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exercise anxiety
I used to be a kean, regular runner and back in July 2020 I went running in extreme heat and didn’t feel as energised as normal and felt very lethargic and my heart rate showed readings of up to 208bpm and quite erratic. Again I just put this down to exhaustion. Anyway cutting a long story short, I felt
I used to be a kean, regular runner and back in July 2020 I went running in extreme heat and didn’t feel as energised as normal and felt very lethargic and my heart rate showed readings of up to 208bpm and quite erratic. Again I just put this down to exhaustion. Anyway cutting a long story short, I felt
Fondant
in
AF Association
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
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Arrhythmia Alliance
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
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Partner
in
AF Association
1 year ago
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Hormone video
This may be a useful video from Peter Attia giving a basic explanation of the thyroid, adrenal and sex hormone systems. It is split up into sections.https://m.youtube.com/watch?v=5oxFK6poSXM
This may be a useful video from Peter Attia giving a basic explanation of the thyroid, adrenal and sex hormone systems. It is split up into sections.https://m.youtube.com/watch?v=5oxFK6poSXM
Guineapiggy
in
Thyroid UK
1 year ago
STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
steve5441
in
CLL Support
1 year ago
Afib or something else
A few months ago my Cardiologist told me to stop taking Flecainide daily, and switch to Pill in the Pocket. This morning I woke, to an irregular heartbeat. Normally when I have Afib I definitely feel it, and I also feel a bit lightheaded. Today is different. My pulse is only a bit higher than usual
A few months ago my Cardiologist told me to stop taking Flecainide daily, and switch to Pill in the Pocket. This morning I woke, to an irregular heartbeat. Normally when I have Afib I definitely feel it, and I also feel a bit lightheaded. Today is different. My pulse is only a bit higher than usual
Budken
in
AF Association
1 year ago
VIKTORIA-1 CLINICAL TRIAL
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
CTGirl1962
in
SHARE Metastatic Breast Cancer
1 year ago
Supra Ventricular Ectopy
For the last two to three weeks, I've been having a lot of PACS. Prior to that, I haven't had much of any irregular beats for the last six months. These episodes last for hours, (until my PIP kicks in) and have a high frequency, up to every other beat. I've had two ablations and currently don't take
For the last two to three weeks, I've been having a lot of PACS. Prior to that, I haven't had much of any irregular beats for the last six months. These episodes last for hours, (until my PIP kicks in) and have a high frequency, up to every other beat. I've had two ablations and currently don't take
drdubb
in
AF Association
1 year ago
Severe bruising
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
spanish36
in
CLL Support
1 year ago
Shingrix may be available on Australia's National Immunisation Program for those with CLL from 1 November 2023
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
CLLerinOz
Administrator
in
CLL Support
1 year ago
Cost of PSMA scan in US
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
TJGuy
in
Advanced Prostate Cancer
1 year ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
Exercise suggestions/plans/videos for Afib
It’s been awhile since I posted, although I do check the forum every day, so I have been following all the usual suspects and new arrivals. I was diagnosed at 65 in 2020 with PAF and really struggled to come to terms with my diagnosis as it was mid pandemic and also my mother had the same condition
It’s been awhile since I posted, although I do check the forum every day, so I have been following all the usual suspects and new arrivals. I was diagnosed at 65 in 2020 with PAF and really struggled to come to terms with my diagnosis as it was mid pandemic and also my mother had the same condition
aFibber55
in
Atrial Fibrillation Support
1 year ago
living emotionally and mentally with afib
I am 82 and have had paroxysmal afib for2+ yrs. I have always been terrified by an attack or waiting for one. They gradually increased to the point that I had cryoablation last September. That helped in that they are more mild and less common. Lately they have been increasing in frequency so I am
I am 82 and have had paroxysmal afib for2+ yrs. I have always been terrified by an attack or waiting for one. They gradually increased to the point that I had cryoablation last September. That helped in that they are more mild and less common. Lately they have been increasing in frequency so I am
Geeps527
in
AF Association
1 year ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
1 year ago
Afib and bradicardia
Thanks for much for everyone's help on the low heart rate. Yesterday I was Rushed to hospital by ambulance because my heart rate was so low I'm still in hospital now on a ECG machine and it keeps going really low and it's super high and all the alarms going up.
Thanks for much for everyone's help on the low heart rate. Yesterday I was Rushed to hospital by ambulance because my heart rate was so low I'm still in hospital now on a ECG machine and it keeps going really low and it's super high and all the alarms going up.
Corrie12
in
AF Association
1 year ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Afib and Bradycardia
Thank you all for you help on my last post I've had my medication dropped to 3.75 I'm having the ecg fitted Saturday for 3 to 4 days and seeing cardiologist on the 17th
Thank you all for you help on my last post I've had my medication dropped to 3.75 I'm having the ecg fitted Saturday for 3 to 4 days and seeing cardiologist on the 17th
Corrie12
in
AF Association
1 year ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
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