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Diagnosing PA
Can an enlightened soul out there tell me why doctors are only interested in using a positive antibody test for intrinsic factor to diagnose PA, when its false negative rate is something like 40-60%? Whereas a positive antibody test for parietal cell antibodies is around 80% accurate?
Can an enlightened soul out there tell me why doctors are only interested in using a positive antibody test for intrinsic factor to diagnose PA, when its false negative rate is something like 40-60%? Whereas a positive antibody test for parietal cell antibodies is around 80% accurate?
Siouxiesue
in
Pernicious Anaemia Society
7 years ago
Newly diagnosed B12 deficiency
Hi everyone, I'm new here and have received a diagnosis of B12 deficiency this week. Thankfully I had already done plenty of research before I was officially diagnosed so I knew that I may have a battle with the GP on my hands before going in there. I received a result of 142 for B12, she mentioned
Hi everyone, I'm new here and have received a diagnosis of B12 deficiency this week. Thankfully I had already done plenty of research before I was officially diagnosed so I knew that I may have a battle with the GP on my hands before going in there. I received a result of 142 for B12, she mentioned
fakeplastictwee
in
Pernicious Anaemia Society
7 years ago
Nascobal Nasal Spray-Any users?
Hi, I have neuropathy and other symptoms including hair loss which has gotten better since I've had the injections. My neurologist says I'm B12 deficient, I have had 10 weekly injections of 1000mcg each. I've seen a hematologist, my intrinsic factor is fine. All vitamins have been checked etc.and thyroid
Hi, I have neuropathy and other symptoms including hair loss which has gotten better since I've had the injections. My neurologist says I'm B12 deficient, I have had 10 weekly injections of 1000mcg each. I've seen a hematologist, my intrinsic factor is fine. All vitamins have been checked etc.and thyroid
Crzygirl
in
Pernicious Anaemia Society
7 years ago
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Mums B12 aged 85, injections stopped by doctor
Mum is 85, has Pernicious anemia, diagnosed 50+ years ago, positive intrinsic factor reult hence the injections every 12 weeks. The surgery stopped her injections in November, 6 months ago, she is now very lethargic, often confused, severely breathless.The gp say she no longer needs injections as her
Mum is 85, has Pernicious anemia, diagnosed 50+ years ago, positive intrinsic factor reult hence the injections every 12 weeks. The surgery stopped her injections in November, 6 months ago, she is now very lethargic, often confused, severely breathless.The gp say she no longer needs injections as her
nannyjude
in
LUPUS UK
7 years ago
Help with self medication
I have posted previously and have persuaded my husband, who has been unwell for several years, to start self medicating, but I feel so confused with how to go about it. He has just gone gluten free but I feel he also needs to supplement with vitamins. His test results (non fasting) were as follows: Serum
I have posted previously and have persuaded my husband, who has been unwell for several years, to start self medicating, but I feel so confused with how to go about it. He has just gone gluten free but I feel he also needs to supplement with vitamins. His test results (non fasting) were as follows: Serum
Kruzgal
in
Thyroid UK
7 years ago
Further tests
Hi. Me again. I've had a phone call from the hospital asking me to come in for further tests tomorrow, my little boy was crying at the time so all I got from the woman on the phone was a blood film test, she did say 3 things though and I thought I'd remembered what she'd said then I wrote down where
Hi. Me again. I've had a phone call from the hospital asking me to come in for further tests tomorrow, my little boy was crying at the time so all I got from the woman on the phone was a blood film test, she did say 3 things though and I thought I'd remembered what she'd said then I wrote down where
KJP723
in
Pernicious Anaemia Society
7 years ago
Help Thyroid or not?
