A Correction: A few weeks ago I... - Atrial Fibrillati...

Atrial Fibrillation Support

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A Correction

saulger profile image
33 Replies

A few weeks ago I mentioned that Dr Ohtsuka will be a panellist in an online (Zoom) discussion about AFib and the mini-maze procedure.

The WO-MM (Wolf-Ohtsuka Mini Maze) is an adaptation of the Wolf Mini Mazem as performed at the NewHeart Watanabe hospital in Tokyo.

Dr Wolf, who is a surgeon at Debakey Cardio Vascular Hospital in Houston, Texas, will also be in Tokyo and will be a guest speaker at the event.

Dr Ohtsuka promised "A thorough breakdown of Operation Mini-Maze! Also the secrets of the technique!" (Dr O's words verbatim).

I am not an innocent bystander.

I was a lone AFib patient since 2018 (no co-morbidities) and I did travel alone at 76 years young from Greece to Tokyo to have the WO-MM. Although I was paroxysmal, I had to do something because at the end of last year I fainted twice, due to pauses in the heart, just as I was converting from AFib to NSR.

I sailed through the Op and recovery, and two days ago I celebrated four months post-OP. I am doing great in NSR, my breathing has improved much, and I managed 9 chin-ups this morning. Previously this would certainly have been followed by an episode of AFib.

My scars are greatly faded, and my AFib is but a sad memory (healthunlocked.com/afassoci...)

Date: 27th March 2023

Time: 10:30 - 11:30 CET / 18:30 - 19:30 Japan Time (09:30 UK time?)

Link: cmi-co-jp.zoom.us/j/9863496...

Password: 6CEEPqd0

I wish us all great health and joy in our lives. Thank you. Saul

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saulger profile image
saulger
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33 Replies
Tangalle profile image
Tangalle

Thank you Saul for the update. Lovely to hear you are doing so well.

I am all ready for Monday. Have a nice weekend.

Michele

saulger profile image
saulger in reply to Tangalle

Thank you Michele. I hope it'll be a good one ! Be well.

jeanjeannie50 profile image
jeanjeannie50

It's great to hear you are doing so well Saul, long may that continue. I'll do my best to remember to watch the talk.

Jean

saulger profile image
saulger in reply to jeanjeannie50

Thank you Jean. All is still well and I am getting fitter because I can now push myself. I have no idea what the "secrets of the technique" will reveal, but hope that it'll be fun...

I hope that you are well and looking forward to spring.

jeanjeannie50 profile image
jeanjeannie50

I must admit to feeling a little envious that you can now exercise more and get fitter. I must push myself to get out walking and build my fitness levels up again after the winter. It poured with rain yesterday and today we have really strong winds. I live on a finger of land that juts out into the sea, so water on three sides and we're very prone to winds, but rarely get frost or snow., today our temperature here was 15C. What is the weather like where you are?

Jean

saulger profile image
saulger in reply to jeanjeannie50

Jean, exercising is very important for me. I feel better and less floppy when I am fitter. In the year before the Op I could do less and less because the exercise would beget an episode if the HR went over 110 or so. Sounds lovely where you live. We are on the edge of the centre of Athens but close to a lovely natural spot with a hilly wood where I try to walk every day.

We are getting spring weather now and today was sunny and 21C.

mjames1 profile image
mjames1

Thanks for posting and great news on the chin ups! I felt an ectopic beat just reading about it 😀 I know it's getting better, but what did Dr Ohtsuka have to say about your post ablation breathing issues? Is it part of the mini maze recovery or something else? Are you still on any afib drugs now?

Jim

saulger profile image
saulger in reply to mjames1

Hi Jim. I asked Dr Ohtsuka about the breathlessness and he said to give it more time. I think that it is a lung issue and not the heart, because the HR could be just 85 yet I would be breathless. During the Op the lungs are slightly deflated and this could be a consequence.

For the first 10 weeks after the Op I took it very easy because I was worried about having an episode, and since then I started to gradually push more. A month ago the hill outside the house would have me stop at the top and pant like mad, but now I am just breathing hard but can carry on. Today I did 10 minutes rowing at 110W power, and can row 40 minutes at 90W power rating.

Aqua_1 profile image
Aqua_1

So happy for you Saul! Thank you for sharing the details of the zoom discussion.

