Search
Search
About
Log in
Join
Experiences with
Appendix cancer
Posts
Communities
30,206 public posts
Filter results
Bilateral frontal calvarial metastases
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
kklott01
in
Advanced Prostate Cancer
1 month ago
PSA trippled since last Lupron infusion
My PSA was 0.05 between February 2023 and June 2023, then in September it ticked higher to 0.06 and at yesterday's Lupron injection it was 0.17. Should I be concerned? Anybody with similar experience: what did you do? Am I CR or still CS? Should I ask for Lu-177/Pluvicto ASAP? Thanks for reading.
My PSA was 0.05 between February 2023 and June 2023, then in September it ticked higher to 0.06 and at yesterday's Lupron injection it was 0.17. Should I be concerned? Anybody with similar experience: what did you do? Am I CR or still CS? Should I ask for Lu-177/Pluvicto ASAP? Thanks for reading.
Oldie68
in
Advanced Prostate Cancer
5 months ago
happy holidays …. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
chances of it being colon cancer
hi I am a 35 year old female and generally very healthy. the last 2 days I have noticed some bright red blood on the outside of my stool, not a lot just a couple of small specks. It is not mixed in with the stool and the stool is normal consistency amd colour. I am not suffering from abdominal pain
hi I am a 35 year old female and generally very healthy. the last 2 days I have noticed some bright red blood on the outside of my stool, not a lot just a couple of small specks. It is not mixed in with the stool and the stool is normal consistency amd colour. I am not suffering from abdominal pain
Glouise1234
in
Colon Cancer Connected
5 months ago
Phase 1 trial participation Nurix NX-1607
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
konichiwa12
in
Advanced Prostate Cancer
5 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
5 months ago
`psa level
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
Brianne07
in
Advanced Prostate Cancer
5 months ago
Embark Phase 3 clinical trial
Came across this today --- https://www.health.harvard.edu/blog/after-prostate-cancer-treatment-a-new-standard-of-care-for-rising-psa-202312203001
Came across this today --- https://www.health.harvard.edu/blog/after-prostate-cancer-treatment-a-new-standard-of-care-for-rising-psa-202312203001
chefjlu
in
Advanced Prostate Cancer
5 months ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
5 months ago
ONCT-534
Greetings, Recently I read that the FDA is now fast tracking this new drug— ONCT-534. Apparently it’s meant to follow-up on drugs such as Abiraterone and Xtandi once they have failed. I’m curious if anyone here is participating in the trial — phase1/2–and if anyone has any information outside of the
Greetings, Recently I read that the FDA is now fast tracking this new drug— ONCT-534. Apparently it’s meant to follow-up on drugs such as Abiraterone and Xtandi once they have failed. I’m curious if anyone here is participating in the trial — phase1/2–and if anyone has any information outside of the
Lavender22
in
Advanced Prostate Cancer
5 months ago
Testosterone increase after injection
I recently had my 6 month dose of Camcevi 42mg and my testosterone went from 7 t0 55 rights after the injection. My PSA remained the same at 0.1 . Is this normal for my testosterone to jump 48 points. Oncologist says he is more concerned with my PSA. Also the injection of the Camcevi was in my lower
I recently had my 6 month dose of Camcevi 42mg and my testosterone went from 7 t0 55 rights after the injection. My PSA remained the same at 0.1 . Is this normal for my testosterone to jump 48 points. Oncologist says he is more concerned with my PSA. Also the injection of the Camcevi was in my lower
Shadoz
in
Advanced Prostate Cancer
5 months ago
Lymph node Metastasis
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Spinal uptake
Afternoon fellow warriors, after a recent Pet scan they have found 2 spots one on my upper spine and the other on my neck.My Oncologist is worried having radiotherapy on my neck maybe to close to the spinal cord should I be worried that this is the case. She is suggesting I just move into a different
Afternoon fellow warriors, after a recent Pet scan they have found 2 spots one on my upper spine and the other on my neck.My Oncologist is worried having radiotherapy on my neck maybe to close to the spinal cord should I be worried that this is the case. She is suggesting I just move into a different
Chubby42
in
Advanced Prostate Cancer
2 months ago
PSA Roller Coaster ride!
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
JD-guy
in
Advanced Prostate Cancer
5 months ago
Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
2 months ago
Cancerous thyroid nodules. Are they painful sometimes?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Aoifel73
in
Thyroid UK
2 months ago
ERLEADA brain dead
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
icanwintwice
in
Advanced Prostate Cancer
5 months ago
Prostate-Kidney and BPH Decision for treatment.
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Seminole0412
in
Advanced Prostate Cancer
5 months ago
reduced doseage of ibrance
Hi, I saw my oncologist yesterday and she reduced my ibrance from 125 to 100 mg. This makes me very nervous, though she says there should be no reduction in effectiveness . Has anybody had this happen and what were the results? Did the smaller dose still work for you? I have been on ibrance and letrozole
Hi, I saw my oncologist yesterday and she reduced my ibrance from 125 to 100 mg. This makes me very nervous, though she says there should be no reduction in effectiveness . Has anybody had this happen and what were the results? Did the smaller dose still work for you? I have been on ibrance and letrozole
Dragonfighter
in
SHARE Metastatic Breast Cancer
5 months ago
promising against soft tissue and bone metastasis: AMG 509
there might be hope!! https://www.urotoday.com/conference-highlights/esmo-2023/esmo-2023-prostate-cancer/147455-esmo-2023-steap1-x-cd3-xmab-2-1-immune-therapy-in-patients-with-metastatic-castration-resistant-prostate-cancer-mcrpc-interim-results-phase-1-amg-509-xaluritamig.html
there might be hope!! https://www.urotoday.com/conference-highlights/esmo-2023/esmo-2023-prostate-cancer/147455-esmo-2023-steap1-x-cd3-xmab-2-1-immune-therapy-in-patients-with-metastatic-castration-resistant-prostate-cancer-mcrpc-interim-results-phase-1-amg-509-xaluritamig.html
Maxone73
in
Advanced Prostate Cancer
5 months ago
1
...
39
40
41
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
11914 results
My Ovacome
3507 results
SHARE Metastatic Breast Cancer
2152 results
View top 10 communities
Sort by
Most Relevant
Newest