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Volunteer Opportunity - Prostate Cancer Patient Advocate with SWOG for Genitourinary Cancer Committee
I have served as a volunteer Patient Advocate representing the LGBTQ+ Community with the Southwest Oncology Group (SWOG) for the past two years. As such I am serving as a member of the Patient Advocacy Committee (PAC) and the Diversity, Equality, and Inclusion Committee. I attend monthly zoom meetings
I have served as a volunteer Patient Advocate representing the LGBTQ+ Community with the Southwest Oncology Group (SWOG) for the past two years. As such I am serving as a member of the Patient Advocacy Committee (PAC) and the Diversity, Equality, and Inclusion Committee. I attend monthly zoom meetings
JRPnSD
in
Advanced Prostate Cancer
1 year ago
HAS ANYONE PARTICIPATED IN CLINICAL TRIALS
Hello everyone. Has anybody on this forum ever joined in a clinical trial? I have been invited to join a Phase 1 clinical trial for LOXO-783. The new drug is for those who have the PIK3CA mutation. At first I was very excited to join but when I was looking at the screening requirements, I don’t
Hello everyone. Has anybody on this forum ever joined in a clinical trial? I have been invited to join a Phase 1 clinical trial for LOXO-783. The new drug is for those who have the PIK3CA mutation. At first I was very excited to join but when I was looking at the screening requirements, I don’t
MyMiracle13
in
SHARE Metastatic Breast Cancer
1 year ago
Vagus Nerve and Afib Questions
Folks, Can I test out a few elements of my understanding of the vagus nerve and vagally induced Afib with any of you that understand it better than I do please? 1. Vagally induced Afib is triggered by an over-active or over-stimulated vagus nerve, which in a sense means that you are too calm or relaxed
Folks, Can I test out a few elements of my understanding of the vagus nerve and vagally induced Afib with any of you that understand it better than I do please? 1. Vagally induced Afib is triggered by an over-active or over-stimulated vagus nerve, which in a sense means that you are too calm or relaxed
BigArnie
in
AF Association
2 years ago
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response to clinical trial application?
A couple of months ago, I applied for a clinical trial that had just started recruiting. They are still recruiting and have begun administering the trial drug to participants. I never heard from trial staff. Has anyone applied for a trial and received notice whether they were rejected? Thank you. Sashay
A couple of months ago, I applied for a clinical trial that had just started recruiting. They are still recruiting and have begun administering the trial drug to participants. I never heard from trial staff. Has anyone applied for a trial and received notice whether they were rejected? Thank you. Sashay
Sashay2020
in
My Ovacome
1 year ago
Advice on af/atrial flutter/heart rate readings
flutter
I was diagnosed with sleep apnea afib and
atrial
flutter
from what I was aware maybe 2 half years ago heart rate was shooting high and out of synus rhythm for 4/15 hrs at a time I’ve had 3 dc conversions done and the ablation I have changed my life style alot and lost weight etc so any advice
flutter
I was diagnosed with sleep apnea afib and
atrial
flutter
from what I was aware maybe 2 half years ago heart rate was shooting high and out of synus rhythm for 4/15 hrs at a time I’ve had 3 dc conversions done and the ablation I have changed my life style alot and lost weight etc so any advice
Conzobing
in
British Heart Foundation
2 years ago
Interesting video with active ongoing clinical trial. Maybe on option for some!!
https://www.urotoday.com/video-lectures/asco-2022/video/2853-the-future-of-radiopharmaceuticals-in-the-treatment-of-prostate-cancer-philip-kantoff.html
https://www.urotoday.com/video-lectures/asco-2022/video/2853-the-future-of-radiopharmaceuticals-in-the-treatment-of-prostate-cancer-philip-kantoff.html
Bkraus1
in
Advanced Prostate Cancer
1 year ago
More on the biomarker NFL
The identification of disease-modifying therapies is the Holy Grail of PD research, but to date no drug has been approved as such a therapy.1 There are numerous disease-modifying therapies currently in the pipeline attempting to modify the underlying pathomechanisms. In recent years, the results of
The identification of disease-modifying therapies is the Holy Grail of PD research, but to date no drug has been approved as such a therapy.1 There are numerous disease-modifying therapies currently in the pipeline attempting to modify the underlying pathomechanisms. In recent years, the results of
House2
in
Cure Parkinson's
1 year ago
4 weeks after Pfizer Biotech vaccine
Up until 4 weeks ago I was in control of my afib with life style changes and Flecainide, then I had a COVID booster vaccine and it's all gone out of the window. For a few days immediately after the vaccine I was a little poorly and my heart readings were all over the shop. Since then I have had periods
Up until 4 weeks ago I was in control of my afib with life style changes and Flecainide, then I had a COVID booster vaccine and it's all gone out of the window. For a few days immediately after the vaccine I was a little poorly and my heart readings were all over the shop. Since then I have had periods
MisterMagoo
in
AF Association
2 years ago
update on speaking with nurse.