Thanks . This is of great interest to me. I just hope this may be available as a recording after the event - it coincides with a flight I’m taking.

saulger profile image
saulger in reply to

Dr Ohtsuka replied that they are planning to record the discussion.

in reply to saulger

That’s brilliant. Thanks Saul

❤️‍🩹Thank you for sharing! So happy to hear your update & that you’re doing well! My husband is as well. It’s truly like he got his life back! We’re so thankful for Dr Wolf! Take care ❤️‍🩹 and God Bless! 🙏🤍✨

4chickens profile image
4chickens

Thank you for the link, so pleased your doing well.

Paulbounce profile image
Paulbounce

I'm chuffed to bit's you are doing so well Saul.

Paul

Singwell profile image
Singwell

Thanks Saul!

MummyLuv profile image
MummyLuv

wonderful news. Chin ups in your 70s 👏👏 I can’t do chin ups and I’m only 51 😂😂

saulger profile image
saulger in reply to MummyLuv

Come to Greece, Alison !

mav7 profile image
mav7

saulger

Thanks for posting !

Do you know if the Zoom meeting will be recorded and be available for later viewing on Dr Wolf's or another site ?

If that has not been determined, please post any later info. Thanks !

saulger profile image
saulger in reply to mav7

I will ask and will try to report back ASAP. I am guessing that it will be recorded. Watch this space...

saulger profile image
saulger in reply to mav7

Dr Ohtsuka replied that they are planning to record the discussion.

mav7 profile image
mav7 in reply to saulger

Great ! Thanks for reply.

Corkel profile image
Corkel

Thank you for sharing. Happy to hear you are doing so well.

saulger profile image
saulger in reply to Corkel

Thank you. The breathing is also better. Be well.

va-afibber profile image
va-afibber

So I actually had the Mini Maze last week with Dr Wolf before he left for Japan. I am in day 6 and doing pretty well. A lifelong runner robbed of breath & endurance by afib, i pray I have same results as you :-) Looking forward to the talk with he & Dr Ohtsuka tomorrow. Thanks for the heads up

saulger profile image
saulger in reply to va-afibber

Welcome to the AFA forum. Are you on Sandi's FB site?The endurance will return fairly rapidly. On the day that I left Japan, 4 weeks after the Op, I walked 10 km in two hours, but stairs were difficult and left me panting heavily. It is much better after 4 months but not as good as I was, when not in Afib.

The strength will return and I can now do 10 chin-ups with no after effects. The HR is higher for me after the WO-MM at 65 RHR, whereas I was 53 before.

I never expected to be where I am after just 4 months. The world has opened up to me...

Good luck with the recovery. Saul

va-afibber profile image
va-afibber in reply to saulger

Saul, Im not on Sandy Streimeyer’s FB site yet, but that’s certainly on my “must do” list, (Ive watched all her & Dr Wolf’s videos) - she is very insprational. As far as MM recovery, since my surgery May 20th Ive experinced two afib / simple tacycardia runs this past week ~126 bpm for a couple hours (Dr Wolf said this might happen).

Ecstatic I found the AFA forum and you. Its Very comforting to chat with others who’ve “been there done that”.

Did you have any post surgery arrythmia? Other recovery advice?

saulger profile image
saulger in reply to va-afibber

Lots of folks on Sandi's site report their experiences re surgery and recovery. Sandi is a retired nurse and is a volunteer admin of the FB site.

Yes, I had tachycardia three days after surgery that lasted 3-4 days and again, after about 10 days post hospital-discharge , that lasted a couple of hours, and nothing at all since.

mav7 profile image
mav7

Did anyone see this meeting and has it been posted anywhere for viewing ?

I did not see due to time.

saulger profile image
saulger in reply to mav7

I did. It was very detailed and educational. Dr Ohtsuka said that it was being recorded and I will post a link as soon as it is available.

Mumursa profile image
Mumursa in reply to saulger

I thought the presentation was great. They were so relaxed and down to earth! They explained everything very well and even I, who am normally mind boggled by the terminology and too squeamish to watch medical demos, found it easy to follow.

Thank you Saul! I hope you continue to make an excellent recovery.

saulger profile image
saulger in reply to Mumursa

Thank you, too ! I also enjoyed it and liked how Dr Wolf explained all the steps and Dr Ohtsuka prodded him to add more educational content.

Dr Ohtsuka was a little more formal when I was in Japan and very kind and caring. They love their work. Just look at this photo of Mavis who just had her WO-MM with Dr Ohtsuka.

How many surgeons love their patients this much?
Mumursa profile image
Mumursa

Hi Saul, that’s what struck me too was their interest in people.

I know it must be much more of a challenge in the UK NHS but we could do with more of their philosophy!

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