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clinical trials and dropped off a cliff
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Johnkelsey
in
Advanced Prostate Cancer
8 months ago
Do you live with advanced liver disease? Are you interested in attending an in-person workshop in Bristol or Liverpool this month?
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
Metastic clear cell...
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
carrotmunch5
in
My Ovacome
8 months ago
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I am very thankful to have found this group as it has provided considerable amounts of information that otherwise can be a challenge to find even with the internet at our fingertips. I am a 55 year old man who was officially diagnosed with AFib in December 2021 after spending the night in the hospital
I am very thankful to have found this group as it has provided considerable amounts of information that otherwise can be a challenge to find even with the internet at our fingertips. I am a 55 year old man who was officially diagnosed with AFib in December 2021 after spending the night in the hospital
Longdistancewalker
in
AF Association
1 year ago
AF triggers
I wrote this as a reply to another post but decided that it would just be hijacking the original post, so started a new one. I definitely have triggers for AF. Anything that my body doesn’t like will trigger AF. I have a very difficult diet. I am intolerant to gluten, dairy and soya. If I have any
I wrote this as a reply to another post but decided that it would just be hijacking the original post, so started a new one. I definitely have triggers for AF. Anything that my body doesn’t like will trigger AF. I have a very difficult diet. I am intolerant to gluten, dairy and soya. If I have any
Mrsvemb
in
Atrial Fibrillation Support
1 year ago
Aspen Neuroscience Granted Fast Track Designation
FDA Grants Fast Track Designation to ANPD001, Autologous Investigational Cell Therapy for the Treatment of Parkinson’s Disease SAN DIEGO, Oct. 19, 2023 /PRNewswire/ — Aspen Neuroscience today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for ANPD001 for
FDA Grants Fast Track Designation to ANPD001, Autologous Investigational Cell Therapy for the Treatment of Parkinson’s Disease SAN DIEGO, Oct. 19, 2023 /PRNewswire/ — Aspen Neuroscience today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for ANPD001 for
redhawk1
in
Cure Parkinson's
8 months ago
drug holiday
I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing days it’s taken. I would really appreciate any feed back. My story is I’ve got really good bloods now and have been taking ibrutinib for 4 years
I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing days it’s taken. I would really appreciate any feed back. My story is I’ve got really good bloods now and have been taking ibrutinib for 4 years
Zoethedog
in
CLL Support
8 months ago
Bayer Investing in New Cell Therapy Facility
Bayer Opens First Cell Therapy Manufacturing Facility to Advance Regenerative Medicines on a Global Scale $250 million (USD) plant will help produce transformational cell and gene therapies on a global scale Creating readiness for first production runs of potential commercial launches, including bemdaneprocel
Bayer Opens First Cell Therapy Manufacturing Facility to Advance Regenerative Medicines on a Global Scale $250 million (USD) plant will help produce transformational cell and gene therapies on a global scale Creating readiness for first production runs of potential commercial launches, including bemdaneprocel
redhawk1
in
Cure Parkinson's
8 months ago
Depression, anxiety higher in lupus patients at risk of heart disease
Obesity, diabetes, hypertension among conditions raising a cardiovascular risk
by Marisa Wexler, MS | November 6, 2023 Depression and anxiety are more likely in people with systemic lupus erythematosus (SLE) who also are at a greater risk of heart disease, like those with obesity or high blood
Obesity, diabetes, hypertension among conditions raising a cardiovascular risk
by Marisa Wexler, MS | November 6, 2023 Depression and anxiety are more likely in people with systemic lupus erythematosus (SLE) who also are at a greater risk of heart disease, like those with obesity or high blood
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
Share Your Voice: Shaping the Future of Clinical Trial Searches
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Darryl
Partner
in
Prostate Cancer Network
8 months ago
Share Your Voice: Shaping the Future of Clinical Trial Searches
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
Clinical trial - Recorded hypnosis or relaxation reduced cancer pain and anxiety. Hypnosis also improved fatigue and sleep.
Hypnosis and relaxation interventions for chronic pain management in cancer survivors: a randomized controlled trial Linda H. Eaton, Min Kyeong Jang, Mark P. Jensen, Kenneth C. Pike, Margaret M. Heitkemper & Ardith Z. Doorenbos Supportive Care in Cancer volume 31, Article number: 50 (2023) Cite this
Hypnosis and relaxation interventions for chronic pain management in cancer survivors: a randomized controlled trial Linda H. Eaton, Min Kyeong Jang, Mark P. Jensen, Kenneth C. Pike, Margaret M. Heitkemper & Ardith Z. Doorenbos Supportive Care in Cancer volume 31, Article number: 50 (2023) Cite this
Graham49
in
Fight Prostate Cancer
8 months ago
Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
8 months ago
FYI: from the VA research information on Veterans
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
MouseAddams
in
Advanced Prostate Cancer
8 months ago
palpitations
hi has anybody experienced palpitations all day and night I’ve had them for two weeks now I went to the walk in centre and they did a ecg ,bloods ,blood pressure ,everything was ok I’ve had palpitations in the past sporadic but not like this I was on 100mcg thyroxine the doctor has put me on 75mg and
hi has anybody experienced palpitations all day and night I’ve had them for two weeks now I went to the walk in centre and they did a ecg ,bloods ,blood pressure ,everything was ok I’ve had palpitations in the past sporadic but not like this I was on 100mcg thyroxine the doctor has put me on 75mg and
jodiej79
in
Thyroid UK
1 year ago
I can't sleep feel like my heart is going to stop
It's one of those nights again. I feel pressure in my chest. I thought I was going to be able to sleep today but I guess not. Its frustrating because I was already falling asleep but I was awaken by a sudden jerk. Now every time I am falling asleep I get woken up by the sudden jerk that makes me feel
It's one of those nights again. I feel pressure in my chest. I thought I was going to be able to sleep today but I guess not. Its frustrating because I was already falling asleep but I was awaken by a sudden jerk. Now every time I am falling asleep I get woken up by the sudden jerk that makes me feel
ImHere_Again
in
Anxiety Support
1 year ago
An update on the other Abl Tyrosine Kinase Inhibition Phase 2 trial - PROSEEK by Sun Pharma Advanced Research Company (SPARC)
After almost 5 years, enrollment (N=506) is now complete! "The trial launched in 2019 and is expected to run through 2024." Note that the Study Record on the Clinical Trials website has yet to be updated with this latest information. It still gives a Recruitment Status of "Recruiting" and an Estimated
After almost 5 years, enrollment (N=506) is now complete! "The trial launched in 2019 and is expected to run through 2024." Note that the Study Record on the Clinical Trials website has yet to be updated with this latest information. It still gives a Recruitment Status of "Recruiting" and an Estimated
jeffreyn
in
Cure Parkinson's
8 months ago
Atrial fibrillation post ablation
Hi everyone! I have read the info sheet and noted that palpitations are normal for some time after an ablation. I had my second ablation 5 weeks ago for afib and flutter. Everything was quite quiet for 4 weeks and then bam a few minutes of afib. Now I have had a minute or so of afib everyday. My EPs
Hi everyone! I have read the info sheet and noted that palpitations are normal for some time after an ablation. I had my second ablation 5 weeks ago for afib and flutter. Everything was quite quiet for 4 weeks and then bam a few minutes of afib. Now I have had a minute or so of afib everyday. My EPs
MKMafib
in
AF Association
1 year ago
Clinical Trials
I see so many Clinical Trials out there. Has ANYONE tried any of them???
I see so many Clinical Trials out there. Has ANYONE tried any of them???
smv123
in
Cure Parkinson's
8 months ago
Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
8 months ago
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