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Covid
Now that visiting is allowed in hospitals would it still considered very risky for myself to visit a relative in hospital. I have RA and on abatacept and methotrexate.
Now that visiting is allowed in hospitals would it still considered very risky for myself to visit a relative in hospital. I have RA and on abatacept and methotrexate.
jayne17
in
NRAS
1 year ago
Has anyone got any experience in coming off Tocilizumab to start on Methotrexate?
I have been on Tocilizumab since August 2021 but the funding for this is being withdrawn. I have been off steroids now for over 2 months so without the Toci I have nothing to ward off any flare-up of GCA. Due to being relatively asymptomatic before diagnosis and losing sight in one eye very quickly rheumatology
I have been on Tocilizumab since August 2021 but the funding for this is being withdrawn. I have been off steroids now for over 2 months so without the Toci I have nothing to ward off any flare-up of GCA. Due to being relatively asymptomatic before diagnosis and losing sight in one eye very quickly rheumatology
sequeluk
in
PMRGCAuk
1 year ago
Over 2 years on Steroids?
Over 2 years ago I was diagnosed with Temporal
Arteritis
. Treatment was 75mg of Steroids a day! Now that was a very strange time on how my body reacted to it?
Over 2 years ago I was diagnosed with Temporal
Arteritis
. Treatment was 75mg of Steroids a day! Now that was a very strange time on how my body reacted to it?
Offcut
in
PMRGCAuk
2 years ago
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taste buds
I have issues about tasting food I find every thing bland or sense of smell too I need spicy and savour food I I have had this before but it got worse and I do have lupus fibromyalgia arthritis Sjogens etc any one else have this issue Would appreciate any input
I have issues about tasting food I find every thing bland or sense of smell too I need spicy and savour food I I have had this before but it got worse and I do have lupus fibromyalgia arthritis Sjogens etc any one else have this issue Would appreciate any input
Mystik
in
LUPUS UK
2 years ago
sciatica
Hi I suffer from arthritis but for the last 4 weeks I've been unable to stand for more than 4 mins at a time before the pain in my leg is so excruciatingly painful that I have to lie down with my legs up. I have diagnosed this as sciatica and when I spoke to my doctor she agrees with me but as I have
Hi I suffer from arthritis but for the last 4 weeks I've been unable to stand for more than 4 mins at a time before the pain in my leg is so excruciatingly painful that I have to lie down with my legs up. I have diagnosed this as sciatica and when I spoke to my doctor she agrees with me but as I have
Cutoff
in
Arthritis Action
2 years ago
FORESTIER’S DISEASE / DISH
hi I’m just wondering if anyone has been diagnosed with this condition it is a type of arthritis of the tendons and ligaments.
hi I’m just wondering if anyone has been diagnosed with this condition it is a type of arthritis of the tendons and ligaments.
Gwelos
in
PBC Foundation
2 years ago
rheumatoid arthritis question
how do they test to know if the medication is working or if the disease has gone into remission or getting worse, is the only way MRI…thanks
how do they test to know if the medication is working or if the disease has gone into remission or getting worse, is the only way MRI…thanks
remission
in
NRAS
1 year ago
Rheumy increased pred from 4 to 40 mgs
down to 4 mgs of pred (after 6 yrs of pred started 40 in Oct 2016) started to get what appeared to be some GCA symtpons, after all this time, tender, bruised scalp and temple feeling, jaw tightness and pain on and off, I called rheumy, immediately put me up to 40 and booked ultrasound , for temporal
arteritis
down to 4 mgs of pred (after 6 yrs of pred started 40 in Oct 2016) started to get what appeared to be some GCA symtpons, after all this time, tender, bruised scalp and temple feeling, jaw tightness and pain on and off, I called rheumy, immediately put me up to 40 and booked ultrasound , for temporal
arteritis
arvine
in
PMRGCAuk
1 year ago
Pmr v arthritis
I have been on Presdone since September 21. Started on 15mg and tapered down to 1mg. I have severe arthritis in hip and am awaiting hip replacement. Anyway the last few weeks I have been getting terrible pain in both thighs but thought it was down to the arthritis. I have now got mild pain back in my
I have been on Presdone since September 21. Started on 15mg and tapered down to 1mg. I have severe arthritis in hip and am awaiting hip replacement. Anyway the last few weeks I have been getting terrible pain in both thighs but thought it was down to the arthritis. I have now got mild pain back in my
Holycow2
in
PMRGCAuk
2 years ago
Knee pain
Hey I was just wondering if anybody has any suggestions on how to deal with knee pain with rheumatoid arthritis I seem to be getting it really bad at the moment Thank you
Hey I was just wondering if anybody has any suggestions on how to deal with knee pain with rheumatoid arthritis I seem to be getting it really bad at the moment Thank you
Moulinr
in
NRAS
1 year ago
Request - Reco for excellent haematologists in Portugal
I have Polycythemia Vera further complicated by Giant Cell
ARTERITIS
. I am on Hydroxyurea dose of 500 mg and and a prednisolone dose of 2.5 mg ……. and stable at the moment with both my monsters. You may please reply privately to me in case reco are not acceptable on this group. Thankyou
