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HoneyYorkie
Following on from my previous post when I was eventually (after 6months) diagnosed with Adenocarcinoma of my lower left lobe, I had surgery 3 weeks ago to remove the lobe - called a Lobectomy. I’d just like to say even though the lobe was ‘sticky’ and therefore the surgery took 4.5hours, which was longer
Following on from my previous post when I was eventually (after 6months) diagnosed with Adenocarcinoma of my lower left lobe, I had surgery 3 weeks ago to remove the lobe - called a Lobectomy. I’d just like to say even though the lobe was ‘sticky’ and therefore the surgery took 4.5hours, which was longer
HoneyYorkie
in
The Roy Castle Lung Cancer Foundation
3 months ago
Low Testosterone and value of continuing Hormone Therapy
83 year old male with a question: My understanding is that the role of hormone therapy is to lower one’s testosterone level. Does hormone therapy provide additional benefits in fighting prostate cancer beyond lowering testosterone levels? I was diagnosed with high grade prostate cancer (Gleason 10
83 year old male with a question: My understanding is that the role of hormone therapy is to lower one’s testosterone level. Does hormone therapy provide additional benefits in fighting prostate cancer beyond lowering testosterone levels? I was diagnosed with high grade prostate cancer (Gleason 10
saniku
in
Advanced Prostate Cancer
7 months ago
need some guidance, feeling desperate..
My husband has advanced, Stage IV castration resistant prostate cancer. When he was diagnosed in May 2022 his PSA was 4700, he has widespread bone metastases. He stopped responding to Docetaxel, Pluvicto and is now not responding to Cabazitaxel, his PSA is now over 700. He is feeling good, no pain
My husband has advanced, Stage IV castration resistant prostate cancer. When he was diagnosed in May 2022 his PSA was 4700, he has widespread bone metastases. He stopped responding to Docetaxel, Pluvicto and is now not responding to Cabazitaxel, his PSA is now over 700. He is feeling good, no pain
Kiki27
in
Advanced Prostate Cancer
7 months ago
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Started Phase 1 trial - RO7656594 yesterday
Started clinical trial through Honor Health Research in Scottsdale yesterday. Day one was intense with multiple labs and EKG's after his first dose. Appointments today and tomorrow without the med but with follow up labs/EKG's. Friday's appointment will be the start of daily medication. Bone scans and
Started clinical trial through Honor Health Research in Scottsdale yesterday. Day one was intense with multiple labs and EKG's after his first dose. Appointments today and tomorrow without the med but with follow up labs/EKG's. Friday's appointment will be the start of daily medication. Bone scans and
Yadifan
in
Advanced Prostate Cancer
3 months ago
Update on prognosis for my husband with stage 4 A cancer.
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
SherryKahn
in
Advanced Prostate Cancer
3 months ago
My Latest Bladder Cancer Update.
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
Ern007
in
Lung Conditions Community Forum
3 months ago
DCIS Diagnosis in 2023
Hi everyone, I had a routine mammogram in March 2023 and I was so confident that it was going to be fine, that I forgot about it by the end of the same day. I was shocked to get a phone call 10 later to tell me that they had found a mass in my left breast. I remember telling female friends about it
Hi everyone, I had a routine mammogram in March 2023 and I was so confident that it was going to be fine, that I forgot about it by the end of the same day. I was shocked to get a phone call 10 later to tell me that they had found a mass in my left breast. I remember telling female friends about it
13cats-lives
in
SHARE Breast Cancer Support
7 months ago
Interesting new targeted therapy trial
I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment. https://www.transcodetherapeutics.com TransCode’s lead therapeutic candidate, TTX-MC138, is a targeted therapy designed to treat cancer patients with metastatic cancer,
I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment. https://www.transcodetherapeutics.com TransCode’s lead therapeutic candidate, TTX-MC138, is a targeted therapy designed to treat cancer patients with metastatic cancer,
Best521
in
SHARE Metastatic Breast Cancer
3 months ago
Bicalutamide Vs Eligard
I'm just starting my journey which will involve ADT and RT. The RT is scheduled to happen in early July and ADT to start soon. No spread according to Pet scan. Gleason 4+4 and PSA 7.9. Absolutely no symptoms whatsoever, feeling good for a 65yo. RO doesn't seem to be in any hurry. I have a few important
