"What Rheumatologists Need to Know About Antiphospholipid Syndrome Yu (Ray) Zuo, MD, MS, & Jason S. Knight, MD, PhD | June 8, 2024"

[Piscesdreamer]

the-rheumatologist.org/arti...

[HollyHeski Administrator]

Thank you for posting

[Tennisbum]

Great addition! Thank goodness for Dr Hughes and Wiley.

[KellyInTexas Administrator]

very nice post! Especially like the mention of reminding that titre levels are for research. Please remember the patient is in front of your eyes, and in your care.

It’s been our mantra for years, only because it’s been our top specialists mantra for years- the ones who have years and years of specialist experience.

I was seen by Professor Ray Z at University of Michigan . He’s lovely, and echoed this to me. My titers can wax and wane, especially early on. Now I’m on rituximab infusions every 4 months. ( just after infusion they are undetectable, when it’s time for infusion again, they are at 38, but rituximab is still not fully without a dampening effect.)

[MaryF Administrator]

Thanks for putting this on here. MaryF

[Annslack]

Thanks for posting. Very positive article. So pleased with the emphasising the distinction between classification and diagnosis, and working with patients.

[Tennisbum]

Someone just sent me a piece about Queen Anne who - they now think had Hughes and a host of autoimmunes. Eighteen pregnancies ! Some stillborn and some misses. We are so fortunate to at least have the diagnoses. I think I read on Hughes Australia that Courtney Cox had 13 before Coco. In trying to promote awareness- and help- she posted her journey. Thank you all!