Experiences with

Antiphospholipid syndrome (APS)

I have been diagnosed with Mixed Connective Tissue Disease, Interstitial Lung Disease and Antiphospholipid Syndrome. As MCTD is rare I cant find a group for that specifically but since i can have many of the same symptoms as someone with Lupus I might be able to get some helpful information.

Hi I am wondering who on here has CAPS, and has done Rituximab? Even better if you are from Canada and have got this treatment, and was able to get it covered under insurance, or funded by your provincial health coverage. Also if anyone has supporting documents that would support this as a successful

Consultant Rheumatologist and GHIC Chairperson, Dr Arvind Kaul, will be live for a Q&A on Thursday 23rd September at 3.45pm about Antiphospholipid Syndrome (APS).

https://www.google.com/amp/s/www.docwirenews.com/vte-knowledge-hub/effectiveness-and-safety-of-the-direct-oral-anticoagulants-in-non-triple-positive-antiphospholipid-syndrome-without-prior-arterial-thromboembolism/amp/

Hi, I have Antiphospholipid syndrome (APS) and on warfarin because of repeated clots in my lungs and just started ramipril for high blood pressure. My question is I am having the side effect of pins and needles since starting the high blood pressure medication ramipril.

Antiphospholipid syndrome is also known as Hughes syndrome, named after Professor Hughes for his role in discovering the disease. https://youtu.be/QKDj1ggQASQ

Hey Everyone, So I have lupus, asthma, antiphospholipid syndrome and lots of other rubbish. I have got such a bad cough with my asthma it's got worse over the years, I have relvar eliptar as my preventer and salbutamol as reliever using that with a spacer for more accurate inhalation.

Only one patient with thrombotic antiphospholipid syndrome and a known history of mild thrombocytopenia (110 000/mm3), who was on long-term vitamin K antagonist therapy, reported the occurrence of self-limiting purpuric lesions on her calves 10 days after the second dose.

syndrome as she had never heard of it Now the latest advice given to my GP to control my fluctuating INR is to take a very high level of warfarin and take a small amount of prophylactic vitamin K Has anyone heard of this?

Apologies, the link didn’t work … you will have to look it up ;) Ray x Direct oral anticoagulant use in patients with antiphospholipid syndrome and unprovoked venous thromboembolism: a single centre experience Andrew J. Doyle, Beverley J. Hunt, Anicee Danaee, Gavin Ling, Michael J.

Lupus with a side helping of antiphospholipid syndrome and spectacular myosotis. In the process of upgrading from mycophenolate to rituximab, any suggestions, hints greatly appreciated. Looks like an amazing supportive group ❤️

Prior to this my hematologist who treats my Sticky Blood condition ( Antiphospholipid Syndrome ) prescribed me folic acid. Seeing as I am no further forward in getting a diagnosis and have been on folic acid for some time is there any point in looking for enlarged blood cells ?

antiphospholipid antibodies (aPL) (including primary antiphospholipid syndrome (APS) or APS associated with systemic lupus erythematosus (SLE)).

UW Division of Rheumatology Grand Rounds, Dr. Jason Knight - 6/2/2020 https://youtu.be/eXnpxCK1bco

P.B.C and antiphospholipid syndrome and for two years I have been experiencing severe pain either soon after eating or three hours later. My gastro consultant put it down to reflux.

https://www.medpagetoday.com/blogs/celebritydiagnosis/92417

(You may need to sign up for a free patient account, I find their emails to be VERY informative) https://www.medpagetoday.com/blogs/celebritydiagnosis/92417

Hi all you beauties! I’m needing some love right now. I’m currently 5wks3days. I’ve been having some minor brown discharge that has slowly increased in amount over the past week. Today I went to the bathroom and expecting brown I saw bright red blood. I’ve heard so many people say spotting is normal

I've been blessed and offered a cancellation for the hip op. Very last moment, but grabbed it as I've been reduced to a cripple. Had it last Saturday and I'm back home now learning how to walk again and get my knickers on without bending! Just to say the anaesthetist was great. Gave me methadoxatone

Hi all, after years of tests with my gynaecologist he has finally referred me to an IVF clinic and we had our first appointment today. The Doctor there has said she needs to do some research but she thinks because the Gynaecologist prescribed me Clomiphene that I may now not be entitled to IVF on the