I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could barely walk down the hallway to the bathroom without crushing pain and nausea.
I just wanted to share my good day. I’m hoping today will be the same so far so good. I have a long road to go but right now I would say anyone having a pacemaker suggested to seriously consider it. If you have had a successful, cardioversion you know how good you can feel. Imagine that only better. It’s not a magic wand as I found out. Just like any other procedure, you are going to have some soreness and questions. I did and I asked questions and found out it’s normal to feel what I felt just like after ablation’s etc. I had been given misinformation that I would feel like I did waking from my cardioversion and that is not the case because they have been poking around inside of us.
All I can say from my point of view, is that a month ago I could not have imagined feeling this good already. The body has to continue to heal, and I need to build stamina etc. again it’s like going to the gym and stopping. You’re pretty much have to start all over again. For a year and a half I was unable to do anything and barely get down the hall.
I have so many supporters out here that answered questions and helped me through the pain. I’m glad I can share some thing. Good thank you everyone
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DawnTX
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Such a great, positive post! It’s so good to know that this is available when other things haven’t worked out. Once you’ve recovered from the pacemaker insertion and the ablation, there will be no stopping you!
I keep saying that I’m not firing on all cylinders, and need new spark plugs 😂
yes, it was almost as if overnight things got better. As far as overdoing, I can’t do that because I don’t have the stamina yet. As I mentioned, it reminds me of going to the gym. You can be faithful as you want to be, but if you were to get the flu or some thing and miss, going for a week or two, and then try to go back, it is a bit like starting all over again. Just in the past few days the pain in my legs has eased. That has been one of the hardest things for me not being able to walk. When you think about the lack of circulation, etc. that I have had for over a year and a half it really is not surprising but I had begun to wonder if it would get better. I guess I took mobility for granted. I loved to walk and did about 5 miles a day. I would skip taking the bus and walk instead. For over a year I have not been able to even grocery shop because of the pain in my arms and legs. Not only could I not walk, but the pain pushing a grocery cart was agonizing. Unless you have felt it, you would not understand. It will be fun to pick out my foods again instead of order delivery. 😊
It’s so hard to get back in shape after such a prolonged setback isn’t it. And especially with the pain you’re having. Progress can seem so incremental. One of the trainers for the workout program I subscribe to had a devastating cancer a few years ago. In a coma for 3 months, lost half his body weight, couldn’t talk, walk, etc. after he survived the treatments. He had been an Olympic level marathoner. Since his illness, he’s done several series of recovery workouts, essentially sharing his own slow recovery with the iFit members. One piece of advice he shared was how he got started on his recovery by simply picking 3 things and doing each of them for a minute. Like lifting a small weight or even just standing or walking a few feet. He said that at the start, it might have taken the whole minute to do just one repetition, but doing that every day he saw results. I found that advice so encouraging when I’ve been in rough shape. ❤️
Again I will use my favorite saying about how to eat an elephant and the answer is one bite at a time. Trying to rebuild your body and stamina is like eating an elephant it is overwhelmingly large to tackle. FYI, no I never ate an elephant I like vegetables lol.
For me, it is about walking again. To go where I did with the dog yesterday and do it easily without breathlessness made me almost want to cry. It felt so good to realize what I had done. I usually need a purpose to do something physical lol whether it is walking to a particular place or just doing anything I like to have an end result. Taking my dog out, gives me purpose and he makes me work a little bit because when I take his leash off, he knows he can do whatever he wants pretty much. That keeps me moving while he investigates everything lol. He likes to play with the cats out there again that keeps me moving to keep an eye on him. He likes to clean them but I have to make sure he’s not holding them while he does it because he weighs 80 pounds. I think he thinks he is a cat. I just added his picture to give a smile to anyone that needs one. He just had his 11th birthday.😊 My next goal with him is to play frisbee.
