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bradycardia interrupting sleep
I’m waking up during the night with low heart rate 42-48 bpm and a feeling that my heart is labouring. This is usually twice in the night and I often can’t get back to sleep after 4.00am. I think sleeping on my back doesn’t help ( I try not to) and my other half tells me I snore. Tried all the sleep
I’m waking up during the night with low heart rate 42-48 bpm and a feeling that my heart is labouring. This is usually twice in the night and I often can’t get back to sleep after 4.00am. I think sleeping on my back doesn’t help ( I try not to) and my other half tells me I snore. Tried all the sleep
Reidel
in
Atrial Fibrillation Support
1 year ago
K0706 Clinical Trial
I'm recently diagnosed and have not started any PD meds, though my neurologist says Sinemet would probably help my symptoms. I'm not having terrible or disruptive symptoms, just an annoying leg tremor, fatigue and stiffness. I see a PT and exercise, which really helps with the stiffness. I'm postponing
I'm recently diagnosed and have not started any PD meds, though my neurologist says Sinemet would probably help my symptoms. I'm not having terrible or disruptive symptoms, just an annoying leg tremor, fatigue and stiffness. I see a PT and exercise, which really helps with the stiffness. I'm postponing
Salted
in
Cure Parkinson's
8 months ago
Is this website BULLSH*T?
This is PDWarrior1900 I can't seem to login to my normal HealthUnlocked account from my downstairs computer. I subscribe to DOZENS of PD newsletters, clinical trials, etc. This was just emailed to me and I haven't check it out yet. -----------------------------------------------------------------
This is PDWarrior1900 I can't seem to login to my normal HealthUnlocked account from my downstairs computer. I subscribe to DOZENS of PD newsletters, clinical trials, etc. This was just emailed to me and I haven't check it out yet. -----------------------------------------------------------------
NewGuywithPD
in
Cure Parkinson's
8 months ago
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Eligard for me= poison
When getting Eligard shots after prostatectomy and radiation it was holding PSA level down. It also turned my thoughts angry and disgruntled. Doctor Larock from Mattapoisett is treating me with Flutamide and Bicalutimide 1 pill day each. Thanks Jesus I can write this and feel pretty good for 75. Eligard
When getting Eligard shots after prostatectomy and radiation it was holding PSA level down. It also turned my thoughts angry and disgruntled. Doctor Larock from Mattapoisett is treating me with Flutamide and Bicalutimide 1 pill day each. Thanks Jesus I can write this and feel pretty good for 75. Eligard
Shorttimer
in
Advanced Prostate Cancer
1 year ago
Flecanide or Propafenone when on ALCALABRUTINIB
Last year, I changed Ibrutinib for Alcalabrutinib because of elevated blood pressure and heart rate. For 6 months with [u]
Acalabrutinib + Bisoprolol5mg +Apixaban25mg.
[/u] I was OK. Then I had to go to ER twice in 2 months for dangerously elevated blood pressure and fast heart rate. I received
Last year, I changed Ibrutinib for Alcalabrutinib because of elevated blood pressure and heart rate. For 6 months with [u]
Acalabrutinib + Bisoprolol5mg +Apixaban25mg.
[/u] I was OK. Then I had to go to ER twice in 2 months for dangerously elevated blood pressure and fast heart rate. I received
unairdefamille
in
CLL Support
1 year ago
60 DAYS IN, QUICK UPDATE ON TODAY'S DR VISIT huCAR-T 19 IL-18 4th GENERATION CLINICAL TRIAL
60 days have gone by since I received my new T- Cells. I have been neutropenic, average ANC of about 1.0 for the last 2 months and my Fibrinogen levels have been consistently low. I have had to do twice weekly blood checks at Penn Medicine, and most of those tests have resulted in a CRYO infusion
60 days have gone by since I received my new T- Cells. I have been neutropenic, average ANC of about 1.0 for the last 2 months and my Fibrinogen levels have been consistently low. I have had to do twice weekly blood checks at Penn Medicine, and most of those tests have resulted in a CRYO infusion
steve5441
in
CLL Support
8 months ago
Webinar:What role does our immune system play in the development of AMD?
Professor David Kavanagh from Newcastle University joins us for our next My Macular and Me webinar to discuss his three-year research project, which aims to find a treatment for age-related macular degeneration (AMD). Prof. Kavanagh’s research looks at a specific part of the immune system called the
Professor David Kavanagh from Newcastle University joins us for our next My Macular and Me webinar to discuss his three-year research project, which aims to find a treatment for age-related macular degeneration (AMD). Prof. Kavanagh’s research looks at a specific part of the immune system called the
Carol_MacularSociety
Partner
in
Macular Society
8 months ago
Update on trametinib (Mekinist) for low grade serous ovarian cancer
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
OvacomeSupport
My Ovacome Team
in
My Ovacome
8 months ago
Flecainide
I had a recent AFIB episode on Sunday. This was the first time I would take Flecainide PIP, and the EP wanted me to take it at the ER. He prescribed me 50 mg. I am on 180 mg of Extended Release Diltiazem. The attending ER doctor did not think 50 mg would make a difference (he said it should be 200
I had a recent AFIB episode on Sunday. This was the first time I would take Flecainide PIP, and the EP wanted me to take it at the ER. He prescribed me 50 mg. I am on 180 mg of Extended Release Diltiazem. The attending ER doctor did not think 50 mg would make a difference (he said it should be 200
AustinElliot
in
AF Association
1 year ago
clinical trial vyd222 monoclonal AB against covid update science 37
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
bachplayer13
in
CLL Support
8 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
still fighting for buprenorphine to be reinstated. I'm starting to lose battle with myself.
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Hidden
in
Restless Legs Syndrome
1 year ago
You are invited to participate in an online survey on behalf of the AF Association
You are invited to participate in an online survey on behalf of the AF Association. Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients
You are invited to participate in an online survey on behalf of the AF Association. Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
You are invited to participate in an online survey on behalf of the AF Association.
You are invited to participate in an online survey on behalf of the AF Association. Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients
You are invited to participate in an online survey on behalf of the AF Association. Your feedback will contribute in providing researchers working in this field to better understand the following: • How common is simultaneous screening of high blood pressure and Atrial Fibrillation (AF) amongst patients
Hidden
Partner
in
AF Association
1 year ago
Convergent ablation procedure
hello all, I have had persistent AF for about a year after a few years of PAF (initially diagnosed as panic attacks). I was on BISOPROLOL 3.25 and Apixaban 2x day. I had a successful CV in February this year and have reduced my BISO to .625. I do not tolerate the drugs well including the anticoagulant
hello all, I have had persistent AF for about a year after a few years of PAF (initially diagnosed as panic attacks). I was on BISOPROLOL 3.25 and Apixaban 2x day. I had a successful CV in February this year and have reduced my BISO to .625. I do not tolerate the drugs well including the anticoagulant
Bodydoctor12
in
AF Association
1 year ago
New clinical trial BNT152+153.
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
kklott01
in
Advanced Prostate Cancer
8 months ago
An update on new therapy clinical trial enrollment Phase I/II TheraPb clinical trial of ²¹²Pb-ADVC001 to treat PSMA-positive mCRPC
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
Maxone73
in
Advanced Prostate Cancer
8 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
8 months ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
8 months ago
clinical trials and dropped off a cliff
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Johnkelsey
in
Advanced Prostate Cancer
8 months ago
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