Search
Search
About
Log in
Join
Experiences with
Appendix cancer
Posts
Communities
30,206 public posts
Filter results
May be deciding between Afinitor and Enhertu. Thoughts?
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Pbsoup
in
SHARE Metastatic Breast Cancer
6 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
6 months ago
Metastasis Pain
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
reconjj
in
Advanced Prostate Cancer
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
6 months ago
Just been told I have two years to live.
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
Just been told I have two years to live. Male, age 73, Eligard injections, Abiraterone and Predisnone for four and a half years, some radiotherapy. PSA levels initially 69, brought down to 7 by Abiraterone. Suddenly stopped working. Went on Radium 233 trial. Never again, and it didn't work. Since then
ChristopherM123
in
Advanced Prostate Cancer
9 months ago
Ten Months After All Treatments Ended
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
My Oncologist stopped my Eligard injections in October of 2022. My August 2023 bloodwork shows that my testosterone has risen from 2.0 to 10.0 in that time. My PSA was <0.1 ten months ago and is now 0.1 (Canadian units). I know that this cancer is a long game, but given my diagnosis in 2020, I am happy
TottenhamMan
in
Advanced Prostate Cancer
9 months ago
nubequa
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
Question for anyone taking Nubequa. How long did it take to get PSA nondectable… or did it ever reach that low point? My husband began with it & Lupron in January. PSA was 14 and 6 months later only down to 4.3 He does not have a prostate … Journey began in 2017. All clear at time of surgery. Biochemical
JolleySprings
in
Advanced Prostate Cancer
9 months ago
Here we go.......
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
ToolBeltZia
in
Prostate Cancer Network
6 months ago
How to Navigate Prostate Cancers With Actionable Mutations - Grand Rounds Highlights, MedPage Today - 09/26/2023
I'm travelling and using an unfamiliar tablet, so no cut and paste from these linked articles. Note the access to a PDF of the full Grand Rounds paper in the second linked article. It has a useful table and simplified treatment algorithm for those mCRPCa with actionable genetic mutations. [i]
A Roadmap
I'm travelling and using an unfamiliar tablet, so no cut and paste from these linked articles. Note the access to a PDF of the full Grand Rounds paper in the second linked article. It has a useful table and simplified treatment algorithm for those mCRPCa with actionable genetic mutations. [i]
A Roadmap
cujoe
in
Fight Prostate Cancer
7 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
reassurance needed please
I’m a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and haven’t eaten
I’m a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and haven’t eaten
Hannahthom
in
British Liver Trust
6 months ago
Fine needle aspiration 🤔
Hi everyone ❤️ As some will know through my posts, I recently had a diagnosis of primary hyperparathyroidism by a lovely endocrinologist in Liverpool who I'm at present under for this condition. However to get to see this endo I had to go private to see a parathyroid specialist in bambary, he did a
Hi everyone ❤️ As some will know through my posts, I recently had a diagnosis of primary hyperparathyroidism by a lovely endocrinologist in Liverpool who I'm at present under for this condition. However to get to see this endo I had to go private to see a parathyroid specialist in bambary, he did a
birkie
in
Thyroid UK
6 months ago
Unable to do transvaginal scan
Hello, I'm new here and will try to be brief but wonder if anyone can advise me. I had a US scan last week as my ca125 result was 91. The radiographer was unable to perform a transvaginal scan though as trying to insert the probe was so very very painful for me. She attempted several times and I even
Hello, I'm new here and will try to be brief but wonder if anyone can advise me. I had a US scan last week as my ca125 result was 91. The radiographer was unable to perform a transvaginal scan though as trying to insert the probe was so very very painful for me. She attempted several times and I even
jib70
in
My Ovacome
6 months ago
Berberine and Levothyroxine
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
treeflower1954
in
Thyroid UK
6 months ago
lucrin injections v firmagon
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Hi Anyone experienced having Lucrin injections .I have been self injected firmagon since march 2022 going from originally PSA of 389 now hovering around 0.08 for the past 5 months with little or no side affects.The professors intern suggested maybe trying Lucrin injections every 3 months.A little
Brianne07
in
Advanced Prostate Cancer
9 months ago
Update on Mum, bowel blockage and TPN advice.
Some of you will remember mum had OC stage 3c in feb 2021, and was later that year also diagnosed with another separate primary
cancer
found in her debulking, they also found a rare
appendix
cancer
.
Some of you will remember mum had OC stage 3c in feb 2021, and was later that year also diagnosed with another separate primary
cancer
found in her debulking, they also found a rare
appendix
cancer
.
LouieB123
in
My Ovacome
1 year ago
CA 27.29 Blood Testl
My CA 27.29 has continued to rise. PET Scan showed nothing abnormal. I've been referred to Stanford Hospital and they will explore with more imagery. I am frightened but want to get to the truth.
My CA 27.29 has continued to rise. PET Scan showed nothing abnormal. I've been referred to Stanford Hospital and they will explore with more imagery. I am frightened but want to get to the truth.
RedwoodLady
in
SHARE Metastatic Breast Cancer
6 months ago
Dr. Michael Zelefsky is joining NYU Langone Medical Center
I received this message from Dr. Michael Zelefsky this month: [i]I’m writing this letter to let you know I will be leaving Memorial Sloan Kettering Cancer Center (MSK) on September 6, 2023. For more than 30 years, it has been an honor to be part of the care team at MSK. I will be making a change to
I received this message from Dr. Michael Zelefsky this month: [i]I’m writing this letter to let you know I will be leaving Memorial Sloan Kettering Cancer Center (MSK) on September 6, 2023. For more than 30 years, it has been an honor to be part of the care team at MSK. I will be making a change to
Hope4Happiness
in
Prostate Cancer Network
9 months ago
RT without HT
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
Nordman
in
Prostate Cancer Network
6 months ago
"Run, definitely run"
Any Avatar fans out there might remember Sigourney Weaver saying this.More recently, the cancer nurse at my cli7nic appointment before my surgery used exactly the same words in the same tone of voice when I asked if I should continue to run or rest between then and the operation. She and the surgeon
Any Avatar fans out there might remember Sigourney Weaver saying this.More recently, the cancer nurse at my cli7nic appointment before my surgery used exactly the same words in the same tone of voice when I asked if I should continue to run or rest between then and the operation. She and the surgeon
Runningphobe
Graduate
in
Couch to 5K
6 months ago
1
...
99
100
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
11914 results
My Ovacome
3507 results
SHARE Metastatic Breast Cancer
2152 results
View top 10 communities
Sort by
Most Relevant
Newest