Diggy thinks he is a cat he has matching ducky PJs with mine lol
lol it is when he thinks he’s a Chihuahua and wants to lay on me or sit on my lap. He watches the cat and then wants to imitate because he is jealous. L O L I’ll give you a giggle. Yesterday I put one of his sweaters on because it’s cold and he really does not have a lot of fur. He loves dressing up by the way. So anyway, I put a sweater on and he helped get into it as usual later on it got pretty warm so I decided to take it off but evidently when I watched it, it shrunk I had to cut it off of him. Lol we live with my cousin and I suggested we cut back a little bit on the treats also but he is such a good boy. It’s hard to say no sometimes.
I only adopted him two years ago, and I am his first forever home and his last I can’t imagine life without him.
My dog looks innocent don’t let him fool you he had just chewed apart a grooming tool
Heartwarming to hear you adopted an older dog, Dawn when so many are passed by in favour of younger ones. Diggy looks a real character and I bet he’s a champion cat washer😺He’s found a lovely forever home with you. I can sympathise with him needing to be cut out of his jumper, I have a similar problems after a good Sunday lunch with Mum😂
Excellent news. It’s reassuring to know that there are times when you asked questions of yourself after a major step like this but then you believe in your future, stay optimistic and come through it stronger. Long may it continue for you.
L O L, coming from law enforcement I know how to ask questions and get answers. I do not hesitate because we only have one heart. Thank you for your kind words.
I know how you feel. Yesterday for the first time in over a year I walked a couple of miles and talked at the same time! 🤸🏻♂️ Today it was a little harder, but still managed it.
Pacemaker has been reprogrammed as I’m now in permanent AF and was told to exercise for two weeks whilst they check it!!
thank you so much Jalia. I have been very blessed with where I am for medical, and I want to share to make people aware that there is light at the end of the tunnel.
That's great news to hear Dawn. You've been through some tough times and deserve good days now. I hope and pray that all your days will see you bright and perky now.Jean x
that it such good news Dawn! I’ve been having a few bad days but I’m still better than I was. I think it’s going to be a long slow road. It’s nice to hear positives. Hope it continues well for you.
That is why I share not to brag, but to show there is light at the end of the tunnel. I had some horrible days last week and actually called the nurse. It is easier to have horrible days when you find out it’s normal PS I was told to stop taking my heart rate. Lol. Even the stress of doing that can make you feel worse and stress is a big cause of feeling bad even thinking about paying bills FYI.
So envious. I had an ablation 6 months ago and never got my energy levels back. Then had covid really badly in February which made things worse. I have gone from walking a couple of miles a day to struggling to climb the stairs. Good luck to you, hope you continue to recover.
Sending lots of good wishes your way, I’ve been feeling worse since my ablation too, and in constant A Fib. Though I have at last reached appointment week, so hopefully I will find out about next steps.
It’s so frustrating when you feel unable to exercise - just a decent walk really - as you don’t want to get in a downwards spiral. One day at a time, I guess. Hope you are soon feeling better.
0h I’m so glad you were getting to the doctor please let me know how you are doing and what they will do for you you sound almost exactly like I was after my surgery last April. I only continue to get worse that’s why I hope you can do some thing soon because I am an example of what happens. Without my tachycardia addressed, I was in heart failure by the time I got to my new doctor. The only thing that saved me was finding them both my cardiologist and EP and unknown to me. They were just releasing the pacemaker that I now have. Prior to this the other type would not have helped and I would’ve continued in heart failure. So please whatever you can do to get taken care of and not six months or 12 months down the road. Depending on what they find maybe you could even throw it out there about is a pacemaker for you. Not that you want one but what are your options. I would like everyone to know that so far and according to others on here, a pacemaker is not a bad thing, it is a life changer if anyone ever knew me two months ago, they would be shocked. I could say this because I was so against getting one. That is why I say how I feel is amazing and I want everyone to be able to get a quality of life as soon as they can , if a pacemaker is what is at the end of the road of a fib, why drag it out one of my doctors seems to think it is because to repeat many procedures, is a money maker both of them and the hospitals. We already know about big Pharma. It’s easy to see why they want us to stay on meds. Now, all of this being said not every procedure is for every person there is no one size fits all. Prior to this pacemaker being released I would have had nothing more to go to and would continue in heart failure. They are working on new things every day, that is the light at the end of our tunnel and normally we would not know if it was something like I have now so we need a knowledgeable doctors to keep up with everything. I watched an interview with my doctor and it was stated how it is ongoing education especially for an EP because otherwise they will not be able to treat us with the newest of things and procedures. If you look at the profile of your EP you may be surprised to see some type of computer/technical training and certifications, etc. but then think about what they are doing for us.
