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Atrial flutter
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SBRT alternative
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
MauiJef
in
Prostate Cancer Network
11 months ago
BAT trial
With Xtandi failing and my metastasizes not PSMA avid enough for Lutetium my MO referred me to the Kinghorn Cancer Centre in Sydney to be assessed for a clinical trial involving BAT and Carboplatin (chemo). I am now in the trial and have had my first testosterone injections plus the carboplatin infusion
With Xtandi failing and my metastasizes not PSMA avid enough for Lutetium my MO referred me to the Kinghorn Cancer Centre in Sydney to be assessed for a clinical trial involving BAT and Carboplatin (chemo). I am now in the trial and have had my first testosterone injections plus the carboplatin infusion
Bjry
in
Advanced Prostate Cancer
11 months ago
Trial
Hi lovely ladies, I have been offered a clinical trial as I'm platinum resistant. Can I ask anybody who has done one the outcome and how you felt. Thanks in Advance X
Hi lovely ladies, I have been offered a clinical trial as I'm platinum resistant. Can I ask anybody who has done one the outcome and how you felt. Thanks in Advance X
Beoony
in
My Ovacome
11 months ago
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Atrial Flutter and AFib
Hello, Briefly I've had multiple Aortic/Mitral valve surgeries, with the second in 2013 I acquired Complete Heart Block, Permanent AF, Shunt, and my Pacemaker. I'm probably lucky that I've been reasonably stable over the years, other than every now and again having the PM settings altered. On Warfarin
Hello, Briefly I've had multiple Aortic/Mitral valve surgeries, with the second in 2013 I acquired Complete Heart Block, Permanent AF, Shunt, and my Pacemaker. I'm probably lucky that I've been reasonably stable over the years, other than every now and again having the PM settings altered. On Warfarin
Hidden
in
AF Association
2 years ago
palpitations
hi has anybody experienced palpitations all day and night I’ve had them for two weeks now I went to the walk in centre and they did a ecg ,bloods ,blood pressure ,everything was ok I’ve had palpitations in the past sporadic but not like this I was on 100mcg thyroxine the doctor has put me on 75mg and
hi has anybody experienced palpitations all day and night I’ve had them for two weeks now I went to the walk in centre and they did a ecg ,bloods ,blood pressure ,everything was ok I’ve had palpitations in the past sporadic but not like this I was on 100mcg thyroxine the doctor has put me on 75mg and
jodiej79
in
Thyroid UK
1 year ago
A fight was lost today.
Hopingforthebest1, passed away, peacefully today. His wife was by his side and he succumbed to the cancer. I won’t go into details, but I can tell you what kind of person he was. My dear friend, fought gallantly. He tried so hard to beat this cancer. every test, procedure, clinical trial, etc, was
Hopingforthebest1, passed away, peacefully today. His wife was by his side and he succumbed to the cancer. I won’t go into details, but I can tell you what kind of person he was. My dear friend, fought gallantly. He tried so hard to beat this cancer. every test, procedure, clinical trial, etc, was
Trainer40
in
Advanced Prostate Cancer
11 months ago
WHEN YOUR CLINICAL TRIAL FAILS, WHAT DO YOU DO NEXT ?
Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC was always low. My Dr. thought it would be idea to do an 18 month " lets see where we are BMB", no problem. I hadn't had one in about 20 months
Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC was always low. My Dr. thought it would be idea to do an 18 month " lets see where we are BMB", no problem. I hadn't had one in about 20 months
steve5441
in
CLL Support
1 year ago
I can't sleep feel like my heart is going to stop
It's one of those nights again. I feel pressure in my chest. I thought I was going to be able to sleep today but I guess not. Its frustrating because I was already falling asleep but I was awaken by a sudden jerk. Now every time I am falling asleep I get woken up by the sudden jerk that makes me feel
It's one of those nights again. I feel pressure in my chest. I thought I was going to be able to sleep today but I guess not. Its frustrating because I was already falling asleep but I was awaken by a sudden jerk. Now every time I am falling asleep I get woken up by the sudden jerk that makes me feel
ImHere_Again
in
Anxiety Support
1 year ago
Anyone know any thing about clinical trial BMF-219 a covalent,mein inhibitor
I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at NIH and offered their clinical Nurix trial (degrader) . At vs with my local hematologist (Va Cancer Sp) she referred me to their research dept
I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at NIH and offered their clinical Nurix trial (degrader) . At vs with my local hematologist (Va Cancer Sp) she referred me to their research dept
Osprey69
in
CLL Support
1 year ago
Atrial fibrillation post ablation
Hi everyone! I have read the info sheet and noted that palpitations are normal for some time after an ablation. I had my second ablation 5 weeks ago for afib and flutter. Everything was quite quiet for 4 weeks and then bam a few minutes of afib. Now I have had a minute or so of afib everyday. My EPs
Hi everyone! I have read the info sheet and noted that palpitations are normal for some time after an ablation. I had my second ablation 5 weeks ago for afib and flutter. Everything was quite quiet for 4 weeks and then bam a few minutes of afib. Now I have had a minute or so of afib everyday. My EPs
MKMafib
in
AF Association
1 year ago
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD- replay, slides and transcript
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies
lankisterguy
Volunteer
in
CLL Support
1 year ago
LET'S TALK CLL- Patients & Doctors Discuss the Latest Live! SATURDAY, OCTOBER 14, 2023 Virtual program starts at 10am CDT 11am EDT
LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're
LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're
lankisterguy
Volunteer
in
CLL Support
1 year ago
Metoprolol
I had an ablation a few weeks ago, I'm doing ok, except for the fatigue, shortness of breath and cough. I am in sinus. I believe the above issues are related to Metoprolol I take 25mg x 2 daily, Flecainaide 50mg 2 daily and 5mg Eliquis 2 daily. I have my follow up appt next week with my EP. I'm really
I had an ablation a few weeks ago, I'm doing ok, except for the fatigue, shortness of breath and cough. I am in sinus. I believe the above issues are related to Metoprolol I take 25mg x 2 daily, Flecainaide 50mg 2 daily and 5mg Eliquis 2 daily. I have my follow up appt next week with my EP. I'm really
Tilos5
in
AF Association
1 year ago
Today we are celebrating a huge milestone, as the NHS marks 75 years of service 🎂
At Arrhythmia Alliance, our mission is to promote timely and effective diagnosis and treatment of arrhythmias (heart rhythm disorders); since 2004 when A-A was established we have worked collaboratively with the NHS to improve services for people living with an arrhythmia. More people are now diagnosed
At Arrhythmia Alliance, our mission is to promote timely and effective diagnosis and treatment of arrhythmias (heart rhythm disorders); since 2004 when A-A was established we have worked collaboratively with the NHS to improve services for people living with an arrhythmia. More people are now diagnosed
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
Atrial Fibrillation.
Hi I have had
atrial
flutter
followed by a
atrial
fibrillation for approx 4 years. Medication I have tried has not been helpful and I take only an anticoagulant every day.
Hi I have had
atrial
flutter
followed by a
atrial
fibrillation for approx 4 years. Medication I have tried has not been helpful and I take only an anticoagulant every day.
Hilianna
in
AF Association
2 years ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
You are invited to participate in an online survey on behalf of the AF Association.
Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients • The patient experience related to simultaneous screening of BP & AF Your participation
Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients • The patient experience related to simultaneous screening of BP & AF Your participation
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
You are invited to participate in an online survey on behalf of the AF Association.
Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients • The patient experience related to simultaneous screening of BP & AF Your participation
Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients • The patient experience related to simultaneous screening of BP & AF Your participation
Hidden
Partner
in
AF Association
1 year ago
clinical trial
hi all, I have been asked to take part in a trial for new medication with Pantharaclinic by my doctors. I was told this could stop my af permanently. I have a fast heart rate of around 200 to 240. I am going to take part in it, will let you know how it goes.
hi all, I have been asked to take part in a trial for new medication with Pantharaclinic by my doctors. I was told this could stop my af permanently. I have a fast heart rate of around 200 to 240. I am going to take part in it, will let you know how it goes.
Byke
in
Atrial Fibrillation Support
1 year ago
Heart rate in afib and when to go to ER or A&E
Sitting down watching tv and I felt in my chest I was trying to go into afib, so I grabbed my trusty oximeter and put it on and watched HR go down from 80s to 70s to 60s to 50s to 40s to a reading of 37 HR. Freaked me out so I got another oximeter different manufacturer and put it on and it read 37.
Sitting down watching tv and I felt in my chest I was trying to go into afib, so I grabbed my trusty oximeter and put it on and watched HR go down from 80s to 70s to 60s to 50s to 40s to a reading of 37 HR. Freaked me out so I got another oximeter different manufacturer and put it on and it read 37.
kocoach
in
Atrial Fibrillation Support
1 year ago
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