel nauseous
hey everyone I am a nurse suffering with Hashimotos hypothyroidism- I have struggled to keep my TSH stable for past few years now - always fluctuating. I have recently noticed that working nights shifts makes all of my symptoms ten times worst + I feel even more exhausted & I constantly feel nauseous
ChloeEllen
in
Thyroid UK
13 hours ago
Suppressed TSH on combined therapy
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
redhead41
in
Thyroid UK
12 hours ago
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