I know. Once they get me situated, I will actually only see my EP once a year most likely. Right now, because of the type of pacemaker I have and other things I was told that my EP will remain hands on along with my cardiologist. My cardiologist will handle my medication‘s and anything else needed. They work very close as a team although my EP is at a different location. He does come to my location once a month and it’s only an hour away if I need to go to him. The hospital he works out of his the latest equipment for heart surgery. I have found my EP on YouTube, and other places. I never fail to be impressed when I listen to him. He talks to you not at you in terms that we can all understand.
I am quite a distance from Austin and over three hours from Houston. I would not trade my EP for anyone. No need for ablation as far as I know after my pacemaker.
if you never saw one of my posts or I should say novel lol you would know it’s been a year and a half of sheer hell. I have been unable to walk even across the kitchen floor. It was more like a snail, one step at a time with crushing pain and breathlessness and lack of mobility in my legs. Who knew a fib could do that? I have had for ablations now the last was my AV node so that was the best one. The one in April was the worst and sent me spiraling downward. I have had pretty much every med out there and rejected by my body. I also had to cardioversions one lasted 3 1/2 weeks the other consisted of three shocks and failed. Until the end of last year the pacemaker I needed did not exist and I would’ve ended up going further in heart failure. I had just started it. My first two ablation lasted six months and the second a year and a half and I felt good right away but then I found out how awful a fib could be. I really think there should be more education out there on it because it affects so many people and I know I knew nothing about it when I first was diagnosed. Never would I have guessed how ugly it could be and how it changes our lives actually takes our lives away from us. My main reason for letting people know what’s going on is because I was blessed with somewhat of a miracle having the pacemaker I have just become available the end of last year not everyone knows about it not everyone can use it , but who knows what else is out there? My doctor does not like to do things over and over again. He considers if they didn’t work then why do it again. When my cardioversion failed, he was beside me and told me and then said, don’t worry, we’ve got this. He was already working on making me better and had a plan I was very anti-peacemaker less than two months ago. Some people are very blessed and right away. Some thing works for them for years, but we all need to remember that there is no cure and our goal is to live. Normally I think like we used to. My doctor believes quality of life. It’s everything no matter what your age 😊. I did not know if I would ever have that again and just before the holidays when my cardioversion failed Christmas week, I was really giving up on being hopeful of anything. If I can save one person from feeling that way, I will be happy.
funny thing is I had a big fancy doctor in Houston that let me down and got this one without realizing what a gem I had at first. Our mail lady told me about my Cardiologist, so I tried him because he was close to home. The other one was three hours plus away from me. I did not like the hospital here now I have found how wonderful they are, and all it takes are a few sour apples to confuse people. They have become like family to me. I have been there so much the past few months. Anyway, I had another doctor picked out, but my cardiologist asked me to meet with this one. Long story short, he gave me answers before I gave him questions , I was hooked. Since then, I have discovered at the hospital and waiting rooms for both doctors that everyone has my doctor on a pedestal. Evidently not just as a doctor, but as a human being, he is known to be a wonderful person. Someone up above was watching over me for sure. Here I am with a pacemaker that didn’t exist six months ago, and a doctor, with a passion for making us all have quality of life and being happy. If I never believed in miracles before I do now.
I'm in the UK where, unless you're very rich, you have to rely on the NHS. It has been under funded for years and is now on its knees. Long wait to see doctor then even longer wait for treatment. I had ablation in October, then a telephone follow-up in January, then signed off as in SR.
