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Tapering while new issues
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
arvine
in
Pain Concern
1 year ago
Gout Knee
A few weeks ago after relaxing on my setee knee and leg started to receive severe pain and no power on the right side. I have 3 prolapsed discs and thought that is was that but pain become a 9/10. Short version spent 4 weeks in hospital and they are saying gout in the knee. I so differ high uric
A few weeks ago after relaxing on my setee knee and leg started to receive severe pain and no power on the right side. I have 3 prolapsed discs and thought that is was that but pain become a 9/10. Short version spent 4 weeks in hospital and they are saying gout in the knee. I so differ high uric
jpbuk1204
in
Pain Concern
1 year ago
Psoriatic Arthritis
Does anyone have any experience with this? From my research from, yes, Dr. Google, on a Saturday night when I'm fed up and after my pedicurist suggested that the red scaly patches on both legs could be psorisis. Apparently psoriatic arthritis is very closely related to Lupus and you can have both.
Does anyone have any experience with this? From my research from, yes, Dr. Google, on a Saturday night when I'm fed up and after my pedicurist suggested that the red scaly patches on both legs could be psorisis. Apparently psoriatic arthritis is very closely related to Lupus and you can have both.
CavendishCool
in
LUPUS UK
1 year ago
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Never ending pain.
Hi all. I haven't written here before but I really feel the need for some help and support because I haven't had any from the medical profession. I have suffered off and on with anxiety and depression for year's but especially when somebody that I thought was a good friend stabbed me in the back and
Hi all. I haven't written here before but I really feel the need for some help and support because I haven't had any from the medical profession. I have suffered off and on with anxiety and depression for year's but especially when somebody that I thought was a good friend stabbed me in the back and
Danni54
in
Anxiety and Depression Support
1 year ago
help please 😊
how do u deal with fatigue i have no energy and rheumatologist is more interested in blaming it on everything but rheumatoid
how do u deal with fatigue i have no energy and rheumatologist is more interested in blaming it on everything but rheumatoid
Hidden
in
NRAS
1 year ago
No Rheumatologist currently available 🙀
Bit of a rant but need to get it off my chest . You couldn’t believe what I was told when I called my help line to ask for advice after a major flare up , ( both my knees where so swollen I couldn’t walk ) , firstly the help line is now closed permanently and e-mail is the only contact method I have
Bit of a rant but need to get it off my chest . You couldn’t believe what I was told when I called my help line to ask for advice after a major flare up , ( both my knees where so swollen I couldn’t walk ) , firstly the help line is now closed permanently and e-mail is the only contact method I have
Gaz227
in
PMRGCAuk
1 year ago
Discitis nearly killed me. I suspect streptococcus B was injected into me by Hormone injection for PCa
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
Graham49
in
Advanced Prostate Cancer
1 year ago
Back on Pegasys
Now that I know that my fatigue is due to being generally lazy and the back
pain
is
arthritis
I am fine with the Peg. It was worth a try to sort out what is to hold accountable for which symptom. I will work on the laziness.
Now that I know that my fatigue is due to being generally lazy and the back
pain
is
arthritis
I am fine with the Peg. It was worth a try to sort out what is to hold accountable for which symptom. I will work on the laziness.
Planti
in
MPN Voice
8 months ago
X ray results
So I finally got a letter from the rheumatologist consultant today with my xray results. He said my lumbar spine was OK but both my hips are showing signs of osteoarthritis especially the left one and hip impingement again especially the left one. He said before he refers me to orthopaedic surgery he
So I finally got a letter from the rheumatologist consultant today with my xray results. He said my lumbar spine was OK but both my hips are showing signs of osteoarthritis especially the left one and hip impingement again especially the left one. He said before he refers me to orthopaedic surgery he
Brian1977
in
NRAS
1 year ago
and here i still am
not even sure where to start any more, feels like this has been an eternal struggle (it hasnt just many years lol) chronic pelvic and back pain for around 4 years pelvic pain began first, back pain newer around 1 year or so. Mri on back showed normal wear and tear (so im told) pelvic ultra sounds range
not even sure where to start any more, feels like this has been an eternal struggle (it hasnt just many years lol) chronic pelvic and back pain for around 4 years pelvic pain began first, back pain newer around 1 year or so. Mri on back showed normal wear and tear (so im told) pelvic ultra sounds range
rubine7521
in
Pelvic Pain Support Network
1 year ago
Experiences of coming off zoladex or other long term hormonal treatments to conceive? Please help.