So I had to do fibricheck for a week for Nurse and apart from one bad episode of AFIB all the others are eptopics. I’ve upped my Bisoprolol for now if that don’t work then I have to up the flecainide. That’s the one I don’t want to up. I have been given the all clear to get back to my HGV job so that
So I had to do fibricheck for a week for Nurse and apart from one bad episode of AFIB all the others are eptopics. I’ve upped my Bisoprolol for now if that don’t work then I have to up the flecainide. That’s the one I don’t want to up. I have been given the all clear to get back to my HGV job so that
Electricblue1
in
AF Association
2 years ago
Annovis Bio Announces Approval for EU Clinical Trial Sites for the Phase 3 Study of Buntanetap for the Treatment of Parkinson's Disease
This trial is already open in the United States, and I believe some on this forum are participating. This announcemment indicates that the company is also opening clinical trial sites across the EU. I checked clnicaltrials.gov but they have not listed the EU sites yet. https://www.prnewswire.com/news-releases
This trial is already open in the United States, and I believe some on this forum are participating. This announcemment indicates that the company is also opening clinical trial sites across the EU. I checked clnicaltrials.gov but they have not listed the EU sites yet. https://www.prnewswire.com/news-releases
Canddy
in
Cure Parkinson's
1 year ago
Neuron23 Announces First-in-Human Dose in Phase 1 Clinical Trial of its Best-in-Class Brain-Penetrant LRRK2 Inhibitor for Parkinsons Disease
NEU-723 has been shown in preclinical studies to have strong disease-modifying potential with a higher therapeutic index than other candidates in development https://www.prnewswire.com/news-releases/neuron23-announces-first-in-human-dose-in-phase-1-clinical-trial-of-its-best-in-class-brain-penetrant-lrrk2
NEU-723 has been shown in preclinical studies to have strong disease-modifying potential with a higher therapeutic index than other candidates in development https://www.prnewswire.com/news-releases/neuron23-announces-first-in-human-dose-in-phase-1-clinical-trial-of-its-best-in-class-brain-penetrant-lrrk2
Farooqji
in
Cure Parkinson's
1 year ago
Anyone with heart scar tissue?
