Search
Search
About
Log in
Join
Experiences with
Arthritis pain
Posts
Communities
16,297 public posts
Filter results
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
2 months ago
Am I right to suspect endometriosis and ask to see a private specialist?
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
pinkie25
in
Endometriosis UK
3 months ago
Why don’t my Family understand what Fibro does to me?
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Tisme72
in
Fibromyalgia Action UK
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pain Relief that isn’t opiate based. Help!
My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction so I am now too scared to have any opiate based painkillers. Has anyone found any other pain relief that works and doesn’t slow the bowel?
My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction so I am now too scared to have any opiate based painkillers. Has anyone found any other pain relief that works and doesn’t slow the bowel?
Littlefluffycloud
in
My Ovacome
3 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
3 months ago
Fibromyalgia and Osteoarthritis
Good morning, hope you are all as well as can be. Can anyone tell me if they suffer from both fibromyalgia and osteoarthritis? I was diagnosed fibromyalgia early this year but have now been referred back to Rheumatology due to swelling and ongoing stiffness in my joints. I also suffer with groin pain
Good morning, hope you are all as well as can be. Can anyone tell me if they suffer from both fibromyalgia and osteoarthritis? I was diagnosed fibromyalgia early this year but have now been referred back to Rheumatology due to swelling and ongoing stiffness in my joints. I also suffer with groin pain
Marieg1270
in
Fibromyalgia Action UK
9 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
3 months ago
Chronic pain after PID - anyone with experience?
Hi I was treated for PID but the pain got worse again after treatment. No STI, all swabs came back negative. Was seen by the gynaecologist in A&E and they said the infection is gone as I have normal blood tests and ultrasound scan. I’m now having constant pain whereas 3 weeks ago it was just on/off
Hi I was treated for PID but the pain got worse again after treatment. No STI, all swabs came back negative. Was seen by the gynaecologist in A&E and they said the infection is gone as I have normal blood tests and ultrasound scan. I’m now having constant pain whereas 3 weeks ago it was just on/off
Wasabigirl
in
Pelvic Pain Support Network
3 months ago
A reply to Wasabigirl’s post about PID (?) which has since been deleted
You could ask for an MRI of the lower pelvis and muscles there. A sonogram generally cant see those areas (nor a laparoscopy or laparotomy) and pain in those areas can refer to the groin. I had an infection and was only treated with tetracycline for 5 days (many years ago). Then the terrible burning
You could ask for an MRI of the lower pelvis and muscles there. A sonogram generally cant see those areas (nor a laparoscopy or laparotomy) and pain in those areas can refer to the groin. I had an infection and was only treated with tetracycline for 5 days (many years ago). Then the terrible burning
Standup808
in
Pelvic Pain Support Network
3 months ago
Fibromyalgia similar symptoms.
I have fibromyalgia for years, and was born with scoliosis. I found a lot of the symptoms I have were put down to fybro. So nothing more was done. I had infections all year round and for pain and other symptoms were put on all. Acid. Sorry can say the word so can't spell it. Anyway my husband died and
I have fibromyalgia for years, and was born with scoliosis. I found a lot of the symptoms I have were put down to fybro. So nothing more was done. I had infections all year round and for pain and other symptoms were put on all. Acid. Sorry can say the word so can't spell it. Anyway my husband died and
mag123ben
in
MPN Voice
3 months ago
Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
Is it PMR?
Hi. Diagnosed with PMR several years ago and had flare ups along the way. GP trying to reduce prednisolone dosage again, currently about to go down to 8mg. which isn't touching the pain. However I'm now wondering if in fact I have fibromyalgia. I've been doing some research on Dr Google and have just
Hi. Diagnosed with PMR several years ago and had flare ups along the way. GP trying to reduce prednisolone dosage again, currently about to go down to 8mg. which isn't touching the pain. However I'm now wondering if in fact I have fibromyalgia. I've been doing some research on Dr Google and have just
Everett19
in
PMRGCAuk
3 months ago
Statin and very bad calf pain in right leg
My husband took 10mg Atorvastatin for the first time 2 weeks ago. then a couple of days ago be got terrible calf cramp feeling in right leg which only eases with painkillers and rest. He is hobbling around. He saw the doc today who said it could be a clot and has referred him for a scan. He is normally
My husband took 10mg Atorvastatin for the first time 2 weeks ago. then a couple of days ago be got terrible calf cramp feeling in right leg which only eases with painkillers and rest. He is hobbling around. He saw the doc today who said it could be a clot and has referred him for a scan. He is normally
Catloveruk
in
Fibromyalgia Action UK
3 months ago
arthritis
having cervicogenic headaches from arthritis in neck. Any painkillers better than paracetamol that we can safely take? Thanks again.
having cervicogenic headaches from arthritis in neck. Any painkillers better than paracetamol that we can safely take? Thanks again.
Lindaj754
in
AF Association
7 months ago
Lanzaprozole and magnesium deficiency
Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After a very gradual taper, I have now completed 13 months without prednisolone, and, fingers crossed, the GCA is still quiet. I am still having sub-cutaneous
Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After a very gradual taper, I have now completed 13 months without prednisolone, and, fingers crossed, the GCA is still quiet. I am still having sub-cutaneous
Dontwannabesick
in
PMRGCAuk
8 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
2 months ago
Magnesium Supplements to reduce frequency of migraines
I have suffered with migraines for about 7 years now, where I have gone through periods of time where they occur weekly, and other periods where they reduce to monthly. My migraines always start in the base of my neck, travelling up the left side of my head, over my head and then sitting behind my
I have suffered with migraines for about 7 years now, where I have gone through periods of time where they occur weekly, and other periods where they reduce to monthly. My migraines always start in the base of my neck, travelling up the left side of my head, over my head and then sitting behind my
MollyPigs
in
National Migraine Centre
3 months ago
Magnesium Supplements
I have suffered with migraines for about 7 years now, where I have gone through periods of time where they occur weekly, and other periods where they reduce to monthly. My migraines always start in the base of my neck, travelling up the left side of my head, over my head and then sitting behind my
I have suffered with migraines for about 7 years now, where I have gone through periods of time where they occur weekly, and other periods where they reduce to monthly. My migraines always start in the base of my neck, travelling up the left side of my head, over my head and then sitting behind my
MollyPigs
in
Migraine Support
3 months ago
Anti inflammatory painkiller alongside paracetamol?
What anti inflammatory pain killers can I take alongside Paracetamol pls? And it needs to be chewable, crushable or soluble, as I can't swallow tablets!
What anti inflammatory pain killers can I take alongside Paracetamol pls? And it needs to be chewable, crushable or soluble, as I can't swallow tablets!
Bruce67
in
British Heart Foundation
3 months ago
Feeling guilty and ashamed for using pain relief 😢
Currently on a 2 year waiting list for endometriosis removal and hysterectomy. Been dealing with this for over 12 years and I'm done. I work 50 hours plus a week and doing everything i can to keep afloat.After trying every pain medication under the sun, unfortunately the only kind that gives me relief
Currently on a 2 year waiting list for endometriosis removal and hysterectomy. Been dealing with this for over 12 years and I'm done. I work 50 hours plus a week and doing everything i can to keep afloat.After trying every pain medication under the sun, unfortunately the only kind that gives me relief
KM1986
in
Endometriosis UK
3 months ago
1
...
18
19
20
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
NRAS
2788 results
Endometriosis UK
2416 results
Fibromyalgia Action UK
1557 results
View top 10 communities
Sort by
Most Relevant
Newest