I am so sorry that you have that type of health care. There are some here that want that type and just don’t understand the difficulty they would encounter because we are very spoiled here. I do hope you find a way to get the best care possible please take care of yourself and be good to yourself. If I had not moved, I would have continued with my doctors there because again I was very lucky and my first choice was a great one. When I moved, I unfortunately got a doctor with fame but I think his biggest problem is he came from research and should go back there because he should not deal with people but stay inside a laboratory instead. It is because of him, I ended up with heart failure because I depended on a doctor that I should not have. Evidently he never read the oath that they take about do no harm. He left me floundering and because of the condition I was in I didn’t have the fight in me so it took much longer for me to get another doctor, but it was my fault. Physically, and mentally I was just too beat up at that point, but something gave me the strength for one last push and that is how I found, the doctor I have now. We shouldn’t have to do that we count on them but for the first time I have found a doctor that doesn’t have the ethics that a doctor should have and I’m sure there are more like him out there. You could Google him and read wonderful things and other doctors think he’s amazing. I think he is like the man behind the curtain in the Wizard of Oz. He’s not what he appears to be and it is sad.
my doctor is just like that Dawn, I couldn’t believe my luck. I completely trust him. So very human and celebrated by everyone as a doctor and a person.
Yes, very much so because mentally I wasn’t sure how to think anymore about my life. Part of that also is the lack of oxygenated blood circulating. It’s not just blood clots. It’s everything when your blood does not circulate right. The heart chooses where to send what is available. I am now getting mobile along with other things we take for granted. I laugh when I say I have pink toes again, but we don’t realize what our circulation accomplishes when it is right. Please take care of yourself and make sure you get the treatment you deserve. The only thing I have a problem with right now with the way that I feel is that I want everyone to feel this way. It would be like winning the lottery, and being able to share with everyone
Oh bless you! What a lovely thought - to be able to fix everyone. You’re sounding so positive it’s a joy to hear! 😀
And yes, AFIB is exhausting mentally and physically. Blood is the source of life! I’m just beginning to realise my knees ache and go mauve coloured when it’s bad. 🫤
I’ll see what the cardiologist has to say today. 🤞
Hi Dawn. Just spoken to the cardiologist and he’s recommended a pace and ablate. Says with the surprisingly great condition my heart is in, plus the fact we’ve run out of options with medications (I had double vision Saturday night when I took extra Flecainide, so even that one’s out now), that’s it’s really my only option now.
Dawn, it’s funny how the universe works! If I hadn’t literally just been chatting to you about your new pacemaker and your extremely positive experience, I would probably have panicked and flapped about having one fitted. 😀
He said it’s about the size of a couple of coins (£1 here in the U.K.) stacked one on top of the other, and he “can hide it well”. He said it won’t completely stop the AFib, but will prevent the heart racing away too high. The way I’m feeling lightheaded and breathless today (still in AFib), I can only imagine that’ll be a huge improvement.
And he’ll do it in around 5-6 weeks time.
Thank you for appearing in my life at exactly the right time I needed you! xx
Pleased you're feeling the benefits of the pacemaker. I didn't feel much better at all with just the pacemaker but once I'd had the AV node ablation, it was all systems go.!
when mine was fitted initially it was actually not set up yet until the rest of the procedure with the AV node. My EP actually told me I would not feel better if anything I would probably feel a little bit worse because of the insertion of the pacemaker. I am just starting to feel somewhat comfortable with it in there. I know how small it is but it felt like it weighed a ton. Last week was terrible and a bit scary. I think the pain in the middle chest is gone now I was concerned I had pericarditis again and they have it set up to do an echo if I want one. The past two days I am not really feeling it, so will wait. I also had gotten some very high HR and I had misunderstood and thought being said to 80 meant anything over that was something wrong. I was educated on that as well. My other cousin, who does yoga told me she’s amazed at how her heart rate climbs when she does it. I came to realize activity equals higher your heart rate for a reason and that our pacemaker adapts. Once you know what’s going on, it’s not as scary. My doctors assistant/nurse is as incredible as he is. Before she called me back, she had spoken with the tech and my cardiologist. My EP is out of the country at the moment he works very closely with my cardiologist. If I wanted the echo, it was going to be to set up by him. The tech checked my pacemaker on his end to ensure that everything was good. I have a dream team for sure.😊 I will go back on 5 April, and my pacemaker will be lowered to 70. Once my body adapts and they know it’s OK. The goal is to get to 60. As you know going from a high heart rate can make you dizzy etc. when it is lowered. I did find it only took a few days to adapt.
