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Just completed 6 rounds of Lutetium-177
Been dealing with advanced prostate cancer since 5/20 and have undergone several treatment options available. Life has changed significantly because of the treatments but I feel good generally and looking forward to the next viable treatment. Happy to share experiences with any other advanced prostate
Been dealing with advanced prostate cancer since 5/20 and have undergone several treatment options available. Life has changed significantly because of the treatments but I feel good generally and looking forward to the next viable treatment. Happy to share experiences with any other advanced prostate
Sircheesedog
in
Advanced Prostate Cancer
8 months ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
8 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
8 months ago
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Update after tests,etc
We are at decision time. Since my first posting - all tests completed ( MRI, CT, full body bone, PSMA Pet- they have came back that it hadn’t spread). GL 7 Grade 3 Husband young 58 and active. QofL is high on list. We were all set to go with radiation and went to discuss treatment options and Dr recommended
We are at decision time. Since my first posting - all tests completed ( MRI, CT, full body bone, PSMA Pet- they have came back that it hadn’t spread). GL 7 Grade 3 Husband young 58 and active. QofL is high on list. We were all set to go with radiation and went to discuss treatment options and Dr recommended
Dimples76
in
Advanced Prostate Cancer
8 months ago
HT weight gain
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
My husband will be starting hormone therapy <HT> prior to radiation treatment <RT>.The weight gain associated with HT is a concern. Any suggestions? Any medication available to assist with weight loss during HT? Inquisitive One
Inquisitive_one
in
Advanced Prostate Cancer
5 months ago
Talzenna
Has anyone tried Talzenna ? My dad was just started and after 2 weeks his PSA spiked 47 points to 105. He’s been battling hard, Lynparza worked like a miracle for 7 months then had to decrease dose d/t low hemoglobin and low RBC, had to have transfusions twice. Then Lynparza stopped working after
Has anyone tried Talzenna ? My dad was just started and after 2 weeks his PSA spiked 47 points to 105. He’s been battling hard, Lynparza worked like a miracle for 7 months then had to decrease dose d/t low hemoglobin and low RBC, had to have transfusions twice. Then Lynparza stopped working after
Mikerest
in
Advanced Prostate Cancer
8 months ago
Update: post-radiation and New meds
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Dragonfly2
in
SHARE Metastatic Breast Cancer
5 months ago
Avastin
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Rosehannah7
in
My Ovacome
5 months ago
Seeking advise
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can anyone advise if they have heard of the below treatments or have had these treatments ( Chemoembolization and Dendritic cell therapy LANEX-DC
Amk31
in
SHARE Metastatic Breast Cancer
5 months ago
update ct colonoscopy
hi, just had ct virtual colonoscopy done. I was unable to complete colonoscopy recently and my doc referred me to abdo surgeon, he put me in for ct colon scan. Although the prep is just as bad as colonoscopy prep, the actual procedure went well, was able to complete scan. Don’t know the results yet but
hi, just had ct virtual colonoscopy done. I was unable to complete colonoscopy recently and my doc referred me to abdo surgeon, he put me in for ct colon scan. Although the prep is just as bad as colonoscopy prep, the actual procedure went well, was able to complete scan. Don’t know the results yet but
2013mayo
in
IBS Network
8 months ago
Feeling Anxious
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancé died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
I have Metastatic Breast Cancer (MBC) I am feeling very anxious and lonely this holiday season. I live alone in Los Angeles. My family is all back East in New York. My fiancé died and 2 BFF's friends died. My "so called" friends are not there for me. I really need more support.
Meditator110
in
SHARE Breast Cancer Support
5 months ago
brain mets
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
Flower1513
in
SHARE Metastatic Breast Cancer
5 months ago
a amazing news!!
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology Team. I had an amazing response and was seen promptly with blood tests and a full body CT scan being carried out within 2 weeks. Today I receveived
Eriksendi
in
My Ovacome
5 months ago
Information overload and now decision time!
Okay, so I am at that stage of making a decision. Mind you I am about to embark on a 10 week overseas 45th anniversary trip. Dr says that should be fine. So whatever decision i come up with now could change by late November. So then a month ago, I had 42 biopsy samples taken and 8 of them were found
Okay, so I am at that stage of making a decision. Mind you I am about to embark on a 10 week overseas 45th anniversary trip. Dr says that should be fine. So whatever decision i come up with now could change by late November. So then a month ago, I had 42 biopsy samples taken and 8 of them were found
Mike58
in
Prostate Cancer Network
8 months ago
Second opinion on Biopsy
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
I am scheduled for a second Biopsy and plan to get a second opinion. I read Dr. Epstein with John Hopkins is on indefinite leave. Should I just submit it to John Hopkins, or does anyone have any suggestions for a good place for a second opinion. Previously my biopsy was 7, 3+4, but recent MRI shows
carlsbadjack
in
Prostate Cancer Network
5 months ago
Lupron injection with xtandi
Orgovyx stop working, PSA INCREASING. Just talked to my doc. He wants to stop orgovyx and start me on lupron injections once a month with xtandi. Anyone ever been on this combination. If so what are the side effects andnhow is it working for you?
Orgovyx stop working, PSA INCREASING. Just talked to my doc. He wants to stop orgovyx and start me on lupron injections once a month with xtandi. Anyone ever been on this combination. If so what are the side effects andnhow is it working for you?
woppaginny
in
Advanced Prostate Cancer
8 months ago
Body jerking/spasms
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
olwman
in
The Roy Castle Lung Cancer Foundation
5 months ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
5 months ago
BPA Causes Prostate Cancer/Sources of BPA
Early exposure to BPA increases a person’s risk of developing prostate cancer, according to research by Gail Prins, a professor of physiology at the University of Illinois at Chicago. https://www.healthline.com/health-news/children-bpa-may-increase-risk-of-obesity-and-prostate-cancer-061913#BPA-Linked-to-Increased-Cancer-Ris
Early exposure to BPA increases a person’s risk of developing prostate cancer, according to research by Gail Prins, a professor of physiology at the University of Illinois at Chicago. https://www.healthline.com/health-news/children-bpa-may-increase-risk-of-obesity-and-prostate-cancer-061913#BPA-Linked-to-Increased-Cancer-Ris
NecessarilySo
in
Advanced Prostate Cancer
8 months ago
12-year post surgery PSA
Hi All, Hard to believe that it’s been 12 years since my prostatectomy. So many health issues since then that PCa has moved down my list of worries. My PSA for the prior 2 years was .008. This year’s result just back and it’s ticked up to .009. I don’t think it’s anything to worry about, but of
Hi All, Hard to believe that it’s been 12 years since my prostatectomy. So many health issues since then that PCa has moved down my list of worries. My PSA for the prior 2 years was .008. This year’s result just back and it’s ticked up to .009. I don’t think it’s anything to worry about, but of
jeff1257
in
Prostate Cancer Network
8 months ago
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