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Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome"
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
Temporal Biopsy Update
Just to give an update on the progress made since initial diagnosis of Temporal
Arteritis
by GP three weeks ago.
Just to give an update on the progress made since initial diagnosis of Temporal
Arteritis
by GP three weeks ago.
anniekins1
in
PMRGCAuk
3 years ago
Which way to go when its difficult to get someone to discuss anxieties about proposed treatment?
I have been on prednisolone since May last years, starting at 60mg and slowly reducing to today 6mg as I developed giant cell
arteritis
. It is proposed to move me from the steriods to Azathioprine in order to help my kidneys, as I also have chronic kidney disease besides CLL.
I have been on prednisolone since May last years, starting at 60mg and slowly reducing to today 6mg as I developed giant cell
arteritis
. It is proposed to move me from the steriods to Azathioprine in order to help my kidneys, as I also have chronic kidney disease besides CLL.
sandyandtweed
in
CLL Support
3 years ago
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Final stages of tapering
New to this forum! I am an otherwise healthy 67 year old male (apart from some osteoarthritis), who has experienced GCA and PMR over the past two years. During the GCA phase, my prednisone dose was 55 mg/d. I have been tapering down fairly successfully, until recently. I am now at 2 mg/d, but experiencing
New to this forum! I am an otherwise healthy 67 year old male (apart from some osteoarthritis), who has experienced GCA and PMR over the past two years. During the GCA phase, my prednisone dose was 55 mg/d. I have been tapering down fairly successfully, until recently. I am now at 2 mg/d, but experiencing
Marinescience
in
PMRGCAuk
3 years ago
Should I see the doctor?
I've recently had a blood test as I've be diagnosed with rheumatoid arthritis. I'm on medication for that but I have pain in my ankles that the medication doesn't seem to be helping. The blood test checked many things including my thyroid levels: TSH. 1.3. 0.27 - 4.20 T4 Total 67.9 66-181 FT4 11.6
I've recently had a blood test as I've be diagnosed with rheumatoid arthritis. I'm on medication for that but I have pain in my ankles that the medication doesn't seem to be helping. The blood test checked many things including my thyroid levels: TSH. 1.3. 0.27 - 4.20 T4 Total 67.9 66-181 FT4 11.6
HermitageGardens
in
Thyroid UK
3 years ago
Butterfingers! Feeling frustrated and poor.
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
Hidden
in
PMRGCAuk
3 years ago
Rheumatoid arthritis
Hi I'm looking to know can I take lansoprazole as I normally did with me starting Methotrexate injection last week I wasn't sure
Hi I'm looking to know can I take lansoprazole as I normally did with me starting Methotrexate injection last week I wasn't sure
Eva9
in
NRAS
3 years ago
Experiencing sleep difficulties? Try cutting out caffeine (coffee, tea, chocolate, cola ...)
https://www.arthritis.org/health-wellness/treatment/treatment-plan/disease-management/food-and-drug-interactions I was looking at the possible interactions of drugs used for rheumatoid arthritis, and noticed that caffeine is contra-indicated with prednisone (and presumably prednisolone). I know that
https://www.arthritis.org/health-wellness/treatment/treatment-plan/disease-management/food-and-drug-interactions I was looking at the possible interactions of drugs used for rheumatoid arthritis, and noticed that caffeine is contra-indicated with prednisone (and presumably prednisolone). I know that
Hidden
in
PMRGCAuk
3 years ago
Take part in a research project in chronic pain and employment
I am a doctoral researcher at Heriot-Watt University. I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis, neuropathies) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in
I am a doctoral researcher at Heriot-Watt University. I am looking to understand the employment experiences of people living with chronic pain -associated or not to other conditions (eg. fibromyalgia, arthritis, neuropathies) in Scotland. Please, see my attached flyer. Get in touch directly. Thanks in
chronicpainSTEM
Researcher
in
Pain Concern
3 years ago
GCA/PMR
https://www.bbc.co.uk/programmes/articles/5qMFMJMZW5cZfRfBfwdcFqP/what-is-giant-cell-
arteritis
-and-how-can-i-recognise-it
https://www.bbc.co.uk/programmes/articles/5qMFMJMZW5cZfRfBfwdcFqP/what-is-giant-cell-
arteritis
-and-how-can-i-recognise-it
Liby57
in
PMRGCAuk
3 years ago
Expected duration on pred for PMR and CGA patients
[i]"Treatment Patterns, Disease Burden, and Outcomes in Patients with Giant Cell
Arteritis
and Polymyalgia Rheumatica: A Real-World, Electronic Health Record-Based Study of Patients in Clinical Practice"[/i] Or Claire Barnard's summary of the study?
[i]"Treatment Patterns, Disease Burden, and Outcomes in Patients with Giant Cell
Arteritis
and Polymyalgia Rheumatica: A Real-World, Electronic Health Record-Based Study of Patients in Clinical Practice"[/i] Or Claire Barnard's summary of the study?
