Experiences with

Argon plasma coagulation

I am going to have Argon Plasma coagulation (APC) with application of Purastat . I have been told I may have to have it a few times. I wondered if anybody has any information/experience of this? I also have frequent bowel movements that really affect my quality of life.

Does anyone else have experience of transverse myelitis? In February this year I woke up one morning and could not use my legs. This was quickly followed over 24 hours of a complete shutdown of my body :use of limbs,speech and eventually breathing which meant induced coma for 4 days. At end of coma I

Hi, We saw a new functional medicine doctor who has recommended TPE - Therapeutic Plasma Exchange. Wondering if anyone has tried this route or has any opinions on it. It's very expensive but is something we are considering trying for my husband with Parkinsons. Thoughts? Thank you.

After receiving a couple of units of blood, I underwent argon plasma coagulation. The bleeding has decreased and I am optimistic about that condition. There is another problem that I hope someone can suggest a cause, and maybe a treatment.

Twice in last 6 months I’ve experienced a big change in leg strength. Once after plasma exchange (which lasted about 2/3 months), and again this week after a diet change. The only benefit was that it has made getting up from a seated position extremely easy. Has anyone else experienced this? No other

Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have

That's right, I'd never heard of it either. I posted a while back about blood transfusion therapy: [i]https://healthunlocked.com/amneasier/posts/147591737/anti-ageing-turn-back-the-clock-on-disease-and-all-that.[/i] An excellent post. So good, it garnered no interest at all on here. I still can't

I came across a reference to "functional autoantibodies" in autoimmune diseases, and started going down rabbit holes on the web to see if I could find out more. I came across this paper which mentioned hypothyroidism and hyperthyroidism in the abstract. Title : As per this post Link : https://www.sciencedirect.com

My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis

Hi all , im joining due to a close relative being admitted into hospital with confusion and then going into a nose dive into ICU. Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas

He proposed Plasma Coagulation...100 % confidence and good quality of life...He is top in APC... Should I take the path of APC....??? Any experience of friends .....?? Thanks

Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?

Happy New Year all! Firstly, I want to say sorry in advance to anyone reading this who is having a very difficult encephalitis or post encephalitis time but my thinking is, certainly for any families going through the long horrible journey of encephalitis now, that this might help you look to a potential

Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids  Rituxan infusions June 2022- 6 months later, no response - Repeat Rituxan infusions December December Labs:  ANCA and Scl-70 positive; IgM <25  ESR 93 markedly elevated - ESR Labs: 07/22 through 09/01/22 - "

I was started on these steroids when I was diagnosed with Myasthenia Gravis nine years ago. After a couple of months on doses up to 30mg. My symptoms went away and I was taken off all medication, big mistake. A few months later the MG came back with a vengeance and I was hospitalised for 10 weeks. The

Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious

[u]Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis[/u]? Husband diagnosed with seronegative OMG in 2008 age 38 years. Symptoms of double vision ( Diplopia) and ptosis only over the years. [u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran

Neuromyelitis optica (NMO), also known as Devic's disease, is a rare condition where the immune system damages the spinal cord and the nerves of the eyes (optic nerves), [i]NHS England.[/i] [i][/i] Today, Ashlee shares with is her story with the disease, hoping to inspire others who may be going through

TPE, with blood withdrawn and reinserted without the plasma, has in a small clinical single-arm trial indicated remarkable benefits in markers of various kinds including DNA damage, cellular senescence and immunity (T-cells, B-cells, NK cells). Downside appears limited. It remains to be seen if the

Many questions arise from this paper. Why did these two patients have such an awful time when we see so many others with seemingly worse test results doing far better? Would plasmapheresis help others - even some who don't actually have Hashimoto’s encephalopathy (so far as we can tell)? What