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Aplastic anaemia
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Is low iron level relevant?
I have auto-immune thyroid disease (Hashimoto's). I have long had problems absorbing B12, B9 and iron. Just before the first lockdown in March 2020, I was diagnosed with pernicious anaemia. Please could someone tell me whether pernicious anaemia accounts also for low B9 and low iron? I now have regular
I have auto-immune thyroid disease (Hashimoto's). I have long had problems absorbing B12, B9 and iron. Just before the first lockdown in March 2020, I was diagnosed with pernicious anaemia. Please could someone tell me whether pernicious anaemia accounts also for low B9 and low iron? I now have regular
ADDG
in
Pernicious Anaemia Society
3 years ago
Is there a way to prevent haemolysis of finger prick blood draws?
Not greatly important, but interested in your thoughts. This has happened to me only 2 times over the past few years, and one of those times I delayed sending the kit back by a day (I was new to taking home tests then) so understandable. But this month it has happened twice in a row whilst trying to
Not greatly important, but interested in your thoughts. This has happened to me only 2 times over the past few years, and one of those times I delayed sending the kit back by a day (I was new to taking home tests then) so understandable. But this month it has happened twice in a row whilst trying to
Alanna012
in
Thyroid UK
3 years ago
Uk What is the exact SNOMED code for CLL to get priority PCR test kit and letter?
In the continuing saga of trying to get a priority PCR test and letter does anybody know the exact SNOMED code For CLL that has to be on your medical records in the UK for you to get a priority PCR test and letter from NHS England? I am going round and round in circles being pushed from 119 back to
In the continuing saga of trying to get a priority PCR test and letter does anybody know the exact SNOMED code For CLL that has to be on your medical records in the UK for you to get a priority PCR test and letter from NHS England? I am going round and round in circles being pushed from 119 back to
Greencyclist
in
CLL Support
3 years ago
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Reference for iron, ferritin, folate, B12, D testing?
Hello, thanks to you all for offering such important and helpful information- I’m getting ready to meet with my doc and ask for these labs, and would love to present research in support. If you can, I would appreciate a reference. TIA - PBSC (in USA)
Hello, thanks to you all for offering such important and helpful information- I’m getting ready to meet with my doc and ask for these labs, and would love to present research in support. If you can, I would appreciate a reference. TIA - PBSC (in USA)
Pbsc
in
Thyroid UK
3 years ago
Assistance with Potential misdiagnosis.
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
smileysammi
in
Pernicious Anaemia Society
3 years ago
Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Iron + magnesium - bothered
I am experimenting with magnesium following some recent posts. I believe someone (jools?) is taking 100mg. I'm using magnesium bisglycinate and took one (88mg) last night, about 30 min before taking my alternate day iron bisglycinate (25mg) [on an empty stomach, of course]. The prior night had been RLS
I am experimenting with magnesium following some recent posts. I believe someone (jools?) is taking 100mg. I'm using magnesium bisglycinate and took one (88mg) last night, about 30 min before taking my alternate day iron bisglycinate (25mg) [on an empty stomach, of course]. The prior night had been RLS
PoorRichard
in
Restless Legs Syndrome
3 years ago
Five weeks on increased dose of levo. Not sure if dipping again already
Morning😀 So after three months on 50mg levo, I was put up to 75mg and have been on that for five weeks. I started to feel better again after a week or so, got my energy back… and now, the last two days I’ve felt so tired again. Bit headachey, have been suffering a bit of shortness of breath which never
Morning😀 So after three months on 50mg levo, I was put up to 75mg and have been on that for five weeks. I started to feel better again after a week or so, got my energy back… and now, the last two days I’ve felt so tired again. Bit headachey, have been suffering a bit of shortness of breath which never
Loopnova
in
Thyroid UK
3 years ago
ALT & ALK exceptionally HIGH. Feeling very very anxious.
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
blaisepascal
in
British Liver Trust
3 years ago
Low iron and ferritin levels?
I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine and within the normal range. Vit b12 is 319 (range on the report was 197-771) and Folate is 5.9. Does anyone know if these deficiencies all go hand
I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine and within the normal range. Vit b12 is 319 (range on the report was 197-771) and Folate is 5.9. Does anyone know if these deficiencies all go hand
rustydog
in
Pernicious Anaemia Society
3 years ago
How soon to have B12 injections?
Hello, I have just been told I likely have pernicious anaemia and need to have B12 injections. I’ve booked in my first B12 jabs in a few weeks time. I was told waiting a couple of weeks should be fine and it doesn’t need to be any sooner as I dont have neurological symptoms yet. However i thinks I
Hello, I have just been told I likely have pernicious anaemia and need to have B12 injections. I’ve booked in my first B12 jabs in a few weeks time. I was told waiting a couple of weeks should be fine and it doesn’t need to be any sooner as I dont have neurological symptoms yet. However i thinks I
sandiuy
in
Pernicious Anaemia Society
3 years ago
I have had enough
This is Randy I had my Mohs procedure Thursday. 60 stitches in my temple, 30 stitches in my arm. Squamous carcinoma cancer from the Sun. Doctor told me cancer on my temple is very aggressive may come back. That really bothers me. I hope that no one has to go through this. So far this year I have had
This is Randy I had my Mohs procedure Thursday. 60 stitches in my temple, 30 stitches in my arm. Squamous carcinoma cancer from the Sun. Doctor told me cancer on my temple is very aggressive may come back. That really bothers me. I hope that no one has to go through this. So far this year I have had
Randy1805
in
Kidney Transplant
3 years ago
B12 level
Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went yesterday to have my B12 administered and asked my practitioner ( I have to have them done privately ) would she do a blood test before my Jab to
Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went yesterday to have my B12 administered and asked my practitioner ( I have to have them done privately ) would she do a blood test before my Jab to
Hidden
in
Pernicious Anaemia Society
3 years ago
IFab or MMA
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Sparklyjenson
in
Pernicious Anaemia Society
3 years ago
Should I have been tested for PA before starting loading doses?
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
franrose
in
Pernicious Anaemia Society
3 years ago
Why in Dutch guideline for PA and B12 deficiency emphasis is just on IM injection and SC injection not mentioned?
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
What is lymphedema?
Author Mary Clare Fischer December 15, 2021 Six important things to know about the bodily fluid that can cause pain, swelling and sometimes more severe issues when it doesn’t move properly. It starts with swelling. Maybe you don’t notice it at first or dismiss it as temporary, a reaction to injury
Author Mary Clare Fischer December 15, 2021 Six important things to know about the bodily fluid that can cause pain, swelling and sometimes more severe issues when it doesn’t move properly. It starts with swelling. Maybe you don’t notice it at first or dismiss it as temporary, a reaction to injury
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Low Folate - Pernicious Anemia?
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Minimanic
in
Pernicious Anaemia Society
3 years ago
Questions re B12 injections and long term use of prescribed folic acid
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
mill44
in
Pernicious Anaemia Society
3 years ago
Transdermal patch with microneedle technology related article
I found an article regarding transdermal patch with microneedle technology. https://link.springer.com/article/10.1007/s40005-021-00512-4 A promising technology to deliver medication in most effective, continuous and bioavailability fashion but there are some hurdles which must be eradicated first. I
I found an article regarding transdermal patch with microneedle technology. https://link.springer.com/article/10.1007/s40005-021-00512-4 A promising technology to deliver medication in most effective, continuous and bioavailability fashion but there are some hurdles which must be eradicated first. I
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
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