Experiences with

Argon plasma coagulation

I thought that today, being World Encephalitis Day, I should finally write the post that I have been meaning to write for months. I can’t believe it’s been six months since my last update, and my oh my how different things are now! A brief recap: my husband was diagnosed with HSE In June 2021. He was

Just received my 5th treatment. Doc saying not seeing the results they expected. Anyone else have this Tx and can give me idea, how many, when you saw results? Will be discussing options with docs Monday after they discuss…IVIG or another IV tx starts with an R (sorry, brain 🧠🙄). New here, trying

Hello everyone, I’m new to the board and wanted to introduce myself. I’m the mother of a 5 year old boy on the long road of recovery from antibody-negative autoimmune encephalitis. A quick summary of our case history: this summer my husband and I started noticing our son’s increasingly odd behavior

Hi all, my brother has been found to have thromobotic microangiopathy (on kidney biopsy) secondary to APS and likely complement dysregulation. He is on dialysis and plasma exchange. Doctors are saying the kidney injury is reversible but will take time. Anyone can throw some light on what to expect as

I am so grateful and blessed to still live ,life , to have a heartbeat , respiration without assistance ,brainwave activity ,swallowing ,talking , walking ,and having the awesome ability to have heartfelt emotions again . I'm recovering from a MYASTHENIA GRAVIS CRISIS .Respiratory Failure ,accompanied

Hello to everyone , I truly missed you .I am so grateful and blessed to still have life .and to live .To have a heartbeat , respiration without assistance , brainwave activity ,to swallow ,to walk ,to talk ,to have the awesome ability to express heartfelt emotions again .If anyone know what it is like

Top 10 Points Patients Should Know About Skin Findings in Antiphospholipid Syndrome 1. What is antiphospholipid syndrome (APS)? Antiphospholipid syndrome (APS) is a systemic autoimmune disorder in which the patient’s immune system makes antibodies that target their own body cells. These antibodies,

Hi. I am one year out, 99% HLAs. It's been a rodeo ride this last year because of my antibodies. This last year I have had 4 Allosure tests and underwent plasmapheresis and Rituxan treatments. The last Allosure shows 2.4 which is a pretty high rejection number. My creatinine has been consistent

HELLO 👋 My University of MI doctor is referring me to see drs at transplant department next month to discuss liver transplant. He stated that my liver is good no chirosis and no scarring. My issue is psoriasis that I have from liver duct bile damage due to PBC. NOTHING tried worked for me including

Hello everyone , I have nuerobehcet's one aspect of which I find most difficult to live with is increasing agitation and irritability . My poor husband is also suffering whilst trying not to annoy me . I am so worried about this problem and the way it is having an impact on our relationship . I find

Hi, I was reccomended this site by a social worker. I'm hoping maybe to find support on here. I'm a 21 year old female, and I've struggled with anxiety pretty much my entire life. About a year ago I was diagnosed with postpartum depression. Soon after, I started getting sick, and on December 3rd, 2019

Hi everyone! Been a long time since I’ve posted. Interesting day today. Saw neuro ophthalmologist today. I have all types of nystagmus. Says it’s probably peripheral vestibular malfunction and maybe something wrong with my ear canals/bones. Wants brain MRI and possible CT angio since I have a small brain

https://medicalxpress.com/news/2020-06-diluting-blood-plasma-rejuvenates-tissue.html "In 2005, University of California, Berkeley, researchers made the surprising discovery that making conjoined twins out of young and old mice—such that they share blood and organs—can rejuvenate tissues and reverse

My 18 years old sun was diagnosed with autoimmune encephalitis from unknown antibody in October 2018. He was getting better very slowly since then after steroids, plasmapheresis and rituximab every six month. He developed a very strong headache two weeks ago, almost after getting up in the mornings,

We are looking for people from the UK who have ANCA Vasculitis and have personal experience of plasma exchange and/or dialysis. This is to help an international research study led by researchers in Canada. If you think you maybe able to put yourself forward as a possible candidate please can you write

I've been asked to go in for a APC in the next few weeks, Dad anyone has this procedure before? What is it for? What is it like and it work? Thanks to anyone who replies. Bob

Hughes Syndrome - December 2019 December 6 saw a second London Bridge terrorist attack, the first in Borough Market, the second on the other end of the bridge – both within a couple of hundred yards of our hospital, both with slashing knives. It is poignant to reflect on the long and colourful history

Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the

Sorry this post has taken so long......A very special belated birthday gift for my precious donor. My birthday was on 15/10/ and I could not have wished for a better more precious gift, one I intend to treasure and look after for the donor for the rest of my days. Hi all, as the title says, sorry for

I AM NERVOUS HAVING PLASMAPHERESIS THIS FRODAY AT NOON 😬 HAS ANYONE ELSE HAD THIS PROCEDURE DONE. I AM BEING REFERRED BY MY UNIVERSITY OF MICHIGAN HEPATOLGIST DUE TO MY SEVERE ITCHING FROM PBC AS THEYVE TRIED PRESCRIBING SEVERAL MEDICATIONS, CREAMS ETC.. NOTHING WORK SO CROSSINGS MY FINGERS AS I HAVE