Experiences with

Antiphospholipid syndrome (APS)

I have been diagnosed with APS years ago and I am on life long Warfarin range 3.5-4 I’m suffering agonising pain to both knees but especially the left. Surgeons totally agree that I need Total Knee replacements but are extremely reluctant to do this due to the APS and the high risk of having a stroke

And finally in this ad, the info that Eliquis "should not be used by those with antiphospholipid syndrome" was included. Finally! Yeah!

https://www.the-rheumatologist.org/article/what-rheumatologists-need-to-know-about-antiphospholipid-syndrome/

syndrome.

Based off this my rheumatologist diagnosed me with antiphospholipid syndrome. Then I seen professor d cruz and he said I don't feel I need to do anymore tests I believe you have antiphospholipid syndrome.

One of my blood tests came back positive for beta-2 glycoprotein IgM antibodies, which may indicate antiphospholipid syndrome (APS). I'm still waiting for a further consult but a quick search online showed that APS can cause difficulties with implantation and recurrent miscarriages.

One of my blood tests came back positive for beta-2 glycoprotein IgM antibodies, which may indicate antiphospholipid syndrome (APS). I'm still waiting for a further consult but a quick search online showed that APS can cause difficulties with implantation and recurrent miscarriages.

I had a pulmonary embolism and was prescribed Eliquis 5 mg 2xday. Does anyone else take Eliquis for pulmonary embolism? Are you experiencing any side effects?

I have cerebral antiphospholipid syndrome. Personal experience of them would be great thank you x

Hello Everyone, I have Pernicious Anemia, Bilateral Optic Neuritis & Antiphospholipid Syndrome. I keep a daily medical journal documenting my symptoms, blood pressure, & remarks about how I’m feeling.

I have a history of slightly positive lupus anticoagulant tests, raising suspicion of antiphospholipid syndrome (APS), but I haven’t received a confirmed diagnosis. Current treatments (aspirin, pentoxifylline, and doxycycline) haven’t stopped the progression of symptoms.

I have a history of slightly positive lupus anticoagulant tests, raising suspicion of antiphospholipid syndrome (APS), but I haven’t received a confirmed diagnosis. Current treatments (aspirin, pentoxifylline, and doxycycline) haven’t stopped the progression of symptoms.

of my neurology appt tomoz and am looking for advice Serum ferritin - 37 down from 54 Serum folate >20 Serum magnesium 0.91 Platelets 120 mine are usually low Serum iron level 16 Transferrin 2.3 I’ve also got low calcium at 2.09 And High anticardiolipin at 41 indicating I have severe antiphospholipid

Hi I previously in January 2023 was diagnosed with PE, the past year has been difficult and long and knowing I was on blood thinners adoxaban forever as the heamotogist advised originally in January 23 was killing me, as I have heard that blood thinners are rat poison and can get internal bleeding.

This post is a bit long. If you aren't interested me going on about why I might not have this condition and why I might still be a good candidate for plastic surgeries even if I have APS, just skip to paragraph 6. 1.Hi everyone, I am a 22-year-old woman who is suspected of having APS. I am going to

My other arteries were healthy and fine and the blockage was believed to be caused from a clot due to Antiphospholipid syndrome. My question. Does anyone get any sensations in the chest or left arm jaw years down the line.

I’ve been diagnosed with triple positive Antiphospholipid Syndrome for over 10 years. Increasingly I am having spells of fatigue that are quite overwhelming and generally feeling very weak and unwell.

I've avoided taking alendronate due to being high risk of stomach and throat cancer. My doctor wants me to try risedronate. Has anyone any experience of taking this?

Hi all. I want to record my many test results in a tracker to show current status and trends over time - I'm hoping this will help the right Doctor find the root cause of my issues. Does anybody have a good blank tracker that's already made that they'd be willing to share please? I'm good with excel

Hi everyone The question of oe or de is still tbc but id love your thoughts on pgta If we do go straight to DE our Dr in Spain said they don’t pgta test as the donor is younger than me (I’m 45) but the donor age is 35 and below. I won’t get told until day of transfer what their age is. This has left