Joydeck
in
PMRGCAuk
3 years ago
Carrie Ann Inaba "Sjogren's syndrome, lupus, fibromyalgia, rheumatoid arthritis, "and I have the markers for antiphospholipid syndrome' "
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
https://www.medpagetoday.com/blogs/celebritydiagnosis/92417
Piscesdreamer
in
LUPUS UK
3 years ago
Falling over issues.
Morning all, I have fybro, rheumatoid arthritis, and arthritis but appear to be falling over often and breaking bones. I am 53 and it's getting me down. Does anyone else suffer with this? Thank you for any opinions and advice in advance.
Morning all, I have fybro, rheumatoid arthritis, and arthritis but appear to be falling over often and breaking bones. I am 53 and it's getting me down. Does anyone else suffer with this? Thank you for any opinions and advice in advance.
S21lyb
in
Fibromyalgia Action UK
3 years ago
Wooried about running ??
I have never run before so slightly worried about my knees. I think i have mild arthritis, so concerned it will get worse if i do the Couch to 5 k I'm 67 female, with no health issues and not on any meds Anyone have any tips, as i really want to do this Thanks in advance Eve
I have never run before so slightly worried about my knees. I think i have mild arthritis, so concerned it will get worse if i do the Couch to 5 k I'm 67 female, with no health issues and not on any meds Anyone have any tips, as i really want to do this Thanks in advance Eve
EveJ54
in
Couch to 5K
3 years ago
rheumatoid arthritis
Hi I am new here, I was just referred to a Rheumatologist because my rhfactor came back at 32 and my ana test was 320 but all other tests were normal. Is this similar to anyone else? My doctor thinks I have rheumatoid arthritis
Hi I am new here, I was just referred to a Rheumatologist because my rhfactor came back at 32 and my ana test was 320 but all other tests were normal. Is this similar to anyone else? My doctor thinks I have rheumatoid arthritis
Hurting2012
in
NRAS
3 years ago
15Years......
After 15 and countless Rheumatologist I have been diagnosed with Psoriatic Arthritis. I now being screened to go on a Biological. Let’s hope I finally get some relief.
After 15 and countless Rheumatologist I have been diagnosed with Psoriatic Arthritis. I now being screened to go on a Biological. Let’s hope I finally get some relief.
LesJames
in
Beyond Psoriasis
3 years ago
Arthritis
I have arthritis all over and now in my back. My dr. Wants me to see a Reumatologist to check for Rheumatoid Arthritis. How different would treat be if it is RA? I have Hughes syndrome and hypothyroidism also. Thanks My sister has RA is that hereditary?
I have arthritis all over and now in my back. My dr. Wants me to see a Reumatologist to check for Rheumatoid Arthritis. How different would treat be if it is RA? I have Hughes syndrome and hypothyroidism also. Thanks My sister has RA is that hereditary?
Nanny23
in
Pain Concern
3 years ago
Undifferentiated Inflammatory arthritis here to stay and methotrexate looming..very unsure...anybody have any experience?
Hello. I hope it‘s ok to post here. I feel a bit homeless with my diagnosis of persistent undifferentiated inflammatory arthritis for now. Initially the rheumatologist said he thought it would likely remit, now he says he thinks it is here to stay but sadly not enough evidence to give a firm diagnosis
Hello. I hope it‘s ok to post here. I feel a bit homeless with my diagnosis of persistent undifferentiated inflammatory arthritis for now. Initially the rheumatologist said he thought it would likely remit, now he says he thinks it is here to stay but sadly not enough evidence to give a firm diagnosis
Hidden
in
NRAS
3 years ago
Rheumatoid arthritis
Hi I'm new here I was with my rheumatologist today who will be putting me on methotrexate injection Question is I got a steroid injection for RA today I'm looking to know if anyone would know if its advisable to get the covid vaccine 6 days after this jab my rheumatology told me to get the vaccine
Hi I'm new here I was with my rheumatologist today who will be putting me on methotrexate injection Question is I got a steroid injection for RA today I'm looking to know if anyone would know if its advisable to get the covid vaccine 6 days after this jab my rheumatology told me to get the vaccine
Eva9
in
NRAS
3 years ago
Newly diagnosed /First Post
I have been suffering from Rheumatoid arthritis for 15 years and was recently told that I also have Polymalgia overlap. Last week I was told that in addition to that I have Fibromyalgia. In truth I have never felt so unwell. Obviously I have had chronic muscle and joint pain for a long time which I have
I have been suffering from Rheumatoid arthritis for 15 years and was recently told that I also have Polymalgia overlap. Last week I was told that in addition to that I have Fibromyalgia. In truth I have never felt so unwell. Obviously I have had chronic muscle and joint pain for a long time which I have
Painful2021
in
Fibromyalgia Action UK
3 years ago
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