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how do you deal with the bad days?
hi all, diagnosed with endo last November after a laparoscopy after about 14 years of symptoms and pain. Even though I’m glad to have the clarity about what the issue is as the uncertainty was awful, some days I just feel so sad and down that this is my future. I still have a lot of pain and especially
hi all, diagnosed with endo last November after a laparoscopy after about 14 years of symptoms and pain. Even though I’m glad to have the clarity about what the issue is as the uncertainty was awful, some days I just feel so sad and down that this is my future. I still have a lot of pain and especially
ar1497
in
Endometriosis UK
3 months ago
Want to tell Rheumy to Jog on Or not
waiting on phone appointment like 5 mins ago. just get letter says as loads of bollocks, basically as CCP and RF neg it's osteo with a bit of inflammation, letter says wants to try cortisone injections and if it helps she'll consider hydroxychloroquine, not what I remembered but I was quite angry.
waiting on phone appointment like 5 mins ago. just get letter says as loads of bollocks, basically as CCP and RF neg it's osteo with a bit of inflammation, letter says wants to try cortisone injections and if it helps she'll consider hydroxychloroquine, not what I remembered but I was quite angry.
Polo22
in
Thyroid UK
3 months ago
So fed up
Hi, I've got osteoarthritis and it's getting to the point where the can't enjoy everyday things. I can't walk far without both hips burning. My ankles aching. Can't pick things up without dropping them. Back aches, neck aches, knee pain and now I can't use my right arm as my shoulder joint is extremely
Hi, I've got osteoarthritis and it's getting to the point where the can't enjoy everyday things. I can't walk far without both hips burning. My ankles aching. Can't pick things up without dropping them. Back aches, neck aches, knee pain and now I can't use my right arm as my shoulder joint is extremely
AngelicUpstart
in
Osteoarthritis Action
3 months ago
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Consultant won’t operate for pain.
Hi All, I hope everyone has had a peaceful weekend! After 20 years of unbearable pelvic pain throughout my period and ovulation and periods so heavy I daren’t leave the house, I was finally deemed ‘old enough’ for a referral to the gynaecologist (I’m 31 and have been told my entire life by medical
Hi All, I hope everyone has had a peaceful weekend! After 20 years of unbearable pelvic pain throughout my period and ovulation and periods so heavy I daren’t leave the house, I was finally deemed ‘old enough’ for a referral to the gynaecologist (I’m 31 and have been told my entire life by medical
Pecanpie11
in
Endometriosis UK
3 months ago
Disappointed and worried
Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year by G.P who started me on 15mg Prednisolone, and a miracle happened. I also explained that unfortunately, I have been unable to successfully reduce
Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year by G.P who started me on 15mg Prednisolone, and a miracle happened. I also explained that unfortunately, I have been unable to successfully reduce
Cooper02
in
PMRGCAuk
3 months ago
Broken right clavicle, 2011, even now shoulder blade pops out, and...
In 2011 I had a seizure, and 'hurt' my shoulder, went down to A&E and had it X-rayed, gave me a couple of pain killers, 'pushed' me off home,🙄 and went back to watching a certain royal wedding, 6 days later, they rang me back telling me to come back, showed me the x-ray and indeed had broken clavicle
In 2011 I had a seizure, and 'hurt' my shoulder, went down to A&E and had it X-rayed, gave me a couple of pain killers, 'pushed' me off home,🙄 and went back to watching a certain royal wedding, 6 days later, they rang me back telling me to come back, showed me the x-ray and indeed had broken clavicle
Adlon57
in
Bone Health and Osteoporosis UK
3 months ago
RA in jaw
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!👍
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!👍
Mybirthday1975
in
NRAS
6 months ago
My father died after spending 2 weeks in a coma due severe sepsis and multi organ failure. I love him so much.
He spent a week in ICU at his local hospital where he was extremely poorly and he briefly stopped breathing during a routine nursing manoeuvre, but recovered by himself without any resuscitation it was then when they put him into coma (intubated and given propofol and fentanyl) and moved him to an ICU
He spent a week in ICU at his local hospital where he was extremely poorly and he briefly stopped breathing during a routine nursing manoeuvre, but recovered by himself without any resuscitation it was then when they put him into coma (intubated and given propofol and fentanyl) and moved him to an ICU
Pluto8
in
ICUsteps
3 months ago
Could pain under my ribs be endometriosis?
Hi, firstly thank you for your help I feel like reading some of these threads I finally feel like I may have an answer and feel slightly less like I am going mad! I have been experiencing pain under my ribs, my arms and right shoulder/ back for around 8 months now. This is worse when I eat cheese or
Hi, firstly thank you for your help I feel like reading some of these threads I finally feel like I may have an answer and feel slightly less like I am going mad! I have been experiencing pain under my ribs, my arms and right shoulder/ back for around 8 months now. This is worse when I eat cheese or
Pastamiss
in
Endometriosis UK
3 months ago
Working with Inflammatory Arthritis - 20th November Group Zoom Meeting
Our next JoinTogether Working with Inflammatory Arthritis meeting will be on
20th November via Zoom from 6pm to 7.30pm.
This is all about helping each other understand the challenges of trying to work with Inflammatory Arthritis, possible solutions, how to talk to your employer, get back to
Our next JoinTogether Working with Inflammatory Arthritis meeting will be on
20th November via Zoom from 6pm to 7.30pm.
