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Waiting for me to die
Just wondering if anyone else has experienced this. Sometimes i get the feeling that friends and family members are waiting for me to die. I was diagnosed stage 4b metastasis in January 2021 and have been on treatment Lupron and Xtandi since April 2021 3 years now. From an outward appearance I don't
Just wondering if anyone else has experienced this. Sometimes i get the feeling that friends and family members are waiting for me to die. I was diagnosed stage 4b metastasis in January 2021 and have been on treatment Lupron and Xtandi since April 2021 3 years now. From an outward appearance I don't
rogerandme
in
Advanced Prostate Cancer
21 days ago
Aquablation with APC
Hi there - does anyone here have experience with an aquablation procedure to improve urinary symptoms? My father is considering it. He has been on doublet therapy for 1.5 years, his PSA recently started to tick up a little. It's been difficult to get a clear answer on whether the procedure poses any
Hi there - does anyone here have experience with an aquablation procedure to improve urinary symptoms? My father is considering it. He has been on doublet therapy for 1.5 years, his PSA recently started to tick up a little. It's been difficult to get a clear answer on whether the procedure poses any
nyc_son
in
Advanced Prostate Cancer
21 days ago
xtandi beginning to fail?
Seven months ago my PSA was 0.06. Three months ago PSA at my URO’s office was 0.11. I asked him if xtandi was beginning to fail me, he would not give me a answer. March 11th PSA at my MO’s office PSA was < 0.1. MO was happy with that number. I get checked again the 25th of this month at my URO. I
Seven months ago my PSA was 0.06. Three months ago PSA at my URO’s office was 0.11. I asked him if xtandi was beginning to fail me, he would not give me a answer. March 11th PSA at my MO’s office PSA was < 0.1. MO was happy with that number. I get checked again the 25th of this month at my URO. I
Echotango51
in
Advanced Prostate Cancer
21 days ago
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New insight into combating drug-resistant prostate cancer
https://www.sciencedaily.com/releases/2024/04/240410112742.htm?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Is there a currently available way to apply this treatment concept? New research sheds light on the significance of the glucocorticoid receptor in drug-resistant prostate cancer
https://www.sciencedaily.com/releases/2024/04/240410112742.htm?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Is there a currently available way to apply this treatment concept? New research sheds light on the significance of the glucocorticoid receptor in drug-resistant prostate cancer
GeorgeGlass
in
Advanced Prostate Cancer
22 days ago
What does it mean?
I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just got diagnosed - Gleason score 8 - and after a new scan they've concluded there's two mets - one in the pelvic lymph node and one in the seminal
I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just got diagnosed - Gleason score 8 - and after a new scan they've concluded there's two mets - one in the pelvic lymph node and one in the seminal
TerribleAtInternet
in
Advanced Prostate Cancer
22 days ago
Oil of Evening Primrose
I had a lumpectomy last May. It was a small ductal carcinoma which was invasive. I went on to have Radiotherapy and started a five year course of Letrozole. I developed bad joint pain and I had a month off to see if the Letrozole was the culprit. It was better but not gone. The oncology nurse suggested
I had a lumpectomy last May. It was a small ductal carcinoma which was invasive. I went on to have Radiotherapy and started a five year course of Letrozole. I developed bad joint pain and I had a month off to see if the Letrozole was the culprit. It was better but not gone. The oncology nurse suggested
Tabbycat64
in
My Breast Cancer Community
22 days ago
PSA, total
Hello. I know this forum is about advanced prostate cancer. I’m really hoping I’m not there yet. I had a RP June 2023 I just got the results from my forth PSA test the first three were a post prostatectomy PSA test and all three were 0.02 this last one was a PSA, total. That’s what the Urologist wanted
Hello. I know this forum is about advanced prostate cancer. I’m really hoping I’m not there yet. I had a RP June 2023 I just got the results from my forth PSA test the first three were a post prostatectomy PSA test and all three were 0.02 this last one was a PSA, total. That’s what the Urologist wanted
Elkguide
in
Advanced Prostate Cancer
22 days ago
Too Many Black Men Dying From Prostate Cancer
No matter what you think about OJ Simpson, you all must agree that too many Black men are dying from prostate cancer. Prostate cancer kills Black men at over 2.4 times the rate that it kills White men. If you want to do something, even if you only have 30 seconds a year and no money to donate, sign
No matter what you think about OJ Simpson, you all must agree that too many Black men are dying from prostate cancer. Prostate cancer kills Black men at over 2.4 times the rate that it kills White men. If you want to do something, even if you only have 30 seconds a year and no money to donate, sign
Darryl
Partner
in
Advanced Prostate Cancer
22 days ago
Rising ALP and declining PSA
Hello. I am on Xtandi as last ditch effort after Zytiga and Pluvicto eventually failed. After starting I have declining PSA but dramatically rising ALP. Any thoughts on what this means? Thanks all.