I'm just starting my journey which will involve ADT and RT. The RT is scheduled to happen in early July and ADT to start soon. No spread according to Pet scan. Gleason 4+4 and PSA 7.9. Absolutely no symptoms whatsoever, feeling good for a 65yo. RO doesn't seem to be in any hurry. I have a few important
PJT58
in
Advanced Prostate Cancer
7 months ago
Capivasertib, fulvestrant
Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023. SUV increase 5.6 to 5.9? Now Onc suggesting to capivasertib+fulvestrant but don't know yet if it's in addtion to or replacing Ibrance, Letrozole
Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023. SUV increase 5.6 to 5.9? Now Onc suggesting to capivasertib+fulvestrant but don't know yet if it's in addtion to or replacing Ibrance, Letrozole
Hidden
in
SHARE Metastatic Breast Cancer
3 months ago
Trodelvy after one year update
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
3 months ago
Hi, Im new here! Stage IV Ovarian Ca champion
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Nlehrer
in
SHARE Ovarian Cancer Support
3 months ago
Xpo1 significance
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
Not been active for a while as my wife is on watch and wait since initially being diagnosed two years ago at 41.Eric blood panels have come back with Xpo1 mutation which we are told significantly increases the chances of needing treatment. Going through the details we got but there seems to be a trial
NewCll
in
CLL Support
3 months ago
Primary Peritoneal Cancer
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of chemotherapy then debulking surgery followed by 3 more rounds of chemo. After first 3 rounds I had a very positive response with major shrinkage of tumor
Hockeymom52
in
My Ovacome
3 months ago
Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
domforr
in
Acoustic Neuroma Support
3 months ago
Abiraterone + Prednisone with Preexisting CAD
On November 1, 2023 a PET scan established that my metastatic prostate cancer is castrate resistance. I added Abiraterone + Prednisone to my 3 monthly Lupron shot. Same PET scan detected severe calcification in multiple coronary arteries, which was confirmed by heart CT scan and angiogram. I have severe
On November 1, 2023 a PET scan established that my metastatic prostate cancer is castrate resistance. I added Abiraterone + Prednisone to my 3 monthly Lupron shot. Same PET scan detected severe calcification in multiple coronary arteries, which was confirmed by heart CT scan and angiogram. I have severe
dac500
in
Advanced Prostate Cancer
7 months ago
Wow ! Newly Diagnosed Prostate Cancer. Greatly appreciate some Guidance with all this new Technology. Tampa Bay Area.
72yo – Gleason 7 – (4+3)- Group 3 - PSA 6.456 – PHI 91.7 – Free 12.86% - Localized in Left Lobe – Clean PSMA- 8mm Lesion – 15 cores taken – 5 unfavorable – 36cc PH - Hi All, Recently diagnosed with PC. Had the MRI, Biopsy and Pet PSMA done. Urologist suggested ERT + HT ( 6 mths). Started to research
72yo – Gleason 7 – (4+3)- Group 3 - PSA 6.456 – PHI 91.7 – Free 12.86% - Localized in Left Lobe – Clean PSMA- 8mm Lesion – 15 cores taken – 5 unfavorable – 36cc PH - Hi All, Recently diagnosed with PC. Had the MRI, Biopsy and Pet PSMA done. Urologist suggested ERT + HT ( 6 mths). Started to research
mijona
in
Prostate Cancer Network
7 months ago
Anyone has treatment addressing Genomic ATM Mutations?
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
HoLEP for BPH followed by SBRT several months later for 4+3 = 7 PCa. Is it preferable to do the HoLEP before the SBRT?
Diagnosed with BPH (80 cc prostate) and prostate cancer - Gleason 4+3 in 2 cores - less than 30%, 3+3 in 2 cores, benign in 8 cores. Stage T1c. PSMA-Pet no metastasis. PSA 8.8. Decipher 0.51. PSA density 0.11. Having HoLEP in May 2024 then SBRT several months later.
Diagnosed with BPH (80 cc prostate) and prostate cancer - Gleason 4+3 in 2 cores - less than 30%, 3+3 in 2 cores, benign in 8 cores. Stage T1c. PSMA-Pet no metastasis. PSA 8.8. Decipher 0.51. PSA density 0.11. Having HoLEP in May 2024 then SBRT several months later.
Bourbon2024
in
Prostate Cancer Network
7 months ago
Intraductal Prostate Carcinoma
Just wanted to say hello as this is a new journey. Hopefully most of you are experiencing success better than anticipated from the onset. . I share many of your diagnosis but for any of you out there with the more (rare) - intraductal Carcinoma diagnosis I'd love to see if it's possible to connect
Just wanted to say hello as this is a new journey. Hopefully most of you are experiencing success better than anticipated from the onset. . I share many of your diagnosis but for any of you out there with the more (rare) - intraductal Carcinoma diagnosis I'd love to see if it's possible to connect
bdrakes
in
Advanced Prostate Cancer
3 months ago
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