The tech had made a comment when we talked at the hospital with my doctor. I had mentioned how good I had felt at 82 when I had the cardioversion that had lasted 3 1/2 weeks. I mentioned how it was instantaneous when I woke up. The text said from what he understood that’s how this was going to be. Well I took that to heart so when I did not feel that way on the 27th etc. I thought something had gone wrong. Speaking with my nurse she told me sometimes people get lucky but that is not the case usually As she was assuring me what I am dealing with is normal I spoke up and told her what the tech had said in the hospital. She jumped right on it saying no no no he should not tell anyone that. I have a feeling he probably won’t in the future. They don’t realize how much we are clutching onto this, hoping to become normal again like we used to be.
Lol I have used your name on here a few times. I hope you don’t mind, but you are the only one I know that has what I have, and knows the miracle of it especially with the timing of it becoming available.
thank you for being here. I really appreciate you.
I didnt like how it made me feel when they lowered it from 80 to 60 and went back to the pacing clinic and they set it at 70, which is how I've kept it and it feels just fine there.
mine was set at 80 then they tried to put it down to 60 but I was really dizzy so they put it to 70, it took a bit of getting used to. I’ll be going back to try it at 60 again in a couple of weeks. I think you’re right about us clutching at straws, you just want to get back to as near as you can.
I like to share, because I want everyone to know that there are things out there we may not be aware of or even the doctors may not know about if they don’t keep up like they should. Every day they are working on new things to give us quality of life if they can’t cure afib. At the end of the day that is what we want out of procedures, medication’s and more it’s just to be able to live like we once could.
I wish I could take credit, but there is one person that guides my EP and has given me a chance at life again. Thank you I want everyone aware of things that are out there now available that weren’t a few months ago and that they are working on things every day for all of us.
I'm so pleased that you are feeling better. You made my day - we've had two Staffies that looked just like your Diggy! Just seeing the photo's made my heart bounce
thank you for telling me about your dogs 😊 I have looked through the different breeds and thought that he may be an American Staffie. Do yours have shorter legs in the back? My poor boy has trouble now getting on the bed because of his little legs in the back while the rest of him is broad and strong. He just turned 11 recently. I am his first forever home, and I love him so much. I never had a dog before, but he came into my life while I was helping someone and we fell in love. ❤️ We have only been together two years the end of this month I don’t know what I did without him before
My dog Zachary has the same trouble as yours. He is now about 11 (rescue dog so not sure of exact age) and had been having trouble getting up onto our bed which is quite a high bed. I purchased a pair of doggy steps (from Amazon) to help him. It took a month to try toget him to use them (enticing him with doggy treats) so we gave up in the end. Two days later he was using them and uses them all the time. But he never uses them if we are watching him Pride I guess!!!!
lol I have been looking at the steps, but I’m not sure because of the size of him that he could manage it. I actually have a raised bed on the front porch. It reminds me of a trampoline only rectangle. I am going to see if it gives him enough of a lift to get him on the bed. I also have a new bedframe to put together that is lower and that may also help. He breaks my heart when he cries because all he wants is to be on the bed with me. As soon as he is up with me he falls asleep. ❤️ they ask for so little. He sounds like Diggy. It may not be pride. It might be. He doesn’t want you seeing him. Do what you asked him to do just like a kid lol. Diggy has developed a stubborn streak. Right now I’m trying to get him to stop using the cat as a lollipop. The cat loves him and keeps going back.😱 I have a ramp but unfortunately, it really is too steep I don’t know who designed it he can no longer get into the back of the car. I have an SUV, which is why I bought the ramp thankfully at least for now he can get in the side. He loves riding and looks out the back window. Lol I often wonder what it looks like from the car behind with his big grin on his face.
