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Advice please
on Rituximab (last single infusion Jan) and had a toe op yesterday to remove pins inserted years ago. Been sent home with painkillers. They obviously tell u the things that could happen post op…infection etc. I forgot to ask if mayb I should take antibiotics now…just in case. Of course its Bank
on Rituximab (last single infusion Jan) and had a toe op yesterday to remove pins inserted years ago. Been sent home with painkillers. They obviously tell u the things that could happen post op…infection etc. I forgot to ask if mayb I should take antibiotics now…just in case. Of course its Bank
Evie3
in
NRAS
1 year ago
Do I still have Endometriosis?
This probably sounds bizarre and silly but I'm struggling with the concept that my endometriosis is back or never went away in the first place. I had excision surgery back in 2021 and was it success. Doctor said he got rid of it all and he wouldn't see me again. I took this to mean I had Endometriosis
This probably sounds bizarre and silly but I'm struggling with the concept that my endometriosis is back or never went away in the first place. I had excision surgery back in 2021 and was it success. Doctor said he got rid of it all and he wouldn't see me again. I took this to mean I had Endometriosis
Rock-Cat
in
Endometriosis UK
1 year ago
leg weakness with prolapse
Hi. I have been suffering from incontinence back pain, weak legs, very painful to have sex for years at least 12 if not more. I was always very fit. I have two sons who I played squash with swam 100 lengths of our local pool every morning before going to work in my full time job where I lifted heavy
Hi. I have been suffering from incontinence back pain, weak legs, very painful to have sex for years at least 12 if not more. I was always very fit. I have two sons who I played squash with swam 100 lengths of our local pool every morning before going to work in my full time job where I lifted heavy
01269JJ
in
Pelvic Pain Support Network
1 year ago
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Feeling rubbish
Causing numbess &
pain
. Chronic
pain
syndrome. Cfs/fybro/me.
Arthritis
in some joints. Basically feel rubbish all the time. I have underactive thyroid,high cholesterol & high blood pressure on meds for all.
Causing numbess &
pain
. Chronic
pain
syndrome. Cfs/fybro/me.
Arthritis
in some joints. Basically feel rubbish all the time. I have underactive thyroid,high cholesterol & high blood pressure on meds for all.
bellemia
in
Thyroid UK
4 days ago
Hot flashes?
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Merryfield
in
PMRGCAuk
1 year ago
Support letter from rheumatologist, for ill health retirement for fibromyalgia and depression.
Hi , Im 56 years old and have had fibromyalgia for 20 years , I was diagnosed 11 years ago by a rheumatologist in Sheffield . I am a teacher and over the last 7 years I have had reasonable work adjustments made , in addition to reducing my working hours to 15 hours a week, 5 mornings only. Since the
Hi , Im 56 years old and have had fibromyalgia for 20 years , I was diagnosed 11 years ago by a rheumatologist in Sheffield . I am a teacher and over the last 7 years I have had reasonable work adjustments made , in addition to reducing my working hours to 15 hours a week, 5 mornings only. Since the
RaniM
in
Fibromyalgia Action UK
1 year ago
trying to get a diagnosis for fibromialgia
Hi I'm suffering with aches and pains daily .....doctors refuse to say I have fibromialgia I've even seen a specialist which told me I don't because I didn't have any pain when she lifted my leg that was all she did to come to that conclusion. I'm fed up with the pains etc I've been feeling down I go
Hi I'm suffering with aches and pains daily .....doctors refuse to say I have fibromialgia I've even seen a specialist which told me I don't because I didn't have any pain when she lifted my leg that was all she did to come to that conclusion. I'm fed up with the pains etc I've been feeling down I go
eggbox1970
in
Fibromyalgia Action UK
1 year ago
Can you 'demand' Tocilizumab for GCA?
