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Reminder: The virtual LiveLung SCLC group meeting is TONIGHT, June 20th at 7 pm ET.
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
AmyKamp
Partner
in
Small Cell Lung Cancer Support
1 year ago
Gasping for breath whe lying in bed.
I had a double ablation 3 weeks ago for
Atrial
Fib and
Atrial
Flutter
ie both
atrial
chambers. Since then I have regularly had episodes of AF with HR of up to 160bpm for periods of up to 12h. Recently this has beeN happenibg when I go to bed and I wake up breathless.
I had a double ablation 3 weeks ago for
Atrial
Fib and
Atrial
Flutter
ie both
atrial
chambers. Since then I have regularly had episodes of AF with HR of up to 160bpm for periods of up to 12h. Recently this has beeN happenibg when I go to bed and I wake up breathless.
Huwhuw
in
British Heart Foundation
2 years ago
Travel Insurance
I am taking a 4-day trip to New York in December for my 60th birthday I have had Hypertrophic Cardiomyopathy which has been successfully treated for 4 years, but I am now having tests for typical
atrial
flutter
. I am looking to get travel insurance, is this possible and at what cost?
I am taking a 4-day trip to New York in December for my 60th birthday I have had Hypertrophic Cardiomyopathy which has been successfully treated for 4 years, but I am now having tests for typical
atrial
flutter
. I am looking to get travel insurance, is this possible and at what cost?
canarysmith
in
British Heart Foundation
2 years ago
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edoxaban and hip replacement.
GP has arranged an echo (fine apparently) and a 24 hour monitor (NSR throughout) 24 hour BP (fine on the low side but I’d expect/hope for that on Bisoprolol) and I’ve also had a few 12 lead ECGs at the GP - one apparently showed asymptomatic
atrial
flutter
which I was told ‘was nothing’ , the rest were
GP has arranged an echo (fine apparently) and a 24 hour monitor (NSR throughout) 24 hour BP (fine on the low side but I’d expect/hope for that on Bisoprolol) and I’ve also had a few 12 lead ECGs at the GP - one apparently showed asymptomatic
atrial
flutter
which I was told ‘was nothing’ , the rest were
TickityBoo
in
AF Association
1 year ago
A Correction
A few weeks ago I mentioned that Dr Ohtsuka will be a panellist in an online (Zoom) discussion about AFib and the mini-maze procedure. The WO-MM (Wolf-Ohtsuka Mini Maze) is an adaptation of the Wolf Mini Mazem as performed at the NewHeart Watanabe hospital in Tokyo. Dr Wolf, who is a surgeon at Debakey
A few weeks ago I mentioned that Dr Ohtsuka will be a panellist in an online (Zoom) discussion about AFib and the mini-maze procedure. The WO-MM (Wolf-Ohtsuka Mini Maze) is an adaptation of the Wolf Mini Mazem as performed at the NewHeart Watanabe hospital in Tokyo. Dr Wolf, who is a surgeon at Debakey
saulger
in
AF Association
1 year ago
Slow irregular heartbeat?
Was diagnosed with arrhythmia last autumn, currently on edoxaban, flecanide and bisoprolol. About 20 hours ago my heart started beating irregularly, it is still slow (about 50 bpm) and seems to be missing a beat every 3/4 beats. NHS111 yesterday advised going to A&E where they did ECG and blood
Was diagnosed with arrhythmia last autumn, currently on edoxaban, flecanide and bisoprolol. About 20 hours ago my heart started beating irregularly, it is still slow (about 50 bpm) and seems to be missing a beat every 3/4 beats. NHS111 yesterday advised going to A&E where they did ECG and blood
Afib12345
in
AF Association
1 year ago
Migraine on tapering
Just a quick question - I began DL's slow taper from 9mg to 8.5mg on Saturday 18/3/23 and suffered a migraine aura so took a sumatriptans tablet. Gradually recovered over the next couple of days. The second reduction to 8.5mg is today (22/3/23) and, again, I have had a migraine aura and taken sumatriptans
Just a quick question - I began DL's slow taper from 9mg to 8.5mg on Saturday 18/3/23 and suffered a migraine aura so took a sumatriptans tablet. Gradually recovered over the next couple of days. The second reduction to 8.5mg is today (22/3/23) and, again, I have had a migraine aura and taken sumatriptans
Miserere
in
PMRGCAuk
1 year ago
Facebook message received anyone heard Of this group
Facebook in my inbox -message requesting invitation to join trials for Potential new treatment. It reads Adults with diagnosis of Afib with High blood pressure, heart attack, stroke, diabetes may be able to take part in a clinical trials rearching new treatment. From panaceapatientrecruitment- panaceapatientrecruitment.com
Facebook in my inbox -message requesting invitation to join trials for Potential new treatment. It reads Adults with diagnosis of Afib with High blood pressure, heart attack, stroke, diabetes may be able to take part in a clinical trials rearching new treatment. From panaceapatientrecruitment- panaceapatientrecruitment.com
Tryfan
in
AF Association
1 year ago
AFIB ATTACK TRIGGER???
