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Atrial flutter
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Heavy arms and legs…
First time posting. Hello everyone. I was diagnosed with AF in October. It is present all the time - heart rate in 80’s and 90’s. I was aware my heart was racing & I felt tired & uncomfortable. I was immediately put on Apixaban & Bisoprolol. Having started medication my arms & legs became very heavy
First time posting. Hello everyone. I was diagnosed with AF in October. It is present all the time - heart rate in 80’s and 90’s. I was aware my heart was racing & I felt tired & uncomfortable. I was immediately put on Apixaban & Bisoprolol. Having started medication my arms & legs became very heavy
Heartening
in
Atrial Fibrillation Support
2 years ago
Palpitations versus Atrial Fibrillation ?
Over the years, I have had a number of Palpitations, which sometimes they keep me awake, and constant every few seconds. I recently bought myself a Kardia 6 lead ECG Monitor, so I could keep a watch on my heart rhythms, and if this would show up any problems needing looked at Over a few days, there
Over the years, I have had a number of Palpitations, which sometimes they keep me awake, and constant every few seconds. I recently bought myself a Kardia 6 lead ECG Monitor, so I could keep a watch on my heart rhythms, and if this would show up any problems needing looked at Over a few days, there
Fitbit-Joe
in
AF Association
2 years ago
huCART 19 -IL18 CLINICAL TRIAL
Hi, I just came across this video of Dr Svoboda from Penn Medicine discussing this new approch to CAR-T . This was from ASH 2022. Penn developed this off the shelf therapy in their labs and are the sponsor of the trial. I would welcome any thoughts or more info from our very knowledgeable members. I
Hi, I just came across this video of Dr Svoboda from Penn Medicine discussing this new approch to CAR-T . This was from ASH 2022. Penn developed this off the shelf therapy in their labs and are the sponsor of the trial. I would welcome any thoughts or more info from our very knowledgeable members. I
steve5441
in
CLL Support
1 year ago
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Cardioversion
I was diagnosed with afib in December last year in A/E since then had ecg ,and ecocardiogram, waiting to see a cardiologist. Got results from G.P saying leaky valves.But today got a surprise phone call from cardiology department saying a cardiologist had referred me for cardioversion in April .Does anyone
I was diagnosed with afib in December last year in A/E since then had ecg ,and ecocardiogram, waiting to see a cardiologist. Got results from G.P saying leaky valves.But today got a surprise phone call from cardiology department saying a cardiologist had referred me for cardioversion in April .Does anyone
TheGrinch2
in
AF Association
2 years ago
Swelling soft tissue alongside joint pain and inflammation - Acalabrutinib & Venetoclax Clinical Trial
Is or Has Anyone experienced extreme swelling of soft tissue normally in one area but sometimes two that lasts for approximately 5-7 days before moving to another area normally on peripheral parts?? In March 2020, commenced clinical drug trial ACE-CL-311 Amplify with 14 Cycles of Acalabrutinib and Venetoclax
Is or Has Anyone experienced extreme swelling of soft tissue normally in one area but sometimes two that lasts for approximately 5-7 days before moving to another area normally on peripheral parts?? In March 2020, commenced clinical drug trial ACE-CL-311 Amplify with 14 Cycles of Acalabrutinib and Venetoclax
bloodcancer
in
CLL Support
1 year ago
Mini-Maze Discussion
For all who are interested in the keyhole mini-maze (thoracoscopic) technique, Dr Wolf and Dr Ohtsuka are hosting a live Zoom discussion. For the record, I was a UK resident until I relocated to Greece. For the last five years, I suffered with AFib which became progressively worse and in the last
For all who are interested in the keyhole mini-maze (thoracoscopic) technique, Dr Wolf and Dr Ohtsuka are hosting a live Zoom discussion. For the record, I was a UK resident until I relocated to Greece. For the last five years, I suffered with AFib which became progressively worse and in the last
saulger
in
AF Association
2 years ago
The human microbiome links to prostate cancer risk and treatment (Review)
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
pca2004
in
Fight Prostate Cancer
1 year ago
post cardioversion
my wife had cardioversion last Wednesday and we were told it was a success but her heart rate is low and she is tired all the time and we have to use the wheelchair if we go anywhere and chair lift to go upstairs as she is very wobbly on her feet and her blood pressure is very low is this normal also
my wife had cardioversion last Wednesday and we were told it was a success but her heart rate is low and she is tired all the time and we have to use the wheelchair if we go anywhere and chair lift to go upstairs as she is very wobbly on her feet and her blood pressure is very low is this normal also
stuartw
in
AF Association
2 years ago
Tumor Lysis Syndrome: What ( CLL ) Patients Need to Know (Leukemia and Lymphoma Society podcast)
Many of us are aware of the risk of tumor lysis syndrome (TLS) when we commence treatment, particularly with venetoclax and that the purpose of the venetoclax ramp-up, is to reduce the risk of TLS occurring. TLS can also occur with other CLL treatments, especially when they are fast acting, rapidly killing
Many of us are aware of the risk of tumor lysis syndrome (TLS) when we commence treatment, particularly with venetoclax and that the purpose of the venetoclax ramp-up, is to reduce the risk of TLS occurring. TLS can also occur with other CLL treatments, especially when they are fast acting, rapidly killing
AussieNeil
Partner
in
CLL Support
1 year ago
Starting on Flecainide
My history is that I was first diagnosed with AF in A & E in the early hours of the morning in November 2021 after a very hot curry and half a bottle of wine. I was prescribed anti coagulants and beta blockers. I had a brief reoccurrence in March 2022 but I went back into NSR as soon as they called
My history is that I was first diagnosed with AF in A & E in the early hours of the morning in November 2021 after a very hot curry and half a bottle of wine. I was prescribed anti coagulants and beta blockers. I had a brief reoccurrence in March 2022 but I went back into NSR as soon as they called
Sandych55
in
Atrial Fibrillation Support
2 years ago
Gasping for breath whe lying in bed.
