Experiences with

Argon plasma coagulation

I've been asked to go in for a APC in the next few weeks, Dad anyone has this procedure before? What is it for? What is it like and it work? Thanks to anyone who replies. Bob

Top 10 Points Patients Should Know About Skin Findings in Antiphospholipid Syndrome 1. What is antiphospholipid syndrome (APS)? Antiphospholipid syndrome (APS) is a systemic autoimmune disorder in which the patient’s immune system makes antibodies that target their own body cells. These antibodies,

Hi. I am one year out, 99% HLAs. It's been a rodeo ride this last year because of my antibodies. This last year I have had 4 Allosure tests and underwent plasmapheresis and Rituxan treatments. The last Allosure shows 2.4 which is a pretty high rejection number. My creatinine has been consistent

HELLO 👋 My University of MI doctor is referring me to see drs at transplant department next month to discuss liver transplant. He stated that my liver is good no chirosis and no scarring. My issue is psoriasis that I have from liver duct bile damage due to PBC. NOTHING tried worked for me including

Hello everyone , I have nuerobehcet's one aspect of which I find most difficult to live with is increasing agitation and irritability . My poor husband is also suffering whilst trying not to annoy me . I am so worried about this problem and the way it is having an impact on our relationship . I find

Hi, I was reccomended this site by a social worker. I'm hoping maybe to find support on here. I'm a 21 year old female, and I've struggled with anxiety pretty much my entire life. About a year ago I was diagnosed with postpartum depression. Soon after, I started getting sick, and on December 3rd, 2019

Hi everyone! Been a long time since I’ve posted. Interesting day today. Saw neuro ophthalmologist today. I have all types of nystagmus. Says it’s probably peripheral vestibular malfunction and maybe something wrong with my ear canals/bones. Wants brain MRI and possible CT angio since I have a small brain

https://medicalxpress.com/news/2020-06-diluting-blood-plasma-rejuvenates-tissue.html "In 2005, University of California, Berkeley, researchers made the surprising discovery that making conjoined twins out of young and old mice—such that they share blood and organs—can rejuvenate tissues and reverse

My 18 years old sun was diagnosed with autoimmune encephalitis from unknown antibody in October 2018. He was getting better very slowly since then after steroids, plasmapheresis and rituximab every six month. He developed a very strong headache two weeks ago, almost after getting up in the mornings,

We are looking for people from the UK who have ANCA Vasculitis and have personal experience of plasma exchange and/or dialysis. This is to help an international research study led by researchers in Canada. If you think you maybe able to put yourself forward as a possible candidate please can you write

Hughes Syndrome - December 2019 December 6 saw a second London Bridge terrorist attack, the first in Borough Market, the second on the other end of the bridge – both within a couple of hundred yards of our hospital, both with slashing knives. It is poignant to reflect on the long and colourful history

Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the

Sorry this post has taken so long......A very special belated birthday gift for my precious donor. My birthday was on 15/10/ and I could not have wished for a better more precious gift, one I intend to treasure and look after for the donor for the rest of my days. Hi all, as the title says, sorry for

I AM NERVOUS HAVING PLASMAPHERESIS THIS FRODAY AT NOON 😬 HAS ANYONE ELSE HAD THIS PROCEDURE DONE. I AM BEING REFERRED BY MY UNIVERSITY OF MICHIGAN HEPATOLGIST DUE TO MY SEVERE ITCHING FROM PBC AS THEYVE TRIED PRESCRIBING SEVERAL MEDICATIONS, CREAMS ETC.. NOTHING WORK SO CROSSINGS MY FINGERS AS I HAVE

[i] Hello lovely people, just want to take a moment to thank everyone for sending in their stories, they will all be shared here over the next few weeks - so keep them coming. They are so inspiring. If you'd like to have your story featured here, get in touch on the email at the bottom of this post.

I thought I would like to share the following and welcome people's comments.I briefly was diagnosed with ANCA (formerly Wegeners) Vasculitis which has left me with CKD Stage 3 in 2015 and since then I have been through numerous medications including Plasma Exchange and Chemo,Rituximab and various drugs.I

Hi has anyone had plasma exchange for itchy skin (PBC) Thanks Roz X

Happy to inform all i had a kidney transparent on 26th of june and discharged after one week. Surgery day my chest xray was bad and surgeon refused to do the surgery. That time i was under gone give days of plasma exchange my nephrenology doctor explained to me the risk side of the surgery I said i

Anyone have CAPS or Primary APS with Alveolar Hemorrhage? Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience

My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second