clinical trial: hi all, I have been... - Atrial Fibrillati...

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clinical trial

Byke profile image
Byke
17 Replies

hi all, I have been asked to take part in a trial for new medication with Pantharaclinic by my doctors. I was told this could stop my af permanently. I have a fast heart rate of around 200 to 240.

I am going to take part in it, will let you know how it goes.

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Byke profile image
Byke
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17 Replies
Scot01 profile image
Scot01

Well done for taking it on, and hoping it all turns out well Byke!

Cavalierrubie profile image
Cavalierrubie

👏👏👏👏👏. Highly commended. Hope it all goes well. Another step for mankind? We should all be saying thanks to you. Can’t wait to hear the results.

secondtry profile image
secondtry

Wow, what drug will you be taking?

Byke profile image
Byke in reply to secondtry

They haven’t given me the name of it, I am going to the clinic on Monday to see if I am suitable, should have more information then

secondtry profile image
secondtry in reply to Byke

Do keep us posted 🙏.

Byke profile image
Byke in reply to secondtry

Will do

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to Byke

Hi

You will know if you get placebo cause your HR will shoot up!

cheri JOY. 74. (NZ)

mhoam profile image
mhoam

Byke, well done and thank you from all fellow sufferers for taking this on.

Of course, it is likely you won't know whether you are taking the actual drug or just a placebo during the trial!

Good Luck

Byke profile image
Byke in reply to mhoam

Hope I get the real drug a dit helps

Fidodog profile image
Fidodog

Good luck 🤞🤞

ozziebob profile image
ozziebob

Just today I was sent a link to current research on Etripamil nasal spray for paroxysmal SVT. Sounds like good news to me, so far at least ...

ncbi.nlm.nih.gov/pmc/articl...

Please let us know what happens.

Byke profile image
Byke in reply to ozziebob

That does sound like good news hope it works. I will put a post on after attending the clinic on Monday

ozziebob profile image
ozziebob in reply to Byke

And let's hope you're not allocated to the placebo cohort ... 🤔 you need help asap.

Keep Byke(ing)!

southkorea profile image
southkorea

Great !!!

kocoach profile image
kocoach

I was in the study for Tikosyn (Dofetilide) back in 1995 and one thing is that some will get the actual medicine and others a placebo. Fortunately I was one of the lucky ones to receive the actual medicine and it worked very well in controlling my afib for close to 20 years. I hope you will get the actual medicine and that it works as well as Dofetilide did for me. If it works please let me know as I want to get off of amiodarone desperately. Best Wish's.

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

With me no BBs worked to bring down 186 hbm DAY on Metoprolol until the new private H/Specialist put me on Diltiazem. 180mg too much I dropped 105 hbm within 2 hours on Bisoprolol. And I was changed to Bisoprolol 10mg at the time.

Just 2.5mg Bisoprolol PM controlled my hypertension.

Just 120mg AM Diltiazem controlled my heart rate.

Now 110-130 BP Day and 60s H/R Day. Night always drop to 47hbm regardless of meds. I have always been prone to cold shoulders at night.

So I am happy.

Have you tried this combo. You need to separate CCB from BB. The CCB works for 12 hours so does not interfere with Night rate. All interesting. After 1 year it dropped from 88-96 H/R Day to 60s! Not sure whether it was the 3kg weight loss.

cheri JOY. 74. (NZ)

Byke profile image
Byke in reply to JOY2THEWORLD49

Hi there ,I have only had Bisoprolol once, my heart rate went wild and I was taken to resus again, I have been told not to take it under any circumstances, but I’m glad it works for you. I will let you know how I go on c

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