I had a double ablation 3 weeks ago for
Atrial
Fib and
Atrial
Flutter
ie both
atrial
chambers. Since then I have regularly had episodes of AF with HR of up to 160bpm for periods of up to 12h. Recently this has beeN happenibg when I go to bed and I wake up breathless.
I had a double ablation 3 weeks ago for
Atrial
Fib and
Atrial
Flutter
ie both
atrial
chambers. Since then I have regularly had episodes of AF with HR of up to 160bpm for periods of up to 12h. Recently this has beeN happenibg when I go to bed and I wake up breathless.
Huwhuw
in
British Heart Foundation
2 years ago
Palpitations and flare up of PMR symptoms
Hello everyone, I suppose I just want to share what's happening with people who understand! I have been doing a very very slow taper for quite some time and managed to get to my lowest dose yet of 7.5mg pred earlier this month. However, over the last few weeks, I have had a succession of family things
Hello everyone, I suppose I just want to share what's happening with people who understand! I have been doing a very very slow taper for quite some time and managed to get to my lowest dose yet of 7.5mg pred earlier this month. However, over the last few weeks, I have had a succession of family things
Sufferinginsilence
in
PMRGCAuk
2 years ago
I just began the Eclipse Clinical Trial and will be posting my experiences here. Please share yours too.
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
SViking
in
Advanced Prostate Cancer
1 year ago
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone
[i]
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone, MedPage Today, by John Gever, Contributing Writer, May 4, 2023
[/i] While not specific to PCa, this contribution to the understanding of the complex nature
[i]
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone, MedPage Today, by John Gever, Contributing Writer, May 4, 2023
[/i] While not specific to PCa, this contribution to the understanding of the complex nature
cujoe
in
Fight Prostate Cancer
1 year ago
Final STAMPEDE results for Abi with/out Enza when starting ADT.
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
pca2004
in
Fight Prostate Cancer
1 year ago
Phase II 2020-0200 Clinical Trial
Hello everyone, I was diagnosed in May 2021 at 50 years old. PSA 426/Gleason 8. Had been on Abiraterone Acetate (AA) along with Lupron and Prednisone. My PSA dropped to 0.1 until recently I became castrate resistant. I was advised by my team at MD Anderson that my cancer was a strong variant type.
Hello everyone, I was diagnosed in May 2021 at 50 years old. PSA 426/Gleason 8. Had been on Abiraterone Acetate (AA) along with Lupron and Prednisone. My PSA dropped to 0.1 until recently I became castrate resistant. I was advised by my team at MD Anderson that my cancer was a strong variant type.
Z06505hp
in
Advanced Prostate Cancer
1 year ago
set pattern to PAF
I have had PAF for about 9 years. Symptoms tolerable but the attacks last about 12 hours. No diagnosed cause and cannot take medication owing to low heart rate just on apaxiban. Heart deemed to be too healthy to have an ablation & run even the low risk. I get an attack every 3 weeks, used to be less
I have had PAF for about 9 years. Symptoms tolerable but the attacks last about 12 hours. No diagnosed cause and cannot take medication owing to low heart rate just on apaxiban. Heart deemed to be too healthy to have an ablation & run even the low risk. I get an attack every 3 weeks, used to be less
Janey1955
in
Atrial Fibrillation Support
2 years ago
Worrying
I feel my Prox. AF has changed over the last 6 months. It now last most of the day being in and out of AF and the periods when I’m not in it I have a resting heart rate of around 100. Just as I go back into Sinus rhythm I feel really ill as though I’m going to black out and start to lose my focus for
I feel my Prox. AF has changed over the last 6 months. It now last most of the day being in and out of AF and the periods when I’m not in it I have a resting heart rate of around 100. Just as I go back into Sinus rhythm I feel really ill as though I’m going to black out and start to lose my focus for
Ginnik
in
Atrial Fibrillation Support
2 years ago
end of he line
Since diagnosis in 2018, I have pretty much run the gamut of affordable SOC treatments and I finally got my Onco to agree that the treatments were doing more harm than good (based on side effects and endlessly climbing PSA). I have continual gut pain. Is this type of pain what we hear about as
Since diagnosis in 2018, I have pretty much run the gamut of affordable SOC treatments and I finally got my Onco to agree that the treatments were doing more harm than good (based on side effects and endlessly climbing PSA). I have continual gut pain. Is this type of pain what we hear about as
Frigataflyer
in
Advanced Prostate Cancer
2 years ago
PHASE 2 SATIVEX CLINICAL TRIAL (ARISTOCRAT)
Excellent news! The Brain Tumour Charity has announced that the Aristocrat Phase 2 clinical trial of SATIVEX is now going ahead. Please see the link below for further details. https://www.thebraintumourcharity.org/media-centre/news/research-news/aristocrat-a-pioneering-trial-using-a-cannabinoid-based-drug-to-treat-brain-tumours
Excellent news! The Brain Tumour Charity has announced that the Aristocrat Phase 2 clinical trial of SATIVEX is now going ahead. Please see the link below for further details. https://www.thebraintumourcharity.org/media-centre/news/research-news/aristocrat-a-pioneering-trial-using-a-cannabinoid-based-drug-to-treat-brain-tumours
Tansi75
in
Glioblastoma Support
1 year ago
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