Experiences with

Antiphospholipid syndrome (APS)

Is hughes syndrome and antiphospholipid syndrome the same thing

In between the miscarriages I was diagnosed with Antiphospholipid syndrome (APS) which is a leading cause of recurrent miscarriages. The haematologists put me on daily Clexane injections and low dose aspirin (150mg) for my last two pregnancies, which still failed.

Range 12 to 22 Does this mean I could have subclinical hyperthyroidism , I have the usual aches , pains and tiredness Was diagnosed with antiphospholipid syndrome few years ago , current medication is clopidogrel , atorvastatin and lansoprazole.

I had put all my pains and symptoms down to my Antiphospholipid Syndrome but on a respiratory appointment the consultant said you should t be in this much pain and wrote to my GP and got a fast referral to a rheumatologist. One blood test and mri later and I’m on MTX to go with all my other pills.

I don't have antiphospholipid syndrome but do have the antibodies, inflammatory arthritis, Raynauds' and low platelets which I have read, is also a lupus symptom (lupus is on my notes). Does anyone else have this?

Eleven years ago, after 2 late miscarriages (17 weeks) and several stroke like episodes I was diagnosed with Primary Antiphospholipid Syndrome and have been on warfarin ever since with bridging doses of clexane when inr is not in range.

Ive had symptoms I realize for a few years , mentioned them to neurologist and hematologist and rheumatologist, but we have thought they were due to my autoimmune blood clotting disease, antiphospholipid Syndrome. ( APS. ) I did not understand, nor did they, why my brain felt bruised and tender after

I have APS (Antiphospholipid Syndrome) which is a condition which the immune system mistakely creates antibodies that attack tissue in the body and is responsible for blood clots forming in your arteries, veins, heart, lungs and other organs.

Eleven years ago, after 2 late miscarriages (17 weeks) and several stroke like episodes I was diagnosed with Primary Antiphospholipid Syndrome and have been on warfarin ever since with bridging doses of clexane when inr is not in range.

I have had antiphospholipid syndrome for 23 years (now 46) and in 2019 finally diagnosed with RA at which point I was put on methotrexate. Prior to that I had been on hydroxychloroquine for years.

I am in Scotland (I don't know if such lists operate elsewhere in the UK), have Lupus, Antiphospholipid Syndrome, and a host of other conditions, and am on ESA.

Hi I am wondering who on here has CAPS, and has done Rituximab? Even better if you are from Canada and have got this treatment, and was able to get it covered under insurance, or funded by your provincial health coverage. Also if anyone has supporting documents that would support this as a successful

The tests for failed implantation suggested are (i) testing for sticky syndrome called antiphospholipid syndrome. I'm not sure if this is relevant given that I've had no chemical pregnancies or miscarriages. Treatment is Aspirin or Heparin.

Third prize goes to young scientist studying antiphospholipid syndrome and lupus The third award was given to Thomas McDonnell, PhD, Medical Research Foundation fellow at University College London, who received £20,000 (around $24,468).

Dear everyone is it just me or the media and government talking about economically inactive people feel they are talking about disabled people in chronic pain etc getting the persecution again with pip renewal awards cut or refused and being told nothing wrong with you go get a job etc ie 2014 change

Hi all, Hope everyone is as well as can be 😊 Still not sure if I'm posting in the right place but you guys have always been so helpful 💕 Found out this week that the lip biopsy I had done did not have any sjorgrens syndrome showing which is what they were initially looking for, however the new rheumatologist

I am in Scotland (I don't know if such lists operate elsewhere in the UK), have Antiphospholipid Syndrome, Lupus, and a host of other conditions, and am on ESA.

Does anyone suffer from terrible heat in veins and arteries(skin) yet raynaud's at the same time? But can also be shaking with cold inside - if that makes sense! I have Sjogren's and Systemic sclerosis but all the Doctors ignore the intolerable symptom of hot and cold I suffer

Hi folks, is a sore tongue part of UCTD? I've had sore patches (which grow and change shape, and are smooth in the middle) for some years, more on than off. I've assumed it is geographic tongue but that's supposed to be painless from what I've read. I also have a moderately dry mouth and wondering

does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.