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Ruxolitinib
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Ameliav
in
MPN Voice
11 months ago
Life after Flecainide
I have had to stop Flecainide after many years because it started giving me other arrhythmias & am now on Digoxin Bisoprolol Apixiban & Simvastatin so far since starting Digoxin I have had AF most nights sometimes all night & sometimes n separate episodes. AFsometimes continues on into the day I self
I have had to stop Flecainide after many years because it started giving me other arrhythmias & am now on Digoxin Bisoprolol Apixiban & Simvastatin so far since starting Digoxin I have had AF most nights sometimes all night & sometimes n separate episodes. AFsometimes continues on into the day I self
Koladog
in
Atrial Fibrillation Support
1 year ago
I fired my oncologist
Almost a year ago I had radiation and started Lupron, Prednesone, and Abiraterone which immediately brought my PSA and T levels to undetectable. I also enrolled in a clinical trial of an experimental immunotherapy drug SD-101 along with infusions of Keytruda (pembrolizumab). I became extremely depressed
Almost a year ago I had radiation and started Lupron, Prednesone, and Abiraterone which immediately brought my PSA and T levels to undetectable. I also enrolled in a clinical trial of an experimental immunotherapy drug SD-101 along with infusions of Keytruda (pembrolizumab). I became extremely depressed
cageycruz
in
Advanced Prostate Cancer
1 year ago
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Inhibikase IkT-148009 Phase 2: the study record on the Clinical Trials website has had a small, but significant, update.
The Estimated Study Completion Date is now January 1, 2025. They have been recruiting for a couple of months. Enrolment activity during that time would have had some influence on the estimation of the new completion date. According to the study record, they are seeking 90 untreated PwPs, with each
The Estimated Study Completion Date is now January 1, 2025. They have been recruiting for a couple of months. Enrolment activity during that time would have had some influence on the estimation of the new completion date. According to the study record, they are seeking 90 untreated PwPs, with each
jeffreyn
in
Cure Parkinson's
1 year ago
ART Vit D and Prostate Cancer (PCa) by Dr Campbell UK Podcast
Dr Campbell, UK, has made a summary of recent investigations and studies on VIT D and its effect on PCa specifically and cancer generally. Of import is his discussiono on the finding on PCa and African Americans; they have a genomic risk factor that leads to more aggressive PCa, BUT respond quickly
Dr Campbell, UK, has made a summary of recent investigations and studies on VIT D and its effect on PCa specifically and cancer generally. Of import is his discussiono on the finding on PCa and African Americans; they have a genomic risk factor that leads to more aggressive PCa, BUT respond quickly
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Fecal Microbiota Transplantation (FMT) For PD And Much Much More
While many of us are aware of the potential that FMT has shown for PD, Clostridium difficile (C. diff) and IBS that has not responded to standard therapy, I wrote this to highlight the fact that FMT has shown the potential to also help a multitude of other diseases and health issues that are often seen
While many of us are aware of the potential that FMT has shown for PD, Clostridium difficile (C. diff) and IBS that has not responded to standard therapy, I wrote this to highlight the fact that FMT has shown the potential to also help a multitude of other diseases and health issues that are often seen
chartist
in
Cure Parkinson's
1 year ago
Counting the days to an ablation for Focal Atrial Tachycardia
Tanta Anna follow up! Has anyone had this type of ablation? It’s my sixth ablation! This has been an awful experience for the last four months- now weaning off atenolol, which may be feel very ill. Stayed on that medication after many other trials. I am in the US, traveling 1000 miles to Dr in
Tanta Anna follow up! Has anyone had this type of ablation? It’s my sixth ablation! This has been an awful experience for the last four months- now weaning off atenolol, which may be feel very ill. Stayed on that medication after many other trials. I am in the US, traveling 1000 miles to Dr in
Tantaanna
in
AF Association
1 year ago
2nd Opinion.
Hello everyone. As a few of you will know I have done all the treatments possible including Pluvicto which failed. My MO has put me on Jevtana for which I have comepleted 2 treatments so far. After my call today with my doctor it was evident he is losing hope for me ( understood) and he will look
Hello everyone. As a few of you will know I have done all the treatments possible including Pluvicto which failed. My MO has put me on Jevtana for which I have comepleted 2 treatments so far. After my call today with my doctor it was evident he is losing hope for me ( understood) and he will look
db1966
in
Advanced Prostate Cancer
1 year ago
Micronized Progesterone - Does it do anything?
I started taking HRT a while ago and I felt was all over the place, sometimes on top of the world. sometimes awful - it took me a lot longer than it ought to have done to figure out that in the 2 weeks that I take Oestrogen only I'm amazing, and when I take Utrogestan with Oestrogen I can barely function
I started taking HRT a while ago and I felt was all over the place, sometimes on top of the world. sometimes awful - it took me a lot longer than it ought to have done to figure out that in the 2 weeks that I take Oestrogen only I'm amazing, and when I take Utrogestan with Oestrogen I can barely function
Abra_ka_dabra
in
Menopause and Perimenopause Support
1 year ago
INCA033989 phase 1 clinical trial is recruiting patients
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
[i]Source: https://www.rarediseaseadvisor.com/news/mf-news-briefs/phase-1-trial-testing-potential-mf-therapy-recruiting/[/i] A new phase 1 clinical trial evaluating the safety, tolerability, and dose limiting toxicity of INCA033989 as a monotherapy or in combination with ruxolitinib in patients with
flamboyant_hawking
in
MPN Voice
1 year ago
Missing eliquis apixaban for 4 days??