Sorry, I know this is off topic, but no, ours did not have shorter hind legs. But they were also black with the white patches on the chest. They are the most loveable family dogs.😍
Yes, I should have written you in chat. It’s obvious we love them. Diggy actually has the shape of a heart on his chest if you look at it closely. My poor guy looks like he got bulldog legs in the back may be a little bit longer than that. He can run and do things, but jumping up is an issue. Normally I would boost his butt. However, I made the mistake of doing that the night I got home from the hospital not smart he weighs about 80 pounds now. I am guessing my doctor would not have been happy. Everyone should have a pet they don’t realize how good they are for us.❤️ Thank you again
SO please this has helped you Dawn - as you know I am a very keen advocate for PM as it has helped me so much. Just one caution - you will still have up and downs so slow and steady still. You should continue to improve for up to 6 months but your body is not used to this much energy and you may feel that after one good day, you need to rest a bit the following few days but it will gradually increase stamina. Go well my lovely lady.
You hit the nail on the head. Yes the healing of the procedure is about 6 to 8 weeks. However, the overall I have been told could be six months. And you are absolutely right one step forward two steps back if I overdo. Last week was a horrible week it was only a few days ago That I started having my amazing days and I will be honest with you today I slept almost around the clock not even trying. The house was quiet. My room was dark and my dog was sleeping quietly beside me. I didn’t know I could sleep that much, but it was good. Sleep for a change.
The things I was feeling I have been told are normal once you know what those are it’s not scary thankfully. They will be readjusting my PM on the fifth right now it is set at 80. It will be lowered to 70 to see how I do. After being in the 150s as you know, it is a shock to your system. I am just starting to get my circulation back and I left because I have pink toes again lol the things we take for granted. I am not in a race and I am letting my body guide me. Yes, you were one of my biggest supporters at the beginning of this when I was not thrilled about the idea of one. Now I almost wish everyone would just get one, so they could feel like we do right away and not waste time on everything else. I know that’s not really the way it needs to go, but I just want other people to get quality of life again. It stresses me to think that so much time was wasted to get to feeling this good I also realize PMs are not one size fit all because I don’t know if I told you, but mine is special and different. I only know one person on here so far that has it and got it two months before me because it just became available the end of last year. Prior to this a regular pacemaker would not have helped me and I would continue to heart failure. This is one of the other reasons I like to share so that others not only know about this but know that there a new things every day they are working on. Thank you so much for writing.
It’s so lovely to read such a positive post and so good to read how well you’re doing and more importantly how well you’re feeling. So many of us share the bad times in this journey and have off days but to read such good news is very uplifting. It shows there is always light at the end of a tunnel.
good news and please take it easy. Why you did not ask for cardiac rehabilitation since you are in the states . It is covered by Medicare and they will teach you and monitor you after heart failure at the same time how to resume your physical activities. It is extremely helpful in your case.
I I am monitored 24 seven by the hospital clinic and I have a 24 hour hotline if I need it. I do not feel I need someone else to tell me how much I should and should not do. It is a slow recovery. I have been told up to six months. That is not the healing inside, that is trying to regain my stamina, etc.. My circulation is just beginning to return to somewhat normal. Thank you for your suggestion I have a Medicare advantage plan. Yes everything is included other than possible co-pays. I will be honest I’m not out to be a triathletes or anything else I will be grateful to be able to walk and do my groceries and enjoy life . My days at the gym are over. As soon as we get our pool, I will be swimming again because I love to swim and it’s good to do it. I also exercise in the pool. The summer here can easily hit in the hundreds. 106 is not an unusual temperature here and southeast Texas, so it can be somewhat limited doing anything else. I don’t like to walk to just walk. I need a purpose and goal to get to. I have an 80 pound dog to play with and walk that should keep me busy and we have an acre of land to do it on. Thanks again.
According to my doctor, by the end of about six months, I should not be limited anymore than anyone else with a heart. That being said, of course, he does not expect me to try to run a marathon, although they may be people out there with a PM that have done so. Thank you for your kind words
I’m really pleased to hear that you’re feeling so well. Sounds like you’re getting a new lease of life. Brilliant. 🥰
I had an Azure pacemaker with HIS bundle pacing two years ago in May ,followed by A/V node ablation in June by my young and enthusiastic E.P. in the UK. The medical profession have and are trying to put this procedure through NICE as a treatment for heart failure patients ( not the ablation). Two years down the line I still feel brilliant. Best wishes to you.