I have Polycythemia Vera further complicated by Giant Cell
ARTERITIS
. I am on Hydroxyurea dose of 500 mg and and a prednisolone dose of 2.5 mg ……. and stable at the moment with both my monsters. You may please reply privately to me in case reco are not acceptable on this group. Thankyou
Iwillwin123
in
MPN Voice
2 years ago
15-minute anonymous survey to help better understand issues affecting adults with arthritis
Are you aged 18+ with any type of arthritis, rheumatic or musculoskeletal condition? Please take part in this 15-minute survey to help Arthur's Place, JIA and The Wren Project understand some of the issues that matter most to you. The survey is completely anonymous and each participant has the chance
Are you aged 18+ with any type of arthritis, rheumatic or musculoskeletal condition? Please take part in this 15-minute survey to help Arthur's Place, JIA and The Wren Project understand some of the issues that matter most to you. The survey is completely anonymous and each participant has the chance
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Normal imaging and blood
Sometimes I wish that an ultra sound or MRI or some sort of imaging would show that my joints and tendons are inflamed. Or that my blood would be off. Everything is always normal except for signs of osteoarthritis on X-rays. I have had this soreness for four years now. Firstly diagnosed with fibromyalgia
Sometimes I wish that an ultra sound or MRI or some sort of imaging would show that my joints and tendons are inflamed. Or that my blood would be off. Everything is always normal except for signs of osteoarthritis on X-rays. I have had this soreness for four years now. Firstly diagnosed with fibromyalgia
smilelines
in
NRAS
2 years ago
Covid antibodies. Levels after vaccine.
Covid antibodies after vaccine. level of response . To see if built up any immunity . Could anyone tell me where I can find these result levels please ? Arthritis and Immuno supressed.
Covid antibodies after vaccine. level of response . To see if built up any immunity . Could anyone tell me where I can find these result levels please ? Arthritis and Immuno supressed.
Dottie11
in
NRAS
2 years ago
does Sulasalazine cause urination problems
Hi All, its been a month since my doctor put me on 2 g Sulfasalazine a day for my Palindromic arthritis. I have had no problems taking it so far. but I recently had a mouth ulcer and since yesterday have a very bloated stomach with a constant feeling of wanting to pee but when I go to the toilet, nothing
Hi All, its been a month since my doctor put me on 2 g Sulfasalazine a day for my Palindromic arthritis. I have had no problems taking it so far. but I recently had a mouth ulcer and since yesterday have a very bloated stomach with a constant feeling of wanting to pee but when I go to the toilet, nothing
RASufferer90
in
NRAS
2 years ago
Is it rheumatoid arthritis??
Hi guys ive recently been getting alot of joint pain. Every joint cracks inc my spine. My shoulders and hips are painful with a burning sensation, random bone and nerve pains in limbs, rheumatology appointment months away ... does it sound like RA?
Hi guys ive recently been getting alot of joint pain. Every joint cracks inc my spine. My shoulders and hips are painful with a burning sensation, random bone and nerve pains in limbs, rheumatology appointment months away ... does it sound like RA?
Sholla
in
NRAS
2 years ago
Trochanteric bursitis and tendinopathy
HI, I have seronegative RA and have had both hips replaced due to osteoarthritis (201 5 and 2017) I've had burning and sharp pains in my right hip and thigh on and off since last year and my Rheumatologist referred me to the consultant who did my hip replacements. The result is that I have greater
HI, I have seronegative RA and have had both hips replaced due to osteoarthritis (201 5 and 2017) I've had burning and sharp pains in my right hip and thigh on and off since last year and my Rheumatologist referred me to the consultant who did my hip replacements. The result is that I have greater
Circledancer
in
NRAS
2 years ago
Rhermitode arthritus and covid booster
I have a flare up of arthritis I am due to have my booster next week is it safe
I have a flare up of arthritis I am due to have my booster next week is it safe
Indersisive71
in
NRAS
2 years ago
sinusitis and RA
I have rheumatoid arthritis and am on 15mg of methotrexate weekly. Due to start a bio similar soon. For over a month I have been sneezing and have a runny nose (like half a box of tissues a day runny). At first I thought this was a cold, but now know it has to be somehow allergy related or perhaps a
I have rheumatoid arthritis and am on 15mg of methotrexate weekly. Due to start a bio similar soon. For over a month I have been sneezing and have a runny nose (like half a box of tissues a day runny). At first I thought this was a cold, but now know it has to be somehow allergy related or perhaps a
coralflux
in
NRAS
2 years ago
rheumatoid question
trying to get on the right site, but not having much luck. Any suggestions for someone recently diagnosed with rhuematoid arthritis
trying to get on the right site, but not having much luck. Any suggestions for someone recently diagnosed with rhuematoid arthritis
remission
in
PMRGCAuk
2 years ago
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