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
tweety_pie
in
PMRGCAuk
1 year ago
Stinging in outer foot area - Nerve pain
Hi, I have had this pain for all of this year, it starts whenever my foot isn't pressing on the ground, eg when I am relaxing in recliner with feet up or even sitting in a chair, it very rarely eases.I am a diabetic type 2, with year on dropping numbers but still needs improving. I am on full doses of
Hi, I have had this pain for all of this year, it starts whenever my foot isn't pressing on the ground, eg when I am relaxing in recliner with feet up or even sitting in a chair, it very rarely eases.I am a diabetic type 2, with year on dropping numbers but still needs improving. I am on full doses of
greekqueen
in
Pain Concern
1 year ago
My PMR Journey so far
The condition started with a stiff neck and in early February I experienced a lot of pain in my upper arms, a great deal of stiffness and loss of energy and strength. It took a few weeks to get to see a GP and initially he only prescribed painkillers. I eventually got Prednisone prescribed after a second
The condition started with a stiff neck and in early February I experienced a lot of pain in my upper arms, a great deal of stiffness and loss of energy and strength. It took a few weeks to get to see a GP and initially he only prescribed painkillers. I eventually got Prednisone prescribed after a second
Cricket47
in
PMRGCAuk
1 year ago
Tocilizumab
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
BlueMozart
in
PMRGCAuk
1 year ago
Medical Cannabis?
Has anyone tried medical cannabis for
pain
relief? I have severe
arthritis
which limits my life quite a lot, my doctor won’t refer me for knee replacement until I lose more weight, and being on Rux has meant more weight gain! Obviously will need to ask haematologist about.
Has anyone tried medical cannabis for
pain
relief? I have severe
arthritis
which limits my life quite a lot, my doctor won’t refer me for knee replacement until I lose more weight, and being on Rux has meant more weight gain! Obviously will need to ask haematologist about.
lizzziep
in
MPN Voice
2 months ago
ET related fatigue
Hi my husband is 50 and was diagnosed with ET in January 2023 due to high platelets (917). He is overweight a little but other than that he does not have any other risk factors. All other bloods have come back normal. He is taking daily aspirin. We live in the UK. Since around September 2022 (prior
Hi my husband is 50 and was diagnosed with ET in January 2023 due to high platelets (917). He is overweight a little but other than that he does not have any other risk factors. All other bloods have come back normal. He is taking daily aspirin. We live in the UK. Since around September 2022 (prior
Morris941
in
MPN Voice
1 year ago
Off topic. In Wales visiting sister 😄
Well now on new pain killers and patch I decided time to go away. We are in chilly but sunny Wales visiting my sister. It's done us both a world of good! Menorca booked for end of may too! Last day today but we'll be back 😉😎😎
Well now on new pain killers and patch I decided time to go away. We are in chilly but sunny Wales visiting my sister. It's done us both a world of good! Menorca booked for end of may too! Last day today but we'll be back 😉😎😎
Haz58
in
NRAS
1 year ago
gardenergirl1947
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Gardenergirl1947
in
PMRGCAuk
1 year ago
Hysterectomy, Oophorectomy or neither?
Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl treatment last year & yet here I am back to square 1 but now perimenopausal for real & in a dilemma. Have a 5cm endometrioma on left ovary with
Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl treatment last year & yet here I am back to square 1 but now perimenopausal for real & in a dilemma. Have a 5cm endometrioma on left ovary with
AilsS
in
Endometriosis UK
1 year ago
update on flare versus muscle pain contd
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
sewinggranny
in
PMRGCAuk
1 year ago
cancer has invaded the bowel
Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has never given me a reason for this extremely uncomfortable and inconvenient problem. Recently cancerous nodules were found on my bladder wall and
Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has never given me a reason for this extremely uncomfortable and inconvenient problem. Recently cancerous nodules were found on my bladder wall and
Pippasandy
in
My Ovacome
1 year ago
heart palpitations anxiety
hey guys. Me again, sorry to bother and ramble on, the past 3 days I’ve been having a few heart palpitations a day. Now I did phone my doctors and they told me this didn’t sound serious and it was normal. They said if the palpitations were regular every few minutes it would be a concern. I get 2 or 3
hey guys. Me again, sorry to bother and ramble on, the past 3 days I’ve been having a few heart palpitations a day. Now I did phone my doctors and they told me this didn’t sound serious and it was normal. They said if the palpitations were regular every few minutes it would be a concern. I get 2 or 3
Littlechopsxo
in
Anxiety and Depression Support
1 year ago
RA reaction to medication would like general advice on how to manage RA
Hello, I’ve had a reaction to medication I was on for an over active thyroid, which has given me RA symtoms, came on very suddenly so hoping it will eventually clear (have read can take 3/4 weeks). Have been referred to a rheumatoid specialist but apparently it might take months for an appointment. I
Hello, I’ve had a reaction to medication I was on for an over active thyroid, which has given me RA symtoms, came on very suddenly so hoping it will eventually clear (have read can take 3/4 weeks). Have been referred to a rheumatoid specialist but apparently it might take months for an appointment. I
Abimilne
in
NRAS
1 year ago
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