Search
Search
About
Log in
Join
Experiences with
Atrial flutter
Posts
Communities
10,921 public posts
Filter results
VIKTORIA-1 CLINICAL TRIAL
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
CTGirl1962
in
SHARE Metastatic Breast Cancer
1 year ago
Severe bruising
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
spanish36
in
CLL Support
1 year ago
Shingrix may be available on Australia's National Immunisation Program for those with CLL from 1 November 2023
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
CLLerinOz
Administrator
in
CLL Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Afib and bradicardia
Thanks for much for everyone's help on the low heart rate. Yesterday I was Rushed to hospital by ambulance because my heart rate was so low I'm still in hospital now on a ECG machine and it keeps going really low and it's super high and all the alarms going up.
Thanks for much for everyone's help on the low heart rate. Yesterday I was Rushed to hospital by ambulance because my heart rate was so low I'm still in hospital now on a ECG machine and it keeps going really low and it's super high and all the alarms going up.
Corrie12
in
AF Association
1 year ago
Cost of PSMA scan in US
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
TJGuy
in
Advanced Prostate Cancer
1 year ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
Afib and Bradycardia
Thank you all for you help on my last post I've had my medication dropped to 3.75 I'm having the ecg fitted Saturday for 3 to 4 days and seeing cardiologist on the 17th
Thank you all for you help on my last post I've had my medication dropped to 3.75 I'm having the ecg fitted Saturday for 3 to 4 days and seeing cardiologist on the 17th
Corrie12
in
AF Association
1 year ago
Travel Insurance
I am taking a 4-day trip to New York in December for my 60th birthday I have had Hypertrophic Cardiomyopathy which has been successfully treated for 4 years, but I am now having tests for typical
atrial
flutter
. I am looking to get travel insurance, is this possible and at what cost?
I am taking a 4-day trip to New York in December for my 60th birthday I have had Hypertrophic Cardiomyopathy which has been successfully treated for 4 years, but I am now having tests for typical
atrial
flutter
. I am looking to get travel insurance, is this possible and at what cost?
canarysmith
in
British Heart Foundation
2 years ago
Gasping for breath whe lying in bed.
I had a double ablation 3 weeks ago for
Atrial
Fib and
Atrial
Flutter
ie both
atrial
chambers. Since then I have regularly had episodes of AF with HR of up to 160bpm for periods of up to 12h. Recently this has beeN happenibg when I go to bed and I wake up breathless.
I had a double ablation 3 weeks ago for
Atrial
Fib and
Atrial
Flutter
ie both
atrial
chambers. Since then I have regularly had episodes of AF with HR of up to 160bpm for periods of up to 12h. Recently this has beeN happenibg when I go to bed and I wake up breathless.
Huwhuw
in
British Heart Foundation
2 years ago
Afib and bradcardia
I was diagnosed with afib just over a month ago but I'm still having a lot of issues I'm having a portable ECG fitted on Saturday then two weeks later I'm seeing the cardiologist team I'm having problems not only with my heart rate going super high, andcontinuously all throughout the day going down
I was diagnosed with afib just over a month ago but I'm still having a lot of issues I'm having a portable ECG fitted on Saturday then two weeks later I'm seeing the cardiologist team I'm having problems not only with my heart rate going super high, andcontinuously all throughout the day going down
Corrie12
in
AF Association
1 year ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
1 year ago
Change of medication
Had AF for years well controlled on Flecainide New arrhythmic developed so Must stop Flec & start Digoxin. Has anyone experience of this please. I take Bisoprolol which has been increased to 5mg am & pm. Am apprehensive as have been stable for a long time. Would appreciate help. Thanks ☺️
Had AF for years well controlled on Flecainide New arrhythmic developed so Must stop Flec & start Digoxin. Has anyone experience of this please. I take Bisoprolol which has been increased to 5mg am & pm. Am apprehensive as have been stable for a long time. Would appreciate help. Thanks ☺️
Koladog
in
Atrial Fibrillation Support
1 year ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
INTERCEPT IS ENDING CLINICAL TRIAL
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
NYLassie
in
Living with Fatty Liver and NASH
1 year ago
eye stroke or retinal artery occlusion ; any experiences
3 am, I go blind in my right eye for and hour. Next day see eye dr, he calls cardio,2nd day see primary dr,3rd day see cardio- mri, ct scan, echo, tee scan. results leaking Watchman, Patent Foramen Ovale (PFO) from ablations; end results back on Xarelto( " put the watchman in and never take blood thinners
3 am, I go blind in my right eye for and hour. Next day see eye dr, he calls cardio,2nd day see primary dr,3rd day see cardio- mri, ct scan, echo, tee scan. results leaking Watchman, Patent Foramen Ovale (PFO) from ablations; end results back on Xarelto( " put the watchman in and never take blood thinners
champdoberman
in
AF Association
1 year ago
Sister likely has endometrial cancer
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
fell
in
SHARE Uterine Cancer Support
1 year ago
Atrial Fibrillation in Athletes
Athletes with Atrial Fibrillation, or who are worried about developing it, may be interested in this vid (just out) where two very fit cyclists visited Glenfield Hospital in Leicester (where the British Heart Foundation have a MRI Facility) and get tested. There is then a good discussion on Atrial Fibrillation
Athletes with Atrial Fibrillation, or who are worried about developing it, may be interested in this vid (just out) where two very fit cyclists visited Glenfield Hospital in Leicester (where the British Heart Foundation have a MRI Facility) and get tested. There is then a good discussion on Atrial Fibrillation
elmbury
in
AF Association
1 year ago
Oral NT-0796 for Parkinson’s shows promise in early clinical trials
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
Farooqji
in
Cure Parkinson's
1 year ago
1
...
69
70
71
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Atrial Fibrillation Support
4394 results
Advanced Prostate Cancer
1376 results
CLL Support
685 results
View top 10 communities
Sort by
Most Relevant
Newest