Trial

[Beoony]

Hi lovely ladies,

I have been offered a clinical trial as I'm platinum resistant. Can I ask anybody who has done one the outcome and how you felt. Thanks in Advance X

[meadowgirl]

Hi,

have you been told the name of the trial as there are quite a few around and some may be different to yours.

[Beoony in reply to meadowgirl]

I am waiting on Appointment to find out its seemingly between 2. Once I find put I'll put up what they called Thank you X

[Neona]

I am platinum resistant and have clear cell stage 3 c. I have been on a trial at UCLH Clinical Research Facility since December 2017. I have been looked after very closely with 8 weekly scans and fortnightly blood tests. I highly recommend taking this route.

[Beoony in reply to Neona]

Thank you Neona I'm hoping it shakes the cancer up. I am glad I'm eligible and 🙏 it gives me more time X

[Lookingahead]

Hi, I am platinum resistant and have been on 2 trials since January this year . I would definitively recommend it . You are monitored very closely and looked after really well . I saw it as a great opportunity as, for me, I had all the conventional treatment .

Once you have the options , ask as many questions as you need to and also research as much as you can . Best of luck 🙏❤️

[Beoony in reply to Lookingahead]

Aww that's great news. Yeah I will just waiting on appointment. Thank you for your reply X

[Katmal-UK]

Hi. I’m platinum sensitive and have taken part in 3 clinical trials since first diagnosed in October 2007. Best thing ever did. I am currently on my third trial and NED for 10 years 2 months. If you need further details please ask.

[Starbarn]

Hi I’ve been on a trial for clear cell since January 2022 . I have no measurable disease just a small nodule now. You are very well looked after and strict safety measures with regard to your health and toxicity. It might take a while to get the balance right but you are not left to get on with it. Good luck.