Thank you for writing, you made my day to know you are this far down the road. Today is not a good day without doing anything. My heart rate is 105. I just left my GP. My blood pressure was 180/83. I can feel something going on but I am being monitored and no phone calls yet. Normally I have low blood pressure. I thought perhaps I am having some flutter. Mine is a typical I don’t understand why this is going on. I think I will be calling my nurse in the morning if it continues. Did you have any erratic moments with yours?
Sorry to hear you're feeling anxious. Fortunately I didn't experience any problems apart from the pacemaker sight being extremely painful for several weeks. (We are all different).As soon as the ablation was completed my sky high blood pressure returned to normal.
My rate was set at 80/120 for the first 6weeks and then changed to 60/120 and I'm monitored 24/7 .
I could never have imagined that I would ever feel so good after two years of living hell.I could not tolerate any medications and had seven emergency electrical cardioversions.
Life is good ,just had four weeks in the Canary islands ( four hour flight) and looking forward to visit my brother in Boston USA in May.
Please stay positive ,I am sure all will be well with you. Tricia.
The strange thing about my BP is that it is usually low and that is the concern. The nurse was adamant that she could hear it clearly. I heard back from my cardiac nurse today. I could either go in tomorrow to see the nurse practitioner or I can see my doctor when I go in to have my pacemaker reset down to 70. Because I am feeling better today I decided to wait.
My left arm and shoulder are still sore a bit. Other than that I have no pain it just feels strange. Yes we are all different but for the most part you sound very much like me. I’m not sure what happened yesterday, but today it was a good day again and I was able to be active and get some things done. I have not been able to do. Yes also About the length of time living in hell with a fib. It’s now more than a year and a half. After the procedure last April I spiraled downward as I told you and had a steady heart rate in the 150s after the failure, Christmas week of the cardioversion without the opportunity of being able to try the new med I was really about to give up. My doctor got me through it all. I am also monitored 24 seven. I also have a 24 hour hotline to the hospital on both the technical and MEDICAL end. That in itself keeps me calm. Earlier today I could still feel very strong, heart pounding, but then it is stop and I just feel normal. It is exciting and happy. Thank you for getting back to me. I’m guessing it is one step at a time probably forever lol but isn’t that how life is anyway? I wasn’t doing anything crazy today, but I was active for the first time in a very long time. I was amazed at myself doing the things I was doing because three weeks ago getting up to go to the bathroom took everything I had, and I was miserable. mentally I can feel the difference also everything just seems better. Thank you again please keep in touch.
Oops.. it's Three years in May since my procedure not Two ,how time passes.. I just paced myself and tried not to worry too much about some of the strange feelings I experienced during the first few months ..I did a lot of research about the HIS bundle pacing and the results made me more confident. I feel very lucky to have been given the opportunity to be "normal"again..and I feel sure very soon you will too.
thank you for answering again. Yesterday and today so far have been great days. What I find is that I tend to need a day off after a day of doing things that I don’t think should fatigue me. That being said, I am amazed at how I can go back-and-forth in the house now where three weeks ago if I forgot some thing in the other room, I would just leave it there because it was just not worth making another trip and feeling so bad. I had problems with my BP the other day. Honestly, I did not feel it although I could feel my heart very strong and heart rate went up to 105. I was at my GP only to get a refill and the routine BP test concerned both the nurse and doctor. I don’t know if I already told you this but my cardiac nurse called me back. I could’ve gone in today to see the NP or see the doctor on the fifth and I chose to see the doctor because I was feeling better. My GP doubled my losartan. I just need to make sure that my EP is aware of that. Lol I just noticed I have NP, GP, EP. I am amazed at how much better I feel, and the things I can already do. I’m not trying to be superwoman being careful because my balance is still a little off. Thank you for what you said. As I had said a few weeks ago it’s learning what is normal and what is not when you feel things.
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Living with AFIB how?
Ablation then Cardioversion and conflicting Flecanide prescription 
Question for anyone who has had OHS please
New to this AF nightmare!
