I was diagnosed with a B12 deficiency in 2011 after symptoms (dizziness, brain fog, sore tongue, sore lips, speech problems, extreme tiredness, feeling restless and lethargic, extremely dry skin, pins and needles in hands and feet, dizziness, memory problems, difficulty thinking and speaking properly) getting progressively worse for about a year. I also had symptoms prior to that, and never had a diagnosis they put it down to anxiety or chronic fatigue. I also had recurring water infections and stomach related symptoms. I didn't test positively for intrinsic factor anti-body, just the deficiency. I had B12 loading doses, folic acid, iron and vitamin D and within two weeks, I went from feeling really unwell to feeling amazing. This lasted almost right up until my first three monthly injection, which didn't last long and pretty soon I was back to square one. My GP took me off the injections as my levels were high, so they said it couldn't be that....but my symptoms were the same as before (so frustrating!). I took things into my own hands and started self injecting, again within a week or so I felt better. I continues to inject B12 regularly for about 3 years with no problems, and felt well most of the time. I thought the problem was solved. Believe me I didn't take this lightly, I'm the sort of person who is scared to take an aspirin....but I was desperate to get better. However in Feb 2015, I began to get other symptoms...head pressure, muscle weakness, slurred speech, feeling faint, heart palpitations....this was MUCH worse than having B12 deficiency. I put it down to the injections and stopped having them. Then I heard that B12 injections can cause pottasium levels to drop, and was scared that this is what had happened to me (terrified if I'm honest), so I stopped injecting. After about a month, these symptoms subsided and I felt well for six months....I was hoping that I didn't need them anymore! My GP said my blood levels were fine (for everything....B12, pottasium, iron, folate etc). I was low in D3 but I do now take vitamin D. In October 2015 my B12 deficiency symptoms came back, so I gave myself loading doses, but the low pottasium symptoms came back (this is what I think they are)....then wore off and I was well again for another 5 or 6 months. Did it again in May last year, and still didn't feel good....just carried on feeling really rubbish....so had B12 again in June and was well for about 3 months. Then October after just one injection I actually fainted a couple of times not long after I had it, I tried to take pottasium supplements, and stopped the B12 but realised that pottasium overload can be really dangerous as well so I stopped that. I found that if I had an injection I felt faint and horrible afterwards and had head pressure. In January I tried spacing the injections out every few days, and making sure I was drinking coconut water, 2-3 bananas a day and taking folic acid.....I felt well around December, Jan, Feb and March. However after having injections in Apr, I felt worse again....and now I just don't know what to do....I'm not having clear answers from the GP....I feel all over the place with it....I want to get well, but I want to be safe and do it under proper medical supervision. It is affecting every aspect of my life, my job (really badly...cos I'm dragging myself into work despite being really unwell), I make mistakes, get stressed and have withdrawn into myself quite a lot (cos I just feel really ill) I no longer drive, I avoid going too far away from home, I ended a long term relationship about 3 years ago (not because of this), but since then I've found that I push potential relationships away because of how I'm feeling, and when I don't feel up to going out and stuff. It's seriously impacting on my life. I'm now in my 30's and haven't had kids yet...and feel that even if I was in the right relationship it wouldn't be a possibility as it would be too dangerous cos of my blood levels....I'm at a complete loss as to what to do....I'm now terrified to have B12, but can't not have it either....I know that NHS protocol will deem that I only need them once every 3 months if at all...and I know I don't cope on that. I feel I need to see a haematologist but from what I've read, feel sure they would only tell me the same. This low pottasium thing scares the hell out of me cos I've heard it can be life threatening (although my GP says my pottasium levels are normal)....They are also looking into the stomach thing for things like ulcerative colitis, Chron's or coeliac.....I'm in an absolute mess with this and have no idea what to do to get better. Please help.