This is all about helping each other understand the challenges of trying to work with Inflammatory Arthritis, possible solutions, how to talk to your employer, get back to
karenf-NRAS
Administrator
in
NRAS
9 months ago
Need Relief
I have been experiencing pancreatic pain for 6 mos now. Have been to the ED 5 times in that time period. I thought I knew what pain was with my lower back issues - but I was unfortunately mistaken. During these acute pancreatic episodes - the best way to describe the pain is to say that I was out of
I have been experiencing pancreatic pain for 6 mos now. Have been to the ED 5 times in that time period. I thought I knew what pain was with my lower back issues - but I was unfortunately mistaken. During these acute pancreatic episodes - the best way to describe the pain is to say that I was out of
TVspike
in
Chronic Pancreatitis Support
3 months ago
Effective pain relief
Hi all,I was diagnosed with endometriosis back in December 2023 they ablated it during the laproscopy I recovered well but now I am back in a lot of pain :( I get the pain mostly in my pelvic area and right flank. I started to think the right flank pain was maybe coming from my kidney as I've had issues
Hi all,I was diagnosed with endometriosis back in December 2023 they ablated it during the laproscopy I recovered well but now I am back in a lot of pain :( I get the pain mostly in my pelvic area and right flank. I started to think the right flank pain was maybe coming from my kidney as I've had issues
Dellz1996
in
Endometriosis UK
3 months ago
Don't know what to do?
Hi all, I'm 41 and never had painful periods up until 2 periods ago. The awful pain is everyday not just on my period so I feel like I've got period cramps all day every day. Some day I'm ok and pain free maybe 2 a week. I had a vaginal ultrasound and only showed a small fibroid it had reduced from
Hi all, I'm 41 and never had painful periods up until 2 periods ago. The awful pain is everyday not just on my period so I feel like I've got period cramps all day every day. Some day I'm ok and pain free maybe 2 a week. I had a vaginal ultrasound and only showed a small fibroid it had reduced from
Contra21
in
Endometriosis UK
3 months ago
New to RA /methotrexate looking for advice.
Been diagnosed with rheumatoid arthritis a few weeks ago and starting methotrexate tomorrow which I’m starting on 10mg for 2 weeks then 15mg for 2 weeks then 20mg from there, also 5mg of folic acid the other six days and 5mg of prednisone for now but reducing it. Do I need to worry about anything ?
Been diagnosed with rheumatoid arthritis a few weeks ago and starting methotrexate tomorrow which I’m starting on 10mg for 2 weeks then 15mg for 2 weeks then 20mg from there, also 5mg of folic acid the other six days and 5mg of prednisone for now but reducing it. Do I need to worry about anything ?
Alan7690
in
NRAS
9 months ago
introduction
Good afternoon, my name is Dori1 and I’ve just joined the forum to learn a little bit more. I don’t live in the UK, I live in Spain. Iv’e been reading your experiences and I’d like to share my journey so far. I went to my GP in the middle of February with a pain under my right arm moving to my rib
Good afternoon, my name is Dori1 and I’ve just joined the forum to learn a little bit more. I don’t live in the UK, I live in Spain. Iv’e been reading your experiences and I’d like to share my journey so far. I went to my GP in the middle of February with a pain under my right arm moving to my rib
Dori1
in
British Heart Foundation
3 months ago
Work and Endo/Adeno
A little advice needed: I left my job back in January due to symptoms being at a point hat I wasn't fit to go to work, and being a high-stress job I wonder if that exacerbated my symptoms....? On the road most of the day, sales environment, 50hrs a week, pressure to hit targets, male dominated (so a
A little advice needed: I left my job back in January due to symptoms being at a point hat I wasn't fit to go to work, and being a high-stress job I wonder if that exacerbated my symptoms....? On the road most of the day, sales environment, 50hrs a week, pressure to hit targets, male dominated (so a
fed_up_of_endo
in
Endometriosis UK
3 months ago
pain killers
I am now on 4 mg on a very slow taper and a low blow has knocked me sideways - sciatica /, sacroilliac origin of some form yet to be confirmed but agonising pain. I am aware of the non compatibility of some pain killers but I can't sleep or walk with this pain. What is the strongest one advisable? Yes
I am now on 4 mg on a very slow taper and a low blow has knocked me sideways - sciatica /, sacroilliac origin of some form yet to be confirmed but agonising pain. I am aware of the non compatibility of some pain killers but I can't sleep or walk with this pain. What is the strongest one advisable? Yes
Trovatello
in
PMRGCAuk
3 months ago
Pain and frustration 😟
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Pangolin43
in
PMRGCAuk
7 months ago
starting Romosozumab soon
I am new to this forum and have just been reading the wealth of information about osteoporosis.. Thank god for what a wonderful group I can learn from. T12 fracture in Feb then 4 more lumbar fractures in March 30th 2024. My GP whom is just the best ever contacted an endocrinologist and he suggested
I am new to this forum and have just been reading the wealth of information about osteoporosis.. Thank god for what a wonderful group I can learn from. T12 fracture in Feb then 4 more lumbar fractures in March 30th 2024. My GP whom is just the best ever contacted an endocrinologist and he suggested
234me
in
Bone Health and Osteoporosis UK
3 months ago
Misoprostol medical miscarriage. Constant cramping.
I had Misoprostol medical induced miscarriage on Monday 8th. I had 4 hours of heavy bleeding and extreme cramps on the Monday. Then Tuesday, weds and Thurs I felt physically fine. Then Friday morning in the middle of the night I woke up with extreme cramps again. Not as bad as Monday. But bad enough
I had Misoprostol medical induced miscarriage on Monday 8th. I had 4 hours of heavy bleeding and extreme cramps on the Monday. Then Tuesday, weds and Thurs I felt physically fine. Then Friday morning in the middle of the night I woke up with extreme cramps again. Not as bad as Monday. But bad enough
Trex123
in
Fertility Network UK
3 months ago
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