Hi there I am 31 and was diagnosed with severe stage 4 endometriosis at 17. I've been on zoladex for nearly the whole time since diagnosis add back HRT and regular bone scans. Despite zoladex I've had a lot of pain, and have had surgery 5 times and each time endo has been extensive, so although zoladex
Hi there I am 31 and was diagnosed with severe stage 4 endometriosis at 17. I've been on zoladex for nearly the whole time since diagnosis add back HRT and regular bone scans. Despite zoladex I've had a lot of pain, and have had surgery 5 times and each time endo has been extensive, so although zoladex
hcromps92
in
Endometriosis UK
1 year ago
Appetite and taste
Red meat......I cannot stand the taste of red meat/mince since \i was taking methotrexate for RA which I now do not have I have oesteo arthritis and shouldnt have been sent to RA clinic! It really annoys me that I was taking all those meds/blood tests etc to be told I didnt need them!!!I must
Red meat......I cannot stand the taste of red meat/mince since \i was taking methotrexate for RA which I now do not have I have oesteo arthritis and shouldnt have been sent to RA clinic! It really annoys me that I was taking all those meds/blood tests etc to be told I didnt need them!!!I must
mogs231
in
NRAS
1 year ago
Over the counter painkillers
Hi, I’m waiting on scan & further steps to manage my endo & adenomyosis. The pain is getting harder to manage & I’d be grateful for suggestions of pain relief that might work better than current ibuprofen, panadol & hot water bottles:) Have just been reading it’s better to start ibuprofen before day
Hi, I’m waiting on scan & further steps to manage my endo & adenomyosis. The pain is getting harder to manage & I’d be grateful for suggestions of pain relief that might work better than current ibuprofen, panadol & hot water bottles:) Have just been reading it’s better to start ibuprofen before day
Rose244
in
Endometriosis UK
1 year ago
Clopidogrel - Joint Pain
Clopidogrel. Would love to hear of people's experiences with Clopidogrel. I've been on it since September 2019 when I had my stroke (along with Atorvastatin and blood pressure tablets). My bloods were fine when checked, but I was put on the tablets just in case. Stroke was caused by an infarction
Clopidogrel. Would love to hear of people's experiences with Clopidogrel. I've been on it since September 2019 when I had my stroke (along with Atorvastatin and blood pressure tablets). My bloods were fine when checked, but I was put on the tablets just in case. Stroke was caused by an infarction
Lulu_Lollipop
in
Arthritis Action
1 year ago
severe restless legs. Awake most of the night.
Been recently diagnosed with severe restless legs ,Been awake most of the night in pain and having spasms, painkillers have helped, but not enough and probably /hopefully temporary. Anybody else had this problem or any advice when I speak to a doctor?
Been recently diagnosed with severe restless legs ,Been awake most of the night in pain and having spasms, painkillers have helped, but not enough and probably /hopefully temporary. Anybody else had this problem or any advice when I speak to a doctor?
carol31271
in
Ataxia UK
1 year ago
Heart vs pain
I have lived with chronic spinal pain for well over 20 years and have now run out of options for keeping it under control. I recently saw a new, lovely pain consultant who said there were no more standard options but he would like to suggest I try CBD. However my heart is a problem. There hasn't
I have lived with chronic spinal pain for well over 20 years and have now run out of options for keeping it under control. I recently saw a new, lovely pain consultant who said there were no more standard options but he would like to suggest I try CBD. However my heart is a problem. There hasn't
Qualipop
in
British Heart Foundation
1 year ago
Rheumatoid Serositis
Hello Everyone. I have complex and overlapping auto-immune diseases. I have been given a recent diagnosis of Rheumatoid Serositis. My Respitory Consultant and my Rheumatologist have made this diagnosis. I would like to know if there is anyone dealing with this condition and if there is a known Specialist
Hello Everyone. I have complex and overlapping auto-immune diseases. I have been given a recent diagnosis of Rheumatoid Serositis. My Respitory Consultant and my Rheumatologist have made this diagnosis. I would like to know if there is anyone dealing with this condition and if there is a known Specialist
Skyeblue2
in
NRAS
1 year ago
Never rains just pours….😡😡
Now being tested for rheumatoid arthritis due to extremely painful ankles, knee and wrists. Hopefully if positive this new addition to the family will get on well with my IPF but as long as the lung transplant can proceed I’m cool. 🤪🤪 Stay safe xx
Now being tested for rheumatoid arthritis due to extremely painful ankles, knee and wrists. Hopefully if positive this new addition to the family will get on well with my IPF but as long as the lung transplant can proceed I’m cool. 🤪🤪 Stay safe xx
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
back and scar tissue pain
I have crohns and had my large bowel removed last year now have scar tissue pain at chronic levels then they did an mri scan and found I had a prolapsed disk and a disk bulge also x2 tumours in my back and mechanical spinal Disease degenerative this all makes my legs go numb and I get pins and needles
I have crohns and had my large bowel removed last year now have scar tissue pain at chronic levels then they did an mri scan and found I had a prolapsed disk and a disk bulge also x2 tumours in my back and mechanical spinal Disease degenerative this all makes my legs go numb and I get pins and needles
Paininbackandlegs
in
Pain Concern
1 year ago
Benepali / Etanercept Rheumatoid Arthritis
Hi everyone I have a few questions about the above for RA use. Specifically wanting to know if anyone has lung nodules and if they have increased whilst on Benepali? Has anyone had a lung collapse whilst on Benepali? Has anyone on here had problems whilst being on the above Benepali? How often
Hi everyone I have a few questions about the above for RA use. Specifically wanting to know if anyone has lung nodules and if they have increased whilst on Benepali? Has anyone had a lung collapse whilst on Benepali? Has anyone on here had problems whilst being on the above Benepali? How often
Rockky
in
NRAS
1 year ago
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