I have been in the Afib forum for a year and half. Thanks to what I learned in this wonderful forum, I made some lifestyle adjustmemts that kept me out of Afib. I found out I had some scar tissue after a heart MRI following a sustained ventricular tachycardia cardiac arrest in 2021, I am on beta blocker
I have been in the Afib forum for a year and half. Thanks to what I learned in this wonderful forum, I made some lifestyle adjustmemts that kept me out of Afib. I found out I had some scar tissue after a heart MRI following a sustained ventricular tachycardia cardiac arrest in 2021, I am on beta blocker
Sustainedvtach270
in
Atrial Fibrillation Support
2 years ago
Athira announces clinical trials for Alzheimer’s, Parkinson’s, ALS treatments in 2023
https://www.healio.com/news/neurology/20230207/athira-announces-clinical-trials-for-alzheimers-parkinsons-als-treatments-in-2023
https://www.healio.com/news/neurology/20230207/athira-announces-clinical-trials-for-alzheimers-parkinsons-als-treatments-in-2023
Farooqji
in
Cure Parkinson's
1 year ago
📚 Research 101: Understanding the phases of a clinical trial
Clinical trials are conducted in phases. The trials at each phase have a different purpose and help scientists answer different questions: In the pre-clinical phase, researchers determine in a treatment or drug is safe and useful within a lab environment. In Phase I trials, researchers test a new
Clinical trials are conducted in phases. The trials at each phase have a different purpose and help scientists answer different questions: In the pre-clinical phase, researchers determine in a treatment or drug is safe and useful within a lab environment. In Phase I trials, researchers test a new
AnnaHU
HealthUnlocked
in
Research Opportunities
1 year ago
Abilation
Hi allI had my AVR done in May this year, initially I had issues with heart rate jumping around 147. My medications were Bisoprolol 7.5 mg along with standard water tablets and blood thinners.Couple of months after the procedure I had to go A&E for this heart rate procedure but I was either given digoxin
Hi allI had my AVR done in May this year, initially I had issues with heart rate jumping around 147. My medications were Bisoprolol 7.5 mg along with standard water tablets and blood thinners.Couple of months after the procedure I had to go A&E for this heart rate procedure but I was either given digoxin
Devaprinters
in
Arrhythmia Alliance
2 years ago
Besremi dosing research
It shows Besremi works better in 250-350-500 mcg in a month. [The response outcomes observed in multiple clinical trials of ropeginterferon alfa-2b confirm clinical benefits in MPN patients. Emerging data utilizing the 250-350-500 mcg regimen suggest that a higher initial dose with faster dose titration
It shows Besremi works better in 250-350-500 mcg in a month. [The response outcomes observed in multiple clinical trials of ropeginterferon alfa-2b confirm clinical benefits in MPN patients. Emerging data utilizing the 250-350-500 mcg regimen suggest that a higher initial dose with faster dose titration
Wennn
in
MPN Voice
1 year ago
LLS.ORG (USA) WHAT ARE YOUR TOP PRIORITIES FOR 2023?
Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to working tirelessly to advance policies that serve the needs of blood cancer patients and their families. In 2023 we will continue to work closely
Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to working tirelessly to advance policies that serve the needs of blood cancer patients and their families. In 2023 we will continue to work closely
lankisterguy
Volunteer
in
CLL Support
1 year ago
PharmaTher Submits FDA Meeting Package to Discuss Phase 3 Program and Fast Track Designation for KETARX™ (Ketamine) in PD
https://www.benzinga.com/pressreleases/23/02/g30671310/pharmather-holdings-submits-fda-meeting-package-to-discuss-phase-3-program-and-fast-track-designat?utm_source=dlvr.it&utm_medium=twitter TORONTO, Feb. 01, 2023 (GLOBE NEWSWIRE) -- PharmaTher Holdings Ltd. (the "Company" or "PharmaTher") PHRRF
https://www.benzinga.com/pressreleases/23/02/g30671310/pharmather-holdings-submits-fda-meeting-package-to-discuss-phase-3-program-and-fast-track-designat?utm_source=dlvr.it&utm_medium=twitter TORONTO, Feb. 01, 2023 (GLOBE NEWSWIRE) -- PharmaTher Holdings Ltd. (the "Company" or "PharmaTher") PHRRF
Hidden
in
Cure Parkinson's
1 year ago
Ablation done - feeling fine (relatively)
(63 year old - history of congenital heart disease - coarctation of aorta correction in 1969 - stroke 3 years ago - diagnosed
atrial
(probably)
flutter
2 years ago - had 120+ heart rate continously for last 4 months) Had catheter ablation at Birmingham 2 days ago under Mr Marshall.
(63 year old - history of congenital heart disease - coarctation of aorta correction in 1969 - stroke 3 years ago - diagnosed
atrial
(probably)
flutter
2 years ago - had 120+ heart rate continously for last 4 months) Had catheter ablation at Birmingham 2 days ago under Mr Marshall.
mrhappydays
in
AF Association
2 years ago
atrial fibrillation and atrial flutter and hot weather
I presume this was
atrial
flutter
? I am aware of the medical interventions for Afib but does anyone know of any other proper research on natural interventions that folk have found helpful?
I presume this was
atrial
flutter
? I am aware of the medical interventions for Afib but does anyone know of any other proper research on natural interventions that folk have found helpful?
Robfromwales
in
British Heart Foundation
2 years ago
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