Hi all I am new here.i am 42,for a long time I have had such tiredness,and wake up just as tired.my hair has really thinned my nails are ridged I get breathless foggy head pins and needles hands feet bloated tummy on off I had blood test last week came back normal more this week which they say are ok
Hi all I am new here.i am 42,for a long time I have had such tiredness,and wake up just as tired.my hair has really thinned my nails are ridged I get breathless foggy head pins and needles hands feet bloated tummy on off I had blood test last week came back normal more this week which they say are ok
Zoec1975
in
Thyroid UK
7 years ago
Advice please, just told got H.Pylori by Gastro, but don`t have P.A. even with positive I.F.A and P.C.A
Hi all, just back from Gastro follow up, told I have H.Pylori and mild Gastric Atrophy, BUT, do not have Pernicious Anaemia even with positive Intrinsic Factor Antibodies and positive Parietal Cell Antibodies. Gasro prescribed PPI to take with Antibiotics, but surely I have low stomach acid not high
Hi all, just back from Gastro follow up, told I have H.Pylori and mild Gastric Atrophy, BUT, do not have Pernicious Anaemia even with positive Intrinsic Factor Antibodies and positive Parietal Cell Antibodies. Gasro prescribed PPI to take with Antibiotics, but surely I have low stomach acid not high
Barry1955
in
Pernicious Anaemia Society
7 years ago
Doctors cannot make up their mind!
Hi, I'm 21 and have neuropathy and cannot tolerate the cold and am tired. ALL tests that are possible for thyroid have been run and are good, antibioties are also negative. My neuro said they think it's my B12 215 (180-900) range. I did have 10 weeks of once weekly injections of 1000mcg cyanocobalamin-that
Hi, I'm 21 and have neuropathy and cannot tolerate the cold and am tired. ALL tests that are possible for thyroid have been run and are good, antibioties are also negative. My neuro said they think it's my B12 215 (180-900) range. I did have 10 weeks of once weekly injections of 1000mcg cyanocobalamin-that
Crzygirl
in
Pernicious Anaemia Society
7 years ago
Blood tests normal??
Had my bloods taken this week, the doctor just phoned me to say bloods were all normal, but the intrinsic factor hadn't come back yet. I have been ill for 6years, started with ringing in my ears,then chronic migraine then chronic fatigue, which has slowly got worse over the 6 years, I found an article
Had my bloods taken this week, the doctor just phoned me to say bloods were all normal, but the intrinsic factor hadn't come back yet. I have been ill for 6years, started with ringing in my ears,then chronic migraine then chronic fatigue, which has slowly got worse over the 6 years, I found an article
Lizreds1
in
Pernicious Anaemia Society
7 years ago
How b12 affects the blood results?
Hi everyone, Could someone help me with a question about b12 injections for my dad. After finally convincing his GP that he needed injections, and his mother had pernicious anaemia, he will not allow monthly injections, despite the psychiatrist recommending it for 3 months to re-assess his neurological
Hi everyone, Could someone help me with a question about b12 injections for my dad. After finally convincing his GP that he needed injections, and his mother had pernicious anaemia, he will not allow monthly injections, despite the psychiatrist recommending it for 3 months to re-assess his neurological
jbthyro
in
Pernicious Anaemia Society
7 years ago
Intrinsic factor antibodies
So my Intrinsic Factor Antibodies test has come back as a 1. I believe this is normal or "negative". So no enlarged RBC, B12 at 402 in January and now this. Feeling just as bad...terrible neuropathy and neuralgia today. I just know that this will be one more weapon the GP will add to his belief that
So my Intrinsic Factor Antibodies test has come back as a 1. I believe this is normal or "negative". So no enlarged RBC, B12 at 402 in January and now this. Feeling just as bad...terrible neuropathy and neuralgia today. I just know that this will be one more weapon the GP will add to his belief that
Jesswoozer1
in
Pernicious Anaemia Society
7 years ago
B12 Active Results
Hi there guys, I had a B12 serum test about a month or more ago and the results were: 186 pmol/L out of a range of 140.00 - 724.00 However I've just had the results of an active B12 test, which are: 93 pmol/L out of a range of 25.1 - 165 I'm waiting on MMA and intrinsic factor results but from the results
Hi there guys, I had a B12 serum test about a month or more ago and the results were: 186 pmol/L out of a range of 140.00 - 724.00 However I've just had the results of an active B12 test, which are: 93 pmol/L out of a range of 25.1 - 165 I'm waiting on MMA and intrinsic factor results but from the results
BartelbySamsa
in
Pernicious Anaemia Society
7 years ago
Dr's visit as expected yesterday- he "doesn't believe" evidence I printed off for him :(