Has anyone been AFIB free for several months on Flecainide, but then get an attack when you have a 100.5 fever and cold sweats (not feeling well)??? Just wondering if anyone has had an experience similar to mine? Thank you for any and all replies as I love you all!!!!!!!
Has anyone been AFIB free for several months on Flecainide, but then get an attack when you have a 100.5 fever and cold sweats (not feeling well)??? Just wondering if anyone has had an experience similar to mine? Thank you for any and all replies as I love you all!!!!!!!
Jpot34
in
AF Association
1 year ago
Clinical trial for Mesothelioma patients
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
Advice please
Went to see my EP last night and he gave me news I didn't want to hear.I am on sotalol 40mg X3 per day plus apixaban. I have been having episodes about every 4 months but this time I have had 3 episodes, I believe triggered by the covid vaccine and the other time when I was away eating rich food, not
Went to see my EP last night and he gave me news I didn't want to hear.I am on sotalol 40mg X3 per day plus apixaban. I have been having episodes about every 4 months but this time I have had 3 episodes, I believe triggered by the covid vaccine and the other time when I was away eating rich food, not
Karendeena
in
AF Association
1 year ago
Berberine - does anyone have experience of taking this for PAF?
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
Dippy22
in
AF Association
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Will I be offered surgery?
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Guilane
in
My Ovacome
1 year ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
AussieNeil
Partner
in
CLL Support
1 year ago
BIOMARKER TESTING
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
Info911
in
The Roy Castle Lung Cancer Foundation
1 year ago
Amazing
I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could
I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could
DawnTX
in
AF Association
1 year ago
First afib incident since dx 3 years ago
Have been taking Diltiazem 180 mg daily for 3 years without having any tachycardia till now. Days with HR 130-140 bpm. I think that it was caused by the stress due to the severe storm that caused many blowdowns (one on my house) loss of power, internet, and downed phone lines. Lots of worry, shoveling
Have been taking Diltiazem 180 mg daily for 3 years without having any tachycardia till now. Days with HR 130-140 bpm. I think that it was caused by the stress due to the severe storm that caused many blowdowns (one on my house) loss of power, internet, and downed phone lines. Lots of worry, shoveling
Bikedennis
in
AF Association
1 year ago
My Home ECG reading? AF or Ectopics
As you may know from my recent posts Ive been having aweful time past 5 days with ectopics and palpitations. Ive been recording them and the photo attached is the typical of what Im having every minute of the day. I think overnight I went into sinus rhythm - I found a 2mg of Diazepam from years ago
As you may know from my recent posts Ive been having aweful time past 5 days with ectopics and palpitations. Ive been recording them and the photo attached is the typical of what Im having every minute of the day. I think overnight I went into sinus rhythm - I found a 2mg of Diazepam from years ago
wendy6
in
AF Association
1 year ago
Whatever happened to the pill in the pocket?
I have had paroxysmal AF for 10 years. When it happens I never know what to do, especially as I live alone. If it goes on for more than about 12 hours I seek help from 111, they send the paramedics who do an ECG and confirm the problem, but by the time I get to A&E it stops! I have asked for advice on
I have had paroxysmal AF for 10 years. When it happens I never know what to do, especially as I live alone. If it goes on for more than about 12 hours I seek help from 111, they send the paramedics who do an ECG and confirm the problem, but by the time I get to A&E it stops! I have asked for advice on
Singingforever
in
Atrial Fibrillation Support
1 year ago
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