Hello. I am on Xtandi as last ditch effort after Zytiga and Pluvicto eventually failed. After starting I have declining PSA but dramatically rising ALP. Any thoughts on what this means? Thanks all.
jersy
in
Advanced Prostate Cancer
22 days ago
ADT IS DONE. NEXT?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
rfgh20
in
Advanced Prostate Cancer
23 days ago
Question about tumor markers
Hi there, happy spring to all!! My Mom’s been doing well with trial med in combination with Faslodex monthly. Her blood work has been normal with good liver function. Her tumor marker test (the CA 15-3) test showed in the 350 range. I’m not sure it’s ever been that high but it was in the 150 range
Hi there, happy spring to all!! My Mom’s been doing well with trial med in combination with Faslodex monthly. Her blood work has been normal with good liver function. Her tumor marker test (the CA 15-3) test showed in the 350 range. I’m not sure it’s ever been that high but it was in the 150 range
Pups2Cute
in
SHARE Metastatic Breast Cancer
23 days ago
Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Shorehousejam
in
Advanced Prostate Cancer
23 days ago
New to Men’s Cancer Club
Diagnosed Prostate cancer late January 2024. Gleason 4+3. Localized inside Prostate. Evaluating all options for treatment and diet.
Diagnosed Prostate cancer late January 2024. Gleason 4+3. Localized inside Prostate. Evaluating all options for treatment and diet.
DoubtingTom2
in
Men's Health Forum
23 days ago
Cancer takes another brave man
My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy
My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy
Judymin
in
Advanced Prostate Cancer
23 days ago
Does this mark the beginning of castration resistance?
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Agh-2022
in
Advanced Prostate Cancer
24 days ago
Diet for ADT
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
Worked_the_World
in
Prostate Cancer Network
24 days ago
Diet for duration of ADT?
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
Worked_the_World
in
Advanced Prostate Cancer
24 days ago
Exemestane and Afinitor
Hi everyone I just completed 1 month of Truqap. I had to stop treatment due to a cough and a horrible rash. I had to stay in the ER for 24 hours due to the rash. I am now moving on to Exemestane and Afinitor. I would so appreciate any experience that anyone has had on these 2 meds. I’m mostly interested
Hi everyone I just completed 1 month of Truqap. I had to stop treatment due to a cough and a horrible rash. I had to stay in the ER for 24 hours due to the rash. I am now moving on to Exemestane and Afinitor. I would so appreciate any experience that anyone has had on these 2 meds. I’m mostly interested
Jhshl512
in
SHARE Metastatic Breast Cancer
24 days ago
Are endocrinologists of any help after ADT?
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
Derf4223
in
Advanced Prostate Cancer
24 days ago
Podcast Episode with Abraham Morgentaler, MD about Testosterone and Prostate Cancer
This great podcast, "You are not broken," is by a female urologist, Dr. Kelly Casperson. She often explores misconceptions about hormones. This episode with Dr. Morgentaler takes a fascinating look at the theories about castration and prostate cancer. Spoiler alert: it may shake your confidence in the
This great podcast, "You are not broken," is by a female urologist, Dr. Kelly Casperson. She often explores misconceptions about hormones. This episode with Dr. Morgentaler takes a fascinating look at the theories about castration and prostate cancer. Spoiler alert: it may shake your confidence in the
Chris_Ali
in
Advanced Prostate Cancer
24 days ago
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