Well yesterdays visit to my GP was a farce as predicted, and once again, despite taking my printed sheets ( from library here and links sent via forum) I came away in tears. I took my partner with me as back up and another pair of ears and we both fared the same. Once again the Dr said "there is no indication
Well yesterdays visit to my GP was a farce as predicted, and once again, despite taking my printed sheets ( from library here and links sent via forum) I came away in tears. I took my partner with me as back up and another pair of ears and we both fared the same. Once again the Dr said "there is no indication
Jesswoozer1
in
Pernicious Anaemia Society
7 years ago
Please help me with questions for the Rheumatologist
Hello I was referred urgently by my GP to a Rheumatologist following persistent joint problems, a previously diagnosed hip bursitis, high white blood cell count, Negative Rheumatoid Factor, raised CRP and a 'weakly positive' ANA test (homogenous and speckled). Rheumatologist ordered various x rays
Hello I was referred urgently by my GP to a Rheumatologist following persistent joint problems, a previously diagnosed hip bursitis, high white blood cell count, Negative Rheumatoid Factor, raised CRP and a 'weakly positive' ANA test (homogenous and speckled). Rheumatologist ordered various x rays
Avocados
in
NRAS
7 years ago
Pregnancy advice
I am currently 25weeks pregnant after a couple of years of trying. I was diagnosed with PA about 10 years ago via part 1 and 2 of the schilling test. No intinsic factor antibodies, more a lack of intrinsic factor. Anyway I have carried on with my monthly injections of cyanocobalamin as advised by my
I am currently 25weeks pregnant after a couple of years of trying. I was diagnosed with PA about 10 years ago via part 1 and 2 of the schilling test. No intinsic factor antibodies, more a lack of intrinsic factor. Anyway I have carried on with my monthly injections of cyanocobalamin as advised by my
Murfie276
in
Pernicious Anaemia Society
7 years ago
blood test negative for RA factor. Could I still have RA nonetheless?
Hi I've been experiencing joint stiffness and neuropathy in hands, arms, legs, and feet since November '16. I had a blood test last week and it came back negative for Rheumatoid Factor. I also had the Anti-CCP test and that came back clear. Could I still have RA though? And is neuropathy a symptom
Hi I've been experiencing joint stiffness and neuropathy in hands, arms, legs, and feet since November '16. I had a blood test last week and it came back negative for Rheumatoid Factor. I also had the Anti-CCP test and that came back clear. Could I still have RA though? And is neuropathy a symptom
tracyd59
in
NRAS
7 years ago
Ask To Show You These Results By Thyroid Site
I have been asked to post some blood results to you from my Dr, from Thyroid site..... Serum Vitamin 12 Level ( XE2pf )...Results:...636 ng/L [ 190.0 - 660.0 ]....Normal Serum B12....( False normal B12 results can occur rarely )....Contact Haematologist if clinical suspicion of B12 defiency: New B12
I have been asked to post some blood results to you from my Dr, from Thyroid site..... Serum Vitamin 12 Level ( XE2pf )...Results:...636 ng/L [ 190.0 - 660.0 ]....Normal Serum B12....( False normal B12 results can occur rarely )....Contact Haematologist if clinical suspicion of B12 defiency: New B12
maypole66
in
Pernicious Anaemia Society
7 years ago
Intrinsic Factor and Gastric Parietal Cells Negative
Hi folks, Any advice would be much appreciated. I have today had my tests for IF and Gastric Parietal back and they are negative. My serum B12 is lower than last time but still high in range. I have almost all the symptoms and a family history of PA. I want to pay for private blood tests for Homocysteine
Hi folks, Any advice would be much appreciated. I have today had my tests for IF and Gastric Parietal back and they are negative. My serum B12 is lower than last time but still high in range. I have almost all the symptoms and a family history of PA. I want to pay for private blood tests for Homocysteine
AmyG6500
in
Pernicious Anaemia Society
7 years ago
Follow up re my first post a couple of days ago to introduce myself .I had my 1st visit to Dr yesterday to broach subject of B12 deficiency.
Well folks, my first visit to my GP yesterday to discuss the POSSIBILITY of low B12 levels was met with just the suspicion and hostility that I predicted. I came away in tears and once again felt like I was wasting time and should really just get on with being a neurotic, 58 year old, depressed whinger
Well folks, my first visit to my GP yesterday to discuss the POSSIBILITY of low B12 levels was met with just the suspicion and hostility that I predicted. I came away in tears and once again felt like I was wasting time and should really just get on with being a neurotic, 58 year old, depressed whinger
Jesswoozer1
in
Pernicious Anaemia Society
7 years ago
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