Hi allVery stupidly I have come up to Yorkshire from London to stay with friends and I have forgotten to bring my eliquis apixaban. Eek! I am paroxysmal afib with few incidents and not for long What should I do? Just go without til Saturday afternoon (last one taken Wednesday morning? Or ring doctor
Hi allVery stupidly I have come up to Yorkshire from London to stay with friends and I have forgotten to bring my eliquis apixaban. Eek! I am paroxysmal afib with few incidents and not for long What should I do? Just go without til Saturday afternoon (last one taken Wednesday morning? Or ring doctor
Pitterpat
in
AF Association
1 year ago
Treatment Options
Hi, Looking for some help with options presented by my MO. Below are my latest PSA results PSA TOTAL. 0.77. 07/10/2023 PSA TOTAL 0.67. 06/20/2023 PSA TOTAL 0.17. 03/21/2023 PSA TOTAL. 0.38. 12/20/2022 PSA TOTAL. 0.67. 11/15/2022 PSA TOTAL. 0.64. 10/25/2022 Been
Hi, Looking for some help with options presented by my MO. Below are my latest PSA results PSA TOTAL. 0.77. 07/10/2023 PSA TOTAL 0.67. 06/20/2023 PSA TOTAL 0.17. 03/21/2023 PSA TOTAL. 0.38. 12/20/2022 PSA TOTAL. 0.67. 11/15/2022 PSA TOTAL. 0.64. 10/25/2022 Been
Coachmy4
in
Advanced Prostate Cancer
1 year ago
A Drug To Prevent Suicide Associated With BiPolar Depression
Suicidal bipolar depression accounts for 40% of people who try to harm themselves, yet there’s never been an FDA-approved drug for this indication. Every second of every day, someone in the world attempts suicide. NRx Pharmaceuticals is developing a drug for people whose suicidal thoughts stem
Suicidal bipolar depression accounts for 40% of people who try to harm themselves, yet there’s never been an FDA-approved drug for this indication. Every second of every day, someone in the world attempts suicide. NRx Pharmaceuticals is developing a drug for people whose suicidal thoughts stem
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
TracyAdmin
Partner
in
AF Association
1 year ago
PSA down but mets increasing?
I've been on ADT + Xtandi for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05. However, my 3 CT scans (last August, December and last month) are showing a slight increase each time in the size of my lymph node mets and the bone
I've been on ADT + Xtandi for about a year (see my Bio for details) and my PSA has been slowly and steadily reducing over that time - now down to 0.05. However, my 3 CT scans (last August, December and last month) are showing a slight increase each time in the size of my lymph node mets and the bone
Benkaymel
in
Advanced Prostate Cancer
1 year ago
At a crossroads
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Garlicgrower
in
SHARE Metastatic Breast Cancer
1 year ago
Next Steps?
Good morning my fellow warriors. I have reached another cross roads in my treatment. I was set up to have HDR and SbRT as salvage treatment, but a PSMA scan showed disease progression to more lymph nodes which caused my Radiation Onc. to cancel the HDR. My regular ONC is now recommending Chemo after
Good morning my fellow warriors. I have reached another cross roads in my treatment. I was set up to have HDR and SbRT as salvage treatment, but a PSMA scan showed disease progression to more lymph nodes which caused my Radiation Onc. to cancel the HDR. My regular ONC is now recommending Chemo after
wat380bjw
in
Advanced Prostate Cancer
1 year ago
Difficulty turning over in bed
A few years ago l asked if any of you had trouble turning over in bed and got a lot of responses- some compared it to feeling like a beached whale ! Recently l had a shoulder replacement which made it even worse for me so my son came to my rescue. It has helped so much that l thought l would share it
A few years ago l asked if any of you had trouble turning over in bed and got a lot of responses- some compared it to feeling like a beached whale ! Recently l had a shoulder replacement which made it even worse for me so my son came to my rescue. It has helped so much that l thought l would share it
Trulyscrumpious
in
PMRGCAuk
1 year ago
Cancelled Again
Well here I go again, another cancellation, another wait. I have continual AF for just coming up to two years. I’m on 10mg of Bisoprolol and 62.5 digoxin, plus Apixaban. First appointment with Cardio, told to lose weight and get on with it, no medication, oh ok. Went to GP who gave medication and
Well here I go again, another cancellation, another wait. I have continual AF for just coming up to two years. I’m on 10mg of Bisoprolol and 62.5 digoxin, plus Apixaban. First appointment with Cardio, told to lose weight and get on with it, no medication, oh ok. Went to GP who gave medication and
Carnationmac
in
AF Association
1 year ago
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